Posts by redsailor11

I only head over to Bjelovar Hospital to see my neurologist, but I’ve already told my family—straight up—that if anything happens to me, they better not even think about sending me there. It’s a total disaster...
My suggestion? If you can swing it at all, try to get your mother-in-law moved over to the Pakracka hospital. I spent quite a bit of time there, and honestly, it’s actually decent. It’s smaller than Bjelovar Hospital, so it isn't as chaotic, and the staff is way more willing to actually step up and help out...
Just my two cents, though...

Yeah, I actually went to see a doctor...
...back about 4 months ago, I just blacked out from all the stress and lack of sleep—ended up in the ER. You know how the drill goes, right? They send you here, then there, seeing a neurologist, getting an EEG and everything... it wasn't until I finally got all those test results back that they told me it was epilepsy.
They only just diagnosed me (I'm turning 25 soon), but looking back, I can kind of remember those little episodes I mentioned in my previous post. I never really paid them any mind though, and my family didn't notice anything either.
I honestly thought it was totally normal. 🙄 ...or maybe I was just delusional 😳
When I was 12 or 13, it used to happen more often, but then it pretty much stopped... until I passed out this past fall. Since that one episode, I've had one grand mal, and just a few of those "minor" ones after a bad night's sleep...

The main thing is that you already got your daughter in for testing. Once they find the right medication for her, don't sweat it—things will settle down and you won't have to worry about letting her go out on her own.
I'm just a bit confused, though—why the liquid drops? Why didn't they just prescribe pills? It seems way easier to manage...

I deal with those exact same episodes you described—though I'm definitely not a kid anymore. 😉
I’ll just be staring at a single spot and "blank out" for a few seconds. It’s like I just shut down... For me, it usually comes with hand tremors, dropping stuff, twitching... and if I happen to be walking when it hits, I’ll end up buckling or hitting my knees on the floor.
To be fair, I was never a big TV watcher growing up—maybe like two hours a day max—and honestly, I still don't watch much more than that now.
But there's no real rule for this; everyone's body reacts differently. For some people, it's triggered by lack of sleep (which is my biggest issue), loud noises, flashing lights (like in a club or something), sudden bright sunlight, hunger, thirst, computers, screens, or even alcohol... it’s all super individual.
The best thing you can do is just watch your child closely to see what specific situations trigger it.
My best advice? Make sure they're getting enough rest and plenty of sleep! 👍

As for the medication or the diagnosis, I really can't help you there—I haven't seen anything quite like that before. 🤷

Hang in there! 🙂

Forgot to mention—they wanted my whole medical history—EEGs, MRIs, X-rays, all that stuff—on a CD because apparently "it's easier to read," but I didn't have everything on a disc. So they just kind of skimmed through the papers I had... didn't really say much about them, though. 😕 🤷 🤷

jadesailor14 said:you didn't really mention what it was actually like
so please, tell us more—like, what kind of conclusions did you guys reach? Did any of it actually help? And what kind of "official" therapy are you currently on?
thanks 🙂

So, I showed up, sat down, and honestly, I was just totally lost because I had zero expectations of how this whole thing would go.
First, he asked if I was left-handed or right-handed, and which hand I’d use to hold a baby😍
Then he asked about my first period, grabbed a pen and paper, and started sketching stuff out. He drew a straight line, marked one end and said, "this is your birthday," then marked the other side and said, "and this is today." Then he put a dot in the middle and said that’s when my seizures started. Before that, he wanted to know exactly when they began so he could pin down that specific window. After that, it was a barrage of questions about stress, family drama, college life, whether I have a boyfriend—all that stuff. I gotta admit, I was being pretty skeptical the whole time, just smirking because I had no clue why he was digging into all this. Then he told me this story—the one I mentioned earlier—about a little girl whose seizures were triggered by her grandmother. Apparently, the grandma gave her a smack, and it manifested as seizures—not from the physical hit, but from the psychological trauma. The kid just couldn't handle it. Even though the grandma and granddaughter stayed close after the incident, the girl kept having episodes whenever she was near her. Once they were separated, the seizures stopped, but as soon as the grandma came back, they were right back.
He basically told me to sit with everything, really dig into my past, my environment, and myself to find the root cause. And once I figure that out, then I should come back.
It’s been two and a half months since then, but let's be real—I haven't done much about it. Every now and then his words pop into my head, but I just don't have the bandwidth right now to go digging through my "inner self" or "surroundings," so... yeah. 🤷
Maybe there’s something to it, maybe not.
At the end of it all, he said I can take meds if I want, but I don't have to, because his theory—well, their whole medical philosophy—is centered on self-healing. They aren't big believers in drugs; they see them as just poisoning or tricking the body.
Anyway, I'm on 100 mg of Lamictal, split into 50 in the morning and 50 at night...
Not sure what else to say... 🤷 😕 😢
I haven't reached a conclusion yet because I honestly don't know—I still need to do that soul-searching I mentioned before I can even think about going back for another session....

I actually went to see a practitioner of Chinese and Japanese medicine for my epilepsy.
The guy lives here in the States, but he travels over to China quite a bit for training.
If you're interested, just shoot me a DM—I can send over his contact info and everything else...
Treating epilepsy through conversation 😕 🤷
His whole philosophy is that it all stems from within—you have to really study yourself and your surroundings to weed out the negativity...
At first, I had no clue what he was even talking about—honestly, I was pretty pissed at my mom for sending me there—but then he told me about this little girl who came to see him with epi. They spent weeks just talking through what her core issue might be. They used drawings, stories, and all sorts of methods...
In her worst moments, she was having something like 15 seizures a day..
He started asking her about her family life. She lived in the same house as her grandma, and through their talks, he figured out that her grandma had once (whether it was on purpose or not 🤷 ) bumped her on the head. That’s when it all started. So, they sent the grandma away for a month. During that time, the girl didn't have a single seizure. As soon as the grandma came back, the seizures came right back too...
These doctors believe every illness has its own "WHY"—it's almost like... how should I put this... "God's will"... so that a person is forced to change something in their life.
That's what he told me.
I totally forgot to ask him one thing, though—how does he explain diseases that babies are born with?? 😕 😕
How is a poor kid supposed to change anything in their life by themselves? 🤷 🤷
I don't really know what to tell you regarding all this...
Sometimes I think he might have a point, but other times I just roll my eyes when I remember...
It could go either way...
Again, if you're down to talk to him, just hit me up in a DM for his numbers..
Good luck with everything! 😉

Forget all those fad diets! 😁

Just stick to moderation—seriously, just focus on eating better, staying active, and changing your lifestyle... that's the only way to drop the weight without hitting that annoying yo-yo cycle where you starve yourself and then end up overeating. It’s a vicious cycle if you aren't careful..
If you want some actual guidance, grab the "Mayo Clinic on healthy weight" book. It was released alongside USA Today a while back, so you should be able to order it through them pretty easily. Just read it, follow the advice, and if you're REALLY serious about it, you'll look amazing by summer! 👍

Good luck!