#21 ·
My brother was on Singulair, but he had to stop taking it because it gave him this crazy rash. He’s using Seretide now instead—and honestly, he feels great.
Started by Aaron Walker9 · · 👁 7 views · 58 replies
slyorca said:I've been dealing with asthma since I was seven years old. It flared up quite a bit during my teenage years, though things eventually settled down significantly. For a while, I was using Advair Diskus, and honestly, it worked wonders—I didn't even need to touch my Ventolin during that stretch. Now, however, my pulmonologist has switched me over to Tafen Novolizer. Since I'm planning to get pregnant, I have to move away from using Seretide. So far, Tafen hasn't really proven its worth; I've had a few attacks, albeit milder ones. Perhaps it'll start performing better once I've been on it longer.
I suspect Tafen Novolizer might be one of those newer medications, as my doctor mentioned it's relatively recent to the market, but who knows? There might be other options out there.
Kevin Nelson6 said:I have lived with asthma since I was six years old, having been hospitalized more than ten times for life-threatening attacks requiring intravenous treatment.
However, I never pursued a systematic treatment plan; there were minor interventions during my childhood in places like Maui, but from puberty through the end of college, I received virtually nothing beyond using Ventolin as needed and rushing to the emergency room when an attack struck. (Honestly, I often wonder what my parents were thinking by neglecting this so thoroughly, much less my primary care physician??!!)
I am allergic to just about everything, and my attacks typically trigger when a common cold, the flu, or a sore throat coincides with exposure to allergens.
It wasn't until 1997, following my last hospital stay, that I finally began a consistent medical regimen—largely because people were baffled as to why I wasn't managing the condition regularly and was instead waiting for a crisis to act!
My treatment started with Serevent 2 x125 combined with Flovent 2 x250 in the morning, repeating the same dose in the evening (though today, I use Seretide, which serves as a two-in-one solution).
We gradually tapered the dosage until I reached a regimen of one Flovent in the morning and one Singulair in the evening; however, I frequently neglected the Singulair due to forgetfulness, leaving me on just a single Flovent for a year and a half.
Since the beginning of this year, I have replaced the Flovent with Singulair, and that is currently my sole medication.
Since committing to a systematic treatment plan, I haven't spent a single night in the hospital; I have experienced only one mild attack in ten years, and I likely only reach for Ventolin once a year.
Following a cold, I am often left with a persistent, dry cough for quite some time. My previous attacks were invariably linked to respiratory infections, heavy mucus buildup, inflamed bronchi, and allergic reactions—all occurring simultaneously. Physical activity isn't an issue for me, though I neither can nor care to go running.
I maintain high fluid intake and consume one to two tablespoons of flaxseed oil daily, which is supposedly the gold standard for managing asthma.
Despite ten years of corticosteroid use, I have suffered no side effects whatsoever. My blood work, heart health, liver function, blood pressure, digestion, and skin—everything remains perfectly normal.
Christian Wood63 said:Go ahead and look up interleukin-27 and its connection to asthma online; there is some actually interesting stuff out there.
You also need to factor in the role of the EBI-3 protein and how it regulates the immune response throughout this entire process.
The balance is already thrown off days before any of it even shows up.
redcrane6 said:Where on earth did you find this idea that flaxseed oil is some kind of miracle cure? I'm actually curious about trying it on the days when I'm not using my Enkorten. Right now, I'm applying it twice a week, and I was thinking about taking flaxseed oil in between sessions as a little extra support.
My ultimate goal is to move from moderate asthma down to just managing occasional wheezing.
If anyone has a link to an article or some actual medical opinion regarding flaxseed oil, I’d love to see it.
Best regards,
Michael Newman18 said:redcrane6, you two seem to be having quite the debate regarding Enkorten:
Are you based out of Canada?
By the way, how exactly is this stuff administered?
Could you maybe break down some of those "interesting findings" for us? I’m certainly no chemist, so I don't grasp much even when I try googling things.
Thanks.
Michael Newman18 said:Thanks a million, redcrane6🙂
I don't know—a friend of mine who works in pharmacy (she's a Russian woman, so this has absolutely nothing to do with any local lobbying groups here) tells me that it’s pretty obvious just from the name Enkorten that it contains corticosteroids.
The drug's manufacturers actually list corticotropin in the composition 🤷
.
Are you honestly suggesting that Pliva is trying to block this medication from entering the American market?
Because products like Advair Diskus, Flovent, and those other GlaxoSmithKline brands... well, they aren't owned by Pliva.
Kevin Hall10 said:If anyone out there can offer some advice or a bit of guidance, I’m reaching out. I have a 4-year-old son who is struggling significantly with his breathing. Because he was born with extremely enlarged tonsils, the doctors haven't even bothered—at least based on his symptoms—to look for any other underlying cause; they just keep suggesting they be removed. The catch? He has actually never had a single case of tonsillitis, which is apparently the primary indicator for removal.
I can't shake this feeling that the issue isn't the tonsils at all, but something else entirely. He breathes through his mouth, struggles immensely to breathe through his nose, and carries himself with this specific head posture—kind of tilted back. Once he hits the bed at night, the coughing starts—it's intense, like he's trying to clear something out, but it sounds more like an adult than a toddler. Occasionally while he's sleeping, it seems like he stops breathing for a second, and then when he finally catches his breath, he starts gasping and coughing. Even right now, I can hear him snoring through two closed doors. During the day, it’s mostly just light coughing, but once I prompt him, he really starts hacking. We already went through the allergy testing gauntlet (the basics—dust mites, pollen), and he came back negative for those. I've noticed he coughs less when he's finally settled comfortably in bed; for a while, my husband and I actually wondered if he was just doing it for attention, but this has gone on far too long to be anything else.
Please, let me know what you think and where you'd recommend we start with diagnostic testing.
We saw a doctor for the allergy tests who also happens to be a pulmonologist (Dr. Pavlov), but once he took one look at the tonsils, he barely even glanced at the test results. There was absolutely no mention of spirometry or any of the other tests people talk about here on the forum. To make matters more complicated, asthma runs in my family, and my husband deals with neurodermatitis.
If anyone knows where or with whom we could get proper testing done in the New York City area, I would be incredibly grateful!