#21 ·
Seeking Specialists for MM Patient - Chicago,
Pi
Dear Mr. Worthington,
Back in January, my father-in-law (62) was diagnosed with pleural mesothelioma.
He presented with the standard symptoms, and we had to drain a large pleural effusion (about 3.6 liters). To prevent this from happening again, they performed a talc pleurodesis.
The prognosis seems manageable at first glance, as the tumor doesn't appear to have spread to the lymph nodes or other areas of the pleura. However, his current doctors aren't suggesting surgery, radiation, or chemo; they're strictly recommending palliative care for symptom management.
While searching for clarity, I found your site incredibly helpful and realized this passive approach is fairly common. My concern is that waiting too long could allow the disease to progress to a point where it's truly hopeless. We really need to consult a top-tier mesothelioma expert—someone who understands the granular details of DMM—to determine which treatment path offers the best shot.
My question is: Do you know of any specialists in the US or perhaps elsewhere in the West that you could recommend? He is willing to fly to the States if it's necessary, though that brings its own set of hurdles. Finding someone closer to home would be ideal.
Any guidance would be greatly appreciated. Thanks for your help.
Best regards,
Markus Middell
Chicago, IL
mailto:mmiddell@smallworld.de
==============================================
Markus:
I went through my notes from the IMIG conference, but I didn't find any specific references to doctors in the US. For a directory of experts specializing in the diagnosis, research, and treatment of mesothelioma, please check the roster at http://www.mesothel.com/pages/imigrost.htm.
Wishing you the best.
RGW [/b]
A letter sent to the leading American firm that handles thousands of asbestos-related cases. It was written by a son-in-law
regarding a 62-year-old man whose lung issues were essentially just managed by specialists in the US.
They aren't offering radiation, chemo, or anything substantial—just consultations for pain management.
The son-in-law continues: through his research, he found this is standard practice. Since time is running out, he asks for recommendations in the US or abroad, noting that his father-in-law would prefer not to travel extensively.
We'd be very grateful for any leads!
Sincerely,
Markus Middell
Chicago, IL
mailto:mmiddell@smallworld.de
Response,
Sir,
We reviewed all our IMIG conference records
from the US. For a list of researchers studying mesothelioma, please refer to... bla, bla, bla.
Comment: Jamie Clark74,
As I've mentioned, I've read over 3,000 specialist articles, and the data is grim:
Survival averages between 3 to 9 months, depending on the diagnosis date.
Globally, only a handful of people
have lived even slightly longer than 9 months.
That's why there is NO CURE AND NO
HOPE for those unfortunate souls facing a "MESOTHELIOMA" diagnosis.
Do you remember the article by Mr. Edwards?
In a region of Australia with a population of only 1.5
million, we see 50-60 mesothelioma cases every single year. And how many of those people end up moving away?
What comes next will surprise you even more.
6/02/03...
As I'm writing this, I'm listening to the news. They're reporting that
during the school break,
an entire asbestos roof was replaced at a local school. All legal precautions were taken, yet now that the kids are back, they're finding pieces of asbestos and dust inside the building.
The children have been sent home, and a different contractor will finish the job under strict inspection.
Pi
Dear Mr. Worthington,
Back in January, my father-in-law (62) was diagnosed with pleural mesothelioma.
He presented with the standard symptoms, and we had to drain a large pleural effusion (about 3.6 liters). To prevent this from happening again, they performed a talc pleurodesis.
The prognosis seems manageable at first glance, as the tumor doesn't appear to have spread to the lymph nodes or other areas of the pleura. However, his current doctors aren't suggesting surgery, radiation, or chemo; they're strictly recommending palliative care for symptom management.
While searching for clarity, I found your site incredibly helpful and realized this passive approach is fairly common. My concern is that waiting too long could allow the disease to progress to a point where it's truly hopeless. We really need to consult a top-tier mesothelioma expert—someone who understands the granular details of DMM—to determine which treatment path offers the best shot.
My question is: Do you know of any specialists in the US or perhaps elsewhere in the West that you could recommend? He is willing to fly to the States if it's necessary, though that brings its own set of hurdles. Finding someone closer to home would be ideal.
Any guidance would be greatly appreciated. Thanks for your help.
Best regards,
Markus Middell
Chicago, IL
mailto:mmiddell@smallworld.de
==============================================
Markus:
I went through my notes from the IMIG conference, but I didn't find any specific references to doctors in the US. For a directory of experts specializing in the diagnosis, research, and treatment of mesothelioma, please check the roster at http://www.mesothel.com/pages/imigrost.htm.
Wishing you the best.
RGW [/b]
A letter sent to the leading American firm that handles thousands of asbestos-related cases. It was written by a son-in-law
regarding a 62-year-old man whose lung issues were essentially just managed by specialists in the US.
They aren't offering radiation, chemo, or anything substantial—just consultations for pain management.
The son-in-law continues: through his research, he found this is standard practice. Since time is running out, he asks for recommendations in the US or abroad, noting that his father-in-law would prefer not to travel extensively.
We'd be very grateful for any leads!
Sincerely,
Markus Middell
Chicago, IL
mailto:mmiddell@smallworld.de
Response,
Sir,
We reviewed all our IMIG conference records
from the US. For a list of researchers studying mesothelioma, please refer to... bla, bla, bla.
Comment: Jamie Clark74,
As I've mentioned, I've read over 3,000 specialist articles, and the data is grim:
Survival averages between 3 to 9 months, depending on the diagnosis date.
Globally, only a handful of people
have lived even slightly longer than 9 months.
That's why there is NO CURE AND NO
HOPE for those unfortunate souls facing a "MESOTHELIOMA" diagnosis.
Do you remember the article by Mr. Edwards?
In a region of Australia with a population of only 1.5
million, we see 50-60 mesothelioma cases every single year. And how many of those people end up moving away?
What comes next will surprise you even more.
6/02/03...
As I'm writing this, I'm listening to the news. They're reporting that
during the school break,
an entire asbestos roof was replaced at a local school. All legal precautions were taken, yet now that the kids are back, they're finding pieces of asbestos and dust inside the building.
The children have been sent home, and a different contractor will finish the job under strict inspection.