LDN: A potential treatment for certain conditions?

Angela Wright said:Look, I could step up right here, put my full legal name on the line, and tell you that I beat my endometriosis using nothing but apple compote. But obviously, an anecdote isn't enough to be taken seriously or to justify treating millions of women that way. We need hard, concrete evidence, and that can only come through rigorous studies—and we need a massive volume of them before this kind of treatment becomes standard medical practice.
The trials you’re bringing up, unfortunately, simply don't provide enough certainty to eliminate all doubt when determining if a drug should be used in clinical settings. It’s a shame if you can't view this as a cold, hard fact rather than just my personal skepticism.
I think I've made my position crystal clear.

I’m not looking for a fight here—we both have way too much on our plates for that. But honestly? That comment wasn't worthy of you. Unless you’re secretly on some Big Pharma payroll, why are you so against CNN?

I’ve mentioned this multiple times already: several top-tier American universities (run by actual qualified doctors) have conducted studies proving that CNN is effective. The problem? There's zero funding for massive trials because the pharmaceutical companies won't touch it with a ten-foot pole. So, they run these smaller studies on maybe 100 people, which just isn't enough to get official FDA approval.

Even the Italians (Nature Neuroscience (FDA) and Department of Neurology, Mayo Clinic, 1600 Pennsylvania Avenue NW, New York City,) and the Germans have carried out research. All results were positive.

Last year, Dr. Tom Gilhooly even organized the first major conference on CNN in Chicago and wrote a glowing piece about it in a leading medical journal. Etc, etc.

That’s a hell of a lot more substantial than apple compote.

...☕....hm...

urbanorca says: "LDN is an immunomodulator that boosts T-lymphocyte counts by 300%" 🤔
What’s the actual deal with that?

CNN just dropped a video on YouTube, and they’re actually being positive about this lady living with MS. They’re even calling LDN a "miracle cure":

http://www.youtube.com/watch?v=Kz52K...eature=related

urbanorca said:I’m not looking for a fight here—we both have way too much on our plates for that. But honestly? That comment wasn't worthy of you. Unless you’re secretly on some Big Pharma payroll, why are you so against CNN?

I’ve mentioned this multiple times already: several top-tier American universities (run by actual qualified doctors) have conducted studies proving that CNN is effective. The problem? There's zero funding for massive trials because the pharmaceutical companies won't touch it with a ten-foot pole. So, they run these smaller studies on maybe 100 people, which just isn't enough to get official FDA approval.

Even the Italians (Nature Neuroscience (FDA) and Department of Neurology, Mayo Clinic, 1600 Pennsylvania Avenue NW, New York City,) and the Germans have carried out research. All results were positive.

Last year, Dr. Tom Gilhooly even organized the first major conference on CNN in Chicago and wrote a glowing piece about it in a leading medical journal. Etc, etc.

That’s a hell of a lot more substantial than apple compote.

Engaging in this kind of back-and-forth is beneath me.😳
Since when do you get to decide whether my personal experience with what helped me is valid?
I highlighted that specific point precisely so you would grasp the core of my argument. Without a sufficient number of clinical trials, nothing moves forward. It's a harsh reality, but that's how it works!
Unlike you, I’ve laid out nothing but cold, hard facts without resorting to the empty platitudes you keep throwing around. You're being blatantly disrespectful, making baseless accusations and insinuations despite the fact that I've been incredibly clear and thorough in my explanation. All of this just because you refuse to accept that the world doesn't always work the way we want it to or the way we think it should.
It's frankly immature.

Take it easy, lady, seriously! No need to lose your cool over things that don't even matter.

I just got word that some MS patients here in the States are already using LDN for treatment. This is huge!

I’ve only got a little bit of patience left for this whole topic... the pattern is always the same—some "prophet" shows up claiming they've found a "miracle," then someone makes a perfectly reasonable observation, and suddenly the "prophet" starts ranting about the evil Big Pharma industry and dragging up these supposed "healing stories" to back themselves up. It just goes around in circles like that...
all good
this is just the first round of that exact same playbook... if things start spinning the same way for round two, I'm dropping a PDF with all the evidence the very second it happens...

urbanorca said:Take it easy, lady, seriously! No need to lose your cool over things that don't even matter.

I just got word that some MS patients here in the States are already using LDN for treatment. This is huge!

You could have easily found that info right here in the MS thread
and honestly, most of those posts are over a year old now

So you basically just... 🙂 discovered...
hot water
meaning it's nothing new at all!

Anyway, I think Angela Wright is absolutely spot on—I couldn't agree more with her! 🙏

Bravo, gentlemen. As usual, what does some old fool living abroad know compared to us? I mean, clearly, we know way more than American TV networks, Ivy League universities, doctors, or actual patients, right? He’s just talking nonsense, but look—I wasn't just talking about MS; I said LDN helps a whole host of different conditions. To me, it’s a massive win that people have actually reached out to thank me. Even if I’ve only helped ten sick people in the States, that’s a huge deal.

On another note, I’ve had plenty of bad experiences with this country. My daughter Anna and I have been running the website www.visit-america.co.uk for twelve years now. In that time, we’ve brought about 100,000 tourists to the US and answered roughly 25,000 questions in English. We haven't seen a single cent from the government, yet we get all these replies from people here acting like they're so important, or claiming we're somehow messing with the local tourism industry. But whatever, I won't drone on about it.

As for Jane, I wish her the best, though some of her responses really caught me off guard.

One question for everyone: if my posts aren't actually useful, why am I wasting my time? I've put over 20 hours into research so far. So, please, give it to me straight.

Look, urbanorca, just let them be; I honestly can't wrap my head around why some people feel the need to jump into these discussions just to tear down someone who is clearly trying to be helpful. I am practically begging you at this point to stop engaging with their posts altogether and instead just focus on those of us who actually have the decency to cooperate. As I mentioned before, I was recently over at the local CVS asking a few questions... now I have to schedule an appointment with my primary care physician to see what our next steps should be regarding this matter. Once again, my sincere thanks to everyone who took even twenty minutes out of their day to lend a hand to someone in need. And please, remember, urbanorca, this is America, and while there are exceptions, most people can be incredibly shortsighted—I suppose you were bound to run into those types of fools just as anyone else would. Thanks again... until next time, cheers!

urbanorca said:Bravo, gentlemen. As usual, what does some old fool living abroad know compared to us? I mean, clearly, we know way more than American TV networks, Ivy League universities, doctors, or actual patients, right? He’s just talking nonsense, but look—I wasn't just talking about MS; I said LDN helps a whole host of different conditions. To me, it’s a massive win that people have actually reached out to thank me. Even if I’ve only helped ten sick people in the States, that’s a huge deal.

On another note, I’ve had plenty of bad experiences with this country. My daughter Anna and I have been running the website www.visit-america.co.uk for twelve years now. In that time, we’ve brought about 100,000 tourists to the US and answered roughly 25,000 questions in English. We haven't seen a single cent from the government, yet we get all these replies from people here acting like they're so important, or claiming we're somehow messing with the local tourism industry. But whatever, I won't drone on about it.

As for Jane, I wish her the best, though some of her responses really caught me off guard.

One question for everyone: if my posts aren't actually useful, why am I wasting my time? I've put over 20 hours into research so far. So, please, give it to me straight.

Look, my advice is that we can totally debate a specific treatment and how well it works (I mean, where else would we?)—we can talk stats, side effects, what it’s used for, or who should avoid it...
But you can't just walk in here and claim some substance is the Holy Grail that has no competition and shouldn't be questioned by anyone. Every once in a while, some author or group pops up with the exact same script. It’s always the same vibe: "this is amazing," "here's a study to prove it," and "shame on you if you don't believe us."
If that narrative starts drifting into "evil Big Pharma" blocking a "miracle cure" from reaching the masses... then I'm out. I've dealt with that kind of approach plenty of times, and I really don't want this forum turning into a space for those kinds of topics.

I truly value everything you've shared and the effort you put into your posts... I hope you know I really mean that... but please don't mistake my sincerity for an endorsement of the stuff I mentioned above.

George, thanks a ton. This isn't my first rodeo, so I'm not losing sleep over it. You just have to stay persistent and keep fighting. That’s just how life works.

Keep pushing for answers regarding your condition, even if you only find partial relief. Good luck!

Scott Allen10, look, LDN isn't the Holy Grail, but it actually works. Please, just read the links provided (I honestly don't get why you're digging your heels in when you could actually learn something about LDN). You have every right to disagree, but don't just dismiss everything out of hand.

It feels like every single day some new author or group pops up pushing some new theory. Someone asked me yesterday about blood types and cancer links because a book was released here in the States—some American authors—but I looked into it and couldn't find much solid evidence to back it up. With LDN, though? It's nothing but positive reports.

I'm sticking to my guns regarding Big Pharma. It's based on my own experience and what I've seen from others. Think about statins or Avandia—which is banned now. Pfizer actually had to pay a $450 million fine right here in America because they were pushing drugs that did more harm than good. There are endless examples like that!

Please, seriously, just look up LDN online. Once you do, you'll see what I mean.

Big thanks to everyone who hit me up in my DMs, too. I've made sure to get back to every single one of you.

Sorry everyone, me being annoying again. Just saw this piece in today's The New York Times about how Big Pharma operates here in America. There's massive amounts of cash on the line, so maybe some of you actually care:

http://www.nytimes.com/2010/10/03/bu...3psych.html?hp

urbanorca, you should see how fast the mods and some other folks jumped on this. 🙂

Too many people come on here peddling nonsense. Most folks on this forum are actually sick, or they're looking out for someone who is. You know as well as I do that when people are desperate, they'll spend their last dime just to feel a little better.

And look, this drug is like any other—it has side effects. You have to be upfront about the downsides, not just the perks. 😉

Honestly, I'm glad you started this thread because I had no idea this was even an option. From what I can gather, the FDA has it approved here in the States, but strictly for addiction treatment. Jane mentioned earlier that getting a hold of it for anything else is going to be an uphill battle. 🤷
I'm going to check in with my immunologist to see if she’s heard of this and get her take on it.

melloworca6 said:urbanorca, you should see how fast the mods and some other folks jumped on this. 🙂

Too many people come on here peddling nonsense. Most folks on this forum are actually sick, or they're looking out for someone who is. You know as well as I do that when people are desperate, they'll spend their last dime just to feel a little better.

And look, this drug is like any other—it has side effects. You have to be upfront about the downsides, not just the perks. 😉

Honestly, I'm glad you started this thread because I had no idea this was even an option. From what I can gather, the FDA has it approved here in the States, but strictly for addiction treatment. Jane mentioned earlier that getting a hold of it for anything else is going to be an uphill battle. 🤷
I'm going to check in with my immunologist to see if she’s heard of this and get her take on it.

About three years ago, there were some people with MS here in the States who were using it
check out page 71 and beyond in that thread
you could ask them about their experience to learn all about the side effects and how they actually got a hold of it
I don't remember all the specifics 😬 (it's honestly such a blessing when memory lapses cover things up! 😵) but since my concentration is a bit shot right now, I really don't have the energy to go digging through everything again.

Missy really nailed those comments over in the MS section. Meanwhile, here I am, just an old fool spinning my wheels trying to dig through all this research. Honestly, I need a serious break. Thanks, everyone!

jadesailor14 said:About three years ago, there were some people with MS here in the States who were using it
check out page 71 and beyond in that thread
you could ask them about their experience to learn all about the side effects and how they actually got a hold of it
I don't remember all the specifics 😬 (it's honestly such a blessing when memory lapses cover things up! 😵) but since my concentration is a bit shot right now, I really don't have the energy to go digging through everything again.

Thanks! 👍

melloworca6 said:urbanorca, you should see how fast the mods and some other folks jumped on this. 🙂

Too many people come on here peddling nonsense. Most folks on this forum are actually sick, or they're looking out for someone who is. You know as well as I do that when people are desperate, they'll spend their last dime just to feel a little better.

And look, this drug is like any other—it has side effects. You have to be upfront about the downsides, not just the perks. 😉

Honestly, I'm glad you started this thread because I had no idea this was even an option. From what I can gather, the FDA has it approved here in the States, but strictly for addiction treatment. Jane mentioned earlier that getting a hold of it for anything else is going to be an uphill battle. 🤷
I'm going to check in with my immunologist to see if she’s heard of this and get her take on it.

Back at it again with the boring questions. What kind of side effects are we talking about here? Aside from some mild insomnia during the first week or two? Give me a link, please!

I have no idea what the side effects are—that’s why I’m asking. 😉 I only just heard about this a few days ago, so I’m still completely in the dark here.

From what I’ve managed to read, taking massive amounts can cause liver damage (but we're talking serious daily doses, like over 300 mg).