Losing my sight due to a pituitary tumor

About nine months ago, my mother suffered a sudden loss of vision due to a pituitary tumor pressing against her optic nerve. She underwent surgery to remove the tumor after just a few days, and for a month or two, her sight began to gradually recover. However, that improvement lasted only about sixty days before she started experiencing this bizarre, cyclical alternation between light and dark days... It happens precisely at 2:00 AM every night—this shift where her visual field flips from light to dark. On the "light" days, her eyes are flooded with an overwhelming amount of white, whereas on the "dark" days, everything is dominated by heavy blacks and browns. Currently, because of these alternating veils of light and shadow, her functional vision is down to about 15%. Interestingly, when she closes her eyes and then opens them, she sees a perfectly clear image, but it only lasts for maybe three or four seconds before the light or dark curtain descends again, depending on the day. It is particularly distressing for her when she steps out into bright sunlight; the dark veil appears instantly. The same thing happens whenever she is near an LCD television or any bright white light source. We have consulted numerous ophthalmologists and neurologists, yet none of them could provide a definitive explanation for these phenomena. If anyone here possesses any insight or has encountered something similar, I would be deeply grateful for your help.

James Myers65 said:About nine months ago, my mother suddenly lost her sight because a pituitary tumor was pressing against her optic nerve. She underwent surgery to remove the tumor after just a few days, and over the next month or two, her vision started to gradually recover. That improvement lasted about two months before she started experiencing this bizarre cycle where her vision flips between light and dark. It happens right at 2:00 AM—the vision shifts from one state to the other. On "light" days, there's an intense white glare in her eyes, while on "dark" days, everything looks filled with black and brown tones. Because of this constant shifting curtain of light and shadow, she can only see about 15% of what's in front of her. If she closes her eyes and then opens them, she gets a clear image for maybe three or four seconds before the light or dark veil slams back down, depending on which day it is. It’s especially brutal when she goes outside into the sunlight; the dark curtain drops immediately. The same thing happens whenever she's near an LCD TV or bright white lights. We’ve consulted several ophthalmologists and neurologists, but nobody seems to have a clue what’s causing this. I’m reaching out to see if anyone here knows anything that might help us.

You should try asking over at: http://pituitary.org/
https://www.facebook.com/pages/Pitui...7478804?ref=ts
Do some searching on Facebook; there are plenty of patient support groups where you can post your question. Someone there might have gone through something similar.

James Myers65 said:We've consulted several ophthalmologists and neurologists, yet none could provide an explanation for these symptoms.

If she couldn't get answers from the specialists at Johns Hopkins, you aren't going to find them anywhere else in America. That's the gold standard for neuro-ophthalmology.