Feeling sick: nausea, vomiting, loss of appetite, tingling, tremors, fatigue, and weakness...

Hey everyone! I just joined the forum because I’m hoping you guys might have some insight—honestly, even my doctors seem totally stumped right now. :/, maybe you all can help me figure this out.

So, here’s the deal. About a year ago, I was diagnosed with hyperthyroidism. I’ve been through the ringer with meds like Nexium, amoxicillin, and who knows what else. I was popping seven different kinds of pills a day, sometimes twice a day. Right now, I’m on Synthroid 20 mcg. I was actually on 50 mcg for a while before my doctor scaled me down. My ultrasound and bloodwork showed that my TSH, T3, and T4 levels were way, way too high. Now that I’m on the 20 mcg dose, I’m constantly dealing with nausea, exhaustion, and these crazy tremors in my hands, legs—basically my whole body. I feel absolutely wiped, like I can barely move, and the nausea is so bad I’ve been throwing up quite a bit. It hasn't just been a bad couple of days, either; I have zero appetite, and honestly, even the smell of food makes me want to gag when I try to force myself to eat. My doctor is at a loss and doesn't know which tests to run next...

On top of that, my back is killing me. I spend about 12 hours a day sitting at work, and by the end of it, the pain is unreal. I tried getting massages, which helped for a tiny bit, but they’re super expensive and the relief doesn't last. I had an X-ray of my lower spine on Friday, and it turns out I have scoliosis. Should I be really worried about that? Plus, there's the scoliosis in my spine to deal with too.

Please, I need some advice... Thanks so much! 🙂

Oh, one more thing—I dealt with H. pylori a while back. Is it possible that it’s come back?

shadowhound82 said:Hi everyone. I’m joining this forum because I need to ask a few things—honestly, even my doctors seem stumped about what's going on with me :/, so maybe you all can help.

The gist is this: over a year ago, I was diagnosed with hyperthyroidism. I've been cycling through Nexium, amoxicillin, and God knows what else. I was taking seven different medications a day, some even twice daily. Right now, I'm on Synthroid 20 mcg. I was actually on 50 mcg for a while before my doctor decided to scale me back. Based on my ultrasounds and bloodwork, my TSH, T3, and T4 levels were through the roof. Now that I'm down to 20 mcg, I'm dealing with constant nausea, exhaustion, and tremors in my hands, legs—basically my entire body. I feel absolutely wrecked. I can barely move, I'm constantly nauseous, and I've been vomiting quite often. I know it isn't just a passing thing since it's been 4 or 5 days already; I have zero appetite, and whenever I try to eat, even the smell of food makes me sick. My doctor told me she’s out of ideas regarding which tests to run next...

On top of that, my lower back is killing me. I spend 12 hours a day sitting at work, and by the end of the shift, the pain is unbearable. I tried getting massages, which helped a little, but the relief doesn't last and they are way too expensive. On Friday, I had an X-ray of my lower spine, and they told me I have scoliosis. Is that something I should be seriously worried about? Along with that, there's the spinal scoliosis itself.

Please, I need help. Thank you so much. 🙂

Also, I dealt with H. pylori in the past. Is it possible it's come back?

You need to provide specific details! You should list every single diagnosis, your entire medication history, your height and weight, and all the test results and findings you've received.

Look, when it comes to your spine, you have to master scoliosis exercises and actually do them every single day. Massage therapy isn't going to do anything for you in the long run. Have you ever even gone to physical therapy for pain? If not, that’s step one. You go to PT, they teach you the specific movements you need, and then you have to make them a part of your daily routine.

vividsailor7 said:Hey, give us the actual details! You really need to list all your diagnoses, everything you've taken so far, your height and weight, plus any tests or lab results you've had.

So, I was diagnosed with hyperthyroidism, then later dealt with that H. pylori stuff. For meds, I just told them I take some kind of pill once a day—honestly, I don't even remember the names anymore. I'm still taking Nexium, though.
I'm 5'8" and 147 lbs..

I feel like I gave plenty of info! Those are my symptoms and what I'm on.🤷
I've done basically everything—endoscopy, ultrasounds, blood work for TSH, T3, T4...

analogbison13 said:When it comes to your spine, you’ve gotta master those scoliosis exercises and hit them every single day. Honestly, massages are just a temporary fix—they won't solve the long-term stuff. Have you ever actually gone to physical therapy for pain? If not, that’s your first move. A PT will give you a specific routine that you can bake into your daily life.

Nope, never been. I swim all the time and stay pretty active with sports. But my doctor was just like, "Oh, you're fine." She basically said our whole generation has bad backs and it's totally normal.
I'm only 25 and I am absolutely wiped out from the pain. I've been diagnosed with both spondylosis and scoliosis, but according to her, it's "nothing special." All she told me to do was keep swimming and leave it at that... 🙂

I've decided to go see a specialist. I'd rather pay the money and finally get some peace of mind.🙂

Swimming builds up muscle strength, sure, but if you're dealing with scoliosis, you really need to master specific stretching routines. If you're located in the Midwest, shoot me a DM regarding physical therapy options.

shadowhound82 said:The diagnosis was hyperthyroidism, then later that *Helicobacter* issue. My doctor just prescribed some kind of daily pill—honestly, I don't even remember the names anymore. I'm still taking Nexium.
Height 5'8", weight 147 lbs..

I wasn't being specific. Those were just my symptoms and what I'm on.🤷
I've done everything there is to do: endoscopy, ultrasounds, blood work for TSH, T3, and T4...

1. Basically, it could be that your PPI dosage is off (based on an EGD report?), or you're dealing with thyroid hormone issues (have you actually reached euthyroid status yet?)
2. *Helicobacter pylori* isn't a diagnosis; it's the name of the bacteria itself.
3. As for you mentioning "EGD"—unless I'm standing right next to you looking over your shoulder at your medical records, I have no idea what your results actually say. Sadly, I can't see anyone else's reports either.
It would be wise to get TSH, fT4, an *H. pylori* breath test, and a full metabolic panel.

analogbison13 said:Swimming builds muscle, sure, but if you're dealing with scoliosis, you gotta master stretching exercises. If you're in the US, hit me up via PM about physical therapy.

Look, I just want the lowdown on PT in Los Angeles. Been dealing with spinal issues forever (lordosis, kyphosis... stuff like that)... where in LA can you recommend a solid physical therapist (using insurance if possible) that offers electronic traction treatments?

Unfortunately, there’s absolutely nothing on my insurance referral. Honestly, the only real relief I found was when I just paid out of pocket for private physical therapy after dealing with a nasty bout of sciatica. For $50, the session lasted about two and a half to three hours. We did everything—laser therapy, TENS, decompression, custom exercises, magnetic therapy, kinesiology tape, manual massage... you name it. Everything else I tried? Total waste of time.

I’m not from the city, but I’m pretty close by! Shoot me a DM with your address and the rest of the details, okay? Thanks a million. Honestly, I’m totally lost on which follow-up appointments I actually need to hit up. Like, the doctors are telling me everything looks fine, but I feel absolutely terrible—it's wild. Sorry, I totally blanked on what IPP and EDG stood for... :|

analogbison13 said:Sadly, you won't find that covered by insurance anywhere. Honestly, I didn't feel any real relief until I just paid out of pocket for private physical therapy after a nasty bout of sciatica. For $50, we were looking at sessions that lasted like two and a half to three hours! We did everything—laser therapy, TENS units, decompression, custom exercises, magnetic therapy, kinesiology tape, deep tissue massage... everything else I tried felt totally useless compared to that.

Thanks for the DM! 😁

vividsailor7 said:1. It basically boils down to two things: either your Nexium dose isn't hitting the mark (check that endoscopy report!), or there's a hitch with your thyroid levels (are you actually euthyroid yet?)
2. Helicobacter pylori isn't a diagnosis itself—it's just the name of the bacteria.
3. When you mention an EGD, I'm assuming you're standing right next to me looking at the results! Sadly, I can't see your reports, or anyone else's for that matter.
It would be smart to get a TSH, fT4, an H. pylori breath test, and some basic blood work done.

Alright, here’s the deal.
I went in for my thyroid checkup, and because of how I was feeling, my doctor sent me over to a GI specialist.
After my endoscopy, the doc told me I had that H. pylori thing, so I was on a cocktail of Nexium, Amoxicillin, Prozac, and Buscopan whenever I needed it.
On top of all that, I was taking Synthroid for my thyroid.
The second time around, my tests and stool samples came back totally clean, so I just stuck with the Nexium.

My first thyroid labs showed T3 at 2.2, T4 at 87.1 (is that too high? just typing what's on the paper), and TSH at 7.7. I started Synthroid, and yesterday my new TSH came back at a normal 2.77.
But man, for the last two days, the dizziness has been killing me, even though the nausea finally stopped. Now my whole body is tingling, and last night it woke me up—especially my face, lips, and my tongue felt numb.😕😕

Do you think it makes sense to get an X-ray of my neck, maybe even a CT scan, or a full blood panel? I'm honestly lost on what to do next.
Just a heads-up, my neck X-ray did show some scoliosis and lordosis.

Thanks! 😢

shadowhound82 said:Here’s the situation.
I went in for thyroid testing, and because of some symptoms I was having, my doctor sent me over to a gastroenterologist.
After a gastroscopy, the doctor told me I had H. pylori, so I was treated with Nexium, Amoxicillin, Prozac, and Buscopan as needed.
On top of all that, I was taking Synthroid for my thyroid.
The second time around, my results and stool samples came back normal. So, I stayed on just the Nexium.

My first thyroid panel showed T3 at 2.2, T4 at 87.1 (is that too high? I'm just copying from the report), and TSH at 7.7. I was treating it with Synthroid, but yesterday I got new labs back and my TSH is now a normal 2.77.
The thing is, I've been dealing with dizziness for two days now, though the nausea has stopped. Now my whole body feels tingly, and last night the tingling woke me up—especially in my face, lips, and I had numbness in my tongue. 😕😕

Would it be smart to get an X-ray of my neck, maybe a CT scan, or a CBC? I honestly don't know what to do anymore.
Just a heads up, my neck imaging did show some scoliosis and lordosis.

Thanks 😢

Go look in the mirror. Does one side of your face or the corner of your mouth look more droopy than the other? Try making a smiling face and see if both sides contract equally or if one side is weaker.
If that's the case, don't sit around waiting—get yourself to an emergency neurology clinic immediately. The symptoms you're describing are alarming enough to warrant an urgent neurological evaluation on their own. Regardless, you need to see a neurologist.

Angela Wright said:Go grab a mirror and take a good look. Does one side of your face or the corner of your mouth look a bit more slack than the other? Try making a big cheesy grin and see if both sides pull up the same way or if one side is just lagging behind.
If that’s happening, don't sit around waiting—get straight to the ER. The stuff you're describing is definitely enough of a red flag to warrant an immediate neurological checkup. Either way, you really need to get cleared by a neurologist.

Everything looks totally fine to me, lips and all. I've been making all sorts of crazy faces in the mirror!
It feels completely normal now. For me, the main issue was just this weird, constant fluttering sensation that keeps popping up every few minutes. I honestly thought maybe it was just my low blood pressure acting up. :/
Even though things seem okay right now, I'm still going to head in to see a neurologist just to be safe.
Thanks so much for the help!

And just like that, my temp hit 98.6... wait, scratch that, it's up to 99!

shadowhound82 said:And now my temperature is at 98.6...

That’s not exactly a fever. But if it starts spiking significantly, you need to get to a doctor immediately.

Angela Wright said:That’s not just some minor fever. If it spikes any higher, you seriously need to hit up the doctor.

I'm actually heading there right now. They open at two, and I'm practically standing right outside the clinic. I'll let you know 🙂 👋

shadowhound82 said:Here’s my situation.
I went in for some thyroid testing, and because of my symptoms, the doctor sent me straight to a gastroenterologist.
After getting a gastroscopy, the doctor told me I have H. pylori, so I was on a regimen of Nexium, Amoxicillin, Fortim, and Buscopan as needed.
On top of all that, I was taking Synthroid for my thyroid.
The second time around, my test results came back normal, including my stool samples. So, I stuck just with the Nexium.

My first thyroid panel showed T3 at 2.2, T4 at 87.1 (is that too high? I'm just transcribing from the lab report), and TSH at 7.7. I was treating it with Synthroid, but I just got new labs yesterday and they say my TSH is normal now at 2.77.
The thing is, I've been dealing with dizziness for two days now, though the nausea has finally stopped. Now, my whole body feels tingly. It actually woke me up last night—this intense tingling all over, especially in my face and lips, and my tongue felt numb.😕😕

Should I get an X-ray of my cervical spine, maybe even a CT scan or a full blood panel? I honestly don't know what to do anymore.
Just so you know, my spinal imaging already showed some scoliosis and lordosis.

Thanks 😢

I'm responding to hypotension, so let me just add this: if these symptoms keep persisting, go straight to the ER for a neurological evaluation so they can give you something for it—like Toradol, for example.

vividsailor7 said:I'm dealing with hypotension myself, so just a heads-up: if these symptoms don't chill out soon, head straight to the ER. They can get you something like Torren than to help.

Just walked out of my doctor's office! She’s basically saying all this is just the heat getting to me. But honestly? What really freaked me out was my tongue feeling numb while I was sleeping... I totally lost it. I stood my ground and insisted she refer me to a specialist, so she finally gave me an order for an EEG and a referral to a neurologist. I'll keep you guys posted once the results come in.

Thanks a million!

So... ended up at the ER neurology ward today. Long story short, the left side of my body isn't really keeping up with the right.
I've got to get an MRI of my spine and my arms and legs too.
A bunch of this medical jargon is flying over my head, so if anyone can break this down for me, I’d appreciate it!

-asymmetric pupils
-weakened patellar reflexes
-positive Lasègue sign at 45 degrees
-slight instability during Romberg test

I kind of get the rest of it, but these parts? Not so much. :/