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Support resources for families dealing with cancer and other serious illnesses

Started by James Cox6 · · 👁 84 views · 3.9K replies

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Participants James Cox6Lisa White54shadowmason6Angela Wrightbrightgardener8Melissa Moore39James Martinez3Grace Stewart6Megan Fowler78Zachary Howard2Ashley Rodriguez41Douglas Lee13rowdyheron17placidheron24slyseal28jadesailor14Michael Newman3jadetinker42Benjamin Grant6wanderingharbor61cosmicviper76Dana Baker37Jason Torres5Peter Chavez6 …
Casey Palmer5 Casey Palmer5 Regular
470 messages
joined Jan 2016
#561 ·
I was actually just about to jump back in and edit my post to mention adding some curry—specifically turmeric—but then my internet decided to quit on me. Honestly, it worked out for the best because I finally managed to get some decent sleep! Which kind did you pick up, and where'd you find it?
shadowmason6 shadowmason6 Newcomer
1 message
joined Oct 2008
#562 ·
Casey Palmer5 said:I was actually just about to jump back in here and edit my post to mention adding curry—specifically turmeric—but then my internet decided to die on me. Honestly, it worked out better because I finally managed to get some decent sleep... anyway, which kind did you pick up and where from?

Just jumping into this thread real quick, even though I haven't had a chance to catch up on everything everyone’s been saying...
We're definitely throwing turmeric in there. Just use pure turmeric, don't bother with those pre-mixed curry powders. I toss it into risotto or into miso soup. A teaspoon or two, whatever you can handle. If it's your first time, maybe start small since the flavor is pretty intense... I even use it when I'm making vegetable stock for soups. We don't even touch those processed bouillon cubes anymore, seriously.
I usually grab mine at Bio@bio. Now, I really don't want to sound like I'm running an ad for them—that's totally not my intention—but man, I wish more stores carried this stuff and, you know, at much lower prices. You might want to check out Whole Foods too... or maybe Grain... probably Garden and Gea have it as well?
Ginger too! Definitely!
During the winter, stir it into immunity-boosting soups, or just throw it in right at the end of cooking to help settle your stomach... you can even juice it and massage it onto your skin!
There’s a whole bunch of other info in that book from Makrobioticka Domac ljekarna... hmm, let me think, the book is actually at my mom's house and I was in such a rush last weekend that I completely forgot to look up that recipe for umešokuzua I promised to share here. My bad!
I'm in a bit of a rush so I gotta run, but I'll post again if anything else pops into my head...
Keeping all my fingers crossed for you guys! Stay strong!
By the way, my husband and I are divers, so I totally get where you're coming from. Of course you're going to get back out there in the water! I don't see any reason why you wouldn't!
James Cox6 James Cox6 Active MemberOP
150 messages
joined Mar 2009
#563 ·
Oh, Casey Palmer5.. 😢 I figured you'd eventually show up in this thread too.. didn't see it coming.. 😢
I'm so sorry for what you're going through, truly.. but the real fight starts now.

I sincerely hope things turn around and that you can get through this as smoothly as possible. 🙂
James Cox6 James Cox6 Active MemberOP
150 messages
joined Mar 2009
#564 ·
To my fellow fighters going through chemo—is brief loss of consciousness a known side effect?
My mom has finished 8 rounds of chemo, and yesterday was just one of those brutal days (especially since she has low blood pressure). She actually tried to stand up on her own and just collapsed—fainted for a moment...

They got her an IV immediately. It looks like dehydration might be playing a role too, since she barely drinks anything, and she's already on meds for dehydration because of her heart condition...

I’m trying to wrap my head around this, so I wanted to ask you all: is passing out a sign of something more serious, or is it just a reaction to the chemo?
Aside from that, she isn't in pain, she's just overwhelmed by weakness—mostly just lying down or sitting, maybe moving around the room a little bit. There's no fluid in her lungs (thank God), but that doesn't mean it won't start building up... especially since someone mentioned here that Gemzar works, but it isn't a permanent fix. 😢
Lisa White54 Lisa White54 Active Member
213 messages
joined Jul 2008
#565 ·
Susan Diaz91 said:Hey everyone, quick question for those going through chemo—is it normal to have these brief moments where you just black out?
My mom has finished 8 rounds of chemo now. Yesterday was just one of those brutal days (she’s got super low blood pressure), and she actually stood up, got dizzy, and just passed out for a second... totally out of it...

They hooked her up to an IV immediately. It looks like dehydration might be playing a part too, since she barely drinks anything, and she’s already on meds to manage fluid balance because of her heart...

I'm just sitting here thinking, trying to wrap my head around it—is this fainting thing a red flag for something else, or is it just the chemo doing its thing?
She isn't in pain, per se, she's just wiped out. She spends most of her time either lying down or sitting, maybe shuffling around the room a little bit. There's no fluid buildup in her lungs (thank God), but that doesn't mean it won't happen eventually... someone mentioned earlier that Gemzar works, but it's not a forever fix... 😢

My husband used to feel absolutely trashed after his chemo sessions. He’d get so weak, honestly just like your mom. But he pushed through and made sure to chug at least 1.5 to 2 liters of water every single day. That really helped him. He deals with low blood pressure too. Your mom will get back on her feet eventually, just taking it one step at a time... This kind of exhaustion is a classic side effect of chemo, and it'll pass.
brisksurfer brisksurfer Newcomer
6 messages
joined Jun 2009
#566 ·
Susan Diaz91 said:To all my dear friends going through chemo: is a brief loss of consciousness actually a side effect?
My mother has finished eight rounds of chemo, and yesterday was just brutal for her (she’s always had low blood pressure). She tried to stand up on her own, and she just collapsed—passed out for a moment...

They got an IV into her immediately. It looks like she might be dehydrated too, since she barely drinks anything, and she’s already on medication for dehydration because of her heart issues....

I'm sitting here thinking and wondering—is this fainting a sign of something more serious, or is it just a reaction to the chemo?
Aside from that, she isn't in any pain. She’s just overwhelmed by weakness; she mostly sits or lies down, only moving around the room occasionally. There’s no fluid in her lungs (thank God), though that doesn't mean it won't start happening soon... someone mentioned earlier that Gemzar works, but not forever.. 😢

Look, I’m perfectly healthy, but I have low blood pressure myself, and yesterday I felt like I was going to pass out all day just because of the weather... today I spent the entire afternoon sleeping it off. So, the fact that your mom lost consciousness might not necessarily have anything to do with the chemotherapy. 🤷
Benjamin Grant6 Benjamin Grant6 Member
36 messages
joined Aug 2008
#567 ·
Susan Diaz91 said:Dearly beloved neighbors who are undergoing chemotherapy, I wonder if brief loss of consciousness can be a side effect...
My mother has completed eight rounds of chemo, and yesterday was particularly grueling for her—especially considering she suffers from low blood pressure—and she actually stood up for a moment only to lose consciousness... it was quite brief...

They immediately put her on an IV, and it appears she might be dehydrated, as she struggles to take in enough fluids while managing heart medication meant to prevent exhaustion...

I find myself reflecting on this and felt compelled to ask whether such fainting is a symptom of something deeper, or perhaps merely a reaction to the chemotherapy itself.
Aside from that, she isn't in pain; she is simply overwhelmed by weakness, spending most of her time either sitting or lying down, occasionally moving around the room. There is no fluid in her lungs (thank God), though that doesn't mean it won't develop eventually... because someone mentioned here that Gemzar works, but not indefinitely...😢

I see that brisksurfer wrote something similar before me. As for myself, I am prone to low blood pressure and anemia, and my digestive system has been absolutely revolting lately due to something I ate—forgive my bluntness, but that is the reality—and I must admit I haven't been able to do anything but lie down for two days now; my entire body aches as if I have muscular fiber inflammation, which is inexplicable to me, other than the fact that it hit 95 degrees in my small town at 11 this morning.

I haven't actually noticed my mother losing consciousness; rather, it manifests as periods where she simply drifts away, becoming irritable when we remind her that we've already asked her the same question ten times. I must confess, it isn't easy to keep repeating ourselves, and we are all feeling incredibly tense given this heat and the general circumstances...

Still, one must try to remain stoic, and I truly hope that her lucidity returns to normal in time...

Therefore, I sincerely hope that your mother's fainting is tied to the temperatures and the current environment, and nothing more serious than that... Hang in there!
Casey Palmer5 Casey Palmer5 Regular
470 messages
joined Jan 2016
#568 ·
Everyone, please send some positive vibes our way. We really need them right now. Things aren't looking great, but there’s still a way through—and it’s actually documented in Medline! Dammit, life is moving too fast; I refuse to let this situation ruin my outlook. And hey, little guy, if you're reading this, you're going to have to navigate that first tight squeeze on the right again, maybe even a bit narrower than before... but I'll be right there to help us find the exit and crawl our way out of this mess together. Actually, what am I even saying? This whole community is going to pull through this with you. Everyone is rooting for you to get back into the action. No cave diver can go just anywhere, but we've trained ourselves to handle anything—we could probably navigate a sewer system if we had to. You can do this. I'm with you, and I've got a whole pile of backup regulators ready to go.
casualrider21 casualrider21 Member
43 messages
joined Dec 2008
#569 ·
Speaking of being out of it...🙄

My dad took his last round of treatment and it was a total disaster.
He already went through those "initial" doses, ended up in the ICU, so we told him he needed to take a break from this stuff. But he went ahead and took it anyway...👎

Just herbs and nothing else... He's got photos, but honestly, they don't show half of it. He’s losing consciousness every time he moves his head, constant dizziness, hasn't eaten or drank anything in 15 days, dealing with constipation, his skin is turning this yellowish-white color, stomach pains, vomiting... It’s freaking HORRIBLE.👎

He’s still on IV fluids right now. It looks like they're slowly pulling him back up, though the vertigo is still kicking his ass.

We are definitely pausing—if not stopping entirely—the chemo.
I am not about to let these toxins shut his system down when he's actually fighting the most aggressive type of lung cancer.

Stay safe and stay positive, everyone. Wishing all your loved ones the absolute best.

Later
restlessseal92 restlessseal92 Newcomer
6 messages
joined May 2009
#570 ·
Casey Palmer5 said:I was actually just about to jump back in here and edit my post to mention adding some curry—specifically turmeric—but then my internet decided to die on me. Honestly, it worked out better this way since I finally managed to get some decent sleep. Which kind did you end up getting, and where from?

We went with capsules—high-concentration extract made from Curcum longae—ordered online.
James Cox6 James Cox6 Active MemberOP
150 messages
joined Mar 2009
#571 ·
Casey Palmer5 said:Everyone, send some positive vibra—we really need it. Things aren't looking great, but there’s still a way out, and it's documented in Medline. Damn it, I'm not going to let this situation beat us. And to you, kid, if you're reading this: you're going to have to squeeze through that first tight passage on the right again. I'll help you find the exit so we can climb our way out of this mess together. Honestly, this whole community is going to ride this out with you; everyone is backing you so you can get back in the game. No spelunker is prepared for everything, but we've trained hard enough that we could navigate a sewer if we had to. You'll make it happen. I'm right there with you—and I've got a whole stash of spare regulators ready to go.

To Casey Palmer5~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~1 for your loved one... the silver lining is how fast the surgery went, but the metastasis makes things incredibly difficult. 😢

I just don't get it... why does this happen to people? 🤷

My mother is an older woman (70 years old), and as hard as it is, since she's aware of her situation, I know she lived a full life..
I don't know how old your loved one is, but he's a young man.. and I just don't understand why this happens to people so young.. it breaks my heart every single time. 😢
James Cox6 James Cox6 Active MemberOP
150 messages
joined Mar 2009
#572 ·
casualrider21 said:Speaking of the subconscious...🙄

Dad took his last round of treatment absolutely terribly.
He already blew past the "guidelines"—ended up in the ICU—so we told him he needed to take a break from this stuff. But then he went and took...👎

Plants, plants... plenty of pictures, but zero substance. This patient is dealing with fainting spells every time they move their head—dizziness, no food or water for 15 days straight, constipation, yellowish-white skin tone, stomach pains, vomiting... It’s absolutely horrific.👎

He’s still hooked up to the IVs—looks like they’re trying to get his levels up—but he’s still dealing with those dizzy spells.

We’re definitely pausing—if not stopping altogether—the chemo treatments.
I don't want her system getting bogged down by those toxins—not when she’s already doing such an incredible job fighting off the most aggressive type of lung cancer.

Stay well and keep that positive mindset. Wishing all the best to your loved ones.

Hey.


Oh boy. 😢So sorry about your dad. 😢
How much chemo has he had so far? Which one was it that hit him hard... My mom wasn't taken down by chemo—it was her blood pressure. When she collapsed, she was at 60/80. Seriously, imagine having pressure that low. 😢
For the blood count—have him eat some nutritional yeast in small pieces. It’s actually great for boosting white blood cell counts, which might help him handle the next round of chemo.
As for a general blood count—blackberry wine, beet juice, raspberry juice (assuming they're all natural)—what do you think?
It looks like your dad has that small cell carcinoma... it’s incredibly aggressive—and man, just ugh. 😢
She’s been dealing with this adenocarcinoma for three years now... just dragging it along.

I don't really know what else to say... just keeping my fingers crossed and sending all the good vibes to his dad. ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~ ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
mistyridge5 mistyridge5 Member
25 messages
joined Jan 2012
#573 ·
Oh, casualrider21, I am just so incredibly sorry to hear that 😢

I really hope things start looking up soon—maybe you'll come out of this even stronger than before... Hang in there!! 👍

Casey Palmer5, I wasn't sure if you saw my private message, so I thought I'd write this here as well—this is actually my third attempt at reaching out 🙄
The forum has been acting up quite a bit lately, so please excuse me if I'm just now seeing messages from some of you 🙄

Hello to everyone!!! 👍
Just stay brave and keep moving forward!!!
casualrider21 casualrider21 Member
43 messages
joined Dec 2008
#574 ·
@Susan Diaz91/">@@Susan Diaz91 thanks for the support. Honestly, I’m feeling so optimistic right now I could probably share some with everyone here.. I don't even get where this level of hope is coming from myself. I'm a total fighter when it comes to dealing with this bastard.🙂

Yeah, my dad has small cell lung cancer with metastases in his liver and bones.
The doctors basically wrote him off by Christmas..
But.. we’ve got our own ways of doing things that the MDs don't exactly back 😉

He’s finished 9 cycles of chemo (each cycle is two sessions).
His blood work has actually been incredible this whole time. He’s been on various germs and natural juices for a while now... and sooo much more... huh...🙂

@mistyridge5/">@@mistyridge5, it’s all going to be okay 😉

Hang in there, people. Don't let those bastards take what belongs to you.👍
Benjamin Grant6 Benjamin Grant6 Member
36 messages
joined Aug 2008
#575 ·
casualrider21 said:@Susan Diaz91/">@@Susan Diaz91 thanks for the support. I suppose I am just so incredibly optimistic that I feel compelled to share it with you all... though even I can't quite fathom where this level of hope and positivity originates from within me. I am certainly no ally to that wretched disease...🙂

Yes, my father has small cell lung cancer with metastases in the liver and bones.
The doctors had essentially written him off by Christmas...
But... we have our own methods, even if they aren't exactly what the MDs would endorse...😉

He has completed 9 cycles of chemo (each cycle consisting of two administrations).
Up to this point, his blood work has been remarkably strong. He has also been taking various germs and natural juices for quite some time... among many other things... huh...🙂

@mistyridge5/">@@mistyridge5, everything is going to be alright 😉

Hang in there, everyone, and "do not give" those bastards what belongs to you...👍

Stay optimistic and don't let your faith waver! After all, every new day is a fresh start, so just keep pushing forward bravely...
nimbletrucker72 nimbletrucker72 Newcomer
8 messages
joined May 2009
#576 ·
Hey there, everyone. Honestly, I’ve been feeling absolutely terrible for the last seven days. My dad, who's 68, had an X-ray, and they found a 6 cm tumor on his lungs. We were over at Jordanovac earlier today, but they ended up sending him home. They scheduled a bronchoscopy for June 12th, along with some CT scans for his chest and abdomen—they actually told us to get those done somewhere else because their equipment isn't great, even though the specialists there claim everything is top-notch. The doctor just gave us this blunt statement that things don't look good. It’s hard to wrap my head around what that actually means; everyone seems to be staring at us wondering why he didn't stay for observation. He finally went in for an exam after dealing with these intense headaches for about 20 days (plus some chest pain, though he's dealt with that for years, usually managed by taking Voltaren twice a day). Can I realistically assume from this that we're nearing the end, and they're just being hesitant to tell us? Or is there still actual hope for surgeries or other treatment methods to slow everything down? If anyone out there can offer some insight, please, I'm asking for help. Thanks!
brisksurfer brisksurfer Newcomer
6 messages
joined Jun 2009
#577 ·
casualrider21 says:

Look, we have plenty of other ways to handle this when our doctor refuses to back us up.😉

Like what? Have you actually shared any of those methods here yet? 🤷
casualrider21 casualrider21 Member
43 messages
joined Dec 2008
#578 ·
brisksurfer said:Which ones? Have you already posted about that? 🤷

Yeah, I have, ages ago. Tons of alternative stuff. If you're interested, I'll shoot you a DM.
When something like this hits, you just swing at everything. You never know what might actually work—God willing, anyway.

How are things on your end?
I’ve been a bit out of it lately; honestly, I haven't had a clue what day it is.

Best,
Grace Stewart6 Grace Stewart6 Member
37 messages
joined Mar 2009
#579 ·
nimbletrucker72 said:Hi everyone. I’ve been feeling absolutely terrible for the last seven days. My dad (68) had an X-ray, and they found a 6 cm tumor on his lungs. We went to Jordanovac today, but they sent him home and scheduled a bronchoscopy for December 12th, along with a CT scan of his chest and abdomen at a different facility—apparently, their equipment isn't great, even though the specialists claim otherwise. The doctor just told us not to expect anything good. What is that supposed to mean? Everyone seems to assume he doesn't have much time left. He finally sought medical attention after dealing with intense headaches for about 20 days (plus chest pain, though he's dealt with that for years) which he manages with Voltaren twice a day. Can I realistically assume he’s nearing the end because they won't tell us directly, or is there still hope for surgery or other treatments to slow things down? If anyone can offer some insight, please write back. Thanks!

Hi Kiki,
I hear you, and I can only imagine what you're going through right now. Facing news like that is devastating. Whether you want to admit it or not, your mind goes to the darkest places, wondering how much time is actually left. That was easily the hardest chapter for me. It’s been eight months now, and we've seen everything from good days to the worst. Eventually, fighting the disease becomes your new normal—driving Dad to chemo, constantly pushing him to take various supplements to boost his immune system.
My father was admitted to Jordanovac immediately because his primary care physician sent him straight to the ER. Once he started coughing up blood, he was fast-tracked for emergency admission. After a quick assessment at Jordanovac, the doctors decided it was best to keep him there since his condition wasn't stable.
It was honestly much easier managing all the tests while he was inpatient rather than having to drive back for every single appointment. Before that, he had done some preliminary testing at our local hospital.
The truth is, he’s weakened, and he deals with pain sometimes, but he hasn't given up. He moves slowly, but he still manages to handle small chores around the house.
Our doctor also gave us the grim news (there are metastases), but we find joy in the small wins—like whenever his blood work comes back clean or when the doctor notes that his general condition is stable.
Please, don't jump to the conclusion that it's almost over for your dad.
Try to view this as the beginning of a fight you'll be fighting together.
James Cox6 James Cox6 Active MemberOP
150 messages
joined Mar 2009
#580 ·
Here’s my update for today... Mom went in for an ultrasound of her internal organs—she’s been feeling this weakness, which doctors were attributing to either heart issues or liver metastases..

Thank God it’s neither heart problems nor liver metastases (Thank God 🙂).. it’s basically just a reaction to the chemo 😢

There is one metastasis in the T1 vertebra from the lungs, and nothing in the brain....

Every time I post this.. I think about all the terrifying things I read and write on this heavy topic.. but unfortunately, this is just our harsh reality 😢

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