CheckEmoji Community · the emoji forum
🏠 Home 🆕 What's new ❓ Unanswered 🔥 Popular 📡 RSS Members 👥 0 online log in · register
Home › Lifestyle › Health › Resources and support for families dealing with cancer and serious illness

Resources and support for families dealing with cancer and serious illness

Started by Angela Wright · · 👁 34 views · 3K replies

📡 Subscribe to replies

Participants Angela WrightChristian Wilson16Morgan Williams4Jeremy Nelson3John Chase6steelbadger83hiddentiger80urbanjackal3silentviper30mistyranger4ruggednomad182placidfalconJerry Morales4frozenviper492velvetgull9Joshua Flores48Frank Ramirez23Roger Hall15Walter Cox5mellowlynx8boldjackal70northernfox9ALaura Gomez10 …
vividowl10 vividowl10 Member
21 messages
joined May 2007
#521 ·
So, my mom is suggesting Estracyt for my dad—apparently, it’s some kind of combo involving hormones and chemo.
He’s dealing with prostate cancer that has spread to his bones. He can still move around, and he’s managing the pain with some Advil and Tylenol right now.

Does anyone out there happen to know what the side effects are for this specific mixture?

I'm honestly a little worried about how his body will handle the treatment, especially since he’s only weighing about 110 lbs. They started him on just Zomet for the first 28 days to give him a chance to recover, since his stomach is pretty messed up from all the Ibuprofen he's been taking.

Thanks so much!
Angela Wright Angela Wright RegularOP
731 messages
joined Feb 2007
#522 ·
vividowl10 said:My dad has been prescribed Estracyt, which is supposedly some kind of cocktail blending hormones and chemo.
He’s dealing with prostate cancer that has spread to his bones. He can still move around, and he’s managing the pain with two Roadeons and some Tylenol.

Can anyone tell me what kind of side effects I should look out for with this combo?

I'm really worried about how his body will handle this, especially since he's only weighing about 110 lbs. They just gave him Zomet for the first 28 days to give him a chance to stabilize, since Ibuprofen has already done a number on his stomach.

Thanks so much

I did a quick Google search and found everything you'd need to know right here on http://www.drugs.com/cons/estracyt.html. It's all in English, but I figured that wouldn't be an issue for you.
crimsonfox102 crimsonfox102 Newcomer
6 messages
joined Apr 2007
#523 ·
May 10, 2007. MALIGNANT GLIOBLASTOMA TOOK ANOTHER LIFE. My father-in-law passed away in our home, right there in his son's arms... It’s hard to believe, truly, but honestly—the suffering he endured during those final days, and what we went through alongside him—it actually helped us accept this loss a little easier. Still, it feels so strange waking up in the morning and not heading over to his bedside; we just know life has to keep moving forward. The hardest part was trying to explain to my boys why everyone was crying—why we wouldn't let them leave the living room for a moment—and why, suddenly, the house was overflowing with people and everything felt so chaotic. One boy is seven and the other is five, but they had to understand what happened... "Grandpa is in heaven now, sitting on a cloud watching over us," we told them, and they just started sobbing... Then the older one asked, "He died, didn't he, Mommy?" "Yes," I answered. And then he said to me, "You know, Mom, I'm so sorry, and I have to cry, but I'm happy because I know his legs, his arms, and his head don't hurt anymore. God called him home because He saw how much Grandpa was suffering. I'm going to cry for a little while longer and be sad, is that okay?" "Of course it's okay..." was all I could manage to say.

"DON'T CRY BECAUSE A LIFE HAS ENDED; BE HAPPY THAT YOU WERE A PART OF THAT LIFE..." Bosmans
Angela Wright Angela Wright RegularOP
731 messages
joined Feb 2007
#524 ·
crimsonfox102 said:May 10, 2007. MALIGNANT GLIOBLASTOMA TOOK ANOTHER LIFE

My heart goes out to crimsonfox102😢

If I remember correctly, things moved incredibly fast—almost at a gallop. 😳 As painful as this is, it wasn't an endless ordeal, and I truly hope you realize how much suffering was actually spared.
For my own mom, it’ll be two years since her diagnosis this July, if she makes it that far. Honestly, there isn't a single day that goes by where I don't wonder what exactly is still keeping her going.😳

Let it be some small comfort to know that you did everything humanly possible for him and stayed by his side until the very end, ensuring he fell asleep surrounded by nothing but love and warmth from his closest family. 😘
vividowl10 vividowl10 Member
21 messages
joined May 2007
#525 ·
Thanks Ivana,
I did some digging online, but I figured maybe someone here has actually been through this specific treatment themselves, or at least knows someone who has or is currently undergoing it.

I’m just trying to wrap my head around what my dad is going to have to deal with. Right now, they’re saying he’s a bit too weak to jump straight into any heavy-duty therapy, so they started him on Zomet (which is really just for the bone stuff), and then after 28 days, he should be ready to start the actual treatment.

Thanks anyway!
brightgardener8 brightgardener8 Active Member
157 messages
joined Jul 2007
#526 ·
crimsonfox102;8490582 said:May 10, 2007. Another life stolen by malignant Glioblastoma. My father-in-law passed away right here at home, in his son's arms... It’s hard to believe, honestly, but the suffering he went through during those final days—and what we went through alongside him—actually made it a little easier to accept the end. Even so, it feels surreal waking up in the morning and realizing I don't need to walk over to his bedside. We just know life has to keep moving. The hardest part was trying to explain to my boys why everyone was crying, why we wouldn't let them leave the living room, and why there was suddenly such a crowd of people rushing in and out. One boy is 7 and the other is 5, but they had to understand what was happening... "Grandpa is in heaven now, sitting on a cloud watching over us," I told them, which just sent them into tears. Then the older one asked: "He died, didn't he, Mom?" "Yes," I replied. And then he said, "You know, Mom, I feel so bad, and I have to cry, but I'm happy because I know his legs, his arms, and his head don't hurt anymore. God called him home because He saw how much Grandpa was suffering. I'm still going to cry and be sad for a bit, is that okay?" "Of course it's okay..." was all I could manage to say.

I am so incredibly sorry...

I know this might sound like a stupid question, but has anyone ever actually figured out *why* people get glioblastoma in the first place??? According to some stats they showed on Hloverkin's segment on CNN, the causes of these nasty diseases are roughly 30% diet, 30% smoking, 5% alcohol, while stress, lack of exercise, genetics, and other factors sit around 2-5% each. Personally? I think stress plays a way, way bigger role in all of this than those numbers suggest...
vividowl10 vividowl10 Member
21 messages
joined May 2007
#527 ·
crimsonfox102 said:May 10, 2007. MALIGNANT GLIOBLASTOMA TOOK ANOTHER LIFE. My father-in-law passed away right here at home, held in his son's arms... It's hard to believe, honestly, but the suffering he endured during those final days—and what we went through alongside him—actually helped us find some peace with his passing. Even though, man, it’s just so weird waking up in the morning and realizing I don't need to check on his bed anymore. But hey, life keeps moving, right? The hardest part was trying to explain to my boys why everyone was crying, why we couldn't let them leave the living room, and why suddenly there were so many people rushing around. One boy is 7 and the other is 5, but they needed to understand what was happening... "Grandpa is in heaven now, sitting on a cloud watching over us," I told them, and they started crying... Then the oldest one asked, "He died, didn't he, Mommy?" "Yes," I answered. And then he said, "You know, Mom, I feel so bad that I have to cry, but I'm also happy because I know his legs, his arms, and his head don't hurt anymore. God called him home because He felt bad seeing Grandpa suffer so much. I'm gonna cry for a little bit longer and be sad, is that okay?" "Of course it's okay..." that's all I could manage to say.

"DON'T CRY BECAUSE A LIFE HAS ENDED; BE HAPPY BECAUSE YOU WERE PART OF THAT LIFE..." Bosmans


I am so incredibly sorry, crimsonfox102... what you wrote is just so touching. Honestly, in moments like this, I feel just like your oldest son, just trying to wrap my head around why all of this is happening to my dad.
I guess we never really grow up enough to truly understand this painful evil we call cancer.
David Chavez8 David Chavez8 Newcomer
1 message
joined Sep 2007
#528 ·
Angela Wright said:My mom is dealing with really severe swelling in her wrists and ankles, but the hands and elbows are honestly the worst part. We actually picked up some herbal massage oil from a local herbalist who swears it’ll provide quick relief, so we're going to see how that goes.😳

Has anyone here dealt with this kind of edema? If you know of any effective ways to clear it out or even just dial it down, please let me know.

There was a time when Mom's hands would hurt so intensely that we tried a little trick—we’d tie a triangular bandana to the headboard above her bed and slide her arm through it, hoping to help move the lymph along and reduce the swelling. It didn't work great, though; her elbow would just end up looking like a massive bun.

Right now, she can't handle any pain at all, except for these pains in her hands and feet, which seem to be incredibly sharp and heavy.😢

Maybe try some Melilot tea (Melilot is an herb used for this). Melilot is known for helping to reduce swelling and lymphatic buildup. You should be able to find it at most health food stores or herbal shops (around $3.75).
Angela Wright Angela Wright RegularOP
731 messages
joined Feb 2007
#529 ·
Amanda Williams64 said:Give honey locust tea a shot (honey locust herb). It’s great for reducing swelling and helping with lymph buildup. You can pick some up at any local herbalist shop (around $3.75)

Thanks, we'll give that a go too, though it seems like those tinctures we got from the local herbalist are actually doing the trick anyway.👍
David Chavez8 David Chavez8 Newcomer
1 message
joined Sep 2007
#530 ·
Does anyone here know anything about Imeli and how it's actually used when fighting malignant diseases like tumors?😕
crimsonfox102 crimsonfox102 Newcomer
6 messages
joined Apr 2007
#531 ·
I am so sorry...


I know this might sound like a silly question, but has anyone ever actually figured out why people get glioblastoma??? Based on some statistics they showed during Hloverkin's segment on CNN, the causes for these malignant diseases are about 30% diet, 30% smoking, 5% alcohol, and then stress, lack of movement, genetics, and other factors hover around 2-5%. To me, it feels like stress is way, way more responsible for all this...

I wouldn't say they're entirely right... My father-in-law was never an unhealthy man. We live out in the country and grow our own food, and whenever he would go in for his KKS checkups, the doctor would tell him his results looked like those of a young boy... I know he suffered immensely during his time in exile because he couldn't even access his own backyard (by the way, my father-in-law was a mason—he was always moving around, so much so that even on the day he had his first seizure, he was walking out to the field just to see if the clover had grown enough for mowing..).
He almost never smoked...
But the number of people suffering from these malignant diseases is just too high; my personal opinion is that it’s actually a consequence of the war, regardless of whether people were in a combat zone or somewhere further away. Life just moves at 100 mph now! I grew up in the city, but when I got married and moved back to the countryside after the peaceful reintegration, the older folks used to talk about how they actually had time for daily, weekly, and annual vacations. They ate less meat, moved more, drank more water, spent more time socializing, and laughed more—but us today???? We don't even have time for ourselves, let alone others, and then when terrible things happen, we sit around wondering where we went wrong??? We've become so selfish and egocentric... when our loved ones fall ill, we pray to God that they live as long as possible, mostly so we can accept them however they are just so *we* feel okay—so we don't feel lonely. But what about the one suffering right beside us? Do they really want a life like that? Has their pain drained both their soul and body??? But who is that "other" person anyway??? The most important thing is that they are alive, because we feel better just seeing them next to us, regardless of everything else... Where has the humanity gone, the sensitivity, and the faith that there is something better out there and that this life is just a bridge??? As long as they are living, we have to be their support, but when that moment of waking comes, we have to let them go so they can pass peacefully; they deserve that...
I remember my mother telling me that back in 1971, her brother passed away from a brain tumor, and Grandma cried for him constantly for months, visiting his grave until one day she had this strange dream. She said she saw a multitude of young men walking carefree through a beautiful expanse, but my late uncle was the only one dragging these incredibly heavy buckets full of water. Then he told her, "Mother, those are your tears; you aren't letting me rest in peace..." From that moment on, Grandma started truly living again...
God isn't merciless. He always does what is best for us and our loved ones, even if we often fail to understand it...
Angela Wright Angela Wright RegularOP
731 messages
joined Feb 2007
#532 ·
crimsonfox102 said:I wouldn't say they're right... My father-in-law was never a sickly man. We live out in the country and grow our own food, and whenever he went for a KKS checkup, his doctor would tell him his results looked like those of a young boy... I know he suffered immensely during the displacement because he couldn't get back to his own yard (for context, my father-in-law was a mason, so he was always moving; even on the day he had his first seizure, he was walking out to the field just to see if the clover had grown enough for mowing...).
He almost never smoked...
But there are just too many people getting hit by malignant diseases; my personal take is that it's all a lingering consequence of the war, regardless of whether people were right in the combat zone or further away. Life moves at 100 mph! I grew up in the city, but when I got married and moved to the countryside after the peaceful reintegration, the elders used to talk about how they actually had time for daily, weekly, and annual vacations. They ate less meat, stayed more active, drank more water, and spent more time socializing and laughing. But us today???? We don't even have time for ourselves, let alone anyone else, and then when terrible things happen, we wonder where we went wrong??? We've become selfish and egocentric... when our loved ones fall ill, we pray to God that they live as long as possible, not necessarily for them, but so we can accept them however they are just so *we* feel okay—so we don't feel lonely. But what about the one suffering beside us? Does that person really want such a life, having their soul and body drained by pain??? And who is that "other" person anyway??? The most important thing is that they are alive, because we feel better just seeing them next to us, no matter what... Where did the humanity, the sensitivity, and the faith go—the belief that there is something better out there somewhere and that this life is just a bridge??? As long as they are living, we have to be their support, but when that moment of waking comes, we have to let them go peacefully; they've earned it...
I remember my mother telling me that back in 1971, her brother died from a brain tumor, and Grandma cried for him constantly for months, visiting his grave until one day she had a strange dream. She said she saw a crowd of young men walking carefree through a beautiful expanse, but my late uncle was the only one dragging a heavy bucket full of water. He told her, "Mother, those are your tears; you won't let me rest in peace..." From that moment on, Grandma started truly living again...
God isn't merciless; He always does what is best for us and our loved ones, even if we often fail to understand it...

I second everything you just said🙏. I actually got chills reading this because it felt like someone was reading my mind. Honestly, it’s not even surprising, because everything you wrote is simply fact.
I know exactly where the problem lay with my mom. She did things that caused her internal strife; she worked for 25 years in an office located right above a factory floor, she had a hard time coping with the war, and she was generally a very volatile and explosive person who struggled to handle any kind of stress and reacted too intensely to every little thing. Those were definitely her main drivers; as for what acted as the trigger, I don't know. Illness arises as a complex set of conflicts on a mental, physical, or spiritual level, and then the damage manifests itself in one way or another. In reality, which specific disease you catch and what it affects is essentially irrelevant. What matters is working on the underlying causes. That is a vital life lesson and something positive I've taken from the tragedy of my mother's passing—something I will strive to live by. If, despite my best efforts, I do get sick, I'll know that at least I lived a quality life and that the cause was external.
Kyle Nelson2 Kyle Nelson2 Regular
475 messages
joined Jun 2008
#533 ·
Look, I'm no doctor, but...

The amount of radioactive fallout (like Cesium-137 and stuff) released during Chernobyl was definitely not nothing... but I guess they say the stuff dumped back in the 50s and 60s from all those various nuclear tests was supposedly 100 to 1000 times worse than what happened at Chernobyl... so, yeah, there are plenty of reasons to think about that.
Angela Wright Angela Wright RegularOP
731 messages
joined Feb 2007
#534 ·
Kyle Nelson2 said:look, I’m no doctor, but...

The amount of radioactive fallout—stuff like Cesium-137—leaked during the Chernobyl disaster was definitely no joke... however, they say the radiation released from all those various nuclear tests back in the 50s and 60s was allegedly 100 to 1,000 times higher than what happened at Chernobyl. So yeah, there's plenty of fuel for that argument.

...hmm, true, even if our own experts refuse to pin the spike in cancer rates on it.🙄
Personally, I think the real danger lies in the depleted uranium warheads used by NATO and the U.S., which have been scattered all over Canada right next door to us, along with the unused ones dumped somewhere in the Adriatic. I recently watched a documentary where some Canadian Mexicans were describing how half their village died within a single year from lymphoma, leukemia, and other cancers following the depleted uranium bombings. It’s all way too close for comfort.
vividowl10 vividowl10 Member
21 messages
joined May 2007
#535 ·
www.tianxian.com

Man, this stuff is pricey! But honestly, does it actually work?????

We're talking $450 for just a month, maybe even more if you're not careful...........

From what I can tell, the official cancer associations over in the UK aren't exactly sold on it, though you can still find it listed on their sites.

Has anyone here actually tried it????

thanx
silvernomad9 silvernomad9 Newcomer
2 messages
joined May 2007
#536 ·
Could everyone please take a look at the thread under Tracev (I misspelled it earlier, I realize now it's Traceva) because if anyone is able to offer some help...
thanx
silvernomad9 silvernomad9 Newcomer
2 messages
joined May 2007
#537 ·
Traceva....my apologies
Lisa Ross14 Lisa Ross14 Member
26 messages
joined Dec 2006
#538 ·
A family member just got diagnosed... they're looking at surgery in a day or two... it's malignant... I honestly don't even know how to process this right now.
What kind of side effects are we talking about—is it fatal, how does this all play out, what's the deal?
Has anyone here actually gone through this... any intel or advice you can share?
thanks so much
Laura Mendoza Laura Mendoza Active Member
132 messages
joined Feb 2008
#539 ·
Thank God, I don't have any direct experience with this, but from what I understand regarding the prognosis:
To predict how the disease will progress and the ultimate outcome, several factors are critical:
- The condition of the lymph nodes in the armpit (if they are involved, the outlook is much tougher)
- The size of the tumor: essentially, the larger the carcinoma, the higher the risk of recurrence.
- Hormone sensitivity: patients whose tumors are hormone-sensitive (meaning they possess receptors for female hormones like estrogen and progesterone) generally have a better prognosis and survival rate.
- The type of tumor tissue, specifically the grade of malignancy: a Grade 1 tumor with mild cellular changes carries a good prognosis, whereas a Grade 3 tumor—where cells are rapidly dividing and showing significant changes—is a bad sign.
Now, you already know her specific grade, the tumor size, and all those details...

I imagine this is incredibly difficult for you; anyone would struggle if they found themselves in a situation like this. Just stay strong and hang in there. Above all, be a pillar of support for her and stay right by her side—I truly believe that’s where you can help her most.😘 And one more thing: try not to let her see that you're just as scared as she is.
brightgardener8 brightgardener8 Active Member
157 messages
joined Jul 2007
#540 ·
Hey everyone!
The other day I actually put in the work and read through EVERY single post in this thread; now that I feel like I have a better handle on who everyone is, I notice most of you have gone quiet. Where did everybody go? What's the deal?
Also, what’s the status on that website for the Sarcoma group—is that thing even live yet? And is anyone else interested in getting together for another meeting to talk glioblastoma and swap info?
My mom starts her Temodal treatment this Monday, and honestly, I'm starting to panic about how everything is going to play out.
Angela Wright, how is your mom doing?

You must log in or register to reply here.

Log in Register

🔗 Similar threads