Osteolysis: Possible pelvic bone tumor and potential uterine Leiomyosarcoma

Is anyone taking anything for their stomach? You should look into Controloc or something similar; it basically creates a protective lining in your stomach so the meds don't tear it up quite as much. Most people who are on daily stuff like steroids or Advil take something like that, otherwise, your stomach is just going to be trashed after a while eventually.

Angela Wright said:If you ask me, you can rest easy. If this were actually a neoplasm, your mother wouldn't have been with us all those years ago.
So, it’s either surgery for the fibroid or radiation for the bone. There isn't really another way.

Thanks for the kind words, but I can't quite find any peace yet. I'm still leaning heavily on sedatives because that damn thing just keeps growing, and I honestly don't even know who would be willing to operate on it. It's sitting at 15 x 12 cm right against the bone, and on top of that, the uterus is 10 cm, with a 6 x 7 cm fibroid inside... Who knows. Maybe some radiation could shrink the tumor slightly—I did a little digging online and came across this newer method called "GUIDED FOCUSED ULTRASOUND" (MRgFUS), which apparently uses MRI-guided focused ultrasound to destroy the fibroid. Does anyone know if that's available here in the States, and if so, where I might be able to get it done?🤷

melloworca6 said:Is anyone taking anything for their stomach? You should look into Controloc or something similar; it basically creates a protective lining in your stomach so the meds don't tear it up quite as much. Most people who are on daily stuff like steroids or Advil take something like that, otherwise, your stomach is just going to be trashed after a while eventually.

Thanks for the advice, but does that require a prescription or can you just pick it up over the counter?

Megan Williams6 said:Thanks for the advice, but does that require a prescription or can you just pick it up over the counter?

You can get it via prescription, especially since my mom takes pain pills every single day. It’s also available over the counter—check this one out:

Megan Williams6 said:Thanks for the advice, but does that require a prescription or can you just pick it up over the counter?

melloworca6 said:You can get it via prescription, especially since my mom takes pain pills every single day. It’s also available over the counter—check this one out:

It’s better to get this via prescription. If you're looking at actual ulcer prophylaxis, you really need to be on the 40mg dose.

Thanks. So, I have one more question: what’s actually the difference between a standard ultrasound and one done with color Doppler? Three different gynecologists looked at me using a regular ultrasound and said it was an intramural uterine leiomyoma, but during my last exam using color Doppler, the doctor told me it might be a sarcoma. Now I'm confused—if it's a sarcoma, can that even be identified with just a normal ultrasound? And one more thing: if it really is a sarcoma, would it have grown since January 11th of this year? Because it seems to stay the exact same size, maybe even a centimeter or two smaller than when it was first found.🙂

meritas said:http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2386208/

Every time you think you've seen it all... you stumble upon something like this.

In any case, this looks incredibly rare, which just increases the odds that getting a straight answer about treatment options will be an uphill battle....

@Angela Wright, where does that confidence come from? Thinking an 83-year-old woman has nothing to lose during surgery—I’m asking because of your general stance on the American medical system.

I wanted to say thanks again for that link. The case is strikingly similar, almost identical, and I think it brings us much closer to a definitive diagnosis. From what I can gather, we're looking at an extremely rare tumor; I believe only a handful of cases like this have even been documented in global medical literature (this involves an 83-year-old woman). Even though quite a bit of time has passed since the initial scans back in January 2012, we might finally be able to pin down a final diagnosis. The only thing is, my mom's uterus happens to be involved too... but two gynecologists have already told us to leave it alone. Wishing everyone good health. Cheers!!!!🙂