Posts by Ethan Reyes2

No luck at all 😬

Intense? How on earth could anyone call them intense? Honestly, people acting like that shouldn't even be allowed through the doors of a hospital.
Good grief. 🙂

Just wanted to send a quick hello to everyone here and say I'm rooting for all of you to get the best possible results. Hang in there. 🙂

Robert Grant84 said:Mom finally woke up 🙂
and had a chat with Dad earlier today; she isn't quite as sharp as she used to be, but she seems fully aware of her surroundings.

What wonderful news 👋
just hang in there and keep taking such good care of her.

Angela Wright said:When someone chooses to turn their back on something, all you really need to do is point a finger toward it for God.

😍 😍

@Robert Grant84/">@@Robert Grant84
just hang in there 🙂 and keep talking to her. she might not be reacting, but who’s to say she isn't still aware and processing everything going on around her?
even when it feels like there’s absolutely nothing left for you to do, just being present by her side—as much as you possibly can—means more than you realize.

@Emily Edwards19/">@@Emily Edwards19
I am so incredibly sorry 😢 what a heartbreaking loss.

Emily Edwards19 said:my friend has been in a coma since last night over at the Mayo Clinic😢😢😢

I am so sorry😢

aha. ok.

Nobody here was actually poking around the intersection of palliative care and geriatrics. The discussion regarding nursing homes only came up because we were talking about the possibility of repurposing them into palliative care facilities. I just chimed in to point out that the whole situation with senior living centers is already a mess, thanks to those unregulated private operators, so we really ought to protect our state-run retirement homes.

@swiftgardener/">@@swiftgardener
thanks so much for those links 🙂

I can't help but worry that instead of reforming the system, the government might just let public nursing homes shutter, which would only pave the way for more private facilities—those places that are often absolute nightmares where the state simply chooses to look the other way 👎

I actually stumbled upon a link for the Friends of Hospice group yesterday, so if anyone feels like reading up on their work, here it is

Angela Wright said:Of course, we just don't have that here, which basically points to the failures of this administration—they were supposed to step up and meet their obligations to the European Union to establish our first dedicated Palliative Care facility by 2007, yet here we are, years later, still waiting for something that simply doesn't exist.

It’s quite a shame, really.😢

vividsailor7 said:The full interview is actually posted on the FOX website; what they showed on The Washington Post was just a tiny snippet of the whole thing.

What exactly did he mention regarding the Hospice? That there isn't such a thing as a flat rate?

Angela Wright said:Could you tell me which show that was on? I'm actually pretty curious. Was it on The Washington Post?

Yeah, it was on The Washington Post. They had Ostojić and Milinović as guests.
I just couldn't quite wrap my head around the context when Ostojić brought it up—was he framing it as a campaign promise, or was it just some random comment that didn't really connect to anything else? 🤷

Did Ostojić just claim on FOX that this is the century of hospice care?
I wonder what he actually means by that... 😕

redridge13 said:unfortunately, it’s almost impossible to actually discharge a patient in that condition 😢
that's just the reality of the healthcare system here in America 😢

It really is a disgrace.
The way our terminal patients and the elderly who have lost their independence are treated—it’s nothing short of a horror story 🙂

@ Emily Edwards19

I just wanted to say that, despite everything your friend is going through right now—which sounds incredibly heavy—she seems to have a truly wonderful friend in her corner, and that’s you 🙂
just keep being there for her, regardless of how much it might scare you.
I am so sorry for what she's dealing with 😢

Kate Brooks2 said:I read somewhere about this specific syrup that can only be prescribed by a medical board, and apparently, it works wonders for stimulating appetite. It’s mostly given to people struggling with anorexia or those battling these harsh diseases and their side effects. If anyone knows anything about it, please let me know because we really need to find a way to address this... our patient looks quite thin despite being generally healthy, especially now that he's down to 67 kg at 1.82 meters tall.

I assume what you're talking about is Megostat.
I don't recall the exact process, but usually, the oncologist includes it in the clinical findings, and then based on those instructions, a primary care physician writes the prescription.

I'm really crossing my fingers that his appetite improves!

Linda Williams77 said:phew, I feel a little lighter just getting that off my chest

🙂 🙂
well, there it is, I’ve gone and laid all my cards on the table 😳
and honestly, you aren't being selfish for wanting your grandmother to stay by your side for as long as possible; besides, isn't it a safe bet she feels exactly the same way—wanting to hold onto you for just as long?

Robert Grant84 said:Yeah, she’ll be getting some kind of treatment, but maybe not for another ten days—if she makes it that far—and honestly, my dad couldn't even recall the specific name of the medication. It seems like one day she's at the clinic for an infusion, then she spends about ten days at home sipping on some liquid formula, followed by a week-long break, and they just keep cycling through those six rounds like that.

It really makes you wonder, doesn't it, just how much the human body can endure before it reaches its limit? I'm keeping everything crossed that your mom pulls through this successfully and makes it through all six of those upcoming cycles. 🙂

ironsailor22 said:I suppose that’s something that will just follow me around for the rest of my life, won't it? All those grand, sweeping narratives about how no one should ever have to face hunger, thirst, or unbearable pain... honestly, they feel like little more than empty rhetoric, don't they? It’s easy to talk about such ideals when you aren't the one actually living through them, but when you look at the reality of things, you start to wonder if these promises are anything more than just hollow words floating in the air. It makes you wonder, doesn't it? Our healthcare system seems to be doing absolutely nothing to actually step up and help them.

Unfortunately, I suppose it’s a yes. 😢
I don't think I'll ever be able to look back and regret the fact that my mother had to endure such an absolute hell.
It’s a strange thing, isn't it? How you can be right in the thick of it, living through something truly horrific, and yet you don't even realize the sheer scale of the ugliness unfolding around you. When you're submerged in that kind of darkness, suffering just becomes part of the scenery—it becomes your baseline, your everyday reality. You stop questioning it because how could you? It’s only when life finally settles back into some semblance of "normal" that you look back and realize that what you were enduring wasn't normal at all. It was an aberration. Honestly, it’s the kind of weight no person should ever have to carry.

Robert Grant84 said:So, here I am again, back with more bad news. It’s been exactly a year since we first found out Mom was dealing with colon cancer, and honestly, looking back at everything we've endured, it feels like we've lived a lifetime in those twelve months. We've navigated four different surgeries and cycled through two separate types of chemotherapy, hoping we were finally gaining some ground. But the latest CT scan just hit us like a ton of bricks: the cancer has spread to her liver, lungs, and kidneys. She’s actually been under radiation treatment for the last two weeks, too. It’s just one of those heavy realizations when you see that despite going through four full cycles of Folfiri, the metastases have continued to move forward. Is there ever a moment where you feel like you're actually winning, or does it just feel like you're constantly rearranging deck chairs on a sinking ship?

I'm truly sorry to hear things are going that way. It’s heavy, isn't it? I can't help but wonder, though—is there any actual room to explore a third combination of chemo, or have they pretty much exhausted the options on the table?

Sarah Wells23 said:I know there isn't much more we can do since that specific type of cancer is so rare and aggressive, but it just breaks my heart to see him suffering like this. I truly hate this disease. 😢

I hate this horrible sickness too, 🙂
I miss my mom so incredibly much. I find myself dreaming about her almost every single night, and I'm constantly haunted by the thought of how much she had to endure 🙂 🙂 it really eats away at me, seeing how much she actually wanted to live, and how deeply heartbroken she was when she realized there just wasn't any way to help her or save her 🙂