Osteolysis: Possible pelvic bone tumor and potential uterine Leiomyosarcoma

Angela Wright said:When dealing with sarcoma, there’s a fundamental rule to follow—and I’ve already pointed this out to you more than a few times. The goal should be surgical removal as soon as possible—get as much of it out while you can. Unfortunately, we just don't have any therapies effective enough yet to actually fix the problem without resorting to surgery.

Yeah, easy for you to say when we don't even have a final diagnosis yet. I am absolutely not doing that biopsy right now. I went to Mercy Hospital today and they won't take me—everyone keeps sending me over to Šalat—but if I actually make it there, they say I have to go under the knife immediately. One doctor told me they want to do the biopsy during the actual surgery. But what if it isn't a sarcoma? They cut you open, tear everything out, and it turns out it wasn't even necessary... then you're just done. First and foremost, I want to see the cytology results from a biopsy. I want a definitive diagnosis after seven months of waiting. Where is a person supposed to go and pay for that? We already went to one private clinic, but they didn't even return most of the samples.🤷.......

Megan Williams6 said:Yeah, easy for you to say when we don't even have a final diagnosis yet. I am absolutely not doing that biopsy right now. I went to Mercy Hospital today and they won't take me—everyone keeps sending me over to Šalat—but if I actually make it there, they say I have to go under the knife immediately. One doctor told me they want to do the biopsy during the actual surgery. But what if it isn't a sarcoma? They cut you open, tear everything out, and it turns out it wasn't even necessary... then you're just done. First and foremost, I want to see the cytology results from a biopsy. I want a definitive diagnosis after seven months of waiting. Where is a person supposed to go and pay for that? We already went to one private clinic, but they didn't even return most of the samples.🤷.......

Look, if you ask me, you're worrying about things that aren't your business. Doctors actually know what they're doing, for crying out loud. Some things just can't be diagnosed easily with a simple needle biopsy—you can clearly see how much trouble these doctors have had with this case. Once they open him up, they'll see the reality of the situation. If something needs to come out, it comes out; if not, it stays. These professionals have enough experience to get a very good idea of what they're looking at. For heaven's sake, people don't just start removing bone for no reason! You guys are making too much noise about "what if it's not a sarcoma," but I’m asking you: what if it *is*? With a diagnosis like this, every single wasted day is a massive tragedy. Honestly, you should consider yourselves lucky that they even want to treat him. With patients this old, a lot of doctors wouldn't bother doing anything at all.

We’re likely heading to a private clinic tomorrow for the biopsy and subsequent PhD analysis. If it turns out to be a sarcoma, we haven't just lost a single day—we've lost an entire year waiting around and gathering test results without ever getting a definitive diagnosis. We’ll be deciding on our next steps in the coming days. We absolutely have to get this biopsy done so we can finally identify the tissue composition and the specific name of the tumor; once we have that, making a decision will be much easier. Best regards!😕

Well, we won't be able to get that biopsy done this week, and I'm driving my mom down to the coast during the second week. Once we're back from our trip, we'll figure out the next steps. If she needs surgery, then so be it. But regardless, I want a clear diagnosis before anyone picks up a scalpel. I don't want them performing an operation on her for nothing. It would be a different story if the medical opinions were actually aligned, but so far, only one doctor has insisted on opening her up and removing it, while the others have advised against surgery altogether. Ultimately, without a biopsy, you're just guessing—there are a thousand different types of tumors, and each requires a specific approach. Some respond to radiation, whereas most sarcomas are resistant to it.... I know someone who passed away recently; he just had some leg pain, but it turned out to be a metastasis, which led to finding tumors in his brain, lungs, and so on... they used lasers to try to bridge the connection between his brain and his leg, followed by chemo, then radiation, and just like that, the man was gone... he was only 50... Before all that, it was just his leg hurting, but after all those "treatments," his whole body started aching until he couldn't even get out of bed. It all happened within a few months.... May God rest his soul....😢

We finally got the biopsy done. We should have the results in the next few days, and then we’ll figure out our next move. Why am I bringing up sarcoma? Because the specialist at Nemetov wrote it down—she said the histopathology is consistent with leiomyosarcoma... Plus, the doctors over at the rib specialists were worried about the size of the tumor and suggested it might be a primary osteosarcoma, along with a uterine leiomyoma... Of course, I’d be overjoyed if it wasn't a sarcoma (to Mom, it seems to have been growing slowly for about six years, just to reach this stage now), but sarcomas grow incredibly fast... regardless, there is a mass there, and it's pressing on her nerves and muscles, causing her terrible pain lately. Previously, it was her right side where the tumor above the hip joint had wrapped around the iliac bone, but after four days of soaking in the pool about ten days ago, that stopped hurting, and now her left leg and left side have started aching... maybe that's because she spent all day on her feet using that walker, doing laundry, ironing, cooking, since it actually hurts less when she's moving than when she sits or lies down... I tell her repeatedly to just rest, but she constantly has to be doing something. Today, she could barely get out of bed to use the bathroom; apparently, she insisted on using some stupid "bath cover" that weighs about 100 kg once it fills with water... it drives me crazy. Or maybe it's the Tramal, which isn't even helping the pain anymore, and she can't eat because of it... When we were down in Miami recently, she wasn't taking the Tramal, just one Advil a day, and everything was fine... she ate like she hadn't seen food in a lifetime and everything seemed normal, but as soon as we got back to Indianapolis, things went south again... maybe it's because she isn't showering—the lack of water and sun... I installed a new showerhead and grab bars for her, but now there's that cover sitting in the tub that looks like it's drying, so tomorrow we'll put it out on the balcony to dry... she cares more about that cover than her own health—I don't give a damn about the cover or any of that, I just want her condition to improve, and we'll deal with the rest later... I don't know what comes next, we'll see. Honestly, I can't function without sedatives anymore because the fear is just overwhelming. Best to everyone.🙂

Last night around 9 PM, she took one Ketonal, but then at about 1 AM, she ended up taking Tramal because it just wasn't cutting it. Now she feels like the Tramal actually worked, though she only took that initial Ketonal yesterday because the Tramal wasn't providing any relief. It seems to me that the Tramal might be working slightly better than the Ketonal—perhaps there's just a delayed effect. I'm not sure. Anyway, I'm currently waiting on the results of the PhD analysis with a lot of anxiety, and after that, she'll most likely have to go into the hospital. If they decide surgery is an option, then she should go through with it; if they can get it removed, she'll surely be in less pain once she recovers... I wonder, is 12-13 cm in diameter considered small or large for something like a sarcoma?😕

Honestly, I think you could really use some professional psychological help in any case. This is coming from a good place, btw.

Megan Williams6 said:We finally got the biopsy done. We should have the results in the next few days, and then we’ll figure out our next move. Why am I bringing up sarcoma? Because the specialist at Nemetov wrote it down—she said the histopathology is consistent with leiomyosarcoma... Plus, the doctors over at the rib specialists were worried about the size of the tumor and suggested it might be a primary osteosarcoma, along with a uterine leiomyoma... Of course, I’d be overjoyed if it wasn't a sarcoma (to Mom, it seems to have been growing slowly for about six years, just to reach this stage now), but sarcomas grow incredibly fast... regardless, there is a mass there, and it's pressing on her nerves and muscles, causing her terrible pain lately. Previously, it was her right side where the tumor above the hip joint had wrapped around the iliac bone, but after four days of soaking in the pool about ten days ago, that stopped hurting, and now her left leg and left side have started aching... maybe that's because she spent all day on her feet using that walker, doing laundry, ironing, cooking, since it actually hurts less when she's moving than when she sits or lies down... I tell her repeatedly to just rest, but she constantly has to be doing something. Today, she could barely get out of bed to use the bathroom; apparently, she insisted on using some stupid "bath cover" that weighs about 100 kg once it fills with water... it drives me crazy. Or maybe it's the Tramal, which isn't even helping the pain anymore, and she can't eat because of it... When we were down in Miami recently, she wasn't taking the Tramal, just one Advil a day, and everything was fine... she ate like she hadn't seen food in a lifetime and everything seemed normal, but as soon as we got back to Indianapolis, things went south again... maybe it's because she isn't showering—the lack of water and sun... I installed a new showerhead and grab bars for her, but now there's that cover sitting in the tub that looks like it's drying, so tomorrow we'll put it out on the balcony to dry... she cares more about that cover than her own health—I don't give a damn about the cover or any of that, I just want her condition to improve, and we'll deal with the rest later... I don't know what comes next, we'll see. Honestly, I can't function without sedatives anymore because the fear is just overwhelming. Best to everyone.🙂

To you. It’s all just playing around. 😳The biggest issue in all of this isn't the sarcoma, nor the breast pain, nor even the combination of the heat, the ocean, and the braces—it’s not even the biopsy. The real problem is YOU. It’s how you are being to yourself, and more importantly, it’s the massive, unnecessary burden you are placing on your sick mother. On top of everything she’s already fighting, you're forcing her to deal with this extra weight while she's trying to manage her own pain. That is where the true problem lies. It’s just your irrational fear of losing your mother.Nothing else matters—all that counts is that she lives forever, or at least as long as you’re still breathing. It shouldn't even matter if she wants a damn clean deck, or if she wants to scrub and wring everything out in her own tub with her own two hands, or iron whatever she pleases exactly when she feels like it. Your mother is truly an exceptional, selfless woman for putting up with all this from you. My late mother—and honestly, me too—would have kicked your ass straight to the hospital just to get your weight down and your blood pressure checked, and then sent you right back home to your wife and kids, because at the end of the day, they should be the ones who come first in your life.
Look, man, I get it. It’s great that you love her this much, and it's honestly admirable how much you value everything she’s done for you. But the way you're actually expressing it? That's completely unhealthy. To put it bluntly—and I'm not trying to be mean here—it's downright pathological.
In that regard, I am in complete agreement with analogbison13—and I mean that with nothing but good intentions.

Look, I’ll say it, so go ahead and sanction me if you want: I can’t even wrap my head around what life is like for that poor woman. She’s exhausted by everything, she's in constant pain, and on top of all that, she has to deal with the crushing thought that her son won't be able to make it without her at his age. It's falling apart at the seams—living on pills and all that crap. When I was 18, I was composed enough to convince my dying father that everything would be fine with me. To me, that is the ultimate proof of love.

Please, don't go judging the man. He's struggling to process everything right now, and honestly, he's just terrified for his mom. Maybe you've handled a situation like this better than he has, but if that's the case, then maybe... I don't know, maybe give him some actual guidance instead? And regarding the idea that his partner should be more important than his mother—why couldn't they both be equally important? It's not that simple.

Nobody is out here judging him. 🙂 We've all been watching what he’s been posting over the last few months, and honestly, it’s heartbreaking to see him tearing himself apart like this. Let’s just call this what it is: a series of virtual slaps to the face.
It’s tough seeing someone you care about suffer and deal with illness, regardless of how old they are. I can only imagine how hard it is for his mother to watch him struggle through all of this. At this rate, the sheer stress and anxiety are going to make him physically sick, too. That’s what we’re all trying to tell him—he needs to sit down and have a real conversation with a professional, because the way he's acting right now is just not healthy.

Look, I’m sorry, but saying an 18-year-old "would have handled" a serious illness and their parent's death any better is just plain stupid. There are things you just HAVE to deal with on your own without dumping more weight on someone who is already fighting for their life and facing loss. That’s just how it works.

analogbison13 said:Look, I’ll say it, so go ahead and sanction me if you want: I can’t even wrap my head around what life is like for that poor woman. She’s exhausted by everything, she's in constant pain, and on top of all that, she has to deal with the crushing thought that her son won't be able to make it without her at his age. It's falling apart at the seams—living on pills and all that crap. When I was 18, I was composed enough to convince my dying father that everything would be fine with me. To me, that is the ultimate proof of love.

The truth is, we don't all process things the same way. I know someone who spent the entire night partying, singing, and playing guitar at a blowout the very same day his mother passed away—before she was even cold... what else is there to say?🤷

Angela Wright said:To you. It’s all just playing around. 😳The biggest issue in all of this isn't the sarcoma, nor the breast pain, nor even the combination of the heat, the ocean, and the braces—it’s not even the biopsy. The real problem is YOU. It’s how you are being to yourself, and more importantly, it’s the massive, unnecessary burden you are placing on your sick mother. On top of everything she’s already fighting, you're forcing her to deal with this extra weight while she's trying to manage her own pain. That is where the true problem lies. It’s just your irrational fear of losing your mother.Nothing else matters—all that counts is that she lives forever, or at least as long as you’re still breathing. It shouldn't even matter if she wants a damn clean deck, or if she wants to scrub and wring everything out in her own tub with her own two hands, or iron whatever she pleases exactly when she feels like it. Your mother is truly an exceptional, selfless woman for putting up with all this from you. My late mother—and honestly, me too—would have kicked your ass straight to the hospital just to get your weight down and your blood pressure checked, and then sent you right back home to your wife and kids, because at the end of the day, they should be the ones who come first in your life.
Look, man, I get it. It’s great that you love her this much, and it's honestly admirable how much you value everything she’s done for you. But the way you're actually expressing it? That's completely unhealthy. To put it bluntly—and I'm not trying to be mean here—it's downright pathological.
In that regard, I am in complete agreement with analogbison13—and I mean that with nothing but good intentions.

It looks like I've been completely misunderstood. I said I didn't give a damn about that stupid blanket because it isn't even HER blanket, it's mine. I told her I would wash it for her, but she wouldn't let me; instead, she insisted on scrubbing it in the tub herself. That's why I was angry at her—because she SHOULDN'T be overexerting herself. She needs to prioritize her health, which is far more important than that stupid blanket (it's actually just that factory cover for a futon bed).
I am simply trying to help her. I massage her legs with black seed oil, I make her drinks out of every healthy thing imaginable so she's more loaded with vitamins than a pharmacy, I bring her food, change her linens, and do everything she can't do anymore... and now someone tells me I'm a burden to her? I never once complain in front of her about how hard it is; instead, I stay strong and encourage her to keep fighting, even though I know how difficult being sick is. Honestly, it feels like some people here think you aren't allowed to love your mother. I wish I didn't love her, because things would be a thousand times easier... and as for my wife and kids, they aren't being neglected; my mother lives in the apartment right next to us, so they aren't far away and they have everything they need. Actually, I'm just a fool for posting on this forum, because it just upsets me further, and I don't need that...🤷

Megan Williams6 said:It looks like I've been completely misunderstood. I said I didn't give a damn about that stupid blanket because it isn't even HER blanket, it's mine. I told her I would wash it for her, but she wouldn't let me; instead, she insisted on scrubbing it in the tub herself. That's why I was angry at her—because she SHOULDN'T be overexerting herself. She needs to prioritize her health, which is far more important than that stupid blanket (it's actually just that factory cover for a futon bed).
I am simply trying to help her. I massage her legs with black seed oil, I make her drinks out of every healthy thing imaginable so she's more loaded with vitamins than a pharmacy, I bring her food, change her linens, and do everything she can't do anymore... and now someone tells me I'm a burden to her? I never once complain in front of her about how hard it is; instead, I stay strong and encourage her to keep fighting, even though I know how difficult being sick is. Honestly, it feels like some people here think you aren't allowed to love your mother. I wish I didn't love her, because things would be a thousand times easier... and as for my wife and kids, they aren't being neglected; my mother lives in the apartment right next to us, so they aren't far away and they have everything they need. Actually, I'm just a fool for posting on this forum, because it just upsets me further, and I don't need that...🤷

And frankly, I don't get why you even bothered posting if you aren't willing to accept that other people see this situation differently.
There is absolutely no question that your intentions are good and your desire to help her is genuine—nobody here is disputing that. But based on everything you've laid out, the way you're going about it is fundamentally flawed. In that sense, it’s not that you're misunderstood, it's that we are. The rest of us can only wish both you and your mom the best of luck, because with the attitude you're presenting, you're certainly going to need it.

Quote : Wedding

Megan Williams6 said:The truth is, we don't all process things the same way. I know someone who spent the entire night partying, singing, and playing guitar at a blowout the very same day his mother passed away—before she was even cold... what else is there to say?🤷

Yeah, and? You’re acting shocked by that kind of extremism when you’re the one out here pitching the exact opposite.
At the end of the day, it’s the same story. I think everyone around you can see that you’re completely medicated and totally disoriented. It would actually be weirder if you managed to hide all of that from your own family and only vented about it here on this forum. Honestly, I have no clue what you're even looking for on here. You just spit out prejudices against anyone who tries to talk to you, and frankly, by what metric are you measuring how much someone loves their parents?!
Honestly, I don't need that in my life. Fight your own battles however you see fit. Besides, you can just act like a father figure to me if it makes you feel better.

analogbison13 said:Quote : Wedding

Yeah, and? You’re acting shocked by that kind of extremism when you’re the one out here pitching the exact opposite.
At the end of the day, it’s the same story. I think everyone around you can see that you’re completely medicated and totally disoriented. It would actually be weirder if you managed to hide all of that from your own family and only vented about it here on this forum. Honestly, I have no clue what you're even looking for on here. You just spit out prejudices against anyone who tries to talk to you, and frankly, by what metric are you measuring how much someone loves their parents?!
Honestly, I don't need that in my life. Fight your own battles however you see fit. Besides, you can just act like a father figure to me if it makes you feel better.

Wait, have I ever even asked you for anything? I came here to read people's stories—real, heavy human dramas that actually moved me to tears, because at the end of the day, I'm only human. Emotions are a messy thing. Do you think someone like Mišo Kovač would be popping 40 pills a day if it were easy to deal with the death of a loved one? If he had emotions like yours, he wouldn't need a single pill. I was just an eighteen-year-old kid when I lost my father... and before that, I went through a similar kind of trauma to what I'm facing today... but I don't understand why you're forcing me into this argument with you right now. Maybe you're just one of those people who thrives on other people's misery... I just don't get it...

analogbison13 said:Honestly, I think you could really use some professional psychological help in any case. This is coming from a good place, btw.

I completely agree with that, and I'd sign my name to it if I had to.😛

mistyjackal842 said:Please, don't go judging the man. He's struggling to process everything right now, and honestly, he's just terrified for his mom. Maybe you've handled a situation like this better than he has, but if that's the case, then maybe... I don't know, maybe give him some actual guidance instead? And regarding the idea that his partner should be more important than his mother—why couldn't they both be equally important? It's not that simple.

Exactly. Finally, someone who actually gets where I'm coming from. I never claimed my mother was more important than my wife or kids; I don't go around using some "importance meter"—if God forbid my wife or children fell ill, I'd feel the exact same way. Besides, there's no way for things to get any worse than this. Look at that designer McQueen, or whatever his name was—he took his own life the very same day his mother passed away, and he was incredibly close to her. He just couldn't face it. It’s tragic, plain and simple, but that's the reality. No one can turn around now and call that man an idiot, a fool, a psycho, or a jerk because of it.....

Alright, I think it’s time to put a stop to this back-and-forth.

Megan Williams6, I don't think either of those women meant anything by what they said. They've both been posting on this forum for a long time now, and I know their intentions are good—they're just trying to help out with advice, support, or info. It’s obvious you two are talking past each other, so please, just drop the subject.

Megan Williams6, I honestly don't know what to tell you. I'm sorry about your mom. I know you're doing everything you can to be there for her, and I know how hard it is to watch her go through this. It hurts. But we've been reading your posts for months, and it's clear you're tearing yourself apart. We're all telling you the same thing: you need to take a breath and steady yourself, otherwise you're going to burn out completely, and your wife and child need you to stay standing. Just because you're feeling a bit more level-headed doesn't mean you care any less about your mother or love her any less. Besides, I highly doubt she'd want you wrecking your own health just because you're worrying about her. You mentioned your blood pressure is up and that you've been neglecting your own well-being because of all this. Don't do that. 🙂