urbanorca said:jadesailor14, thanks. Look, I don't have a medical degree, but I've spent countless hours digging into LDN. I've looked at what renowned doctors like Dr. Bihari, Smith, Zagon, and Goohilly have to say, read through several studies, and went through about 200 patient testimonials and stuff.
LDN (usually up to 4.5 mg) is a tiny dose of Naltrexone—a drug typically used in doses of 50 to 200 mg to treat alcohol and drug addiction. Not one single study or doctor claims it has dangerous consequences; there are almost zero side effects (maybe some insomnia). About 70% of people say it helped them, some even claim they're cured (meaning no more "flare ups"), and while about 10% feel it didn't work for them, nobody is claiming it made their condition worse.
There are even TV shows about this; some people call it a miracle drug. A leading TV Doctor in the UK, Chris Steel, made a heartfelt plea ("The NHS would save billions if they used LDN"), and there was even a petition signed by 14,000 people sent to Parliament over there.
But in the UK, about 95% of doctors refuse to prescribe it because it looks like Big Pharma is putting on the pressure to keep this cheap, effective drug from being used.
As for Big Pharma, it's just scandal after scandal—Avandia and Crestor (statins). Some estimates suggest that between 50,000 and 200,000 people in the US have died from those drugs. Now Avandia is banned in the UK. In the US, GlaxoSmithKline had to pay 60 million dollars to the first 700 people who sued them for the harmful effects, and there are still about 100,000 more people waiting in line for lawsuits.
I had massive problems with statins myself, and I stopped taking them three years ago, despite my doctor's advice (if I had listened to the doctor, maybe I wouldn't be bothering you guys here right now). I trust people's lived experiences and my own history with a medication way more than I trust doctors.
But hey, everyone should do their own research before jumping to conclusions. If I had an autoimmune disease or something similar, I already know exactly what I'd do.
You mentioned you spent about 20 hours digging into this!
Twenty hours? Are you kidding me?! Good grief, what is twenty hours even supposed to mean? Honestly, it’s absolutely nothing—just a total zero!
Since you don't have any formal training in this field, you honestly don't even know how to present information properly!
And you can't even get access to those most important threads!
You bet I do!
It’s always so much easier to talk about what we'd do if things were different! I honestly find that opening up about those "what if" scenarios makes everything feel a bit more manageable. What's on your mind?
wiredlynx33 said:I honestly can't decide whether I should be laughing or weeping. This entire discussion about medications and a father battling 30 grams of cancer is just... overwhelming. Does anyone actually grasp the sheer volume of pills—these literal poisons—he had to swallow to manage those 30 grams? It’s no wonder he feels like death. Honestly, if I don't find some other way to cope, I might end up feeling just as miserable. I am practically hysterical while typing this out... the man even shared a video from CBS (which even my mother has heard of) discussing this specific drug... or perhaps urbanorca filmed it in secret just to push LDN on us. Oh, please, tell me urbanorca isn't actually trying to pull this one over our eyes. 😢 What an absolute joke!!
Please, I am asking you—and I urge everyone here to exercise a modicum of logical reasoning—tell me: what is the actual difference between 3mg and the 50mg doses typically taken by addicts or people struggling with substance abuse?? There is a massive, undeniable gulf between those two amounts; I would personally put any pill in my mouth immediately if there were even a 1% chance it could help me. Every medication, especially when dealing with cancer, carries side effects, but every single drug is different in that regard. Just take a look at the instructions for Salofalk to see for yourself, not to mention the implications of taking Medrol!!
I know exactly what my dad had to deal with during those thirty years. It was quite a journey!
I know firsthand just how brutal this disease can be. It really drives home why regular checkups and having a specialist constantly monitoring everything is so incredibly vital. In the end, I even mentioned that my father was honored by many of my friends working at the hospital to lead his service.
That’s pretty grim and heavy, honestly... maybe it's just me, but I can't deny it's the truth!
I know Medrol like the back of my hand from my own experience, so I don't even need to look it up!
I was just saying, use your head!
Please, don't go taking medications based on random advice you find from anonymous people online! I learned this the hard way once when I tried a "miracle cure" I read about on a forum, and let me tell you, it was a total disaster for my stomach. It's always much safer to stick with what your actual doctor recommends.
It's definitely worth asking around! I know plenty of people right here in the States who have tried LDN. Surely there are doctors out there—maybe even some just a town over—who are already helping patients manage it.
Please don't go rogue with your treatment! You really have to be careful because things can go sideways in an instant, and if they do, you'll need someone to step in and bail you out. If the people around you aren't fully in the loop regarding your self-managed care, they won't know how to help when things get messy.
I've heard that LDN might be able to help me out too! I'm not exactly running marathons right now, if you know what I mean—believe me, I'm dealing with quite a few uncomfortable issues lately.
I’m always down to try out any new therapy, no matter how crazy it sounds! I mean, Scott Allen10 knows what I'm talking about. 😬 But... only under medical supervision!
The right way to handle this is by informing the proper authorities and actually standing up for your right to treatment, rather than just blindly buying whatever random stuff you find online.