Disability assessment process

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mellowskipper said:I don't really see any reason why anyone would visit Medicine Work before the actual work capacity evaluation is finished. That specific assessment is handled through Medicare—it doesn't really have anything to do with Medicine Work.

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But that’s exactly what my doctor told me. Now you've got me confused. Can someone please explain the next steps? What am I supposed to do with all these medical records? Where do they go? Do I need to fill out paperwork with my primary care physician, or is there something specific I need to do there? My doctor insisted she isn't involved in this at all and that I just need to head straight to Medicine Work.
Please, I need a clear explanation. I'm navigating this entirely on my own, and honestly, it's hard to process all this information because of how sick I am.

Thanks!

I’m looking for some insight from someone who actually knows their stuff.

So, there’s this specific agency you need to look into:The Bureau of Vocational Rehabilitation and Disability Employment Services Basically, they handle all the disability assessments, but you can't just show up out of nowhere—you need an official referral from your doctor, along with every single one of those medical reports in their original form. If you're looking for them, their New York Address is 5 Corporate Street on the ground floor.

Laura Cox5 said:So, there’s this specific agency you need to look into:The Bureau of Vocational Rehabilitation and Disability Employment Services Basically, they handle all the disability assessments, but you can't just show up out of nowhere—you need an official referral from your doctor, along with every single one of those medical reports in their original form. If you're looking for them, their New York Address is 5 Corporate Street on the ground floor.

I get what you're saying, but are we talking about Medicine Work here, or is this something else entirely?

Thanks!

Laura Cox5 said:So, there’s this specific agency you need to look into:The Bureau of Vocational Rehabilitation and Disability Employment Services Basically, they handle all the disability assessments, but you can't just show up out of nowhere—you need an official referral from your doctor, along with every single one of those medical reports in their original form. If you're looking for them, their New York Address is 5 Corporate Street on the ground floor.

Does a GP actually have to provide that referral? My doctor just gave me this blank stare and told me she had nothing to do with it and that I should go to the Mayo Clinic instead.
Jesus, now I’m actually worried. What if she’s intentionally withholding it?🙂 Is she legally required to?

So, what exactly is it you’re looking for here? I mean—are you currently employed and just finding yourself unable to perform your duties, or do you have a certain amount of seniority? Is your employer actually referring you for a job reassessment?
If you're based in Washington, D.C., the MIT facility is located over at the Medicare office on 5th Avenue, and usually, it's your primary care physician who sends you there for any kind of evaluation.
Occupational medicine is a completely different matter entirely, so you really need to figure out what your actual goal is first.

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mellowskipper said:So, what exactly is it you’re looking for here? I mean—are you currently employed and just finding yourself unable to perform your duties, or do you have a certain amount of seniority? Is your employer actually referring you for a job reassessment?
If you're based in Washington, D.C., the MIT facility is located over at the Medicare office on 5th Avenue, and usually, it's your primary care physician who sends you there for any kind of evaluation.
Occupational medicine is a completely different matter entirely, so you really need to figure out what your actual goal is first.

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I'm in my early 20s. I'm not working right now. When I had jobs, I kept getting fired because I couldn't handle even the simplest tasks. My total work history is just a few months since I tend to last about two weeks at any given place. My employer isn't sending me anywhere. Basically, I've had a condition since birth, but it was just recently diagnosed, and it makes everything complicated.

So, what is Occupational Medicine? And what actually happens during those appointments?

Kyle Reed30 said:I'm in my early 20s. I'm not working right now. When I had jobs, I kept getting fired because I couldn't handle even the simplest tasks. My total work history is just a few months since I tend to last about two weeks at any given place. My employer isn't sending me anywhere. Basically, I've had a condition since birth, but it was just recently diagnosed, and it makes everything complicated.

So, what is Occupational Medicine? And what actually happens during those appointments?

Occupational Medicine basically refers to medical evaluations tied to specific categories—think things like driver's license exams, permits for carrying a weapon, or even enrollment requirements for certain vocational schools... They also perform routine physicals for employees based on specific job requirements and can recommend changes to a person's work duties or placement.
Given that you're only 20 and barely have any work history, I'm not entirely sure what kind of outcome you'd get from an assessment of your capacity to work.
If your condition isn't progressive, maybe try to train yourself for some kind of manageable role—you should probably file an application for disability benefits with Child Protective Services.
If you truly find yourself unable to work now or in the future, it might be better to just wait it out for family benefits, assuming your parents are still working.

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mellowskipper said:Occupational Medicine basically refers to medical evaluations tied to specific categories—think things like driver's license exams, permits for carrying a weapon, or even enrollment requirements for certain vocational schools... They also perform routine physicals for employees based on specific job requirements and can recommend changes to a person's work duties or placement.
Given that you're only 20 and barely have any work history, I'm not entirely sure what kind of outcome you'd get from an assessment of your capacity to work.
If your condition isn't progressive, maybe try to train yourself for some kind of manageable role—you should probably file an application for disability benefits with Child Protective Services.
If you truly find yourself unable to work now or in the future, it might be better to just wait it out for family benefits, assuming your parents are still working.

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I'll shoot you a DM so we can talk more easily.

Jesus, look, you should file an application for personal disability or caregiver assistance with Child Protective Services, and then submit a claim for physical impairment benefits through Medicare—I know that sounds a bit silly, but Medicare has this odd way of using that specific form as part of their assessment process. Don't ask me why, just fill it out and hand it in.
( Honestly, they might have even changed the name of the benefit by now, but either way, it’s for assessing the level of physical impairment. They’ll give you the right form once you mention it, so don't overcomplicate things with Occupational Medicine or everything else you mentioned; just ask for this.)
There is some information here regarding the assessment process if you're interested:
https://www.govinfo.gov/examples/assessment-guidelines

And you're going to need medical records; they won't base their assessment solely on what you tell them.
Without those records, you won't get anywhere.

Just take care of these two steps, and that's really it. It feels like everyone in this thread has made it much more complicated than it needs to be.
The CPS website has instructions regarding personal disability and that specific allowance (by the way, you can't receive both, but you can certainly submit applications for both and see what happens).
Here is how they determine the level of impairment, including who handles it and where:
https://www.ssa.gov/disability/assessment-process

By the way, waiting for survivor benefits basically means waiting until at least one parent passes away. If you are declared permanently disabled, you would then need to meet both requirements: the permanent disability status and the passing of a parent whose benefits you might potentially inherit.

Hey.

It’s been six months since I submitted my application and there hasn't been a single update. Does that mean I was rejected without even being notified?

I tried calling them today but nobody picked up. I'll try again tomorrow morning.

How many months did it take for your evaluations at MIT to actually wrap up??
Thanks.

Kyle Reed30 said:Hey.

It’s been six months since I submitted my application and there hasn't been a single update. Does that mean I was rejected without even being notified?

I tried calling them today but nobody picked up. I'll try again tomorrow morning.

How many months did it take for your evaluations at MIT to actually wrap up??
Thanks.

They didn't actually settle things with him, so you're going to be waiting a long time. Welcome to the real world. You'll be sitting around forever while they just keep "tightening" the rules on small businesses.

Brandon Newman95 said:They didn't actually settle things with him, so you're going to be waiting a long time. Welcome to the real world. You'll be sitting around forever while they just keep "tightening" the rules on small businesses.

So, what’s your take on the timeline? I can't exactly sit around for a full year, can I?

Besides, my condition is highly specific. It's not something they can just breeze through without serious deliberation.

What do you mean by "tightened"? Are you suggesting they need to see more severe symptoms first?

Kyle Reed30 said:So, what’s your take on the timeline? I can't exactly sit around for a full year, can I?

Besides, my condition is highly specific. It's not something they can just breeze through without serious deliberation.

What do you mean by "tightened"? Are you suggesting they need to see more severe symptoms first?

Sure, you could wait a year—why not. And who says yours is "niche"? They have all the medical records right there, especially since it's most likely just one specific syndrome. Honestly, people with dementia are still capable of working. As for "stricter"—man, money talks. I'm assuming we're talking about Asperger's here.

Kyle Reed30 said:So, what’s your take on the timeline? I can't exactly sit around for a full year, can I?

Besides, my condition is highly specific. It's not something they can just breeze through without serious deliberation.

What do you mean by "tightened"? Are you suggesting they need to see more severe symptoms first?

I know a guy who had heart surgery and he's just stuck waiting for a transplant. He's perfectly capable of working. To people like that, you're just another number on a spreadsheet. There's no money in it, no funding. Honestly, why do you think that doctor sent you over to the Mayo Clinic for an occupational assessment in the first place?

Brandon Newman95 said:Sure, you could wait a year—why not. And who says yours is "niche"? They have all the medical records right there, especially since it's most likely just one specific syndrome. Honestly, people with dementia are still capable of working. As for "stricter"—man, money talks. I'm assuming we're talking about Asperger's here.

My condition is highly specific for several reasons. I'm not listing them here; I don't care to overshare my private business. Most doctors haven't even heard of it, and I get asked what it is constantly. And no, it's not Asperger.

Brandon Newman95 said:I know a guy who had heart surgery and he's just stuck waiting for a transplant. He's perfectly capable of working. To people like that, you're just another number on a spreadsheet. There's no money in it, no funding. Honestly, why do you think that doctor sent you over to the Mayo Clinic for an occupational assessment in the first place?

What do you mean by "sent me to occupational medicine"? Are you implying I'm getting nothing?

And she didn't send me to occupational medicine, she sent me to MIT.

Kyle Reed30 said:My condition is highly specific for several reasons. I'm not listing them here; I don't care to overshare my private business. Most doctors haven't even heard of it, and I get asked what it is constantly. And no, it's not Asperger.

If it's such a specific illness, then you should actually talk about it. And doctors who haven't heard of it?
Just read the previous posts and look at the context.
The answer is yeah, you can wait a year. First you said she sent you to Mayo Clinic, then you mentioned an evaluation at MIT.
I'm done explaining.
There are heaps of rare neurological issues out there—could be anything from Asperger syndrome (which seems likely here), Huntington's chorea which hits maybe 1 in a million, ADHD, mild cognitive impairment (MID)—like multi-infarct dementia, Fabry disease, and so on. One more thing: I really hope you have medical records from state neurologists. Don't just rely on private doctors.

Look at this part of your post: ''Wait, does my primary care doctor even have to give me a referral?? My doctor just told me, totally uninterested, that she has nothing to do with it and that I should go to Occupational Medicine.''
''Jesus, now I'm actually worried, what if she's intentionally refusing to help me? Or is she legally required to?''

Nicholas Davis4 explained it perfectly to you.

Brandon Newman95 said:If it's such a specific illness, then you should actually talk about it. And doctors who haven't heard of it?
Just read the previous posts and look at the context.
The answer is yeah, you can wait a year. First you said she sent you to Mayo Clinic, then you mentioned an evaluation at MIT.
I'm done explaining.
There are heaps of rare neurological issues out there—could be anything from Asperger syndrome (which seems likely here), Huntington's chorea which hits maybe 1 in a million, ADHD, mild cognitive impairment (MID)—like multi-infarct dementia, Fabry disease, and so on. One more thing: I really hope you have medical records from state neurologists. Don't just rely on private doctors.

Look at this part of your post: ''Wait, does my primary care doctor even have to give me a referral?? My doctor just told me, totally uninterested, that she has nothing to do with it and that I should go to Occupational Medicine.''
''Jesus, now I'm actually worried, what if she's intentionally refusing to help me? Or is she legally required to?''

Nicholas Davis4 explained it perfectly to you.

None of those diseases apply here.

I didn't go to the American Medical Association; I went to the American Medical Association, which then forwarded the files to the Center for Artificial Intelligence.

I'm using referrals from private doctors on purpose because waiting for state doctors would take forever. Plus, given how specific this condition is—something I've had since birth that was only just discovered—I wrote an essay detailing my struggles. State doctors wouldn't bother reading it or even discussing it.

Kyle Reed30 said:None of those diseases apply here.

I didn't go to the American Medical Association; I went to the American Medical Association, which then forwarded the files to the Center for Artificial Intelligence.

I'm using referrals from private doctors on purpose because waiting for state doctors would take forever. Plus, given how specific this condition is—something I've had since birth that was only just discovered—I wrote an essay detailing my struggles. State doctors wouldn't bother reading it or even discussing it.

Forget about them accepting stuff from private doctors. It won't get resolved. Everyone on here gave you advice, but you're doing things your own way. Go find other doctors. They aren't going to respect anything coming from a private practice.
Have you even tried talking to a doctor at a public hospital? Who says they won't listen? If they won't, just switch doctors.
People on this forum were trying to help you. Private documentation isn't going to count.
Just call them up and ask. Then you'll hear the answer for yourself.
Good luck with the AMA.
And if this disease is actually rare, but clearly obvious, maybe sharing your experience could actually help someone else out there.