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Support resources for families dealing with cancer and other serious illnesses

Started by James Cox6 · · 👁 72 views · 3.9K replies

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Participants James Cox6Lisa White54shadowmason6Angela Wrightbrightgardener8Melissa Moore39James Martinez3Grace Stewart6Megan Fowler78Zachary Howard2Ashley Rodriguez41Douglas Lee13rowdyheron17placidheron24slyseal28jadesailor14Michael Newman3jadetinker42Benjamin Grant6wanderingharbor61cosmicviper76Dana Baker37Jason Torres5Peter Chavez6 …
slyseal28 slyseal28 Member
11 messages
joined Mar 2007
#481 ·
A mammogram is essentially an X-ray of the breast. For the best results, you’ll want to schedule it during the first few days after your period ends. The process involves taking two views of each breast, which means four images in total. Once the shots are done, the images are developed and reviewed by a radiologist. As for the procedure itself, it isn't painful and moves along quite quickly. And before anyone starts worrying about radiation—don't. Modern mammography machines use incredibly low doses. There is also this persistent, misguided myth that the radiation from a mammogram can actually cause breast cancer; that simply isn't true. Generally, these screenings are recommended for women over 40, though they can be done earlier if necessary. It isn't strictly age that dictates whether a mammogram is useful, but rather the density of the breast tissue. In younger women, where the tissue is often very dense and glandular, mammograms aren't always the most effective tool. The diagnostic accuracy might only hover around 65% in those cases. That’s why doctors often lean toward ultrasound for younger women. However, for older women, the reliability of a mammogram jumps to about 85%, and when you pair it with an ultrasound, that accuracy climbs to a much more reassuring 95%. One major advantage of the mammogram is its ability to spot microcalcifications, which can be early indicators of cancer that other methods might miss.

Breast ultrasound, on the other hand, is an increasingly sophisticated and reliable method for early cancer detection. It is particularly effective at "seeing" through the dense, fibrous tissue often found in younger women. It excels at identifying benign changes, such as cysts or fibroadenomas. Because modern ultrasound technology is constantly evolving and the probes are becoming more sensitive, there have been documented instances where ultrasound caught early signs of cancer in dense tissue that a mammogram had missed entirely. The exam isn't painful, and since it uses sound waves rather than radiation, there are no safety concerns regarding exposure. Given all of this, the smartest approach is to use both methods in tandem. That is how you achieve the highest level of diagnostic certainty.
Drew Allen Drew Allen Member
43 messages
joined Apr 2009
#482 ·
Perhaps ultrasound might be the superior option? I am uncertain, so I am simply asking.
Angela Wright Angela Wright Regular
731 messages
joined Feb 2007
#483 ·
Drew Allen said:Maybe ultrasound is the better way to go? Just asking.

For women under 40, go with ultrasound. Once you hit 40, stick to mammograms—they’re still the gold standard for accuracy.
holloweagle6 holloweagle6 Newcomer
5 messages
joined Aug 2009
#484 ·
Quick update;
So, on Thursday, Mom was trying to get that thing removed from her back. When she went to the clinic in Chicago, they checked her out and told her she should wait about a month before getting it taken off.
Koacno realized it’d be way better to just go private, so we called the Salus clinic (it's a private hospital over in Seattle) and she headed straight there that afternoon for a checkup. The doctor scheduled her for this coming Monday to get it done. Once it's out, she's sending a sample off for testing. We're all just crossing our fingers that everything comes back clean. Yesterday, Dad was watching some documentary on TV about tumors, and he found her in her room crying. Mom is holding up okay, though—staying optimistic. I’m hoping for the best, too.
Honestly, if those people in New York were actually expecting an envelope, they should be embarrassed.
Ronald Parker7 Ronald Parker7 Newcomer
5 messages
joined Apr 2009
#485 ·
People always expect a kickback or at least a private DM
Why do you think it takes four months just to get an MRI appointment at $533?

Hang in there 😉
Rachel Cruz9 Rachel Cruz9 Newcomer
1 message
joined Feb 2008
#486 ·
After endless rounds of testing at the hospital, my dad was just diagnosed with NHL—specifically a T-cell lymphoma. His doctor mentioned it’s incredibly rare, maybe three cases a year compared to the much more common B-cell type. She wants him to start chemo this week, but he's honestly terrified; she warned him that this particular regimen is pretty aggressive and toxic, then basically left the ball in his court to decide how to proceed. Has anyone here dealt with this specific type of lymphoma? I'd love to hear if anyone knows anything about what the actual recovery outlook looks like. 🤷
Drew Allen Drew Allen Member
43 messages
joined Apr 2009
#487 ·
florentis, I will tell you everything I can, though my knowledge is quite limited. From what I understand, this specific type of cancer is among the least aggressive varieties out there—if you can even call a cancer "not dangerous." Even those who are strictly against medical intervention often point out that the survival rate is roughly 45%, which is actually quite high.
Drew Allen Drew Allen Member
43 messages
joined Apr 2009
#488 ·
slyseal28 said:We have reached a point where some patients no longer have to sell their homes just to afford their medication.

As I mentioned before, that is perfectly fine. The funding required for these drugs is spread out across all 4.5 million people in America.
wiredtiger16 wiredtiger16 Newcomer
4 messages
joined May 2009
#489 ·
I’ve been lurking and reading everything you all say for a while now, but I finally have to weigh in. I honestly don't see the point in this constant friction. Some people swear by holistic stuff, some stick to traditional medicine, and everyone has their own mix of good and bad experiences. It’s shortsighted to view it as black and white. Personally, I'm a proponent of mainstream medicine; I’d much rather take advice from a doctor than listen to some random "prophetess" or old wives' tales.

As for Angela Wright, I think she’s someone who is truly selfless. She consistently gives up her own free time just to support and help those who are sick. To attack her here on the forum is nothing short of rude, especially considering she’s done more good for this community than anyone else.
Scott Allen10 Scott Allen10 Regular
315 messages
joined Jun 2005
#490 ·
Just doing a little cleanup since I haven't checked this thread in a few days. Anything that didn't fit the vibe or belong here has been scrubbed.

@arsen and Drew Allen
Honestly, I can't even wrap my head around why you guys felt the need to troll like this...🤷...
You both know exactly where I stand when it comes to all this alternative nonsense and trying to push it on people, especially when it starts getting annoying for everyone else hanging out here in the Wellness section...But hey, look, you’re more than welcome to hold onto your fringe theories if that’s what you need; you have every right to your own views, and you can go ahead and talk their heads off in the Alternative threads...just stop trying to sneak them into the Wellness discussions...☕

While you're cooling off, you can at least pretend you're some kind of elite alternative commando squad on a high-stakes mission here in Wellness, only to meet a glorious, if temporary, end...I'm sure the folks over in the Alternative group will view you as total legends...though, if you keep trying to sabotage these threads, that "end" won't be so temporary, and then you'll just have Alan and the rest of the crew building a little monument to your bravery, where generations of alternative enthusiasts will tell stories about your heroic struggle in Wellness...☕...you'll basically become like The Beatles...or maybe just like those two soldiers who died defending a tiny bunker against a massive army for a single week... 👍
Jesse Morgan3 Jesse Morgan3 Newcomer
7 messages
joined Apr 2020
#491 ·
Did anyone happen to stop by that guy's booth at the big trade show?
Scott Allen10 Scott Allen10 Regular
315 messages
joined Jun 2005
#492 ·
Jesse Morgan3 said:Did anyone actually catch that guy's booth at the big trade show?

There’s already an entire thread about that dude over on the Alternative Beatles board if you want to dive into all the details there.☕
Frank Wright13 Frank Wright13 Newcomer
3 messages
joined May 2012
#493 ·
Hey everyone.
I’ve been hunting for a thread like this, but since I can't find one, let's start it here. Thanks.
To give you the quick version: my mom had surgery two weeks ago to remove a tumor on her pancreas (the tail), an adrenal gland tumor, her gallbladder, and her spleen. The pathology and cytology reports show everything else looks clean, though 3 out of the 9 lymph nodes they found were malignant. Because of that, she’ll need chemo once she’s stable enough to see the oncologist. She gets her stitches out in 15 days; the incision healed great and there aren't any issues there. The surgery itself lasted over six hours. She was in shock for ten days, and recovery is proving to be brutal. She dealt with terrible diarrhea at first, which is finally settling down, but it's still exhausting. Her doctor says that might last 2-3 months depending on how her body handles it. Right now, she's taking Creon 3x2 to replace enzymes, Prolife to help her gut lining recover, and she's on a strict diet.
The diagnosis is ADENOCARCINOMA CAUDATIS PANCREATIS (T3, N1b, Mx)
ADENOMA GL.SUPRARNALIS SIN.
If anyone has dealt with something similar, please share some advice or help me make sense of this. She was operated on at Mercury and her surgeon was Dr. Kocman.
Thanks!
slyseal28 slyseal28 Member
11 messages
joined Mar 2007
#494 ·
Kate Reed63 said:Hey everyone.
I've been scouring the boards looking for a thread similar to this one, but I haven't had any luck finding anything that fits. If a discussion like this already exists, would someone mind terribly if we merged them? Thanks in advance.
I’ll try to keep this brief and lay it all out clearly. My mother underwent surgery about two weeks ago to deal with several issues: a tumor on her pancreas, one on her adrenal gland, along with her gallbladder and spleen. According to the pathology and cytology reports, the histology itself looks stable; the main concern is that 3 out of the 9 lymph nodes they removed were malignant. Because of those, she’ll need to see an oncologist for chemotherapy once she’s regained enough strength to handle it. The sutures are coming out in about 15 days. For what it's worth, the incision site is healing beautifully without any complications. However, the surgery itself was a marathon—lasting over six hours—and it really took its toll. She spent ten days in shock, and the recovery process has been incredibly grueling. She struggled with severe diarrhea at first, which is finally starting to subside, though it's still painful and leaves her completely drained. Her doctor mentioned this could drag on for two or three months, depending on how her body responds. Right now, she’s strictly following a specialized diet, taking Creon tablets three times a day to supplement her enzymes, and using probiotics to help repair her intestinal lining. It’s just a long, slow road ahead.
So, this is the diagnosis: Adenocarcinoma of the pancreatic caudate (T3, N1b, Mx). It’s heavy stuff. Just staring at those clinical terms doesn't make it any easier to process, even if you try to look at it through a purely medical lens. It's one of those moments where the technical jargon feels like a weight sitting right on your chest.
Adenoma of the left adrenal gland.
If anyone here has dealt with something similar, I’d really appreciate some advice or even just a bit of clarity on the situation. She recently underwent surgery at Mercury, and Dr. Kocman was the one who performed the procedure.
Thanks a million!

The only thing I can tell you for certain is that Dr. Kocman is an exceptional surgeon, and he undoubtedly did the absolute best he could in that situation. You can find various firsthand accounts and personal experiences right here on our forum.Furthermore, you can always get a direct answer from the oncologists on our medical advisory team who assist our members here...
Frank Wright13 Frank Wright13 Newcomer
3 messages
joined May 2012
#495 ·
Look, regarding Dr. Kocman, we’ve heard nothing but good things. He really gave it his all during the surgery and assured us everything looked solid on his end—everything was clear. He even caught several things that other doctors had already flagged, so we’re incredibly grateful. We’re staying positive and believing she’ll pull through to enjoy plenty more happy years with us.
Quick question: what’s the absolute latest she should start chemo? It’s been two weeks since the surgery and she’s still feeling pretty weak...
slyseal28 slyseal28 Member
11 messages
joined Mar 2007
#496 ·
Kate Reed63 said:I'm trying to figure out the latest possible date she should start chemotherapy. It's been two weeks since the surgery, and she's feeling pretty weak right now...

I'm not sure if any of the other patients here can give you a definitive answer on this... I can only speak from what we went through with my husband—we didn't actually begin chemo until about a month after his surgery...
Frank Wright13 Frank Wright13 Newcomer
3 messages
joined May 2012
#497 ·
So, I guess we’ll just wait and see when she actually starts. It all depends on when the oncologist orders it—you know, the one where your husband goes for his treatments—and how he handles them.
Angela Wright Angela Wright Regular
731 messages
joined Feb 2007
#498 ·
Kate Reed63 said:Well, she’s basically hoping she’ll start treatment too. We’ll just have to wait and see when the oncologist at the hospital where your husband gets his treatment actually orders everything and how he handles the side effects.

slyseal28's husband is dealing with an incredibly specific, rare, and brutal diagnosis. He's already gone through several rounds of chemo, and unfortunately, given how complex and aggressive this disease is, things aren't looking great right now.
How someone reacts to a specific chemo drug is entirely unique to them. It's like comparing apples to oranges—you’ll have one person who deals with endless nausea but their blood counts stay perfect, while another person feels fine physically but their blood levels absolutely crater. Some people breeze through it, others can't take it and have to stop the treatment entirely. In this whole process, the psychological aspect is massive. You have to be well-informed, prepared, and you need a solid support system around you.
At the end of the day, people tend to vent about it, no matter how uncomfortable it makes others.
Focus on boosting his immune system!
Frank Wright13 Frank Wright13 Newcomer
3 messages
joined May 2012
#499 ·
Angela Wright;20507429 said:slyseal28's husband has a really specific and nasty diagnosis. He's already gone through several rounds of chemo, and unfortunately, things aren't looking great right now because the disease is just so complex and heavy.
Everyone reacts to chemo differently. One person deals with endless nausea but their blood counts stay perfect, while another feels fine physically but their blood work tanks. Some people handle it like pros, others can't take it and have to stop the treatment entirely. Honestly, the psychological side of this is huge... you need to be informed, prepared, and have a solid support system behind you.
At the end of the day, people just power through it, no matter how miserable it gets.
Boost his immune system![/QUOTE]

That’s exactly what we're trying to do. He’s getting blood work done this Friday, so we'll see where things stand. So far, he's been holding up okay, though he was in shock recently when his potassium and calcium levels dropped—he had to get injections for that. We were thinking about making that homemade remedy with aloe, honey, chicory, and wine. Has anyone actually tried that? We've heard good things and seen positive stuff online, but we'd love to know if anyone here has experience with it.
Nicholas Hughes2 Nicholas Hughes2 Newcomer
2 messages
joined Oct 2008
#500 ·
Kate Reed63 said:I'm wondering when the absolute latest she should start chemotherapy... it's been two weeks since the surgery and she's feeling pretty weak...

Look, obviously none of us are doctors—we definitely can't give you medical advice here—but my mom actually started her treatment about a month after her surgery was finished...
hang in there, sending so much love and luck your way!!!

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