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Osteolysis: Possible pelvic bone tumor and potential uterine Leiomyosarcoma

Started by Nicholas Myers · · 👁 11 views · 106 replies

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Participants Nicholas MyersDonna Miller4Angela WrightSam Kim12Jose Miller3Nicole Long28crimsongull20Megan Williams6wanderingcobra76swiftbear86melloworca6analogbison13vividsailor7mistyjackal842
Megan Williams6 Megan Williams6 Active Member
51 messages
joined May 2012
#61 ·
He picked up that Dr. Ho pain relief stimulator, and then I noticed the fine print saying you shouldn't use it on broken bones, tumors, and so on... I mean, how is that even possible? How could using this actually make a tumor grow? I actually read somewhere that electrical impulses might even help shrink them. Now I'm second-guessing whether I should even bother trying to use it to help Mom with her pain. To top it off, I haven't even bought the batteries yet; they really should have just included them in the box, but I guess everything is so stingy these days.... I'll test it out on myself first, though it feels like one of those gadgets you find on massage chairs.... Does anyone know if this kind of electrostimulation can actually make things worse with something like a sarcoma, or could it potentially help? Thanks, and cheers to everyone!
analogbison13 analogbison13 Member
29 messages
joined Oct 2011
#62 ·
My physical therapist told me straight up: if you're dealing with a tumor, you absolutely cannot use electrostimulation.
Angela Wright Angela Wright Regular
731 messages
joined Feb 2007
#63 ·
Yeah, I heard that too.
On the flip side, using a TENS unit actually triggers an endorphin release, which helps dial down the pain through your body's own natural mechanisms.
analogbison13 analogbison13 Member
29 messages
joined Oct 2011
#64 ·
I was just chatting with my physical therapist about what can actually be done to help manage pain for a friend of mine dealing with bone cancer. You can definitely try some things, but you really shouldn't touch anything without a professional leading the way.
Regarding that "electrical stimulation" thing, I specifically remember him saying absolutely not.
Angela Wright Angela Wright Regular
731 messages
joined Feb 2007
#65 ·
analogbison13 said:I was just chatting with my physical therapist about what can actually be done to help manage pain for a friend of mine dealing with bone cancer. You can definitely try some things, but you really shouldn't touch anything without a professional leading the way.
Regarding that "electrical stimulation" thing, I specifically remember him saying absolutely not.

When you're looking at patients in the terminal phase, I don't think there's much harm in trying things that could potentially offer some relief. That said, you have to assess the situation properly, and that is strictly a doctor's call.
Megan Williams6 Megan Williams6 Active Member
51 messages
joined May 2012
#66 ·
analogbison13 said:My physical therapist told me straight up: if you're dealing with a tumor, you absolutely cannot use electrostimulation.


I don't think I quite followed that—when you say "contraindicated," does that mean we shouldn't try using an electrical stimulator to manage pain caused by a tumor? My mom has poor circulation and her right leg swells up a bit, and the tumor is located on her femur...
Megan Williams6 Megan Williams6 Active Member
51 messages
joined May 2012
#67 ·
Angela Wright said:Yeah, I heard that too.
On the flip side, using a TENS unit actually triggers an endorphin release, which helps dial down the pain through your body's own natural mechanisms.

So, what exactly is a TENS unit? Thanks in advance.
Megan Williams6 Megan Williams6 Active Member
51 messages
joined May 2012
#68 ·
Actually, it isn’t even about the electrical current, but rather the vibrations, which is why I’m asking......Specifically, we are talking about the Dr. Ho device...
Angela Wright Angela Wright Regular
731 messages
joined Feb 2007
#69 ·
Megan Williams6 said:Actually, it isn’t even about the electrical current, but rather the vibrations, which is why I’m asking......Specifically, we are talking about the Dr. Ho device...

It’s about... I don't know what you're trying to get at here. If you've got something to say, just say it. I don't have time for riddles or half-baked thoughts. Cut to the chase. Which type of electrical stimulation actually targets the A-type nerve fibers and forces the muscles to contract?
The Dr. Ho device is nothing more than a glorified, overpriced marketing spin on a TENS unit that’s been around forever.
Megan Williams6 Megan Williams6 Active Member
51 messages
joined May 2012
#70 ·
Angela Wright said:It’s about... I don't know what you're trying to get at here. If you've got something to say, just say it. I don't have time for riddles or half-baked thoughts. Cut to the chase. Which type of electrical stimulation actually targets the A-type nerve fibers and forces the muscles to contract?
The Dr. Ho device is nothing more than a glorified, overpriced marketing spin on a TENS unit that’s been around forever.

Thanks for the input, though I did read somewhere—I can't remember where—that low-level electrical currents might actually destroy sarcoma cells... anyway. Honestly, what I’d really love is to take my mom down to the coast, let her swim and soak up some sun. In my experience, being by the ocean would probably help her pain more than any pill, and maybe even help with that swelling in her thigh. When I first arrived, my own legs, shins, and ankles were so swollen, but after spending an hour or two in the ocean, the swelling vanished and you could see bone again... seawater really draws everything out. People living on the coast have no idea how lucky they are. Whenever I travel from Indianapolis down to the coast, I arrive feeling completely drained, but once I see the ocean, I feel like a whole new person. It’s just a shame I eventually have to head back to this polluted, depressing city and trade the scent of pine needles for the exhaust fumes of those "eco-warriors"—those guys driving diesel trucks fueled by cheap heating oil. One guy like that pollutes six square miles just by driving through it, and the city is full of them. Every single day in Indianapolis, there are hundreds of these "chemical sprays" on the road—carbon monoxide paralyzing everyone's brains, which explains why people seem so crazy lately. All that toxic stuff coming out of diesel exhausts... As long as the guy saves a buck on fuel by using heating oil, who cares if half the city ends up with cancer? Screw him. Every day, someone in front of me floors it and a cloud of black smoke rolls out, blinding me. Everything gets coated in soot—my apartment, everything I touch. That's why I notice so many more people wearing wigs or caps because their hair fell out from chemo. The number of people I know dealing with oncology is just staggering....🙂
Angela Wright Angela Wright Regular
731 messages
joined Feb 2007
#71 ·
Go get yourselves to the beach! Honestly, I think a proper vacation would do both of you a world of good—there’s something genuinely healing about being by the ocean. Just watch out for the scorching sun and those high temperatures. I'm currently down in Miami, and let me tell you, it is absolutely blistering here.
Megan Williams6 Megan Williams6 Active Member
51 messages
joined May 2012
#72 ·
Lucky you. Even if it’s hellish there, at least you get to see that ocean blue. All I see here in Indianapolis is that stupid tower on the hills and the smokestacks from the power plant and the old DIOKIJ site. The only redeeming quality is that the downtown area is a ghost town in the afternoon—no people, no cars, just the heat... if only it stayed like that. We might actually be able to live here. But once everyone comes back, man, we're all done for. Those leftover lung issues from the pollution are going to finish us off eventually.... Regards!🙂
Angela Wright Angela Wright Regular
731 messages
joined Feb 2007
#73 ·
Megan Williams6 said:Lucky you. Even if it’s hellish there, at least you get to see that ocean blue. All I see here in Indianapolis is that stupid tower on the hills and the smokestacks from the power plant and the old DIOKIJ site. The only redeeming quality is that the downtown area is a ghost town in the afternoon—no people, no cars, just the heat... if only it stayed like that. We might actually be able to live here. But once everyone comes back, man, we're all done for. Those leftover lung issues from the pollution are going to finish us off eventually.... Regards!🙂

Don't act like Miami is some pristine eco-paradise. You want to talk about industry? Fine. Let's talk about Cemex, the asbestos issues from Salonit, or those radioactive waste bunkers over by Ruđer in Kaštel Kambelovac—not that I’m going to sit here and list everything else. And honestly, the way people around here treat the environment is a whole other disaster entirely. 😁 Honestly, I’m staying away from the sun and the beach mostly because of my little one and the absolute nightmare that is finding parking around here.
If you're looking for somewhere to settle down, my best advice is to head toward the coast—maybe somewhere in Istria or a quiet little town south of Miami along the Makarska Riviera. Just make sure you aren't totally isolated; you need to be within striking distance of a decent medical center, just in case things take a turn for the worse.
Megan Williams6 Megan Williams6 Active Member
51 messages
joined May 2012
#74 ·
Oh man, you’ve got a point there. I remember being down in Kaštel Kambelovac for a "vacation" about twenty years ago—staying in a private rental—and the ocean was just this milky white color. You couldn't see even ten centimeters below the surface... probably because of all those local factories or the cement plants nearby. We actually had to drive over to Resnik just to go swimming; it wasn't exactly crystal clear either, but at least it was an option. It wasn't until I got to Primošten about ten days later that I finally saw what "normal" water looks like. I honestly couldn't believe my eyes when I could actually see the seabed just a few meters down.... Sure, Miami is polluted too, but compared to Indianapolis, being right by the coast makes a massive difference. Anyway, I make my mom a fresh fruit and veggie smoothie every morning, but she’s already taken some Tramal before that and ends up throwing everything back up... Is it okay to combine Tramal drops with something like Advil granules or Voltaren? Like, if you take an Advil granule along with maybe 10 drops of Tramal? Or what is a person actually supposed to take for pain management when dealing with bone tumors?🙂....Best wishes and enjoy your summer vacation!
Angela Wright Angela Wright Regular
731 messages
joined Feb 2007
#75 ·
Megan Williams6 said:Oh man, you’ve got a point there. I remember being down in Kaštel Kambelovac for a "vacation" about twenty years ago—staying in a private rental—and the ocean was just this milky white color. You couldn't see even ten centimeters below the surface... probably because of all those local factories or the cement plants nearby. We actually had to drive over to Resnik just to go swimming; it wasn't exactly crystal clear either, but at least it was an option. It wasn't until I got to Primošten about ten days later that I finally saw what "normal" water looks like. I honestly couldn't believe my eyes when I could actually see the seabed just a few meters down.... Sure, Miami is polluted too, but compared to Indianapolis, being right by the coast makes a massive difference. Anyway, I make my mom a fresh fruit and veggie smoothie every morning, but she’s already taken some Tramal before that and ends up throwing everything back up... Is it okay to combine Tramal drops with something like Advil granules or Voltaren? Like, if you take an Advil granule along with maybe 10 drops of Tramal? Or what is a person actually supposed to take for pain management when dealing with bone tumors?🙂....Best wishes and enjoy your summer vacation!

You really need to talk to her anesthesiologist about prescribing a cocktail that actually manages the pain without completely knocking her out. In my opinion, Durogesic is a solid option because it absorbs through the skin; you can start with low doses and then take an extra pill if the pain spikes. Definitely run that by the anesthesiologist, though.
Megan Williams6 Megan Williams6 Active Member
51 messages
joined May 2012
#76 ·
Durogesic? Is that some kind of cream or an oil? And can you even pick it up without a prescription? I'm not sure where I'd even find an anesthesiologist right now.... Anyway, thanks for the advice.😉
Angela Wright Angela Wright Regular
731 messages
joined Feb 2007
#77 ·
Megan Williams6 said:Durogesic? Is that some kind of cream or an oil? And can you even pick it up without a prescription? I'm not sure where I'd even find an anesthesiologist right now.... Anyway, thanks for the advice.😉

No, those are patches that only doctors prescribe—specifically anesthesiologists who can actually sit down and calculate the right dosage for you. You can find an anesthesiologist at pretty much any hospital. If I were you, I’d head over to Drašković Hospital and ask specifically for Dr. Zoran lončar.
Drašković Hospital

Drašković Hospital, Indianapolis
The Pain Clinic.
Director: Zoran lončar, MD, Anesthesiologist
Telephone: 01/46 97 000
vividsailor7 vividsailor7 Active Member
217 messages
joined Sep 2011
#78 ·
Quote : Wedding
Megan Williams6 said:Durogesic? Is that some kind of cream or an oil? And can you even pick it up without a prescription? I'm not sure where I'd even find an anesthesiologist right now.... Anyway, thanks for the advice.😉

Fentagesic (fentanyl) isn't some casual over-the-counter pill you grab at a drugstore; it’s a heavy-duty opioid analgesic. We’re talking about transdermal patches here, specifically designed for patients battling malignant pain, and they should only ever be used under the strict recommendation of a specialist. You can't just wing it. The entire process of dose titration depends entirely on the patient's medical history and their previous experience with opioid analgesics. It's precise science, not guesswork.
Megan Williams6 Megan Williams6 Active Member
51 messages
joined May 2012
#79 ·
I appreciate all the advice, but I wanted to ask about this "magnetic resonance preoperative pain therapy" they recommend at various spas—would that actually be helpful before a potential surgery? I’ve heard some people claim it's effective. Personally, I feel like there's always enough time to deal with the scalpel when it comes. Some folks suggest that if you're dealing with something like a sarcoma, you should try to "shrink" the tumor before the operation, and maybe this therapy combined with soaking in the ocean and getting some sun (for that Vitamin D boost) could help in that regard......🤷
Angela Wright Angela Wright Regular
731 messages
joined Feb 2007
#80 ·
Megan Williams6 said:I appreciate all the advice, but I wanted to ask about this "magnetic resonance preoperative pain therapy" they recommend at various spas—would that actually be helpful before a potential surgery? I’ve heard some people claim it's effective. Personally, I feel like there's always enough time to deal with the scalpel when it comes. Some folks suggest that if you're dealing with something like a sarcoma, you should try to "shrink" the tumor before the operation, and maybe this therapy combined with soaking in the ocean and getting some sun (for that Vitamin D boost) could help in that regard......🤷

When dealing with sarcoma, there’s a fundamental rule to follow—and I’ve already pointed this out to you more than a few times. The goal should be surgical removal as soon as possible—get as much of it out while you can. Unfortunately, we just don't have any therapies effective enough yet to actually fix the problem without resorting to surgery.

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