Michael Williams70
Newcomer
2 messages
joined May 2008
I’ve dealt with this twice myself. First time back when I was just a kid, and then again about 12 years ago. Honestly, what can I tell you? You need IV B vitamins, stay on top of physical therapy like your life depends on it—be disciplined—keep that side of your face warm, make faces, blow air through your mouth, and for heaven's sake, stay out of drafts... I'm truly sorry this hit you.
I ended up on medical leave for 75 days. It's absolutely critical to start treatment immediately; they wouldn't even let me go back to work because there was a real risk of permanent facial paralysis if things went sideways.
The lasting reminders for me are the vision issues in my left eye (since it hit my left side), constant tearing up, and the fact that the two sides of my face don't quite match anymore. Breathing through my left nostril is a struggle, and my left lip is weaker, which makes eating a bit of a mess—like, I can't even swirl spaghetti on a fork because the left side "leaks"...
Reading all that sounds pretty grim, but it’s not actually that catastrophic. Most of it is stuff only I notice. Still, I have to be careful not to let it happen again, because recovery would be way more complicated next time.
When I was in 5th grade, I spent a month at Mayo Clinic getting B vitamins via intramuscular shots, and man, that was brutal. My butt was sore and bruised, and I couldn't sit, lie down, or even walk properly after the injections (they always timed them right before lunch), and the stinging... it was absolute hell. Just imagine being an 11-year-old going through that.
It was much easier this time around. They did IV treatments with Vitamin C mixed in. B vitamins aren't usually covered by insurance these days (not sure how it works now), even though they're the standard treatment for this condition. Luckily, I managed to get some through a friend who works at the hospital.
In the end, all I can wish for you is a speedy recovery, minimal side effects, and enough discipline to really grind through those therapies.
Oh, yeah. One more thing. Because of this, I had to undergo the most unpleasant exam of my entire life. An electromyography. Gross. Testing nerve conduction. Necessary, sure, but totally miserable.
Hope this helps even a little bit. Hang in there. 😉