brightwalker32 said:It might be because I've been dealing with mild damage for a while now, but I have to admit these medications are really taking a toll on me. People tell me to stay positive, but honestly, it’s tough to maintain that mindset when you're feeling this way. Sent from my iPhone 12 using Reddit
Didn't you mention earlier that you hadn't undergone any testing yet? As in, you hadn't done any medical screenings prior to visiting the ER? - It seems like finding a truly qualified and serious psychotherapist is becoming an impossible task lately. It’s like trying to find a decent mechanic in a city full of amateurs. He’ll never be the one to tell you that.
brightwalker32 said:How was I supposed to study without any complaints until April? It’s tragic that someone is dealing with cancer, but personally, that doesn't change my situation. Under American patient rights laws, they really should have asked for my consent before giving me that injection. If they had actually consulted me, I never would have agreed to it...
Sent from my iPhone 12 using Reddit
It’s much like how several unrelated events can unfold at once—whether it's two, three, or even fifteen different things happening simultaneously. If you have anything else to share... go ahead. The neurological damage is quite evident in the test results. It isn't necessarily related to everything you're throwing into the blender.
Based on the laws regarding emergency medical services... are you absolutely certain that when paramedics arrive, they have to ask if someone actually wants help? And if someone is in bad shape, can they just insist on having a moment to Google their symptoms before deciding how to proceed?
No matter how much I try to downsize my image files, they always end up appearing massive once they're actually posted. I’m a bit lost here... anyone else experiencing this? (I'm using Tapatalk since it's just more convenient for me, even though I resize them beforehand.)
Isn't that a bit too fast? I can't recall the exact details off the top of my head, but I have a tapering schedule somewhere that my rheumatologist wrote for me. It was with Medrol, but we were at 8mg daily, and honestly, it took much longer than a month... something like two weeks at one dose, then dropping to 4mg the next day, followed by two weeks at 4mg, and then another two weeks taking 4mg every other day... I know that Decortin comes in a minimum dose of 5 per tablet, while Medrol is 4, so I assume the tapering process would be pretty similar. Or perhaps my rheumatologist was just being extra cautious because I had been on it for such a long time...
velvetmoose9 said:If things play out the way I suspect they will, our friend here might be stepping away from the forum for quite a while. 🕺
lonefalcon41 said:What are you suspecting? To me, it looks like there might be some kind of (pseudo)bowel obstruction, though I'm not quite sure what the underlying cause could be... or perhaps it's megacolon. 🤷
I’m going to take a guess... maybe something like a rhythm?
I understand where you're coming from. However, the reality remains that you don't have any baseline data to work with. Without those initial records, it’s impossible to accurately compare how you felt before versus how you feel now. Besides, Dr. Google and Dr. Facebook aren't exactly reliable places to go for a medical diagnosis. The internet is certainly a helpful resource. But without clinical testing and professional examinations, a person can't simply self-diagnose based on a few symptoms alone. Over the years, I’ve gained quite a bit of experience managing my own health issues... I’ve done my research and had my suspicions... and while it did eventually turn out to be what I suspected... I didn't just declare, "I have this specific condition." No, I went to see specialists and underwent countless tests until we finally uncovered the truth.
It seems like you've rushed into taking Tylenol without considering whether your symptoms might actually be part of an underlying issue—one that hasn't even been addressed yet. I'm not saying Tylenol can't cause side effects. Of course it can; it's true for almost any medication. For some people, side effects pass quickly, while for others, they linger.
As we can see from our discussions here, this forum is also a place for sharing longer stories. Yours would certainly be interesting, especially regarding the Tylenol. Having more context is always beneficial.
On a side note, if you've looked into it, you might find that certain compounds possess antipsychotic properties, but they haven't ever been officially approved or used for that purpose in clinical practice.
Then there's Tramadol, which is an opioid analgesic. It’s used for severe pain, but it carries a risk of dependency. And so on. People can suffer anaphylactic shock from a medication. Anything can happen. It's unfortunate.
I doubt anyone will tell you that your current symptoms are side effects of Tylenol, or that a single dose of Tylenol caused a flare-up of an underlying condition. The reason is simple: according to your own records, there is no documented illness to begin with. Posting on Facebook isn't a substitute for a medical diagnosis or a formal health history.
I realize this perspective might be difficult to hear. But we have to be realistic.
Your story essentially boils down to: "My head was spinning and I felt terrible, so I went to the ER; they gave me Tylenol without question, and now I feel even worse because I have a condition I diagnosed myself via Facebook that no doctor has verified, and now I'm blaming the Tylenol."
They didn't mention... report the side effect to Johnson & Johnson. If you don't have any previous test results, how can you be sure what happened? (Do you mean you didn't bring them to the ER, or that you don't have them at all?)
I'm allergic to certain medications—some I can't take at all—and I live with SLE.&APL; so I always carry my medical records with me. Since nobody knows my history, there's no way to predict what might happen. On top of that, I've had to visit the emergency room a few times, and I always make sure to emphasize which drugs I must avoid, along with my diagnosis and current prescriptions. Because if you don't tell them, they won't know; they’ll just follow standard hospital protocol.
I don't quite understand why you didn't let them know you shouldn't take Torecan. You really should have shown them your medical history where that is documented.
They always ask about allergies and similar concerns, and they record everything in your medical file, which you eventually receive. They have no intention of giving someone a drug they are allergic to. But you absolutely have to mention it, rather than assuming they already know your history.
restlessridge20, you might want to give Glacier a shot. ( A family member went through something very similar to what you're describing, though without any involvement from the Republican Party... doctors just couldn't pin down the cause, and it was a real struggle. They found some relief using an artificial saliva like Glacier. B vitamins didn't make much of a difference, but sometimes those small changes can help someone else. Other things that helped were sipping chamomile tea, sticking to bland foods, and using a gentle kefir and mild toothpaste. ) https://buc.kim/d/5oLbzpv6uQI3?pub=link [GELCLAIR - About Glacier] And maybe something like this: https://buc.kim/d/6h38lW52UlAS?pub=link [Oralgal artificial saliva 30 doses - Galenical Laboratories : California Pharmacy]
1.) Have you reported any suspected side effects from Torecan to your doctor or the FDA? 2.) Did you consult with a specialist pharmacologist? 3.) What specifically led you to visit the ER during your time on Torecan? 4.) I assume you have lab results from both before and after starting Torecan? Based on your description, it sounds like you’ve undergone quite a thorough investigation to track this decline—likely involving a pharmacologist, a neurologist, a cardiologist, an EMG, and even a Holter ECG. It seems like the only logical way to get to the bottom of things.
For me, Torecan was a lifesaver when I couldn't even walk on my own due to balance issues. It worked wonders for my neighbor dealing with Meniere too.
Everyone reacts to medication differently. One person thrives on a drug, another gets a side effect, and a third might have an allergic reaction.
I’m personally considering trying out kinesiology tape—though I’m curious to see how my orthopedic surgeon reacts when we finally meet (my physical therapist just gave me a skeptical look when I brought it up...). Another thing on my mind is the best way to wear this night splint for PF.
These night splints for PF look just like this (mine was made of plaster, but I added my own Velcro straps myself, which I mentioned earlier). It cost a bit less than $233, and there’s a similar, though arguably lower-quality version available here in the States... I don't want to turn this thread into an ad, but I did see a listing for one for $69 locally, and honestly, I wouldn't touch it. The ones in the photos are about $30; I imagine there's a way to order something like this without getting hit by insane shipping fees. Alternatively, you could just have an orthotics clinic make a custom plaster cast for you. To find a specialist... try searching "plantar fasciitis" on the Mayo Clinic or Johns Hopkins websites to see which doctors pop up. (Unfortunately, even though I haven't done a deep dive yet, it seems like many specialists have moved into private practice... I usually stick to major university hospitals, so I'll need to dig through those medical articles to find someone who specializes in this.)
mellowskipper52 said:Sophia is totally hitting the nail on the head... most people with PF don't even have heel spurs. I've been struggling with this for about 6 months now. The real kicker is that I run recreationally, so just when things start settling down, I go out for a run and—bam—PF is right back there...
Sophia, where did you pick up that splint and how much did it run you? And hey, if you happen to be in New York City, any chance you could recommend a good orthopedist? I've seen three different specialists already and they all have completely different opinions and diagnoses, and honestly, none of them have actually helped... :/
Better late than never, I suppose—I’m about a year behind on my reply! 🙂 ) 🙂 😁 Well, maybe this will be helpful to someone out there.
I ended up wearing just a standard, heavy plaster cast. They fitted me for it at the orthopedic clinic the very same day I saw my specialist—who, by the way, actually moved to Ireland recently. His name was Goran Bićanić, and now that I need follow-up treatment, I’m feeling a bit lost on where to go next. I might be a little obsessive, but I’ve decided to take a more academic approach this time. Instead of just bouncing between specialists like a pinball—which usually results in zero progress and a lot of wasted time—I’m going to dive into PubMed and Google Scholar first. I want to see who has actually published serious research on my specific condition before I even think about booking an appointment. It feels much better to find a true expert through their work rather than just picking someone at random. 😁 ) It’s essentially like a cot. Goodness, what a mess... I honestly thought I was going to end up breaking my other ankle. If my memory serves me right, it’s been about nine weeks now, and I've gone from one leg to the other. They wrapped it up in a compression bandage to keep everything steady, but it felt so stifling and itchy that I couldn't stand it. I ended up grabbing some medical tape from the drugstore and cut it myself to secure the splint in three different spots instead. 😁 That was quite an enjoyable experience for me. I was feeling a bit short-changed back then... honestly, I felt like I got a bit ripped off by them. I ended up having to head to a local orthopedic clinic just to pick up a brace for my PF, which was right around the corner in 2015. $267It’s basically a mix of plastic bits, fabric, and Velcro. It’s tough when you're tossing and turning all night like a spinning top, especially since this cast feels like a heavy weight I can barely carry. To give some context, she wears it overnight to keep her plantar fascia from tightening up while sleeping; essentially, it keeps the tissue in a stretched position. I've found that wearing it for a few hours in the evening helps too—kind of like how you might stretch after a long day at the office. If I lounge on the couch to read or watch TV, I'll put it on then, which offers some relief even if it isn't quite as effective as wearing it through the night. Whenever I’m feeling under the weather, I find it helpful to wear it overnight for a few days, then switch to wearing it for just a few hours in the evening. It’s a bit like walking on eggshells, though—you have to be extra careful when you're moving around so you don't accidentally crush it.
I truly hope this proves helpful to someone out there.
It’s been six days of me calling Johns Hopkins Hospital—specifically the lab info line in the green building—and I can't get through. I’ve sent two emails regarding an order, but nothing. For six straight days, it's just a busy signal. They show they're open from 1:00 PM to 2:00 PM, but even when I start trying at noon yesterday and today, there's no answer. I realize they must be slammed, but at some point, you'd think someone would pick up once they get tired of the ringing. Today, I actually lost my cool a little bit... I set my phone to auto-dial continuously until I finally reached someone. It dialed about 60 times before I finally gave up and turned the setting off. I am beyond frustrated. The number is 012376310
By the way, feel free to go ahead and take high doses of things like Neurobion quite often... just let us know how you feel afterward. 😵 ( honestly, if it actually worked the way all the "experts" on this forum and in those commercials claim, Neurobion would already be a prescription drug... I guess someone just missed out on a huge payday, if you ask me. )
Check out this article from '79 about those studies on Vitamin B6 trials in male rats... that is exactly what we need! Do you think the animal rights groups in Chicago actually provide Vitamin B6 to their male rats? 🤣 ( they've certainly multiplied 😁 )
Kimberly Alvarez6 said:I wouldn't go that far, I guess 🙂. For an NT scan, you'd be dealing with actual pain and stuff. This isn't even about pain; it's more like occasional pressure. It doesn't hurt when I touch it—not at all, really. I had an MRI and a CT scan done about two years ago, and everything came back totally normal. Maybe it's just my sinuses, since one side is always stuffed up? 🤔
Trigeminal neuralgia is so intense that "pain upon touch" almost feels like an understatement. It doesn't hurt when I touch it either. The pain just exists on its own; it's so overwhelming you feel like banging your head against a wall. It's truly indescribable.
Well, true... On the flip side, when you're dealing with autoimmune issues, ramping up your defenses isn't always the move—it can actually be counterproductive and even harmful. Think of it like this: if your immune system is already overactive and attacking its own healthy cells (simplifying things here, of course...), adding immune boosters is like throwing gasoline on a fire. It just makes the situation worse.
That said, if someone maintains a pretty balanced diet and generally healthy lifestyle, they probably don't need to rely on those supplements at all.
Well, true... On the other hand, if you're dealing with an autoimmune condition, taking immune boosters isn't exactly a great idea—it can actually be counterproductive and even harmful. Think of it like this: when you're using supplements to ramp up the immune system, you might be fueling a fire that's already burning too hot. Since an overactive immune system essentially mistakes its own cells for invaders, adding more "fuel" to that response could just make things worse.
That said, I still feel that if someone maintains a pretty balanced diet and generally healthy lifestyle, those extra supplements aren't always a necessity.
It sounds like you're just describing the side effects of an overdose... Even though Neurobion combines B1, B6, and B12, it’s still worth glancing at the label since it packs such a heavy dose of B6. [Neurobion forte 100 mg/200 mg/0.2 mg film-coated tablets - Drug Database | Pharmaceuticals: HALMED]
High doses like those turn this into a medication rather than just a simple supplement you pick up because you think you might be low on something. Plus, research shows that taking extra vitamin and mineral Supplements isn't really necessary for healthy people; in fact, it can sometimes backfire. For certain conditions, doctors prescribe specific preparations in exact dosages, while other supplements might even be forbidden during certain treatments—like how antioxidants can interfere with radiation therapy. Look, if things aren't working out... they aren't. That's just life. By the way, pass me that link... not that I need it, but I'm curious to see who's making the claim. I'm hoping for a study or an article from PubMed rather than a manufacturer's site; I don't trust those guys, as they tend to embellish everything. Good night 😁