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Facial nerve inflammation / Bell's Palsy help?

Started by Michael Perez4 · · 👁 4 views · 26 replies

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Participants Michael Perez4Michael Williams70Ethan Garcia8Scott Allen10Keith MartinezSam Hall15Austin Sanders9Jason Gomez5Joseph Ward16brightpilot18
Michael Perez4 Michael Perez4 NewcomerOP
2 messages
joined Apr 2008
#1 ·
Has anyone else dealt with this?
I swear, my brain just comes up with the wildest combinations sometimes.🙄

I've got all my meds ready and I’m starting physical therapy tomorrow, but now I'm wondering if I should also look into acupuncture or maybe seeing a bioenergy healer? 😕
Michael Williams70 Michael Williams70 Newcomer
2 messages
joined May 2008
#2 ·
I’ve dealt with this twice myself. First time back when I was just a kid, and then again about 12 years ago. Honestly, what can I tell you? You need IV B vitamins, stay on top of physical therapy like your life depends on it—be disciplined—keep that side of your face warm, make faces, blow air through your mouth, and for heaven's sake, stay out of drafts... I'm truly sorry this hit you.
I ended up on medical leave for 75 days. It's absolutely critical to start treatment immediately; they wouldn't even let me go back to work because there was a real risk of permanent facial paralysis if things went sideways.
The lasting reminders for me are the vision issues in my left eye (since it hit my left side), constant tearing up, and the fact that the two sides of my face don't quite match anymore. Breathing through my left nostril is a struggle, and my left lip is weaker, which makes eating a bit of a mess—like, I can't even swirl spaghetti on a fork because the left side "leaks"...
Reading all that sounds pretty grim, but it’s not actually that catastrophic. Most of it is stuff only I notice. Still, I have to be careful not to let it happen again, because recovery would be way more complicated next time.
When I was in 5th grade, I spent a month at Mayo Clinic getting B vitamins via intramuscular shots, and man, that was brutal. My butt was sore and bruised, and I couldn't sit, lie down, or even walk properly after the injections (they always timed them right before lunch), and the stinging... it was absolute hell. Just imagine being an 11-year-old going through that.
It was much easier this time around. They did IV treatments with Vitamin C mixed in. B vitamins aren't usually covered by insurance these days (not sure how it works now), even though they're the standard treatment for this condition. Luckily, I managed to get some through a friend who works at the hospital.
In the end, all I can wish for you is a speedy recovery, minimal side effects, and enough discipline to really grind through those therapies.
Oh, yeah. One more thing. Because of this, I had to undergo the most unpleasant exam of my entire life. An electromyography. Gross. Testing nerve conduction. Necessary, sure, but totally miserable.
Hope this helps even a little bit. Hang in there. 😉
Ethan Garcia8 Ethan Garcia8 Active Member
51 messages
joined Sep 2017
#3 ·
Karen Peterson said:Has anyone else dealt with this?
I guess my mind just jumps to all these wild possibilities.🙄

I've got all my prescriptions ready and I start physical therapy tomorrow, but now I'm wondering if I should also look into acupuncture or maybe seeing a holistic healer? 😕

I went through this twice myself—once five years ago and again last year. It started on one side of my face, then moved to the other. I don't have any lasting issues, and they weren't nearly as intense with my case as the guy mentioned above. I went to the ER to see a neurologist, who cleared me of any neurological issues, and then an ENT specialist who said everything looked fine too. They just gave me some B-complex vitamins and some exercises to do, and that was that. Everything cleared up in about three or four days. The first time I did physical therapy, but I skipped it the second time.

I know another guy who had it happen twice, too. It seems like we're just prone to it, even if the odds are low.😁
Michael Williams70 Michael Williams70 Newcomer
2 messages
joined May 2008
#4 ·
Looks like you lucked out. I got absolutely slammed by this thing. Honestly, if you’re younger, you bounce back way faster and more effectively. If this hit me again at my age—42—I think I'd be in for a much rougher ride. About 12 years ago, I knew an old guy who went through therapy for this, and after a whole month of it, he barely saw any improvement. It really just comes down to how lucky you are...
The second time it happened, it was just a perfect storm of bad timing. I had the flu, a 102 fever, freezing weather outside, a cold car, the AC blasting, and I was sweating... It caught me completely off guard mid-day, and since I couldn't exactly walk away from work immediately, I pushed through it. Ended up throwing my neck out, and I can still feel the pain in that spot today.
Ethan Garcia8 Ethan Garcia8 Active Member
51 messages
joined Sep 2017
#5 ·
Michael Williams70 said:It sounds like you guys caught a break. I definitely got the short end of the stick. Usually, the younger you are, the faster you bounce back—if I caught this again at my age, it would be a much tougher climb. About twelve years ago, an older gentleman I knew started therapy, and after a month, he barely saw any improvement. It really just comes down to how lucky you get.
The second time it hit me, it was just bad timing. I had the flu, a 102 fever, freezing weather, a cold car, the AC blowing... I was sweating through it all. It struck me mid-day, and since I couldn't just walk away from work, I pushed through. It hit me right in the neck, and honestly, I can still feel the aches there today.

That sounds rough.

The worst part is when you can't even laugh about it because you end up looking ridiculous to yourself. 🙂
Michael Williams70 Michael Williams70 Newcomer
2 messages
joined May 2008
#6 ·
Still at it. Just like Francis
Ethan Garcia8 Ethan Garcia8 Active Member
51 messages
joined Sep 2017
#7 ·
Michael Williams70 said:Still dealing with it. Just like Francis

That’s rough. 😢 It makes me wonder if my doctors were being too casual with my treatment plan here. I really hope I don't have to go through this a third time.
Michael Perez4 Michael Perez4 NewcomerOP
2 messages
joined Apr 2008
#8 ·
Michael Williams70 said:I’ve been through this twice myself—once back when I was just a kid, and again about 12 years ago. Honestly, if I were you, I’d be hitting the B vitamins via IV, staying on top of physical therapy like it's your full-time job, and keeping that side of your face warm. Do facial exercises, practice blowing air, and for heaven's sake, stay out of the wind. It really sucks that you're dealing with this, man.
I was out on medical leave for 75 days straight. Getting started on these treatments ASAP is absolutely critical, and I wasn't allowed to step foot back on the job because the risks were too high—if I had worked, I could have ended up permanently paralyzed.
All I’ve got to show for it is messed up vision in my left eye—the stroke hit my left side hard. My eyes tear up constantly now, and my face is totally asymmetrical. Breathing through my left nostril is a total struggle, and since the left side of my lip is weak, I end up being a messy eater. It’s embarrassing; I can’t even handle something simple like spaghetti because the left side of my mouth just won't hold it together.
Honestly, reading all that sounds pretty grim, but it’s really not as bad as it looks on paper. I just tend to notice things that everyone else misses. Still, I’ve gotta be careful not to catch it again—recovery would be a total nightmare this time around.
Back when I was just a kid in fifth grade, I spent an entire month stuck in a hospital bed over on Vineyard. They had me on these B vitamin shots—injected straight into my butt—and let me tell you, it was absolutely brutal. My ass would be sore and bruised, making it impossible to sit, lie down, or even walk properly after the shot. They always made sure to hit me with them right before lunch, too. And the stinging? Pure hell. Just imagine being an eleven-year-old kid having to deal with that kind of pain.
It was actually way easier this time around. They did an IV combo with Vitamin C, which made a huge difference. B vitamins aren't even covered by insurance anymore—I don't know what the deal is with that lately—even though they're standard treatment for this condition. Luckily, I managed to score some through a friend who works at the hospital.
All I can say at this point is good luck with the recovery. Hopefully you dodge as many side effects as possible, but honestly, it’s going to take some serious discipline and actual effort with the therapy to see real results.
Yeah, seriously. And another thing—because of this whole illness situation, I had to deal with the most uncomfortable medical exam of my entire life. An electromyography. Gross. It’s basically checking nerve conduction. Totally necessary, but man, it was unpleasant.
Hope that helped you out at least a little bit. Hang in there. 😉


Man, you didn't actually help me at all—you just straight up lectured me.😲😢
Look, alright, you just laid out your own side of things and basically told me not to mess around with it.🙄
So, I’m back at work now, and honestly, I'm not even planning on taking any sick leave. I'm strictly behind a computer screen, not out doing anything crazy—just sitting in my office. My neurologist gave me the green light and said working on a PC is totally fine. The only real headache is the commute; I have to be extra careful walking to and from the office so nothing flies into my eye. Since I can't blink properly right now, my eye stays wide open all the time and gets incredibly dry. It's a pain.

I’ve been non-stop writhing around since she told me I had to. For the first two days, I was actually overthinking it, thinking I shouldn't stretch too much or twist my body, but turns out I actually need to do as much as possible. Not that I mind, though. Between grinding more than I ever write, writhing, twisting, and just moving around, I'm staying busy.🤣)

I think I’m finally over the worst of that panic. Honestly, things are starting to look up—my mouth is actually beginning to straighten out on the left side again. Or maybe I’ve just gotten used to the sensation, because my jaw isn't hurting nearly as much from being pulled out of shape anymore.😕
By the way, I'm just not feeling the vibe for messing around right now.👎
Nerve conduction study? You've gotta be kidding me. Am I really expected to go through that too?
Michael Perez4 Michael Perez4 NewcomerOP
2 messages
joined Apr 2008
#9 ·
Ethan Garcia8 said:I went through this twice myself—once five years ago and again last year. First it was one side, then the other. I don't have any lasting issues, and they didn't go overboard with the treatment like they did for the guy mentioned above. I hit up the ER neurology department both times; they checked me out and confirmed there were no neurological issues. Then I got a referral to an ENT, who also gave me the all-clear. They just handed me some B-complex vitamins and some exercises to do, and that was it. It cleared up in about 3 or 4 days. The first time I went to physical therapy, but the second time I didn't bother.

I know another guy who dealt with this twice too. Clearly, some people are just prone to it, even if the odds are slim. 😁


Actually, I prefer this outcome. I’m hoping to follow your lead regarding the recovery and making sure it doesn't happen again.🙄
Man, seriously, some people are just unlucky and catch every flu or cold going around... while others deal with this kind of "nonsense."😳

Yeah, they sent me to an ENT too. I've got an appointment in 10 days... honestly, the main thing stressing me out is the actual cause. Like, okay, maybe it was just a draft, but what if it wasn't?😕
Michael Perez4 Michael Perez4 NewcomerOP
2 messages
joined Apr 2008
#10 ·
Ethan Garcia8 said:That sucks.

The worst part is you can't even laugh at it because you just end up looking like a total idiot to yourself. 🙂


Oh yeah, clearly that's my biggest struggle... I can't even say hello without cracking a grin. I actually set up a mirror in front of me just now, trying my hardest to fix this smile so I can finally look halfway normal.😂
Michael Williams70 Michael Williams70 Newcomer
2 messages
joined May 2008
#11 ·
Last night, I used some ointment—can’t recall which antibiotic specifically—and just squeezed it right into my eye, then pressed on it so it wouldn't leak out while I was sleeping... at least until I drifted off. During the day, I just stick to artificial tears. I don't mess with the ointment during daylight hours because it blurs everything up, and I can't have that when I'm driving myself to my appointments... it gets too blurry to see the road.
You probably won't need an EMG. I got hit with such a nasty jolt that I figured it was necessary. It actually reminded me that I've been having hearing issues, too. My ear was reacting insanely to sound. As soon as things got above a certain decibel level, it felt like my eyes were going to pop right out of my head. Even showering was a nightmare; I couldn't let the water hit my ear directly or the noise would absolutely wreck me.😲
That whole situation was anything but harmless. Hopefully, your symptoms are way more manageable since your doctor cleared you to keep working.
So, during your therapy sessions, do you just sit there in front of the mirror making faces at yourself? While I was waiting for the power to come back on, I found myself cracking jokes to my own reflection... people were staring at me like I'd completely lost my mind. Honestly, I was being ridiculous even to myself.😂
Scott Allen10 Scott Allen10 Regular
315 messages
joined Jun 2005
#12 ·
The hyperbaric chamber really does the trick.
Michael Perez4 Michael Perez4 NewcomerOP
2 messages
joined Apr 2008
#13 ·
Michael Williams70 said:So, last night I used this antibiotic ointment—can't even remember which one—and I basically smashed it into my eye and squeezed it shut so it wouldn't leak out while I was sleeping. During the day, I just stuck to artificial tears. I wasn't messing with the ointment during daylight hours because it blurs your vision like crazy, and I needed to be able to see clearly since I had to drive myself to my appointments.
You probably aren't going to bother with the EMG. I had such a nasty shock that I actually had to go in for it. It reminded me that my hearing has been acting up too. My ear was ringing like crazy. As soon as the noise hit a certain volume, I felt like my eyes were literally going to pop out of my head. Even taking a shower was a struggle because if the water hit my ear too hard, the sound would have absolutely wrecked me.😲
That wasn't exactly a walk in the park. I really hope things are feeling way less intense for you now that your doctor actually gave you the green light to get back to work.
Do you sit in front of a mirror making faces while you're on your meds? While I was waiting around for the power to come back on, I ended up just cracking jokes to myself. People were staring at me like I’d completely lost my mind. Honestly, even I thought I was being ridiculous.😂


Yeah, exactly. I got that Chloramphenicol ointment for my eye too, so I just slather it on before putting my bandages on and heading to bed. In the morning, I take some Nexium on an empty stomach to buffer my system against the Medrol I take with breakfast. Those pills are absolute heavy hitters, but luckily I’ve got a stomach like a longshoreman.🤣I’m popping B vitamins three times a day... Honestly, I'm basically just a walking pillbox at this point.😁
Heading to the doctor's office for the first time today. Honestly, I have zero clue what they're actually going to do to me...
My hearing is totally fine—not even a little bit off. Even my neurologist asked if I noticed anything different with my ears, but honestly, I don't notice any change at all. 🤷
Michael Williams70 Michael Williams70 Newcomer
2 messages
joined May 2008
#14 ·
First you deal with the mirror and some exfoliation, then you get a little facial stimulation. Don't sweat it, it’s nothing to be scared of. Honestly, I actually enjoyed it... since I usually get zapped by a static shock at least once a month anyway.
When I was a kid, the massage was definitely the highlight. I was about 11, nice ladies, head in your lap, getting a facial massage.🙂 They don't do that anymore though.
At least your hearing is fine. Just stay brave, you'll be alright.
Keith Martinez Keith Martinez Newcomer
1 message
joined Nov 2007
#15 ·
Laser therapy can be a total game-changer when it comes to knocking those symptoms down a peg... It’s actually been performing incredibly well for treating trigeminal neuralgia specifically.
Michael Perez4 Michael Perez4 NewcomerOP
2 messages
joined Apr 2008
#16 ·
Keith Martinez said:Laser therapy is actually great for knocking out symptoms. It works wonders for trigeminal neuralgia.

😕
Dee, who exactly does this and how does it even work? 🙄
Sam Hall15 Sam Hall15 Active Member
225 messages
joined May 2006
#17 ·
Unless it is a major nerve lesion, it usually resolves without permanent damage in about a month... don't worry, it isn't catastrophic. Given the therapy already mentioned, it might not be a bad idea to use corticosteroids, just as Michael Perez4 suggested for the first few days, typically for about five days.
Michael Perez4 Michael Perez4 NewcomerOP
2 messages
joined Apr 2008
#18 ·
😲So, I just finished my first round of therapy. Heading back tomorrow for round two, and we’ll keep this rolling until things are sorted out🙄. Nobody wants to give me a straight answer on the timeline. Look, I get it—nobody can predict the future and everyone heals differently—but I still want a ballpark figure of what I'm looking at🙂.
I actually ran into another girl at the clinic where I go for physical therapy who just wrapped up her sessions... but nope, couldn't squeeze a single detail out of her about how long it actually took.🤷
Sam Hall15, you think maybe a month?🙄 Yeah, okay, that’s roughly what I was thinking... so hopefully, with any luck, I'll be done even sooner.👍 Honestly, I am putting in the work. I'm doing my exercises day and night—at home, staring in the mirror, without the mirror, while walking down the street, even at work.😛
Today, I can already move one side of my mouth just a tiny bit. It’s subtle, but I’m pretty sure I couldn't do that the other day... or am I just losing my mind?

The therapy itself is actually pretty nice during the massage portion.😁 The electrical stimulation part is a bit much and feels pretty unpleasant (especially if you haven't had a real meal, which was my situation yesterday!😲)
Austin Sanders9 Austin Sanders9 Newcomer
1 message
joined Jan 2010
#19 ·
I went through this exact same thing about seven years ago. It was the whole routine: B vitamins, massage therapy, and those little electrical stimulation sessions. I did 20 sessions over the course of a month or so, and honestly, I bounced back completely. Now, I’m not acting like Francis, where you can't tell anything's wrong, but I feel great. The real secret is just staying on top of your solo exercises; if you do that, you'll be fine. I still laugh thinking about when I first showed up for my appointment, feeling all proud of myself because I actually managed to close my eye at home. I tried to demonstrate it to the physical therapist to prove I could do it, but it just wouldn't cooperate. 😢😁
Jason Gomez5 Jason Gomez5 Newcomer
1 message
joined Nov 2013
#20 ·
Karen Peterson said:😲So, I just finished my first therapy session, heading back tomorrow for the second one, and I guess it’ll just keep going like this until things improve🙄 Nobody really wants to give me a straight answer on how long this whole thing takes—and look, I totally get it, I know you can't predict it because everyone heals differently—but man, I would still love to have some kind of ballpark figure to prepare myself for...🙂
I mean, there was actually another girl at the physical therapy clinic where I go who just wrapped up her treatment... but nope, I couldn't manage to squeeze out any info about how long she was stuck in the cycle...🤷
So, Anthony, you're saying maybe a month? Like, roughly?🙄 Well, okay, that's about what I was thinking... and now... well, God willing, hopefully even sooner than that!👍 Seriously, I am trying so hard, doing my exercises day and night, at home, staring at myself in the mirror, without a mirror, even while walking down the street or sitting at work...😛
Today, I could actually move one side of my mouth a tiny bit... it's nothing major, but I don't think I could do that just the other day... or maybe I'm just losing my mind?

The actual therapy feels pretty nice during the massage part,😁 but that electrical stimulation part is kind of intense and uncomfortable (especially if you haven't managed to eat anything substantial, which was me yesterday, for example!😲)


My daughter had... such awful inflammation... her muscles felt hard as rock... acupuncture ended up being the biggest lifesaver for her... she went to a place in Chicago and it wasn't even that pricey...

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