Torecan (tietilperazin)

I was already dealing with some mild brain damage from chemical exposure—you know, the usual suspects: feeling emotionally numb, sexual dysfunction, cognitive fog, tinnitus, bouts of insomnia, and issues with regulating my body temperature. Then, while I was at the ER, they just handed me Torecan without even asking. I didn't want it, and honestly, I should have fought harder. Since then, my life has been a total nightmare. It’s been two months of pure hell. This second wave of damage has made my initial condition look like nothing; it's a thousand times worse. During that first week, I could barely speak, eat, or even walk straight. That part eventually passed, but now? Now I'm facing almost complete emotional numbness—which, let me tell you, has absolutely wrecked my quality of life. Add to that severe sexual dysfunction, even deeper cognitive impairment, worsened tinnitus, shallow sleep, and even more intense insomnia, chronic fatigue, dysautonomia (my heart races and I can't sweat properly anymore), partial loss of sensation in my skin, a diminished sense of smell and taste, and even vision issues. Before this, I could still live a decent life despite my bad days. Now, this second blow has completely dismantled everything. I'm only 23. I had so many big plans lined up, from finishing my degree to getting married, and now I'm just stuck in survival mode, wondering if I'll even make it through. I can't stop asking myself, "Why me?"

Does anyone here have any experience with Torecan?

I'd really appreciate hearing your stories. Thank you.

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None of that stuff caused me any issues with Torecan during my year and a half on it—first almost daily, then just as needed about ten years ago. Honestly, even my neighbor doesn't complain about problems like yours; she just takes it occasionally for nausea and dizziness.

In my opinion, a single pill or injection might have been an issue if it triggered an allergic reaction, but it wouldn't cause that whole list of problems you've been dealing with long before that.

I used to deal with some issues before, but honestly? Everything has gone downhill a thousand times over. If you want to take my word for it, go ahead. If not, well, that’s on you.

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1.) Have you reported any suspected side effects from Torecan to your doctor or the FDA?
2.) Did you consult with a specialist pharmacologist?
3.) What specifically led you to visit the ER during your time on Torecan?
4.) I assume you have lab results from both before and after starting Torecan? Based on your description, it sounds like you’ve undergone quite a thorough investigation to track this decline—likely involving a pharmacologist, a neurologist, a cardiologist, an EMG, and even a Holter ECG. It seems like the only logical way to get to the bottom of things.

For me, Torecan was a lifesaver when I couldn't even walk on my own due to balance issues.
It worked wonders for my neighbor dealing with Meniere too.

Everyone reacts to medication differently.
One person thrives on a drug, another gets a side effect, and a third might have an allergic reaction.

1. I am
2. I’ve been on the phone with some pharmacists from Johnson & Johnson and even chatted with a local pharmacist.
3. Honestly, I'm just terrified that I might have some sort of damage to my vertebral artery following an injury
4. The thing is, I don't have my previous medical records on hand, which is part of why this whole mess happened. My old health issue was actually a contraindication for Torecan. So now, I'm stuck playing the waiting game for an appointment with a neurologist, which isn't until August.

I could try to dig into the science behind this myself, but there isn't really a specialist out there who focuses on this specific niche. I've known that since the very first time I got sick.

Since some of you have used Torecan before, I was wondering—did you run into any nasty side effects?

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They didn't mention... report the side effect to Johnson & Johnson.
If you don't have any previous test results, how can you be sure what happened?
(Do you mean you didn't bring them to the ER, or that you don't have them at all?)

I'm allergic to certain medications—some I can't take at all—and I live with SLE.&APL; so I always carry my medical records with me. Since nobody knows my history, there's no way to predict what might happen.
On top of that, I've had to visit the emergency room a few times, and I always make sure to emphasize which drugs I must avoid, along with my diagnosis and current prescriptions.
Because if you don't tell them, they won't know; they’ll just follow standard hospital protocol.

I don't quite understand why you didn't let them know you shouldn't take Torecan.
You really should have shown them your medical history where that is documented.

They always ask about allergies and similar concerns, and they record everything in your medical file, which you eventually receive. They have no intention of giving someone a drug they are allergic to. But you absolutely have to mention it, rather than assuming they already know your history.

Unfortunately, I don't have any prior medical records because the whole situation is such a tangled mess; my primary care physician wouldn't even listen to what happened to me. It wasn't until a year and three months later that I actually figured out which diagnostic tests were necessary to assess the damage—specifically a qEEG and a brain SPECT scan—thanks to some groups on Facebook. Then, a year and four months down the line, I finally discovered the actual name of my diagnosis through Facebook as well. I bitterly regret not being more proactive back in December. I would have had to travel to New York City since you can't get a qEEG in San Francisco. But honestly, I wasn't in any rush. I pushed it off until summer, prioritizing college instead, and then this hit me out of nowhere in the middle of the night on April 20th. Today marks exactly two months of pure hell. It was my mistake for not securing my medical documentation regarding the injury earlier; I just didn't expect to be struck by something like this, so I didn't feel the urgency. Personally, I didn't even know Tylenol existed until they administered it to me, so there was no way I could have mentioned an allergy. They didn't even give me a full hearing. As soon as they saw they could hand me Tylenol, they jumped right at me with it. If a person isn't in immediate life-threatening danger or facing permanent consequences, they have the right to self-determination. And in any case, a patient has a fundamental right to be informed. In my case, all of that was denied to me—three separate articles of the patient protection laws were violated. I regret not asking exactly what gets administered in the ER and how. If only I had known.
Pharmacists from the FDA Drug Database have added my symptoms from the Tylenol reaction to their database.

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https://www.drugbank.ca/drugs/DB00372

If you look up Tylenol in the FDA Drug Database, you'll see it's classified as a neurotoxic substance, among other things. It’s also categorized as an antipsychotic. According to the official guidelines, Tylenol belongs to the phenothiazine class—which is really just a fancy way of saying they are first-generation antipsychotics. This is the same family that includes drugs like fluphenazine and chlorpromazine, which are commonly used here in the States to treat schizophrenia. Now, look, if you're a healthy individual, taking a couple of doses isn't going to do much of anything to you, especially if you aren't taking them back-to-back. If your body handles it well, even longer-term use shouldn't be an issue. That said, I have come across accounts from people in Europe describing nasty side effects even after very short courses. And let me tell you this: if someone already has nervous system damage caused by chemical exposure, then Tylenol is basically a guillotine for them.

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I understand where you're coming from.
However, the reality remains that you don't have any baseline data to work with. Without those initial records, it’s impossible to accurately compare how you felt before versus how you feel now.
Besides, Dr. Google and Dr. Facebook aren't exactly reliable places to go for a medical diagnosis.
The internet is certainly a helpful resource.
But without clinical testing and professional examinations, a person can't simply self-diagnose based on a few symptoms alone.
Over the years, I’ve gained quite a bit of experience managing my own health issues... I’ve done my research and had my suspicions... and while it did eventually turn out to be what I suspected... I didn't just declare, "I have this specific condition." No, I went to see specialists and underwent countless tests until we finally uncovered the truth.

It seems like you've rushed into taking Tylenol without considering whether your symptoms might actually be part of an underlying issue—one that hasn't even been addressed yet.
I'm not saying Tylenol can't cause side effects.
Of course it can; it's true for almost any medication.
For some people, side effects pass quickly, while for others, they linger.

As we can see from our discussions here, this forum is also a place for sharing longer stories.
Yours would certainly be interesting, especially regarding the Tylenol. Having more context is always beneficial.

On a side note, if you've looked into it, you might find that certain compounds possess antipsychotic properties, but they haven't ever been officially approved or used for that purpose in clinical practice.

Then there's Tramadol, which is an opioid analgesic. It’s used for severe pain, but it carries a risk of dependency.
And so on.
People can suffer anaphylactic shock from a medication.
Anything can happen.
It's unfortunate.

I doubt anyone will tell you that your current symptoms are side effects of Tylenol, or that a single dose of Tylenol caused a flare-up of an underlying condition.
The reason is simple: according to your own records, there is no documented illness to begin with.
Posting on Facebook isn't a substitute for a medical diagnosis or a formal health history.

I realize this perspective might be difficult to hear.
But we have to be realistic.

Your story essentially boils down to: "My head was spinning and I felt terrible, so I went to the ER; they gave me Tylenol without question, and now I feel even worse because I have a condition I diagnosed myself via Facebook that no doctor has verified, and now I'm blaming the Tylenol."

More information regarding Tylenol

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Even without a mountain of paperwork or clinical findings, I know deep in my bones how much Tylenol messed me up. I remember vividly how my brain functioned before I took it, and I see the reality of how it works now. It is truly tragic how people suffering from specific impairments end up scouring Facebook just to find information about their own condition because mainstream medicine and doctors refuse to acknowledge it exists. Like thousands of others I've met online, I suffered chemical brain damage from "antidepressants" (AD)—in my case, generic fluoxetine (the kind you get at a local pharmacy). My doctor stubbornly denied that the AD had caused any harm to me. So many people facing this exact issue have been told they’re just psychotic when they try to complain to their physicians. One of my online friends was nearly forcibly hospitalized under a diagnosis of psychosis simply because he insisted he was experiencing permanent sexual dysfunction caused by AD. Even when people manage to see a neurologist, those specialists often don't know how to handle it or which tests to run because they’ve never encountered anything like it before. Facebook groups have become the primary lifeline for information and support for those damaged by psychotropic drugs. Once I finally gathered the right info, I planned to do some private research—I wasn't in a rush, I didn't make it my top priority, and well, look what happened. Finally, just two weeks ago, the FDA acknowledged PSSD (post-SSRI/SNRI sexual dysfunction—permanent sexual dysfunction resulting from SSRIs and SNRIs, link https://rxisk.org/ema-acknowledges-p...r-ssris-snris/). Honestly, even the term PSSD is a misnomer because other classes of drugs can also trigger this state, and it isn't just limited to sexual dysfunction; it affects other brain functions too, like emotions and cognitive abilities. The scientifically accurate name for this condition should be neurotoxicity or toxic encephalopathy, terms usually reserved for things like heavy metal poisoning or acute pesticide exposure. Yes, that was my illness. Those of us suffering were left entirely to our own devices, cast aside by the medical establishment, with Facebook groups serving as our only sanctuary. It is pathetic that you have to hunt through social media groups just to find the truth about your own health. Pathetic and infuriating! It's not just that doctors dismiss us; society itself multiplies the trauma. They claim we’re making it up or imagining things, insisting it's impossible for AD to cause such damage. All of this leaves you wandering around with an undiagnosed illness, and that is exactly what happened to me. Some people just aren't meant to survive this. My biggest mistake was letting my efforts to pursue a diagnosis slip in December. And thanks to everyone who continues to multiply the misery. I know exactly who I was before and how much Tylenol damaged me, even without a single piece of paper, because my brain functions are mine alone, and I know better than anyone what is happening to them without needing anyone to convince me otherwise!
To circle back to how the EMTs acted. By doing what they did, they violated three points of the law, but honestly, that hardly matters because in this country, treating people that way is considered perfectly normal and acceptable. Most people apparently don't mind being treated like cattle. I didn't go to them because of dizziness; I went because I was scared it might be something more serious, and instead, they did this to me. They effectively killed me for no reason at all.

Honestly, guys, I am hanging by a thread every single day. It’s pure agony. Even right now, my heart is racing uncontrollably—this tachycardia I developed after getting that Tylenol injection. It hits me hardest in the morning. Sometimes it isn't there, but then the ringing in my ears starts. I can't even think straight because my brain feels completely fogged up. I feel totally detached from reality, almost like my emotions have just been switched off. On top of that, I’m dealing with total sexual dysfunction. I genuinely feel like I won't make it past the next three years because of the damage this caused. Every single day is a struggle. I don't even bother asking "why me?" anymore; that question is just pointless. I can't even focus enough to study for my college courses. I miss my life before that injection so much it hurts. Now, I’m completely dependent on my mother. My 24th birthday is coming up in a month, but I feel like I'm 84 and nearing the end of the line. All my plans for marriage? Gone. My entire life was wrecked by one single Tylenol shot that I didn't even want. They forced it on me while I was in the middle of a panic attack. The doctor wouldn't even tell me what she was administering! She just said, "It'll all be written on your medical report." That moment alone stripped away whatever tiny bit of self-confidence I had left to stand up for myself. I felt psychologically coerced into taking it. I honestly suspect she did it because she was getting some kind of commission on those shots. Regardless, my life is ruined. I live through this agony daily; beyond the physical damage, I am carrying deep psychological trauma from this whole ordeal. Is it even possible that this happens in the 21st century? Honestly, they should have just given me an end-of-life injection instead of doing this to me. The only reason I'm still here is for my mom. I don't even have the words to describe this level of suffering.

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brightwalker32 said:Guys, I am on the edge every single day. I’m living through pure agony. Even right now, I’m struggling with tachycardia just from that Tylenol injection. It hits me harder in the morning. Sometimes it isn't there, but then my ears start buzzing. I can't even think straight because my brain feels totally foggy. I feel disconnected from reality. Like, I have zero emotions left. And the sexual dysfunction? Total. I honestly feel like I’m going to die within three years because of the damage this caused. Every day is just a nightmare. I don't even ask "why me" anymore because that's just pointless. I can't even focus enough to study for college. I miss my life before this shot so much. Now I'm basically dependent on my mom. My 24th birthday is next month, but I feel like I'm 84 and nearing the end. All my plans to get married—gone. My entire life was wrecked by one Tylenol injection that I didn't even want. They forced it on me while I was in a total panic. The doctor wouldn't even tell me what she was giving me! She just said, "It'll be on your charts." That took away the last bit of confidence I had to actually stand up for myself. I felt mentally coerced into taking it. Honestly, I suspect she did it just to grab a commission on those shots. Whatever the reason, my life is ruined. I'm going through hell daily, and beyond the physical damage, the trauma is massive. Is it even possible for this to happen in the 21st century? Honestly, they should have just given me an injection for euthanasia instead of doing this to me. The only reason I'm still here is for my mother. I don't even have the words to describe this suffering.

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Find yourself a good neurologist or a psychiatrist/psychologist. This stuff isn't just about that one injection. Every medication comes with side effects. Believe me, I'm telling you this as someone who has been hovering right between life and death. When you're standing at the counter and you feel water starting to flood your lungs and heart... I took the meds I had to take, because if I hadn't, you know exactly where I'd be today: six feet under.

It really makes a difference because I was already dealing with some underlying damage before this. Since getting that injection, things have gone from bad to a thousand times worse. On top of that, I’m dealing with brand new symptoms like tachycardia. Honestly, it all depends on what you were actually taking. I’ve taken antibiotics, standard painkillers, fever reducers, even stomach meds, and I never had an issue! Not every medication is cut from the same cloth—they don't all carry the same side effects or the same level of risk when it comes to long-term consequences. We're talking about an antipsychotic administered via injection here. I’ve read reports where perfectly healthy people experienced all sorts of side effects, and some even suffered lasting damage. So, it’s hardly a shock that this hit me so hard given my pre-existing condition. For someone with my specific issues, even basic stuff like antibiotics or Tylenol can trigger a flare-up, let alone an injectable antipsychotic. I went to see a neurologist, but of course, she just brushed me off, claiming it was "all in my head"—which is basically the classic script doctors use whenever you try to report drug side effects. They defend these medications because they’re often incentivized by commissions, so they insist your symptoms are just psychological. I’ll likely have to seek out a private neurologist. I do see a psychiatrist occasionally, though she doesn't quite grasp the full picture; she does, however, acknowledge that these drugs caused this. She tells me I should try to stay positive, but man, when you're feeling like this, staying positive is easier said than done.

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brightwalker32 said:It doesn't matter because I already had some underlying damage. After that injection, things went 1,000 times worse. On top of that, I've got new symptoms like tachycardia. It really depends on what you were given. I've taken antibiotics before, pain relievers, fever reducers, stomach meds... nothing happened! Not all drugs are created equal; they don't all have the same side effects, and they aren't equally risky when it comes to long-term fallout. This is an antipsychotic, for crying out loud, and it was an injection. I read that even perfectly healthy people had all sorts of side effects from it, some even facing permanent consequences. So it’s no surprise what it did to me, considering my pre-existing condition. For someone with my kind of damage, even basic antibiotics or Tylenol/ibuprofen can make things worse, let alone an antipsychotic shot. I went to see a neurologist, and of course, she just brushed me off, claiming it's "all in my head"—the classic line doctors drop when you complain about drug side effects. They defend these medications because they're basically getting kickbacks, then tell you it's psychological. I'll have to see a private neurologist instead. I see a psychiatrist occasionally; she doesn't quite get it, but at least she admits these drugs messed me up. She tells me to stay positive, but honestly, it's hard to be positive when you feel like this.

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Look, unless you graduated medical school, doctors are basically treating patients based on Dr. Google and Facebook. I’m telling you this as someone who almost choked to death—water was literally flooding my lungs and heart. I'm currently waiting on heart surgery. If you had pre-existing damage, you were supposed to warn the doctor. So, what you're saying doesn't really hold water. I took Augmentin for years before finding out I was actually allergic to it. They always take a medical history and ask about previous meds. I've personally experienced how side effects can change everything. And a private neurologist? That's the exact same thing. Unfortunately, I have way too much experience with this.

Look, if you’re actually choking up because your heart is racing out of control, you’d be heading straight to the ER instead of typing away on a forum.

For me, it just comes in waves. This morning was particularly rough, but I’m starting to feel a bit more steady now. It’s that classic case of dysautonomia. I deal with all the symptoms—I don't sweat enough, so I tend to overheat whenever it gets warm out. Then in the winter, I get these sudden hot flashes (that last part has been hanging around since my initial injury). I know some of you probably can't stand my posts because I spoke out against using > in this situation. Honestly, I don't hold any grudges against anyone here. It's just hard to wrap your head around the extent of the damage. Maybe it's my own mistake even bothering to post here, but whatever—I just needed a place to vent. Being stuck home alone today made everything feel especially heavy. Ever since this happened, being by myself is a massive struggle. That's when the despair really starts to sink in.

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brightwalker32 said:For me, it just comes and goes. It hit me really hard this morning, but I’m feeling a bit better now. It's that whole DISAUTONOMIA thing. I’ve got other issues too. I don't sweat enough, so I basically overheat whenever it gets hot out. Then in the winter, I get these sudden hot flashes (been dealing with those since my first injury). I know you guys hate my posts because I spoke up against using Tylenol in this situation. Honestly, I don't care what you think. It's hard to understand what kind of damage has been done. Maybe it's my own fault for even posting here, but whatever, I just needed to vent somewhere. I was stuck home alone and it felt especially rough. Ever since this happened, being by myself is a huge struggle. That's when I really spiral into despair.

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This is a textbook case of anxiety and depression. Mixed with something else. It isn't about the medication, really. You're all just trying to find excuses for everything. At the end of the day, we all manage our own lives.

A 50-count pack of Tylenol comes $47...so $0.94 per ampule. Just how many would a doctor need to prescribe to actually make a decent commission—say, if the kickback was sitting at 30%—to make it worth throwing away their entire medical school education? Look, your conspiracy theories just don't hold water. And for the record... I’m neither a doctor nor a pharmacist.

Kimberly Ward said:This looks like a textbook case of anxiety and depression hitting at once. Plus some other stuff too. It’s not even about the meds... it’s more like everyone is just trying to find excuses for everything. At the end of the day, we're all responsible for our own lives.

Honestly, those symptoms sound like classic anxiety to me too. And hey, looking at what you described, maybe your thyroid is acting up? Might be worth starting there instead... 🤷

People love to latch onto one single diagnosis and blame it for absolutely everything.