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LDN: A potential treatment for certain conditions?

Started by urbanorca · · 👁 11 views · 101 replies

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Participants urbanorcaAngela WrightEthan Reed2melloworca6Scott Allen10wirednomad42jadesailor14wiredlynx33Lawrence Castillo2slysurfer14amberhawkfadedmarlin402Ryan Patel64Samuel Morgan40
wiredlynx33 wiredlynx33 Newcomer
8 messages
joined Jul 2009
#61 ·
I honestly can't decide whether I should be laughing or weeping. This entire discussion about medications and a father battling 30 grams of cancer is just... overwhelming. Does anyone actually grasp the sheer volume of pills—these literal poisons—he had to swallow to manage those 30 grams? It’s no wonder he feels like death. Honestly, if I don't find some other way to cope, I might end up feeling just as miserable. I am practically hysterical while typing this out... the man even shared a video from CBS (which even my mother has heard of) discussing this specific drug... or perhaps urbanorca filmed it in secret just to push LDN on us. Oh, please, tell me urbanorca isn't actually trying to pull this one over our eyes. 😢 What an absolute joke!!
Please, I am asking you—and I urge everyone here to exercise a modicum of logical reasoning—tell me: what is the actual difference between 3mg and the 50mg doses typically taken by addicts or people struggling with substance abuse?? There is a massive, undeniable gulf between those two amounts; I would personally put any pill in my mouth immediately if there were even a 1% chance it could help me. Every medication, especially when dealing with cancer, carries side effects, but every single drug is different in that regard. Just take a look at the instructions for Salofalk to see for yourself, not to mention the implications of taking Medrol!!
slysurfer14 slysurfer14 Active Member
100 messages
joined Jul 2014
#62 ·
wiredlynx33 said:I honestly can't decide whether I should be laughing or weeping. This entire discussion about medications and a father battling 30 grams of cancer is just... overwhelming. Does anyone actually grasp the sheer volume of pills—these literal poisons—he had to swallow to manage those 30 grams? It’s no wonder he feels like death. Honestly, if I don't find some other way to cope, I might end up feeling just as miserable. I am practically hysterical while typing this out... the man even shared a video from CBS (which even my mother has heard of) discussing this specific drug... or perhaps urbanorca filmed it in secret just to push LDN on us. Oh, please, tell me urbanorca isn't actually trying to pull this one over our eyes. 😢 What an absolute joke!!
Please, I am asking you—and I urge everyone here to exercise a modicum of logical reasoning—tell me: what is the actual difference between 3mg and the 50mg doses typically taken by addicts or people struggling with substance abuse?? There is a massive, undeniable gulf between those two amounts; I would personally put any pill in my mouth immediately if there were even a 1% chance it could help me. Every medication, especially when dealing with cancer, carries side effects, but every single drug is different in that regard. Just take a look at the instructions for Salofalk to see for yourself, not to mention the implications of taking Medrol!!

Look, a half-liter bottle of Jane's costs maybe 3 dollars$1.25 and it's "proven" to cure cancer, leukemia, and everything else (just check the Alternative thread about Meki) and supposedly has zero side effects. Why bother with chemo when plain water cures everything, as proven by homeopathy?
So, tomorrow I'll head to Walmart to grab a few bottles and boom... cured...
And no, I'm not being sarcastic. There are hundreds of people on this forum who could swear they were cured by water....
wiredlynx33 wiredlynx33 Newcomer
8 messages
joined Jul 2009
#63 ·
The mind is such an incredibly cluttered, overwhelming space, isn't it? It’s precisely because our heads are so full of these psychological biases that things like placebo treatments even exist in the first place. If you can genuinely convince yourself that a pill is working, there is a legitimate possibility you might actually feel better—though, of course, it’s far from a universal rule, so one can't be too certain... if someone truly believes that nothing more than a glass of water could provide relief, perhaps they really will find some benefit, but honestly, until you take the leap and try it, you'll never truly know.☕
Lawrence Castillo2 Lawrence Castillo2 Newcomer
3 messages
joined Nov 2014
#64 ·
So, a half-liter bottle from Jane costs about 3-$1.25, yet it’s supposedly been proven to cure cancer, leukemia, and every other ailment under the sun.

I actually only have the 1.5-liter bottles sitting around my house right now, so I find myself wondering if they provide the same level of relief, or if I really need to start buying those smaller half-liter ones. This is slightly off-topic, I know.

But in all seriousness, the title here is a bit jarring because this isn't a medication; actual medications are things like Pentasa or Imural, whereas this seems to fall more into the category of supplements or alternatives—much like stem cell therapy, probiotics, or herbal teas.

Having dealt with Crohn's and arthritis myself, I’ve experimented with various "alternatives," so I certainly don't hold any prejudice against them.
urbanorca urbanorca MemberOP
48 messages
joined Jan 2012
#65 ·
Hey everyone. Thanks, wiredlynx33. I'm feeling pretty wiped today (9.3 miles was out at the bar last night). This might actually be useful for some of you—just some info I picked up from CVS in Canada. It turns out Naltrexone goes by different brand names depending on where you are in the world:

Nalorex (manufactured by Bristol-Myers-Squibb)

Nodict (manufactured by Sun Pharma)

Naltima (manufactured by INTAS)

Narpan (manufactured by Duopharma)

Antaxone (manufactured by Pharmazam)

Celupan (manufactured by Narconics)

Narcoral (manufactured by Siton)

Nemexin, Revez, Naltrexona, and Naltrexonum (manufactured by Bristol-Myers-Squibb)

But look, do your own homework. Don't just take my word for it; go out there and research everything yourselves.

Angela
Angela Wright Angela Wright Regular
731 messages
joined Feb 2007
#66 ·
urbanorca said:Scott Allen10, look, I just want to help people. I’ve spent ages digging into this, and I truly believe LDN could be a game-changer for so many folks.

It honestly breaks my heart to see people—especially the younger ones—dealing with autoimmune diseases. They end up in the hospital twice a year, and you have a 25-year-old girl telling you, "I'm done with everything, I'd rather just kill myself." Meanwhile, there's actually something out there, like LDN, that would most likely help her get her life back on track.

And yet, you’re standing there blocking people from getting the help they need. To me, that’s just messed up.

Angela Wright, I don't know much about that specific law, and yeah, I guess it's the same deal in other places like the UK. But think about it: someone is seriously ill, standard meds aren't doing a damn thing, but an alternative actually works. Now, because of some rule, they're supposed to just follow the law and refuse what actually helps? While their quality of life hits rock bottom or they literally die?

So they'd rather just die because they have to follow the rules? That's pure stupidity if you ask me. I read on one forum that half the people taking LDN in the UK are getting it through mail order, essentially bypassing the system. But let's be real—is any court actually going to have the guts to prosecute a sick person for trying to survive?

I don't get why everyone has stopped reading up and researching how useful LDN can be. Why is everyone so incredibly negative all of a sudden?

Then please, by all means, explain to me how you plan to mitigate the risk when buying stuff online. (Let me reiterate: trying to bring it into the US is impossible; there is simply no way to dodge customs). How are you going to be certain you're actually receiving what was advertised? For all you know, you might end up with nothing more than encapsulated baby powder. Where is the oversight and protection meant for the patient in that scenario?
Laws don't exist just for the sake of existing; they serve a purpose.
A sick person has one single desire: to get better. Unfortunately, out of sheer desperation, they are willing to agree to anything unverified if they think it might lead to a positive outcome. Sometimes, the price of that gamble is far too high.
To wrap this up, I’ll leave you with something my great-grandmother used to say. She wasn't much for books and mostly relied on divine providence to get through her misfortunes, which somehow allowed her to live a very long life:
"God, please grant me health, but above all, grant me common sense!"
I have seen disease, I have seen cancer in its most brutal forms, and I can tell you that this uneducated old woman was speaking profound human wisdom:
Common sense rules!
Scott Allen10 Scott Allen10 Regular
315 messages
joined Jun 2005
#67 ·
urbanorca said:Scott Allen10, look, I just want to help people. I’ve spent ages digging into this, and I truly believe LDN could be a game-changer for so many folks.

It honestly breaks my heart to see people—especially the younger ones—dealing with autoimmune diseases. They end up in the hospital twice a year, and you have a 25-year-old girl telling you, "I'm done with everything, I'd rather just kill myself." Meanwhile, there's actually something out there, like LDN, that would most likely help her get her life back on track.

And yet, you’re standing there blocking people from getting the help they need. To me, that’s just messed up.

Angela Wright, I don't know much about that specific law, and yeah, I guess it's the same deal in other places like the UK. But think about it: someone is seriously ill, standard meds aren't doing a damn thing, but an alternative actually works. Now, because of some rule, they're supposed to just follow the law and refuse what actually helps? While their quality of life hits rock bottom or they literally die?

So they'd rather just die because they have to follow the rules? That's pure stupidity if you ask me. I read on one forum that half the people taking LDN in the UK are getting it through mail order, essentially bypassing the system. But let's be real—is any court actually going to have the guts to prosecute a sick person for trying to survive?

I don't get why everyone has stopped reading up and researching how useful LDN can be. Why is everyone so incredibly negative all of a sudden?

Dammit... are you seriously trying to bait me with stuff like this?

Just because you spent some time digging into this doesn't mean you get to run an ad campaign right here! Especially not pushing some medical stuff through random online webshops with prices attached!
And honestly, the way you're blindly tossing this treatment around like it's nothing—it's totally out of line for a forum like this.
jadesailor14 hit the nail on the head when she said you're on thin ice. Personally, I'd say you're walking a tightrope over a canyon. Just because you did some reading doesn't give you the authority to act like this L-whatever is some magic cure-all for every living soul on earth...

And then you have the nerve to call me out, saying I'm "preventing help" and that it's "terrible" for me... man, please...🙂....don't even go there with me.

If anyone actually cares about what you're peddling, they can just shoot you a private message... but if you keep bringing up Big Pharma or, worse, trying to hawk this stuff publicly... you're getting banned. No warnings, no exceptions, regardless of how long you've been around here.☕
jadesailor14 jadesailor14 Regular
314 messages
joined May 2006
#68 ·
urbanorca said:jadesailor14, thanks. Look, I don't have a medical degree, but I've spent countless hours digging into LDN. I've looked at what renowned doctors like Dr. Bihari, Smith, Zagon, and Goohilly have to say, read through several studies, and went through about 200 patient testimonials and stuff.

LDN (usually up to 4.5 mg) is a tiny dose of Naltrexone—a drug typically used in doses of 50 to 200 mg to treat alcohol and drug addiction. Not one single study or doctor claims it has dangerous consequences; there are almost zero side effects (maybe some insomnia). About 70% of people say it helped them, some even claim they're cured (meaning no more "flare ups"), and while about 10% feel it didn't work for them, nobody is claiming it made their condition worse.

There are even TV shows about this; some people call it a miracle drug. A leading TV Doctor in the UK, Chris Steel, made a heartfelt plea ("The NHS would save billions if they used LDN"), and there was even a petition signed by 14,000 people sent to Parliament over there.

But in the UK, about 95% of doctors refuse to prescribe it because it looks like Big Pharma is putting on the pressure to keep this cheap, effective drug from being used.

As for Big Pharma, it's just scandal after scandal—Avandia and Crestor (statins). Some estimates suggest that between 50,000 and 200,000 people in the US have died from those drugs. Now Avandia is banned in the UK. In the US, GlaxoSmithKline had to pay 60 million dollars to the first 700 people who sued them for the harmful effects, and there are still about 100,000 more people waiting in line for lawsuits.

I had massive problems with statins myself, and I stopped taking them three years ago, despite my doctor's advice (if I had listened to the doctor, maybe I wouldn't be bothering you guys here right now). I trust people's lived experiences and my own history with a medication way more than I trust doctors.

But hey, everyone should do their own research before jumping to conclusions. If I had an autoimmune disease or something similar, I already know exactly what I'd do.

You mentioned you spent about 20 hours digging into this!
Twenty hours? Are you kidding me?! Good grief, what is twenty hours even supposed to mean? Honestly, it’s absolutely nothing—just a total zero!
Since you don't have any formal training in this field, you honestly don't even know how to present information properly!
And you can't even get access to those most important threads!

You bet I do!
It’s always so much easier to talk about what we'd do if things were different! I honestly find that opening up about those "what if" scenarios makes everything feel a bit more manageable. What's on your mind?

wiredlynx33 said:I honestly can't decide whether I should be laughing or weeping. This entire discussion about medications and a father battling 30 grams of cancer is just... overwhelming. Does anyone actually grasp the sheer volume of pills—these literal poisons—he had to swallow to manage those 30 grams? It’s no wonder he feels like death. Honestly, if I don't find some other way to cope, I might end up feeling just as miserable. I am practically hysterical while typing this out... the man even shared a video from CBS (which even my mother has heard of) discussing this specific drug... or perhaps urbanorca filmed it in secret just to push LDN on us. Oh, please, tell me urbanorca isn't actually trying to pull this one over our eyes. 😢 What an absolute joke!!
Please, I am asking you—and I urge everyone here to exercise a modicum of logical reasoning—tell me: what is the actual difference between 3mg and the 50mg doses typically taken by addicts or people struggling with substance abuse?? There is a massive, undeniable gulf between those two amounts; I would personally put any pill in my mouth immediately if there were even a 1% chance it could help me. Every medication, especially when dealing with cancer, carries side effects, but every single drug is different in that regard. Just take a look at the instructions for Salofalk to see for yourself, not to mention the implications of taking Medrol!!

I know exactly what my dad had to deal with during those thirty years. It was quite a journey!
I know firsthand just how brutal this disease can be. It really drives home why regular checkups and having a specialist constantly monitoring everything is so incredibly vital. In the end, I even mentioned that my father was honored by many of my friends working at the hospital to lead his service.
That’s pretty grim and heavy, honestly... maybe it's just me, but I can't deny it's the truth!
I know Medrol like the back of my hand from my own experience, so I don't even need to look it up!

I was just saying, use your head!
Please, don't go taking medications based on random advice you find from anonymous people online! I learned this the hard way once when I tried a "miracle cure" I read about on a forum, and let me tell you, it was a total disaster for my stomach. It's always much safer to stick with what your actual doctor recommends.
It's definitely worth asking around! I know plenty of people right here in the States who have tried LDN. Surely there are doctors out there—maybe even some just a town over—who are already helping patients manage it.
Please don't go rogue with your treatment! You really have to be careful because things can go sideways in an instant, and if they do, you'll need someone to step in and bail you out. If the people around you aren't fully in the loop regarding your self-managed care, they won't know how to help when things get messy.
I've heard that LDN might be able to help me out too! I'm not exactly running marathons right now, if you know what I mean—believe me, I'm dealing with quite a few uncomfortable issues lately.

I’m always down to try out any new therapy, no matter how crazy it sounds! I mean, Scott Allen10 knows what I'm talking about. 😬 But... only under medical supervision!
The right way to handle this is by informing the proper authorities and actually standing up for your right to treatment, rather than just blindly buying whatever random stuff you find online.
wirednomad42 wirednomad42 Active Member
58 messages
joined Nov 2008
#69 ·
jadesailor14 said:You mentioned you spent about 20 hours digging into this!
Twenty hours? Are you kidding me?! Good grief, what is twenty hours even supposed to mean? Honestly, it’s absolutely nothing—just a total zero!
Since you don't have any formal training in this field, you honestly don't even know how to present information properly!
And you can't even get access to those most important threads!

You bet I do!
It’s always so much easier to talk about what we'd do if things were different! I honestly find that opening up about those "what if" scenarios makes everything feel a bit more manageable. What's on your mind?

I know exactly what my dad had to deal with during those thirty years. It was quite a journey!
I know firsthand just how brutal this disease can be. It really drives home why regular checkups and having a specialist constantly monitoring everything is so incredibly vital. In the end, I even mentioned that my father was honored by many of my friends working at the hospital to lead his service.
That’s pretty grim and heavy, honestly... maybe it's just me, but I can't deny it's the truth!
I know Medrol like the back of my hand from my own experience, so I don't even need to look it up!

I was just saying, use your head!
Please, don't go taking medications based on random advice you find from anonymous people online! I learned this the hard way once when I tried a "miracle cure" I read about on a forum, and let me tell you, it was a total disaster for my stomach. It's always much safer to stick with what your actual doctor recommends.
It's definitely worth asking around! I know plenty of people right here in the States who have tried LDN. Surely there are doctors out there—maybe even some just a town over—who are already helping patients manage it.
Please don't go rogue with your treatment! You really have to be careful because things can go sideways in an instant, and if they do, you'll need someone to step in and bail you out. If the people around you aren't fully in the loop regarding your self-managed care, they won't know how to help when things get messy.
I've heard that LDN might be able to help me out too! I'm not exactly running marathons right now, if you know what I mean—believe me, I'm dealing with quite a few uncomfortable issues lately.

I’m always down to try out any new therapy, no matter how crazy it sounds! I mean, Scott Allen10 knows what I'm talking about. 😬 But... only under medical supervision!
The right way to handle this is by informing the proper authorities and actually standing up for your right to treatment, rather than just blindly buying whatever random stuff you find online.

Amen. ☕
wiredlynx33 wiredlynx33 Newcomer
8 messages
joined Jul 2009
#70 ·
I honestly don't have the energy left to even quote you, jadesailor14... I just want to wish everyone here nothing but health, and especially your father. ☕
Best regards,
melloworca6 melloworca6 Regular
551 messages
joined May 2010
#71 ·
jadesailor14 said:You mentioned you spent about 20 hours digging into this!
Twenty hours? Are you kidding me?! Good grief, what is twenty hours even supposed to mean? Honestly, it’s absolutely nothing—just a total zero!
Since you don't have any formal training in this field, you honestly don't even know how to present information properly!
And you can't even get access to those most important threads!

You bet I do!
It’s always so much easier to talk about what we'd do if things were different! I honestly find that opening up about those "what if" scenarios makes everything feel a bit more manageable. What's on your mind?

I know exactly what my dad had to deal with during those thirty years. It was quite a journey!
I know firsthand just how brutal this disease can be. It really drives home why regular checkups and having a specialist constantly monitoring everything is so incredibly vital. In the end, I even mentioned that my father was honored by many of my friends working at the hospital to lead his service.
That’s pretty grim and heavy, honestly... maybe it's just me, but I can't deny it's the truth!
I know Medrol like the back of my hand from my own experience, so I don't even need to look it up!

I was just saying, use your head!
Please, don't go taking medications based on random advice you find from anonymous people online! I learned this the hard way once when I tried a "miracle cure" I read about on a forum, and let me tell you, it was a total disaster for my stomach. It's always much safer to stick with what your actual doctor recommends.
It's definitely worth asking around! I know plenty of people right here in the States who have tried LDN. Surely there are doctors out there—maybe even some just a town over—who are already helping patients manage it.
Please don't go rogue with your treatment! You really have to be careful because things can go sideways in an instant, and if they do, you'll need someone to step in and bail you out. If the people around you aren't fully in the loop regarding your self-managed care, they won't know how to help when things get messy.
I've heard that LDN might be able to help me out too! I'm not exactly running marathons right now, if you know what I mean—believe me, I'm dealing with quite a few uncomfortable issues lately.

I’m always down to try out any new therapy, no matter how crazy it sounds! I mean, Scott Allen10 knows what I'm talking about. 😬 But... only under medical supervision!
The right way to handle this is by informing the proper authorities and actually standing up for your right to treatment, rather than just blindly buying whatever random stuff you find online.

I'm with you on this.

I would never dream of ordering something online to swallow. It's not because I'm worried about getting flagged by Customs; it's because you never truly know what's actually inside that pill. No one can guarantee that what's listed on the label is actually what's in the tablet.

I really wish what's being discussed here was the truth, because then I wouldn't have to spend my whole life swallowing corticosteroids, antimalarials, and stuff like that. But I'd only ever dare to take this if it were done under the direct supervision and approval of my immunologist.
melloworca6 melloworca6 Regular
551 messages
joined May 2010
#72 ·
wiredlynx33 said:I honestly don't have the energy left to even quote you, jadesailor14... I just want to wish everyone here nothing but health, and especially your father. ☕
Best regards,

Look, if you can get this through your doctor and you're taking it under medical supervision, then go for it. But for heaven's sake, don't just order it online from God knows where. You have no idea what's actually inside those pills.

Ulcerative colitis isn't some minor thing you can just brush off, especially when things take a turn for the worse. I know a girl who passed away from UC when she was only 26. So, don't go messing around by quitting your meds on your own.
jadesailor14 jadesailor14 Regular
314 messages
joined May 2006
#73 ·
wiredlynx33 said:I honestly don't have the energy left to even quote you, jadesailor14... I just want to wish everyone here nothing but health, and especially your father. ☕
Best regards,

Hey, there's no need to be mean! Let's keep things positive.
I really wrote that post with the best intentions! Since I know this disease so well, my heart truly goes out to everyone dealing with it.
There’s really no reason to be upset, especially since you brought my father into this!
amberhawk amberhawk Newcomer
6 messages
joined Nov 2010
#74 ·
urbanorca said:Hey everyone. Thanks, wiredlynx33. I'm feeling pretty wiped today (9.3 miles was out at the bar last night). This might actually be useful for some of you—just some info I picked up from CVS in Canada. It turns out Naltrexone goes by different brand names depending on where you are in the world:

Nalorex (manufactured by Bristol-Myers-Squibb)

Nodict (manufactured by Sun Pharma)

Naltima (manufactured by INTAS)

Narpan (manufactured by Duopharma)

Antaxone (manufactured by Pharmazam)

Celupan (manufactured by Narconics)

Narcoral (manufactured by Siton)

Nemexin, Revez, Naltrexona, and Naltrexonum (manufactured by Bristol-Myers-Squibb)

But look, do your own homework. Don't just take my word for it; go out there and research everything yourselves.

Angela

Dear urbanorca,

You aren't going to find clinical studies online for this specific medication regarding MS or other autoimmune conditions. Period.

What seems to be missing from your understanding is the reality of being a chronic patient dealing with constant pain. We aren't "easy" patients. Sometimes doctors genuinely run out of ideas because even after cycling through every single proven therapy available, we don't get better—or worse, our condition actually deteriorates.

When that happens, both patients and physicians start looking at alternative treatment methods. When you're drowning, you grab at any straw. However, I have to point out that very few doctors would actually prescribe the specific medication you're championing.

If a doctor determines that a non-traditional drug won't cause more harm than good (for instance, if it's the case with LDN), and the patient has already exhausted all standard, evidence-based medical treatments without improvement, they might prescribe it. Even if the drug isn't a "cure," it can offer a glimmer of hope, which sometimes provides a psychological boost that helps the patient feel subjectively better.

Let me reiterate: LDN hasn't been scientifically proven to treat the diseases we are discussing, and there is no scientific evidence that it improves or cures the symptoms of autoimmune diseases.
urbanorca urbanorca MemberOP
48 messages
joined Jan 2012
#75 ·
Look, regarding LDN and MS, let’s be real: there aren't massive, blockbuster clinical trials proving it works. You’ve only got the smaller studies, like the ones out of the Milan Institute or Stanford University in California. And honestly? We're probably never going to see those giant studies. Why? Because the patent expired. Big Pharma doesn't give a damn about promoting something they can't make a killing on. No profit, no promotion. It's that simple.

A ton of doctors actually believe this stuff works and are prescribing it for MS and other autoimmune issues. Take Dickson Pharmacy in Glasgow—just one example of several places that carry it, though you obviously need a prescription. They recently reported that back in 2009, they handled nearly 900 prescriptions for LDN, all coming directly from MDs.

The drug isn't harmful, period. The studies from Milan and Stanford back that up, and the side effects are minimal at best.

People living with MS have already tried the "standard" medications, and most of them didn't do squat. So, they turn to LDN. I've read about 200 testimonials online, and the results? Honestly, they seem nothing short of miraculous.

If I were dealing with MS or any other autoimmune disorder, I’d definitely be taking it. Hands down.

I've dropped some links here in English for you guys:

http://www.msrc.co.uk/index.cfm/fuse...how/pageid/651

Take Terry Finnigan, for instance. He shared his story on this site, which I ran through www.google.com/translate
:
"After being diagnosed with relapsing-remitting MS in 2001, I started on a low dose of Naltrexone two weeks ago. I'm at 3mg right now, hoping to hit my maintenance dose of 4.5mg next month."

"For the first few days, I just felt a little buzzed. But since starting LDN, I've noticed more stamina, my tingling sensations have stopped, and my constant relapses have suddenly ceased. I haven't had any nasty side effects, and I feel an incredible sense of hope and encouragement."

"I truly believe Naltrexone offers people with MS a huge chance at improvement, and that's why I'm taking it."

I'm also following the Best Bet Diet.

Sure, that's just one person's experience, but there are hundreds more like it scattered all over the internet.

Here's another solid website run by MS patients:

http://www.msrc.co.uk/index.cfm/fuse...how/pageid/651

You can use Google Translate to figure out the rest.
fadedmarlin402 fadedmarlin402 Active Member
154 messages
joined Apr 2010
#76 ·
Hmm, what is this even doing in the Health section? 🤔 I’m thinking about either closing this thread soon or moving it over to the Alternative section. I'll make a call once I actually find a moment to sit down and take a proper look at it.
urbanorca urbanorca MemberOP
48 messages
joined Jan 2012
#77 ·
Mod, look, LDN is an actual medication. You can only get it at a pharmacy with a doctor's prescription. It isn't some "alternative" remedy.
urbanorca urbanorca MemberOP
48 messages
joined Jan 2012
#78 ·
Sorry, it's me again. I know I keep bugging everyone with this LDN stuff, but look—this drug has been around for 25 years and it’s helped hundreds of thousands of people. You can find the data online if you actually bother to look.

There’s this top-tier TV doctor in the UK, Chris Steel, who has an incredible reputation. He’s talking about this exact medication, pointing out that the NHS could save billions—mind you, I mean billions, not millions!—if they just started using it more widely for various autoimmune diseases. But because Big Pharma has such a massive grip on everything, it won't happen unless the British Parliament steps in and makes a move. And even then, it's an uphill battle because of that corporate influence, despite all the petitions being filed.

Here is Dr. Steel’s appeal along with comments from people who have actually seen results from the drug:

http://webcache.googleusercontent.com...&ct=clnk&gl=uk

So, if you haven't lost your patience with me yet, I have a question. And this really matters to me, why are Americans so incredibly negative toward something new that could actually help them, yet they'll flock to Torabi or other "healers" without a second thought? Is it just mass psychology at work, or what? I've lived abroad for nearly 50 years now, and I honestly just don't get it. Thanks in advance!

After this, I promise I won't pester you about LDN anymore.
melloworca6 melloworca6 Regular
551 messages
joined May 2010
#79 ·
urbanorca, look, I believe you aren't trying to profit from this and you genuinely want to help, but you’re being way too aggressive in how you’re laying this out. That’s exactly why people are getting skeptical. This is how people sound when they’re just trying to push an advertisement or sell a product.

You were dropping links to sites where people can order LDN online—do you have any idea how dangerous that is? Beyond the fact that it's illegal, who is actually guaranteeing that a drug ordered that way even contains the ingredients it claims to have?

There are seriously sick people posting here and reading this PDF. Advising them to just go out and take something on their own is incredibly irresponsible. Nobody should be self-prescribing anything without consulting their own DOCTOR first.

I’d love for you to keep sharing research links like that, but honestly, I’m worried that if you keep using this tone, the mods are going to step in, ban you, and wipe the whole thread.
fadedmarlin402 fadedmarlin402 Active Member
154 messages
joined Apr 2010
#80 ·
urbanorca said:Mod, look, LDN is an actual medication. You can only get it at a pharmacy with a doctor's prescription. It isn't some "alternative" remedy.

Well, you can get methadone via prescription too, so I’d really like to meet the person claiming methadone treats MS. 😉 There is a concept called an indication, and in the US, Naltrexone is indicated specifically for alcohol addiction and opioid-induced constipation. I took a closer look at this thread, and frankly, I don't see a single hyperlink to a study proving the supposed "miracle" of LDN. This subforum is science-oriented. If you want to declare something a treatment for a condition, you need concrete scientific evidence—meaning a peer-reviewed study confirming efficacy. I am talking about efficacy, not just how safe the drug is to take. Maybe clinical trials for these specific uses are currently underway, I have no idea, but until those results are published, we have no right to speak as if it's a settled fact. We aren't here to conduct our own scientific research on this forum. And one more thing: I know exactly what "testimonials" are. As Angela Wright pointed out, we could all sit here and testify that apple compote cures endometriosis. If it ever actually gets proven that LDN treats Crohn's or MS or anything else, I won't say a single word against it. But "he said, she said" is zero argument, regardless of whether it comes from "renowned physicians," Dr. Oz, or even Dr. House himself.

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