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Resources and support for families dealing with cancer and serious illness

Started by Angela Wright · · 👁 206 views · 3K replies

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Participants Angela WrightChristian Wilson16Morgan Williams4Jeremy Nelson3John Chase6steelbadger83hiddentiger80urbanjackal3silentviper30mistyranger4ruggednomad182placidfalconJerry Morales4frozenviper492velvetgull9Joshua Flores48Frank Ramirez23Roger Hall15Walter Cox5mellowlynx8boldjackal70northernfox9ALaura Gomez10 …
Christian Wood63 Christian Wood63 Newcomer
6 messages
joined May 2008
#1401 ·
We’ve been dealing with a massive headache regarding my mom for about two weeks now—brain edema, a fever hovering around 100.4, and everything else that points toward a tumor.
She’s on Mannitol every single day, and it looks like I might actually manage to get her off the Dex.
Right now, she’s down to 1 mg daily.
But the fever just won't quit...

It’s pure chaos, honestly. They took her in for a CT scan... and naturally, the results showed signs of necrosis. According to those findings, things have progressed to an advanced, inoperable stage.
I know things hit a low point back in May... so now we wait and see. Best to everyone.
Benjamin Grant6 Benjamin Grant6 Member
36 messages
joined Aug 2008
#1402 ·
Melissa Kim45 said:It doesn't sound strange at all. It’s just that specific time of year...🙂

When I first found out my mother had cancer, I made two immediate decisions: no plans—except for the absolute essentials—and absolutely no questioning the prognosis. In essence, I was handed a brutal opportunity to actually experience and learn things about life that I had previously only read about in books...
Sometimes I catch myself daydreaming about doing this or that, and then I scare myself, letting the emotions just wash over me. But there really isn't the time or the strength to waste on useless distractions. The situation is heavy. Despite everything, and perhaps because of it, I have learned so very much about myself and others. Among other things, I've learned that if you let uncertainty and instability run wild, they will simply consume you. Through her illness, my mother has become one of my greatest teachers in life...
Not to mention she is still the person who knows exactly how to get on my last nerve. 😁

I feel something very similar. From the moment my mother fell ill, I have been very minimally involved in her actual medical treatment. The only things I am truly caught up in are the diagnosis and making sure we buy her what she needs. Since I am living 186 miles so far away, I find myself feeling more miserable with every visit; I go in with this fixed idea that she is doing fine, fighting and strong, which is how she sounds over the phone. Then I head home, and with every return, I am terrified by how difficult life is both with her and because of her. Of course, I can't help but think I'm being selfish because I'm away at college and distanced from it all—but that is what she, my father, and my brother want. Perhaps it's better this way... they are protecting me, keeping me from drowning in negative thoughts...

What I fear most is this: four days ago, Mom received her sixth and final round of chemotherapy. Just two months ago, she looked and felt incredibly well. Today, the issues are already visible—she is scattered, hard to talk to, and sometimes I get the impression she loses her way, forgetting what she is doing or when she did it. The only obvious physical side effects of the chemo have been the total loss of body hair, an exhausted appearance, facial redness, and moments where she suddenly seems to turn pale, her eyes go vacant, and she starts sweating. I don't know if it's all just because she's reached her limit, or if it's the unsettling reality that her sister also has ovarian cancer. They haven't officially diagnosed her yet—just high markers and fluid buildup near the ovary—but it has been the intense topic of conversation for the last two or three weeks...

But what I can say is this: this life situation we've found ourselves in, this struggle, will leave a positive mark forever. I have learned to appreciate myself and my own capabilities more, to listen to the needs of my loved ones, and to lean into my family—to help as much as I possibly can... it has added a significant grain of maturity to my life...

We keep moving forward... taking big steps. Everyone... kisses
brightgardener8 brightgardener8 Active Member
157 messages
joined Jul 2007
#1403 ·
I am so incredibly sorry for your loss.
Angela Wright Angela Wright RegularOP
731 messages
joined Feb 2007
#1404 ·
Nancy Hernandez43 said:Then I head home, and every single time I walk through that door, I get hit by this wave of terror realizing just how heavy life feels with her in it. Of course, I immediately start judging myself, thinking I'm being selfish because I'm away at college and distant from everything— but that’s what she, my dad, and my brother want for me. Maybe it’s actually better this way... they're shielding me from the world so I don't spiral into negative thoughts.

So, what do *you* actually want? And I mean, give me the honest truth.

It’s completely logical and natural for them to want to protect you, but here’s the thing: even with that protection—which is really nothing more than an illusion—they are effectively keeping you from being by her side. Maybe you need that closeness, but she probably needs it too. She likely feels selfish herself because she feels like she's robbing you of a future if you end up missing a lecture or, heaven forbid, losing a year of college (that's just how mothers are, it's in their DNA). Are you feeling 186 miles any fewer of those negative thoughts deep down?
Speaking from my own gut conviction and experience, I am telling you: college can be made up, but time spent with your mother cannot.
I can sense the fragmentation and the constant internal tug-of-war in your posts. You are an adult, a mature and responsible person, so make the decision for yourself.

The hard truth is that none of us are truly invulnerable, no matter how much we try to build walls around ourselves or our loved ones. My parents, my grandparents, my entire extended family treated me like I was made of glass my whole life. I lived in this little glass bell jar, a perfect little bubble that felt like my one constant reality, until the day my mom ended up in the hospital with a diagnosis so horrific it shattered that shell instantly. For six months, I was a complete mental wreck. I honestly can't pinpoint the exact second I finally snapped out of it and accepted that this happens to everyone, not just us—that my entire previous existence had been a manufactured reality, and the moment I finally decided to
take the bull by the horns.
Don't ever let anyone strip away your freedom, no matter how noble their intentions might seem. Freedom is the only way we can actually become who we are meant to be and fully realize our potential.
A Anonymous Veteran
3.6K messages
joined May 2005
#1405 ·
@mistyranger48: My heart goes out to you. Since it’s been a few days now, I assume your husband's service has passed and you're starting to process everything. I truly hope you find strength during this time and have plenty of support to lean on 😉

My mom was just diagnosed with esophageal cancer today. We aren't even sure if surgery is an option yet because the tumor is quite large...

I honestly don't even know how to feel right now. I'm just lost, terrified of what's coming, and I'm praying so hard that my mom gets at least another year or two 🙄

On another note, I stumbled across something online about a Dr. Sipati from Santa Barbara. According to his website, he specializes in bioenergy and other alternative methods for treating serious illnesses like cancer and epilepsy
Here is his website:

So, I wanted to get your take—is this stuff actually worth looking into, or is it just a quick way for someone to make a buck? 😕 Has anyone here ever worked with him?
crimsonmason44 crimsonmason44 Member
24 messages
joined Sep 2007
#1406 ·
My parents, my grandparents, and the whole extended family basically treated me like I was made of glass my entire life. I lived in this little bubble, an idealized tiny world that I thought was my permanent reality, until the day my mom ended up in the hospital with a horrific diagnosis. That’s when the shell finally cracked. For six months, I was a complete mental wreck. I honestly can't pinpoint the exact moment I finally snapped out of it and realized that this stuff happens to everyone—not just us—and that everything before was just a manufactured illusion. That was when I finally decided to step up and deal with reality head-on.

Dear Ivanica, I know exactly what you mean... except I'm currently stuck in those first six months you described. I spent 27 years living in this perfect little fantasy world, and then, overnight, everything changed because of my dad's illness. Those first few months were absolutely terrifying, and honestly, I'm not doing much better now. I feel like nobody gets it, not even my boyfriend... I don't know what's happening inside me, but I can feel myself slowly coming to terms with the situation, even though I'm still fighting it. Right now, all I want is to stay home with my dad and the rest of the family. I want to soak up every single second with him because his diagnosis is devastating (they gave him 3-6 months), though I refuse to believe it! I have zero desire to go out anymore, and most of my "friends" barely even check in on me. It feels like they just don't get it, and it's hard.
Sometimes I have nobody to vent to, so this forum and prayer are what keep me going. 🙂 Even though we're strangers, I feel this deep connection to all of you. Hang in there, everyone. 👍
A Anonymous Veteran
3.6K messages
joined May 2005
#1407 ·
Dear Angela Wright, I know exactly what you’re going through... Honestly, I’m right in those first six months you mentioned. Up until this summer, I was living in this perfect little bubble for 27 years, and then everything just flipped upside down overnight because of my dad's illness. Those first few months were absolutely terrifying, and even now, I don't feel much better. I feel like nobody actually gets it—not even my boyfriend. I can't quite put my finger on what's happening inside me, but I feel like I'm slowly starting to accept the reality of it all, even though I'm still fighting it every single day. Right now, all I want is to be at home with my dad and the rest of the family. I want to soak up every single second with him because his diagnosis is devastating (they gave him 3 to 6 months), but I just refuse to believe it! I have zero desire to go out anymore, and most of my "friends" barely check in on me. It feels like they don't understand, and it's really hard.
Sometimes I just don't have anyone to vent to, which is why this forum and prayer give me so much strength. Even though we haven't met, I feel this deep connection with all of you. Hang in there, everyone.

I completely get you; I'm in the exact same boat. It hits even harder for me because I'm adopted, so my mom and I had this incredibly special bond. We had our share of rough patches, mostly due to alcohol issues, but I always found it in my heart to forgive her and move past it. Like I said, she was just diagnosed with esophageal cancer today, and I have no idea what's going to happen—if she'll even be able to have surgery, how she'll cope, or how much time she has left... It’s such a massive shock because just over a month ago, she was perfectly healthy.

It breaks my heart to see her in the hospital, hooked up to that IV needle and all that gear. She can't eat normally, and watching her struggle through those tiny bites she forces herself to take is just agonizing.🙂

Until now, I think I just took everything for granted—our relationship, everything. But now, it feels like someone just dumped a bucket of ice water over my head.🙄
Harold Richardson4 Harold Richardson4 Member
16 messages
joined Nov 2007
#1408 ·
mistyranger4 said:My dear friends!
First and foremost, I wanted to extend my deepest gratitude to all of you for the advice that helped both me and my husband navigate our lives. Sadly, he passed away on October 17th. Once again, I thank you all from the bottom of my heart, and I pray that God grants you immense strength, and provides your ailing loved ones with much relief from their pain!

My sincere condolences... stay strong.
Harold Richardson4 Harold Richardson4 Member
16 messages
joined Nov 2007
#1409 ·
Nancy Hernandez43 said:But what I can say is this—this life situation we’ve been forced into, this struggle, it will leave a lasting positive mark. It taught me to value myself and my own capabilities more deeply, to truly listen to the needs of my loved ones, and to turn back toward family to help however possible. It added a significant grain of maturity to my soul.

We move forward... taking giant strides! Everyone... kisses

To be honest, I don't know. Day and night, I find myself spiraling through thoughts of it all. I went through this exact battle twice before—eight years ago with my father, and now with my mother. Both times, I lost. Back then, I still had my mother around, so I managed to cope. Now, I have a husband and a child, but my mother is gone, and the weight is unbearable. I honestly can't tell you what lessons I was supposed to learn or what I gained from these struggles. I didn't gain anything. Instead, I became an entirely different person. I used to be incredibly cheerful, bright, happy, and driven; now, I am profoundly sad, anxious, withdrawn, and disillusioned by friends, relatives, and people in general. I walk with my head down, which was never my way. And yes, I gained a nervous breakdown, gastritis, CIN 1, E. coli, insomnia, a dependency on tranquilizers, and a constant, gnawing fear for the health of my children and my husband. In just two months, my mother will be gone. Not a single hour passes where I don't dwell on everything—on the sheer intensity of her suffering. And there is one thought I simply cannot shake: wondering what her final thoughts were, knowing she remained conscious until her very last morning. All of this is going to consume me. Truly, I gained nothing....
brightgardener8 brightgardener8 Active Member
157 messages
joined Jul 2007
#1410 ·
Linda Campbell said:Honestly, I have no clue. I spend every waking hour, day and night, just spiraling over all of this. I fought this exact same battle twice—once eight years ago with my dad, and now with my mom. Both times, I lost. Back then, I still had my mom around to lean on, so I managed to pull through. But now? I’ve got a husband and a kid, but without my mom here, everything feels impossible. I don't know what the point of these struggles was or what I was supposed to learn from them. Because honestly? I didn't gain anything. I just became a completely different person. I used to be this incredibly happy, upbeat, energetic, and driven person. Now, I’m just deeply sad, anxious, withdrawn, and totally disillusioned with friends, family, and everyone in between. I walk around with my head down, which just wasn't ever my style. And yeah, I "gained" a nervous breakdown, gastritis, CIN 1, E. coli, insomnia, a prescription for Xanax, and this constant, paralyzing fear for the health of my kids and my husband... In two months, my mom will have been gone for a full two months, and there isn't a single hour that goes by where I'm not obsessing over it all—especially how much she suffered. There's this one thing I just can't shake: I can't stop wondering what her final thoughts were, since she was conscious until her very last morning... It's going to eat me alive. Truly, I gained absolutely nothing from this.

I was actually wondering how you were holding up—have you even had a chance to catch your breath physically after losing your mom? I'm sorry that the answer isn't more positive. Some people claim they find a "silver lining" in these horrific situations, but for some people—and honestly, for me too—that just doesn't happen. I just want you to pull through, however long it takes, and I hope you can eventually find a way to focus on your own health.
Angela Wright Angela Wright RegularOP
731 messages
joined Feb 2007
#1411 ·
Linda Campbell said:I really didn't get anything out of it....

Oh, you absolutely did. You received far more than you can even fathom right now; you're just still stuck in the grieving process. Grieving is its own journey—you have to let it play out, let it unfold like a movie until you finally accept it. Honestly, I can almost guarantee what your mother’s final thoughts were... they were likely filled with gratitude and peace because she raised such an incredible daughter. She left nothing unresolved. She was fully aware of her illness and her condition, and I'm certain she faced her mortality head-on from the very beginning. She met it and made her peace with it probably a long time ago. In that position, there isn't much else to do besides accept reality, tally up the milestones of life, and reflect on the good things she accomplished and left behind. Linda Campbell, have you considered that this isn't actually about you, but about your mom? Even so, YOU gained so much as a reward for your devotion. Just give it time for everything to settle; it's too early to reach any final conclusions. Your journey is just starting. You have children now who need you to provide at least everything your mother provided for you, because the real question is: what will flash through your mind when your own time comes? You need to start answering that question today. Think about how you would feel right now if you hadn't given your mother all you did, but had instead left her to fend for herself with your brothers... do you think you'd feel like you "got" anything then? Probably nothing but massive unrest, guilt, pain, and sorrow. So, don't tell me you got nothing, because you have a clear conscience and a peaceful heart, and beautiful things are born from peace.

A nervous breakdown, gastritis, CIN 1, E. coli, insomnia, tranquilizers, constant anxiety over the health of your kids and husband—and then, inevitably, your mother’s illness and death hit you too. The difference lies in how people learn to handle the chaos. Your health took a hit because of the sheer stress and the intense battle you fought—the selfless sacrifices you made for your mother. First and foremost, give your body and your soul the time they need to recover. Don't pressure yourself with endless analysis; you already made your decision a long time ago to stand by your mother and fight alongside her. That chapter is closed. Now, it's time to be there for yourself and fight for yourself, just like you once told me you would. The crisis is behind you. You've learned and confirmed the hard way that nothing lasts forever and that life is a gamble. Because of this, you'll learn how to carry those fears, because whether we worry or not, things happen regardless.
electricgardener14 electricgardener14 Newcomer
9 messages
joined Jul 2007
#1412 ·
Greetings to everyone,
I haven’t posted in quite some time—mostly because I thought I was simply counting down my husband's final days.
His condition is dire; he barely eats and spends his time lying there, completely immobile. That metastasis on his shoulder has swollen into this massive, protruding lump. He endures such excruciating pain, yet when they give him Dolantin, he just drifts into a stupor, and when he finally opens his eyes, he’s merely babbling nonsense. On Sunday, his doctor administered Zomet, and today marks his fourth round of chemotherapy. I feel my strength—and his faith—slowly draining away. It all feels like we are just prolonging the agony, and I honestly don't know how to fight for each new day when those days are spent either in sheer torment or sleeping in a cramped little hospital room. I haven't even brought the children to see him lately; he doesn't want them to witness him in this much pain. I actually pleaded with his oncologist to consider radiation for that shoulder, but he responded with such chilling indifference—suggesting instead that we simply increase the dosage of his Durogesic patch, claiming radiation isn't indicated. Is there a physician present here who can explain from a clinical perspective why radiation wouldn't be indicated for a tumor that looks as though it might burst right through his skin? And what exactly does "palliative radiation" entail in a case like this? Have they simply given up on him? This is a waking nightmare—one I don't even dare wish to end, because the end means only one thing: I will be left without the man I love. electricgardener14
Benjamin Grant6 Benjamin Grant6 Member
36 messages
joined Aug 2008
#1413 ·
Angela Wright said:But what is it you actually want? Answer honestly.

It is entirely logical, even natural, that they want to protect you; however, by providing this protection—which is little more than an illusion—they are simultaneously preventing you from being by her side. Perhaps you need that proximity, but she surely does too, though she likely feels selfish about it, fearing she is robbing you of a future if you happen to miss a lecture or, heaven forbid, lose a year of college... mothers are all like that, by their very nature. Do you have 186 miles fewer negative thoughts lingering within you?
Personally, speaking from my own deep convictions and experience, I maintain that college can be made up, but time spent with one's mother cannot.
I sense a certain fragmentation and constant internal conflict in your posts. You are an adult, a mature and responsible individual, so make the decision for yourself.

Regrettably, we are all vulnerable, no matter how much we strive to shield ourselves or our loved ones. My parents, grandparents, and my entire extended family carried me like a drop of water on a palm my whole life. I lived as if inside a glass bell, in an ideal little world that had become my false constant, until the day my mother ended up in the hospital with such a horrific diagnosis, and that eggshell shattered. For six months, I was completely mentally unraveled; I don't truly know at which specific moment I finally sobered up and accepted the fact that this happens to everyone, not just us, and that everything before was merely a manufactured reality, nor when I truly "took the bull by the horns."

Never allow anyone to deny you your freedom for any reason whatsoever, even if those reasons are noble, because it is only through freedom that we can truly realize ourselves and build our lives to completion.


Angela—my goodness, what an exhaustive comment! If I possessed even a fraction of your strength, I don't know where I would end up... every piece of advice you give manages to pull me out of my current state of distraction.

Honestly, what would I want? I would love to have the freedom to participate in everything, but since I am the youngest, it is forbidden to me. At least for now, and I must accept that. Somehow, as much as I try to be certain, I believe that if it becomes necessary, she will tell me when she needs me by her side. Otherwise, we talk about everything daily, and I try to help her at least by ensuring she feels we are all right there with her.

Of course, everything is secondary to our own well-being and that of our closest kin... I've put my college situation into a position of flexibility, so I can leave Washington, D.C. at any moment if the need arises!

Thank you! I think this comment of yours has pulled me back toward reality just a little bit more (though you've already been doing that quite successfully)... kisses
Angela Wright Angela Wright RegularOP
731 messages
joined Feb 2007
#1414 ·
electricgardener14 said:Hi everyone,
I haven't posted in a while because I thought I was just counting down my husband's final days.
He’s in really bad shape—barely eating, just lying there unable to move. That metastasis on his shoulder has swollen into this massive lump. He's in constant, intense pain; they give him Dolantin, but then he just sleeps through everything, and when he does wake up, he's talking nonsense. On Sunday, the doctor gave him Zomet, and today he's undergoing his fourth round of chemo. I feel like my strength and my faith are slowly draining away, just like his. It all feels like we're just prolonging the agony, and I honestly don't know how to fight for each new day when those days are spent either in excruciating pain or unconscious in a tiny hospital room. I don't even bring the kids to see him anymore because he doesn't want them to witness him suffering like this. I begged his oncologist to try radiation on that shoulder, but he just gave me this cold, indifferent response, saying it's better to just increase the Durogesic patch because radiation isn't indicated. Is there a doctor here who can explain from a medical standpoint why radiation wouldn't be indicated for a tumor that looks like it's about to burst out of his shoulder? And what does "palliative radiation" actually mean in this context? Have they just given up on him? This is a nightmare. I can't even bring myself to wish for the end, because the end means only one thing: I lose the man I love. Electricgardener14

Electricgardener14, what you're going through is absolutely devastating.😢 Unfortunately, the end is near, just as you've realized. In my opinion, that radiation you're hoping for would likely cause him more suffering than relief. That tumor has simply spread too far. At this stage, the only things that can offer palliative help are the Durogesic to manage the pain and your presence by his side. I can't even begin to imagine the weight on your shoulders, but I will tell you that a relative of mine went through an identical situation. She eventually found a way to move forward with her life, and she is happy now within the new reality she has to live in. She told me that when she first heard the diagnosis—she's a doctor, so she knew the most likely outcome immediately—she felt like her own life was over. She had two young daughters at the time whom she managed to raise and get on their feet. Having the support of her parents and the rest of the family meant everything to her. When we are all together, she finds her greatest peace. Surround yourself with your loved ones, and pray to God for the strength to accept whatever comes and to get through this as best as you can.
My thoughts and prayers are with you; I trust that God will grant you His mercy during these hardest moments.🙂
Harold Richardson4 Harold Richardson4 Member
16 messages
joined Nov 2007
#1415 ·
I am deeply grateful for the selfless support I constantly seek and find within these pages.
Yes, it finally hit me—what I’ve actually gained while battling these heavy, vicious illnesses. It is a blunt realization that this damn life is actually quite absurdly simple; we spend far too much time wasting our lives on trivialities, like petty arguments, insults, envy, or obsessing over material possessions.
One day, while looking through my mother's pantry, I found bags filled with onions, potatoes, ham, and pickles... In the oven, I found an unwashed baking pan she had used for meat, which the poor woman hadn't even had the chance to clean because she was suddenly rushed to the hospital—a hospital from which she never returned. She had even hired a contractor to fix some grooves in the house. She was planning a getaway to a wellness retreat in Palm Springs that September...
Hug your loved ones tight. Tell them how much they mean to you. Call those old friends; spend a beautiful afternoon with the people you cherish. Don't scream or vent your frustrations at your children; make the most of the time you have. As for money, if you desperately need it, it somehow finds its way to you. Every problem eventually finds a resolution. Protect your nerves and your health. Go to a dance, a movie, or the theater. Find joy in the small things, like the first snowfall or a perfectly sunny day.
Do you see it, everyone? Do you see those carrying these cursed, heavy burdens? Do you see that even after my mother passed, I still read every single one of these posts every day? I am trying to help, trying to comfort myself, trying to draw strength from all of you, and still trying to offer empathy to others... I know many other forum members whose loved ones recovered do the exact same thing; they simply continue to read and follow along, checking in occasionally (sending my best to feralwolf24 and her husband—I am so glad you both are doing okay). I truly don't know what I would do without you and these sites; they are genuinely essential. Given everything we have endured and continue to face, I believe we could all benefit from some professional medical guidance.
(In the USA, you have a legal right to treatment for every damn thing, including PTSD). Yet, I don't even have the right to five days of bereavement leave for the death of a parent.
Anyway, I have better days than this.
Angela Wright Angela Wright RegularOP
731 messages
joined Feb 2007
#1416 ·
Nancy Hernandez43 said:Angela Wright - seriously, major props for that exhaustive breakdown! If I had half your strength, I don't know where I'd stop. Every single piece of advice you give manages to pull me right out of my own scattered head.

To be honest, what would I even want? I wish I had the freedom to jump in and help with everything, but since I'm the youngest, it’s off-limits for now. At least for this moment, and I have to just accept that. Deep down, despite how much I struggle, I’m convinced that if things get heavy, they’ll let me know exactly when I need to step up and be by her side. Until then, we talk about everything every single day; I try to help just by making sure she feels like we’re all standing right there with her.

At the end of the day, nothing matters more than ourselves and our inner circle. I’ve actually set up my remote work situation to be totally flexible, so I can drop everything and leave Washington, D.C. whenever the situation demands it.

Thanks! Honestly, I think your comment just gave me the reality check I needed—even though you probably find me a bit tiresome by now! Kisses.

Don't mention it😉. Fight for yourself and never forget that strength lives inside us; we just don't feel it until it suddenly starts rushing through us like a flood.🙂
Harold Richardson4 Harold Richardson4 Member
16 messages
joined Nov 2007
#1417 ·
electricgardener14 said:Hello everyone,
I haven’t posted for a while because I honestly thought I was just counting down the final days with my husband.
His condition is dire; he barely eats and remains bedridden. That metastasis on his shoulder has swollen into this massive, painful lump. He endures excruciating pain, and when they administer Dolantin, he simply drifts into a stupor, mumbling nonsense whenever he manages to open his eyes. On Sunday, his doctor administered Zomet, and today he undergoes his fourth round of chemotherapy. My strength and my faith are both eroding, much like his. It all feels like we are merely prolonging the agony, and I find myself struggling to fight for each new day when those days consist either of intense suffering or him sleeping fitfully in a cramped hospital room. I’ve even stopped bringing the children to see him because he can't bear the thought of them witnessing his pain. I pleaded with his oncologist to consider radiation for that shoulder, but he responded with total indifference, suggesting we simply increase the dosage of his Durogesic patch instead, claiming radiation isn't indicated. Is there a doctor here who can explain from a clinical perspective why radiation wouldn't be indicated for a tumor that looks like it might burst through the skin? And what does "palliative radiation" actually entail in this context? Have they simply given up on him? This is a waking nightmare—one I don't even dare wish to reach its conclusion, because the end means only one thing: I will be left without the man I love. Electricgardener14

I am at a loss for how to comfort you; it seems you are navigating the absolute worst phase of this ordeal. You are exhausted—mentally, physically, and financially. You're weary of the constant pretense and the lies. When I used to visit my mother, my own stomach would knot up from the stress. What hurt most was the charade—pretending everything was fine. But perhaps it was easier for her to see me acting as if things were okay. This will pass somehow; you just have to keep moving forward.
I can only hope that God grants you enough strength to endure what you must. Do not be afraid, is truly all I can say. I also lost a woman I loved dearly. It is incredibly difficult, believe me, but life has a way of finding its equilibrium eventually. You have your little ones, and they need you right now as they watch over you. Stay strong; you have to be the anchor for everyone right now. Hang in there.
Angela Wright Angela Wright RegularOP
731 messages
joined Feb 2007
#1418 ·
Linda Campbell said:I have better days than this, honestly.

😉 Tomorrow is a fresh start and a better day🙂. Why bother dealing with those idiots at work when you're clearly tougher than all of them combined? Honestly, I wouldn't be surprised if you just finished up what you're doing and launched your own company to become a total powerhouse. Anyone who has successfully navigated the nightmare of the American healthcare system—regardless of how things turned out medically—is more than capable of crushing any administrative hurdle or closing a major business deal...👍
Harold Richardson4 Harold Richardson4 Member
16 messages
joined Nov 2007
#1419 ·
Angela Wright said:😉 Tomorrow is a fresh start and a better day🙂. Who even cares about those people at work when you have more grit than all of them combined? I wouldn't be surprised if you didn't just finish this chapter, but opened your own Company and became incredibly successful. Anyone who has successfully navigated the American healthcare system—regardless of how the illness turned out—possesses the mental toughness to overcome any administrative hurdle or close any major business deal...👍

That’s for certain...
Thank you for the strength you provide us, you powerhouse.
Benjamin Grant6 Benjamin Grant6 Member
36 messages
joined Aug 2008
#1420 ·
Linda Campbell said:regarding the selfless support I always seek and find on these pages.
Yes, it has made me realize what I have gained through this fight against these heavy, vicious illnesses—a blunt realization that life is essentially so incredibly stupid and simple, that we spend so much of our time on trivialities; things like arguments, insults, envy, or obsessing over material possessions...
One day, while visiting my mother's pantry, I found bags full of onions, potatoes, ham, pickles... and in the oven, I found an unwashed tray she had used for roasting meat, which the poor woman hadn't had the chance to clean because she was suddenly rushed to the hospital, from which she never returned. She had even called a contractor to redo her garden grooves. She was planning a wellness retreat in Santa Barbara this September...
Hug your loved ones close, tell them how much they mean to you, call those old friends, and spend a beautiful afternoon with those dearest to your heart. Don't shout or vent your rage at your children; make the most of the time you have. As for money, when you truly need it, it somehow finds its way to you. All problems eventually resolve themselves. Protect your nerves and your health. Go to a dance, a movie, or the theater. Find joy in the small things, like the first snowfall or a sunny day.
Do you see, everyone, those who carry these cursed, heavy diseases? Do you see that even after my mother's passing, I read all these posts every single day, trying to help, trying to comfort myself, seeking strength through you, still attempting to assist others, and empathizing with you... And I know many other forum members whose loved ones have recovered do the same; they simply continue to read and follow along, occasionally checking in (sending love to feralwolf24 and her husband—I am so glad you both are okay). I truly don't know what I would do without you and these pages; they are genuinely necessary. Given everything we have endured and are enduring, I believe we could all benefit from some professional psychological assistance...
(In the United States, you have the right to treatment for every single thing, including PTSD). Yet, I don't even have the right to five days of leave for the death of a parent.
Otherwise, I am having better days.

Your post moved me to tears. Life is such a bizarre thing—we march forward so briskly until something finally breaks us. It is difficult to find solace and peace, but those of us walking this path are the only ones who truly understand. Sometimes I catch myself arguing with my mother, and in that moment, I snap back to reality and remember that I will regret it if I don't hug her immediately and ask for her forgiveness. I agree that we all need professional medical support. Perhaps it is time for us all to speak up and start a petition!

The American system does nothing to protect those fighting cancer. My father had to return to work after only three months of medical leave. Had he not, he would have been fired, and financially, we simply couldn't have survived that. No one needs to experience the upheaval of going through everything alongside a sick loved one to understand the devastation of losing someone close...

I empathize with you, and you must continue to live by the motto: "Otherwise, I am having better days." Hang in there, sending love.

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