#281 ·
briskgull27, what's the deal with that patient advocacy group for schizophrenics? Any chance you've managed to track down a phone number or an address?
Schizophrenia - General Discussion
Started by briskgull27 · · 👁 47 views · 7.5K replies
#282 ·
briskgull27 said:But honestly, there’s one massive reason why being labeled "crazy" is such a trap.
First off, once you’ve been branded, that’s pretty much it—it sticks.
Second, people stop actually looking at what you're doing. If you act out, they don't see the cause; they just say, "Oh, he's lost it," or "He's just an eccentric artist." It's like... if you know what I mean, right?
It's all a setup.
At the end of the day, society basically acts as the yardstick for what counts as "normal."😲 🤣
That’s exactly the point. I mean, how else could a bunch of supposedly "normal" people manage to kill off something like 50 million people during World War II... or any other war for that matter?
And the treatment being discussed here? It feels way more like basic biochemistry than actual psychiatry. It's just a constant loop of "keep taking the pills!"
#283 ·
Taylor Howard36 said:briskgull27, do you have any updates on that patient advocacy group? Any chance you found their phone number or address?
Not at all—actually, I’ve been thinking about something else entirely. What if I started a website?
Something like "Anonymous Schizophrenics," with its own domain, just to give everyone a sense of freedom and privacy.
The site could host chats, helpful info, recommendations, support groups, member forums, and all the latest breakthroughs in both medical and alternative treatments.😎
#284 ·
Brenda Cook4 said:That’s exactly the point... how else could "normal" people possibly account for figures like 50 million deaths during World War II... or in any other war?
The treatment being discussed here feels more like basic biochemistry than actual psychiatry! It's just a "keep taking the pills" approach.
I wonder how many times I'll be forced to conform to these standards.
When I was first taken to the hospital, two police officers actually grabbed hold of me.
And I was just screaming: Grandmother, don't let them take me!
Then my friend told me, "Well, you would have escaped if you had."
It's all such a mess. I really wish I could see you right now.😍
#285 ·
briskgull27 said:Not at all—I actually had a different thought brewing—maybe I should just build a website
like "Anonymous Schizophrenics," with its own domain, just to get everything off my chest and have some actual freedom
a site for: chatting, info, recommendations, support, community, and all the latest breakthroughs in both medical and alternative fields😎
That sounds great☕
but honestly, I can't wrap my head around how nobody knows about the patient advocacy group when it’s common knowledge that they exist... I did a little Googling myself, but there is absolutely nothing online.... it's just weird.... I mean, seriously, nowadays almost every single organization—whether they're making a profit or not—has a website somewhere out there in the digital ether....
#286 ·
briskgull27 said:Ugh, I don't know how many more times I’m going to be forced to just swallow these standards.
The first time they hauled me into the hospital, two cops practically tackled me.
And I was screaming my head off: Grandma, don't let them take me!
My friend told me—well, I probably would have bolted if I had the chance.
It's all just a mess. I really wish I could see you right now.😍
😢 I am honestly so sorry to hear that...
Can you tell me what actually happened? Like, who called the police and the hospital in the first place?
Laing looks at everything a person goes through from a different angle—focusing on the interactions BETWEEN people, the trauma, being rejected by those closest to you, and that feeling of nobody truly understanding...
I just went down a Google rabbit hole myself and couldn't find much, but on an major American news outlet's health page they mentioned a patient advocacy group was invited onto a show, but they didn't provide a name or a link to anything!
#287 ·
I finally tracked down that "Glitter" patient advocacy group... now you go ahead and take a look,
briskgull27!
briskgull27!
#288 ·
Brenda Cook4 said:I found a patient advocacy group called "Glitter"...now you see what I mean, briskgull27!
I’ve actually been there!!!!
1. One reason I wouldn't go: I'm still picking up two more languages on top of my English,
plus I'm constantly working on my computer.
2. Aside from knowing how to use an old fax machine, I actually have real expertise in my field.
3. Once I've earned enough, I can pay for my own travel—it has to be by plane, and as long as I'm in remission, that works perfectly fine for me.
4. I go out to parties, grab coffee, catch a movie; I was just at a restaurant grand opening recently—I've known those people for nine years now.
call me STUPID, but this feels way too formal for me.
My ideal group would meet maybe once a month just to sit and grab coffee for two or three hours.
That’s it. Nothing else.
If I were tasked with giving a professional lecture or volunteering, I'd title it:
Why you should embrace different perspectives instead of sticking strictly to your own.
#289 ·
Brenda Cook4 said:😢 I am so incredibly sorry...
Can you tell me more about what actually happened? Who ended up calling the police and the hospital?
Laing looks at everything happening to a person through a different lens—focusing on the interactions BETWEEN people, the trauma involved, being rejected by loved ones, and that feeling of being misunderstood...
I just went down a Google rabbit hole myself and couldn't find much, but on the PBS health news site, they mention that the American Cancer Society was invited onto a program, though there wasn't a specific name or a direct link provided!
It seems like a pretty standard procedure when medical staff gets involved; the police usually show up too.
Dad was the one who called 911.
#290 ·
briskgull27 said:I actually went!!!!
1. One reason I wouldn't go? I'm still brushing up on two other languages, even though my English is solid.
Plus, I spend all my time on the computer.
2. Aside from knowing how to use an old fax machine, I actually have real expertise in my field.
3. Once I've saved up enough, I can pay for my own trip—it has to be by plane, and since I'm currently in remission, that's totally doable.
4. I'm out and about at parties, grabbing coffee, hitting the movies... I was just at a restaurant grand opening earlier. I've known those people for nine years now.
Call Me Maybe, this feels way too formal for me.
My version of a group would be, say, meeting once a month just to grab coffee for two or three hours.
Nothing else. That’s really it.
If I ever had to give a professional lecture or volunteer, it would be titled:
reasons why you should embrace someone else's worldview instead of clinging to your own
I totally get where you're coming from.😉
But honestly, I think you could really try something like what you described and actually make it happen!
#291 ·
briskgull27 said:It’s just standard protocol when medical teams show up—the police usually follow close behind.
My dad was the one who called 911.
What made your dad decide to go that route?
Was there really no other option available?
I mean, you were practically just a kid back then, barely eighteen...😢
#292 ·
Brenda Cook4 said:Why did Dad decide to go through with that?
Was there really no other option?
I mean, you were basically just a kid back then at eighteen.😢
Well, his late wife actually used to be his doctor.
Now I feel like I'm just adding another shadow to the memorial.
On a different note, I’ve become friends with two women from the hospital.
One of them is about 220 pounds—she’s lovely, 40 years old but looks like she's in her 30s.
She is totally devoted to God and stays so incredibly high on life that she doesn't even realize how much she should be struggling. But no! She’s just genuinely happy.
The other is a retired professor. We head to church together sometimes, though unfortunately,
money is tight for her lately, which causes quite a bit of stress. It isn't ideal.
I also know this one guy who is super religious; all his close friends are headed toward the ministry. He’s always at the church, though we only really know each other casually.
#293 ·
You've gotta find a few things that actually ground you, so when an episode hits, you can just lean into them instead of shutting the whole world out.
#294 ·
Sam Roberts4 said:you have to find a few things that truly ground you, so when an episode hits, you can just lean into them instead of shutting out the entire world.
As for me, I finally found my inner peace through meditation, but now I’m actually feeling a bit restless because I don't have that constant stress or worry that everyone else seems to deal with in this crazy world.
😂 🤣 🤣 😍
#295 ·
Ann and Brenda Cook4, I’m definitely going to do something about this because it truly means a lot to me.
When I called ABC, they actually had to keep my identity confidential—honestly, it felt like I was being treated like some kind of criminal just for being in a bit of a mess and trying to work through it.
It isn't every day you get a chance to have a real conversation about mental health struggles, right?
Sometimes people just shut down and refuse to talk.
Well, I’ve got an ear for those kinds of situations too. 😁 🤣 😍
Today, I’m heading out to the countryside to stretch my legs and spend some time with my black Tarzan cat!😘
When I called ABC, they actually had to keep my identity confidential—honestly, it felt like I was being treated like some kind of criminal just for being in a bit of a mess and trying to work through it.
It isn't every day you get a chance to have a real conversation about mental health struggles, right?
Sometimes people just shut down and refuse to talk.
Well, I’ve got an ear for those kinds of situations too. 😁 🤣 😍
Today, I’m heading out to the countryside to stretch my legs and spend some time with my black Tarzan cat!😘
#296 ·
If I weren't already a little bit crazy, I probably would have lost my mind a long time ago...
#297 ·
mistyscout2 said:If I weren't a little crazy, I would have lost my mind long ago...
I feel exactly the same way! 🙂)
#299 ·
Here is a little bit of insight regarding manic depression.
Schizophrenia and manic depression represent the two primary categories of psychosis.http://i141.photobucket.com/albums/r...r/image002.gif
Schizophrenia and manic depression represent the two primary categories of psychosis.http://i141.photobucket.com/albums/r...r/image002.gif
#300 ·
Brenda Cook4 said:The treatment being discussed here feels more like pure biochemistry than actual psychiatry! It’s basically just 'keep popping those pills'!
Well, here’s my take on why psychotherapy often fails when dealing with schizophrenia:
We actually have solid evidence now regarding genetic predisposition—meaning, there's a biological leaning toward developing schizophrenia. Basically, an individual carries a specific gene that, for reasons we don't fully grasp yet, can be triggered and lead to full-blown illness. It tends to run in families, too. I mean, the risk is statistically higher if one or both parents have it, though—and I should emphasize this—it doesn't guarantee that every child of an affected parent will develop the condition.
When looking at schizophrenia, we might be talking about a fundamental breakdown in the connection between the temporal and frontal lobes, or perhaps even atrophy—that's the wasting away of brain cells—within the frontal lobe itself. Another hallmark finding in patients is reduced metabolic activity in certain parts of the frontal region, what they call hypofrontality.
According to biochemical theories, this disorder is linked to a massive imbalance of chemical messengers in the brain known as neurotransmitters. Their whole job is to shuttle signals—information, really—from one nerve cell to the next, which we call neurons.
Some research suggests that a schizophrenic brain simply isn't wired to process information correctly or filter out the noise based on importance. Consequently, patients get totally overwhelmed by a flood of trivial external stimuli, often clinging to useless details while missing the big picture entirely. This failure in information processing stems from a combination of chemical issues and structural brain abnormalities.
Nowadays, the neurodevelopmental hypothesis is a very prominent way to look at the causes of schizophrenia. The idea is that it's essentially a developmental brain disorder. During fetal development—before birth, actually—faulty connections start forming between neurons. These glitches stay hidden, totally unnoticed, until adolescence hits. We're talking about incredibly subtle changes, but once the disease manifests, those tiny shifts show up across all sorts of behavioral patterns.
The older theories suggesting viral or autoimmune causes aren't quite as central to the conversation in modern medicine anymore.
To build on the points made in this article, about 90% of patients with schizophrenia show enlarged latent ventricles on an MRI scan. 🙂
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