jadetinker42 said:Hello everyone.
Here is more proof of how pathetic our bureaucracy is.
I have posted here many times before asking for advice regarding a 26-year-old girl suffering from osteosarcoma.
Unfortunately, the disease has progressed so far that there is no hope left. Despite an amputation of her right leg, the cancer spread to both lungs and is advancing at an incredible rate. From the very beginning—the diagnosis back in March 2007—the PhD stated it was a high-grade mesenchymal tumor with destructive growth. In April 2008, just before the leg amputation, an oncologist in Germany classified it as Grade III... While osteosarcoma can be treated relatively successfully here, this was one aggressive bastard...
The poor girl has completely collapsed; she hasn't eaten for almost a month, she's coughing, she's in pain... it's horrific. We gathered all the documentation, the final reports, and the discharge papers from Jordan, where the diagnoses are piled up halfway down an A4 page, one on top of the other. I submitted everything to the CDC so their disability commission could issue a certificate. This would allow her to be exempt from supplemental health insurance premiums and get a disabled parking permit so she can actually use accessible spots... I even asked if this would be enough, and the employee at the CDC told me it most likely would be once they saw the discharge summary...
What a load of garbage! Today, they call from the CDC Atlanta (disability assessment department) and demand that the girl show up in Cleveland at Santa Monica to have their commissioner-expert determine exactly what is going on!!!!!😠 😠 😠
Can you even imagine that? They don't care at all that the disease is in its terminal phase and that she is simply no longer capable of being transported or being hauled through their assessment offices...
A tragic American bureaucratic story....😢
When I was with my dad at Jordan the first time, there was this beautiful young girl in the hallway near us, short hair (just growing back after chemo), sitting in a wheelchair because her right leg had been amputated... she sat there for a long time and all the hospital staff knew her. She came from another city for an exam and was waiting because there was no one available to see her, plus the X-ray machine was broken 😠.
The hospital was totally gray and lifeless, yet there she was, so beautiful and young, just waiting... that image will stay with me for the rest of my life. For days, I told everyone how we need to be happy and grateful for our health while describing that scene... and whenever I remember it, I wonder if anyone Up Above is even watching what happens here?! And why isn't there any justice... because she certainly didn't do anything to deserve this..
I don't know if we are talking about the same person, but in any case, I feel absolutely terrible, just horribly sorry 😢... that day in the hospital I was furious because no one was available to examine her, and I feel just as much now reading this 👎.