Chloe Bennett5
Newcomer
4 messages
joined Sep 2020
My sincere condolences to everyone who has lost loved ones, and my heart goes out to those currently fighting these brutal diseases.
Apologies in advance for the long post.
On February 12, 2020, my mother received a pathology report confirming Glioblastoma Multiforme Grade IV, wild type.
She underwent two surgeries at Johns Hopkins Hospital. The first was on February 5, 2020. A follow-up MRI four weeks later showed total tumor progression. She had a second surgery on March 30, 2020. Following that, she underwent 30 consecutive radiation sessions combined with Temodal 120 mg over a total of 42 days. There was absolutely no response to the therapy. An MRI two months after the last radiation session showed even greater progression. Both the neurosurgeon and she decided to stop further surgeries and stick to oncological treatment.
At the end of the ninth month, she started the PCV protocol. There isn't much written about this specific protocol online.
Angela Wright, thank you for the information.
The PCV protocol: Day 1 involves three 40mg CCNU tablets. Seven days later, there is a Vincristine infusion, followed by 10 days of taking Natulan tablets. Seven days after the last tablet, there is another Vincristine infusion.
The plan was for four cycles.
Before each part of a cycle, she had to have her CBC and differential checked. Results had to be stable for her to proceed with the next stage.
One cycle lasts one month.
After the second cycle, another brain MRI showed even more significant tumor progression.
During the second half of the third cycle, my mother decided to stop all further treatment.
Since stopping therapy, she takes Dexamethasone 4 mg, Lercanil 10mg, Acipan 40 mg, Diazepam 5mg, Lamal 25mg, and Glucophage 850 mg.
Since the beginning, she has been taking Noni, raw propolis, and turmeric.
For pain management, she used Advil 600mg for a long time, then moved up to Advil 800 SR.
Over the last two weeks, the disease has progressed rapidly. We have moved her into a care facility because I can no longer provide the level of intensive care she requires.
Currently, only her right arm remains mobile.
She has been aware of her diagnosis from the very start.
I am with her almost every day, and every day things get worse. The disease is advancing relentlessly.
It is incredibly difficult to watch her slowly slip away.
For pain, she is now on Matrifen 50 patches, Oxigerolan 20mg tablets, and Dronabinol oil drops.
Today, I’m going to try to reach an anesthesiologist through the pain clinic to adjust her medication. We can barely touch her; she says everything hurts.
