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Schizophrenia - General Discussion

Started by briskgull27 · · 👁 414 views · 7.5K replies

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fadedlynx96 fadedlynx96 Active Member
72 messages
joined Jan 2013
#3181 ·
wiredmason56 said:So, I found out my grandma's diagnosis. She had manic-depressive psychosis—basically bipolar disorder. When she lived on her own, my dad remembers her having more frequent manic episodes. Once she sold her house and moved in with us, she started slipping into depressions more often. I remember one summer, I was maybe in sixth grade, we came back from vacation at the beach, and she had been home alone. Of course, she wasn't taking her meds, so she seemed totally fine, but she pulled me aside and whispered how terrified she was because she felt like electricity was shaking the living room. 🤷Then she ended up spending a few weeks at a psychiatric facility in Portland, and everything went back to normal for a bit. She was getting monthly injections, though I'm not sure which medication it was. My mom told me she used to work as hard as a young woman when she was a nurse, but then she got sick. She’d start claiming my grandpa was a fraud and things like that, but otherwise, she was really sweet and calm whenever she was on her treatment.

Personally, none of these diagnoses—psychosis, schizophrenia, or bipolar—are particularly comforting, especially since I’ve personally dealt with all three, most recently the bipolar.

With bipolar disorder, the genetic component is significantly more pronounced than it is with schizophrenia or general psychosis. In plain terms, there is a distinct possibility that other family members are currently struggling or will eventually face similar issues. If you haven't already, you should certainly mention this history to your psychiatrist.

Looking back at my own experience, I began researching potential hereditary links immediately following my first hospitalization. Since the internet wasn't what it is today, I spent hours in various public libraries, eventually concluding that the genetic predisposition was substantial enough that my brother and sister were in serious jeopardy. They weren't just at risk; they were in grave danger, based entirely on medical records that anyone with the ability to read them could have analyzed.

Back then, however, hardly anyone took me seriously, and for lack of a better term, they mostly viewed me as someone who had lost their grip on reality.

A few years later, my sister took her own life. The note she left behind detailed the exact same symptoms I had experienced. She died at the same age I was when I was first admitted to the hospital.
Noah Garcia4 Noah Garcia4 Regular
316 messages
joined Aug 2008
#3182 ·
Eric Mitchell55 said:Could someone help me make sense of the difference between schizophrenia and schizoaffective disorder? I tried looking it up online, but it’s all a bit blurry and nothing really clicked.
If anyone could just break it down for me in plain, simple terms, I’d really appreciate it. 😁

Think of it this way: if there is still a functional connection between the individual and the reality of the world around them despite mental health struggles, you're looking at neurosis; once that tether to reality snaps, you've entered the realm of psychosis.

In short, psychoses generally split into two camps:
--->schizophrenia (where thought processes, behavior, and hallucinations are the primary drivers) and
--->manic-depressive disorders (where cognition remains relatively intact, but mood swings take center stage).

The prognosis for bipolar disorder tends to be significantly more optimistic than for schizophrenia, mainly because the core issue lies in mood regulation rather than a fundamental breakdown of thought itself.

Schizoaffective disorder is essentially the middle ground, carrying symptoms from both schizophrenia and manic depression (bipolar disorder). It sounds like the worst of both worlds, which isn't surprising, and naturally, every case plays out differently.

However, just as the outlook for bipolar disorder is better than for schizophrenia,
the prognosis for schizoaffective disorder sits right in the middle—better than schizophrenia, but not quite as manageable as pure bipolar disorder.

To put it bluntly, because schizoaffective disorder includes those bipolar elements, the diagnosis is often viewed as slightly less severe than "pure" schizophrenia.

Personally, I tend to view it through a lens where a person with schizophrenia experiences shifts in personality, whereas someone with schizoaffective disorder experiences shifts in mood.

Go ahead and tear my logic apart if I'm wrong. 😬
Larry Lewis Larry Lewis Regular
819 messages
joined Dec 2010
#3183 ·
Does a schizophrenic personality disorder even change anything? I mean, where on earth did you read that?
Noah Garcia4 Noah Garcia4 Regular
316 messages
joined Aug 2008
#3184 ·
Look, I realize we’re stepping into the territory of those old-school tropes about split personalities, which are mostly just Hollywood nonsense, but the thought crossed my mind so I figured I’d toss it out there. In my view, what people usually call "split personalities" is such a specific, isolated diagnosis that it shouldn't be used as a catch-all blanket for the entire spectrum of schizophrenia. It felt like a distinction worth making.
Eric Mitchell55 Eric Mitchell55 Active Member
236 messages
joined Jan 2013
#3185 ·
Sometimes I get the feeling they didn't really lay all the cards on the table when they were explaining things to me 🤣

Honestly, though, I’ve decided to stop stressing over my diagnosis, whatever it turns out to be.
I realized today that being "normal" isn't actually on my bucket list. I just want to reach a place where I can embrace who I am. Whether it’s paranoid schizophrenia or schizoaffective disorder... at the end of the day, it doesn't change my core self.

I have this connection to a parallel world, and whether people find that weird or not, I kind of feel like they're missing out on a pretty unique privilege...

It feels like if you don't fit the standard mold, society immediately slaps a "crazy" label on you.
I know plenty of people who are just as eccentric as I am; they just don't carry a label around everywhere they go.

🥳
Larry Lewis Larry Lewis Regular
819 messages
joined Dec 2010
#3186 ·
Schizophrenia... it’s one of those things where you can't live with it, yet somehow, you find you can't exist without it either—it becomes this strange, inescapable part of your very fabric.
Eric Mitchell55 Eric Mitchell55 Active Member
236 messages
joined Jan 2013
#3187 ·
Larry Lewis said:Schizophrenia... it’s one of those things where you can't live with it, yet somehow, you find you can't exist without it either—it becomes this strange, inescapable part of your very fabric.

Pretty much.

I finally stopped trying to ignore all that stuff—honestly, it didn't really help me anyway.
At some point, you just have to accept things as they are. ☕
William Evans10 William Evans10 Active Member
62 messages
joined Oct 2012
#3188 ·
Hi everyone....I wanted to check in to hear from you all and perhaps vent a little about my own struggles...how are you doing? Blured, I hope you're holding up okay? These seasonal viruses are absolutely killing me; my son and I have been stuck with nothing but tissues and congestion for two weeks straight...but honestly, that’s the least of my worries. Some of you might know, and some might not, but my mother-in-law suffers from schizoaffective disorder...

The issue is that she has been bedridden for months now, just staring at the wall; she has lost at least 20 pounds, I'm sure, and spends her time just smoking and drinking coffee...she doesn't even shower, and there is absolutely no drive left in her life... It isn't that she is sad, per se, it's just that she has no emotions left; total apathy has taken over. We take her to her psychiatrist regularly, and she stays on her medication consistently. My husband and I set up a room for her, so she is living with us now. Her concentration is incredibly poor; she often can't even hear what I'm saying to her because her mind is wandering somewhere else entirely—I have to repeat myself several times before she finally registers. I can't even leave cigarettes on the table, because she will just stare at them, completely uninterested in anything else. I have to supervise her constantly because she simply isn't capable of being independent. Her motor skills are also declining. She is tidy and clean, and she eats only because I am constantly hovering over her; when she sits at the table, she just sits in silence and wants to go back to bed after two minutes. Unfortunately, none of the therapies seem to be working; they only keep things under control for a tiny window of time, and lately, I'm not even sure if they are doing that anymore. Her condition isn't plateauing, unfortunately, it is progressing. She is losing her grip on reality. She has no interest in people or anything else... she doesn't want to socialize, she doesn't want to go out... she just wants to lie in bed. This state took a sudden, sharp turn for the worse about two years ago...it was such a massive shock to our family. She hasn't experienced hallucinations yet, but I am terrified that...that they will come if this continues. The doctor says that with this specific medication...well, he says you can never truly know with these kinds of illnesses. I feel so angry and so sad, because I don't know how to help her, especially since there is so little information actually available to research regarding this specific illness...And I won't even begin to mention how much this is impacting my own mental state....it's a coma. 😢 People, how can I encourage her to start living even just a little bit? I'm not asking her to chat with neighbors or acquaintances...I just want her to talk to me. Is it that she doesn't want my help, or is she simply unable to? 😢 Anyway, she's had schizoaffective disorder since she was 25, but it has deteriorated so significantly over the last two years that they will likely change her diagnosis to schizophrenia...Forgive me for such a long post...I just really needed to vent...and I wanted to ask if anyone has any advice on how to make things even a little easier for her, or how we can all cope with this together? Is there any way to spark some movement in her before she drifts away completely?😢

Thank you....Warm wishes to everyone 👋
David Vaughn75 David Vaughn75 Regular
626 messages
joined Sep 2015
#3189 ·
William Evans10 said:Hi everyone....I wanted to check in to hear from you all and perhaps vent a little about my own struggles...how are you doing? Blured, I hope you're holding up okay? These seasonal viruses are absolutely killing me; my son and I have been stuck with nothing but tissues and congestion for two weeks straight...but honestly, that’s the least of my worries. Some of you might know, and some might not, but my mother-in-law suffers from schizoaffective disorder...

The issue is that she has been bedridden for months now, just staring at the wall; she has lost at least 20 pounds, I'm sure, and spends her time just smoking and drinking coffee...she doesn't even shower, and there is absolutely no drive left in her life... It isn't that she is sad, per se, it's just that she has no emotions left; total apathy has taken over. We take her to her psychiatrist regularly, and she stays on her medication consistently. My husband and I set up a room for her, so she is living with us now. Her concentration is incredibly poor; she often can't even hear what I'm saying to her because her mind is wandering somewhere else entirely—I have to repeat myself several times before she finally registers. I can't even leave cigarettes on the table, because she will just stare at them, completely uninterested in anything else. I have to supervise her constantly because she simply isn't capable of being independent. Her motor skills are also declining. She is tidy and clean, and she eats only because I am constantly hovering over her; when she sits at the table, she just sits in silence and wants to go back to bed after two minutes. Unfortunately, none of the therapies seem to be working; they only keep things under control for a tiny window of time, and lately, I'm not even sure if they are doing that anymore. Her condition isn't plateauing, unfortunately, it is progressing. She is losing her grip on reality. She has no interest in people or anything else... she doesn't want to socialize, she doesn't want to go out... she just wants to lie in bed. This state took a sudden, sharp turn for the worse about two years ago...it was such a massive shock to our family. She hasn't experienced hallucinations yet, but I am terrified that...that they will come if this continues. The doctor says that with this specific medication...well, he says you can never truly know with these kinds of illnesses. I feel so angry and so sad, because I don't know how to help her, especially since there is so little information actually available to research regarding this specific illness...And I won't even begin to mention how much this is impacting my own mental state....it's a coma. 😢 People, how can I encourage her to start living even just a little bit? I'm not asking her to chat with neighbors or acquaintances...I just want her to talk to me. Is it that she doesn't want my help, or is she simply unable to? 😢 Anyway, she's had schizoaffective disorder since she was 25, but it has deteriorated so significantly over the last two years that they will likely change her diagnosis to schizophrenia...Forgive me for such a long post...I just really needed to vent...and I wanted to ask if anyone has any advice on how to make things even a little easier for her, or how we can all cope with this together? Is there any way to spark some movement in her before she drifts away completely?😢

Thank you....Warm wishes to everyone 👋

Look, I’ve been a veteran of psychosis for a long time, so I’ll try to give you some perspective.

People going through psychotic episodes usually don't trust science, and they tend to view psychiatrists as total idiots who don't understand a damn thing. That’s where the real trouble starts. They don't see their doctor as someone trying to help; they see them as some malicious person out to get them. They think the meds are poison or that they're rotting their brains, which is obviously a complete misconception.

The question is, how do you explain logic to someone who isn't operating on logic right now? Honestly, I don't think talking sense into her is going to do much at this stage. In many cases, people dealing with psychosis lean heavily into religion (whether they're devout Christians, Muslims, or just big into alternative spirituality) because it provides a sense of purpose or meaning. You might want to try adjusting your approach to fit that vibe. Maybe have her talk to a priest or a spiritual leader—someone she feels a connection to. They often speak a language she can actually process better than the clinical jargon of science. The bottom line is that she needs to believe in *something*. Every brain, whether it's functioning normally or not, is searching for meaning—some kind of belief that makes life worth sticking around for.

Look, you really gotta wrap your head around the fact that getting better isn't some overnight miracle—it’s a long, grueling grind. It took me a solid six months just to stop feeling like a total wreck and actually start functioning like a normal human being again. And for the love of God, do NOT—I mean, seriously, do NOT—just stop taking your meds out of nowhere. In like 90% of cases, trying to go cold turkey ends with a one-way ticket back to the hospital.
Larry Lewis Larry Lewis Regular
819 messages
joined Dec 2010
#3190 ·
William Evans10, you’ve got to push her—really push her—to actually *do* things. Start small, maybe just get her through a shower, and then follow that up with a direct command to wash the dishes. You have to chip away at this, bit by bit, to drag her out of that bed and away from this aimless existence she’s leading. It might sound harsh—and believe me, I know how heavy that feels—but sometimes you have to raise your voice or even threaten to cut off her cigarettes if she doesn't show even a glimmer of willpower or, heaven forbid, a basic desire to participate in life. Look, I live with schizophrenia myself, so I understand the fog better than most; both you and she are going to find this incredibly difficult at first, but you can't let her slide. She is spiraling, and that behavior you described? It’s a downward slide you have to interrupt.
Wishing the best for both of you🙂
William Evans10 William Evans10 Active Member
62 messages
joined Oct 2012
#3191 ·
David Vaughn75 said:Look, I’ve been a veteran of psychosis for a long time, so I’ll try to give you some perspective.

People going through psychotic episodes usually don't trust science, and they tend to view psychiatrists as total idiots who don't understand a damn thing. That’s where the real trouble starts. They don't see their doctor as someone trying to help; they see them as some malicious person out to get them. They think the meds are poison or that they're rotting their brains, which is obviously a complete misconception.

The question is, how do you explain logic to someone who isn't operating on logic right now? Honestly, I don't think talking sense into her is going to do much at this stage. In many cases, people dealing with psychosis lean heavily into religion (whether they're devout Christians, Muslims, or just big into alternative spirituality) because it provides a sense of purpose or meaning. You might want to try adjusting your approach to fit that vibe. Maybe have her talk to a priest or a spiritual leader—someone she feels a connection to. They often speak a language she can actually process better than the clinical jargon of science. The bottom line is that she needs to believe in *something*. Every brain, whether it's functioning normally or not, is searching for meaning—some kind of belief that makes life worth sticking around for.

Look, you really gotta wrap your head around the fact that getting better isn't some overnight miracle—it’s a long, grueling grind. It took me a solid six months just to stop feeling like a total wreck and actually start functioning like a normal human being again. And for the love of God, do NOT—I mean, seriously, do NOT—just stop taking your meds out of nowhere. In like 90% of cases, trying to go cold turkey ends with a one-way ticket back to the hospital.

She’s terrified of her doctor... and she dreads going to see him. Her husband or I have to practically drag her there; it’s an absolute struggle just to get her out of bed. She used to go to church every Sunday, visiting places like Vatican City or making a trip to Lourdes at least once a year... now she won't even do that. I have to force her to get up and get dressed, and she just resists everything. Your idea is actually quite good—I’ll try talking to the priest to see if he can sit down and chat with her. Though, truth be told, she barely listens to anyone anyway, and then everything goes right back to how it was. We’ll try... I just hope it helps lift her spirits a little. For me, the timeline doesn't matter as much as the outcome. I just want all this effort to finally pay off. So far, it feels like we've just been tilting at windmills. Unfortunately, I've tried talking to her calmly and gently, but it doesn't work. She doesn't take me seriously at all. I've cried, I've pleaded, nothing works. I end up having to threaten her or constantly nag her, staying on top of her every second, because otherwise... she slips right back into old habits. She takes an antipsychotic and an antidepressant every single day; I have to hand them to her and stay right there until she swallows them. She used to hide them or lie and say she took them when she hadn't. Thank you so much from the bottom of my heart...

One more thing... do you happen to know what her legal rights and options are? Since she's employed, her job is being incredibly supportive and giving her as much leeway as possible... but she just can't do any more work. She spends more time on medical leave than she does actually working. We are currently gathering paperwork to apply for Social Security disability benefits... do you know anything about that process? How long does the wait usually last?

How are you holding up through all of this? How are you doing?
Sorry for being so informal... I hope you don't mind me using your first name... 🙂

PS. She isn't my daughter, she's my mother-in-law. 🙂
William Evans10 William Evans10 Active Member
62 messages
joined Oct 2012
#3192 ·
Larry Lewis said:William Evans10, you’ve got to push her—really push her—to actually *do* things. Start small, maybe just get her through a shower, and then follow that up with a direct command to wash the dishes. You have to chip away at this, bit by bit, to drag her out of that bed and away from this aimless existence she’s leading. It might sound harsh—and believe me, I know how heavy that feels—but sometimes you have to raise your voice or even threaten to cut off her cigarettes if she doesn't show even a glimmer of willpower or, heaven forbid, a basic desire to participate in life. Look, I live with schizophrenia myself, so I understand the fog better than most; both you and she are going to find this incredibly difficult at first, but you can't let her slide. She is spiraling, and that behavior you described? It’s a downward slide you have to interrupt.
Wishing the best for both of you🙂

That is exactly how we are operating now. Truly, I have tried every possible avenue. Pleas, long talks, crying, praying... everything under the sun. Nothing worked. Now, our dynamic has shifted to a point where I have to issue ultimatums, where she simply has to do what I say. She doesn't argue too much, though I can tell how much she's struggling. When she actually has a "good" moment, I try to reward her... It’s heartbreaking to witness and to participate in, because I should be able to just be her daughter. But instead, I find myself treating her like a small child...

It is all so heavy... No matter how one looks at it... it is incredibly difficult for us, the ones watching this unfold... those of us struggling and exhausting ourselves trying to do something for her. Especially for me. Since she is a woman and I am a woman... it hits me on such a deep level. I feel so much for her... and I am fighting to bring some semblance of normalcy back to her life. Yet, on the other hand, it feels as though help is beyond her reach. I'll snap at her, and she'll just look at me and say, "Okay, Lucy, I'll change... everything you're saying is true"... and then everything just slips right back to the way it was.

Thank you... We will find a way to endure this... I hope she does too. I just hope I can pull her out of this hell... Let her be ill, let her be clumsy, as long as she can just be present...

I hope you aren't upset that I've unloaded all of this on you...

How do you manage to cope with all of this?
David Vaughn75 David Vaughn75 Regular
626 messages
joined Sep 2015
#3193 ·
William Evans10 said:She’s terrified of her doctor... and she dreads going to see him. Her husband or I have to practically drag her there; it’s an absolute struggle just to get her out of bed. She used to go to church every Sunday, visiting places like Vatican City or making a trip to Lourdes at least once a year... now she won't even do that. I have to force her to get up and get dressed, and she just resists everything. Your idea is actually quite good—I’ll try talking to the priest to see if he can sit down and chat with her. Though, truth be told, she barely listens to anyone anyway, and then everything goes right back to how it was. We’ll try... I just hope it helps lift her spirits a little. For me, the timeline doesn't matter as much as the outcome. I just want all this effort to finally pay off. So far, it feels like we've just been tilting at windmills. Unfortunately, I've tried talking to her calmly and gently, but it doesn't work. She doesn't take me seriously at all. I've cried, I've pleaded, nothing works. I end up having to threaten her or constantly nag her, staying on top of her every second, because otherwise... she slips right back into old habits. She takes an antipsychotic and an antidepressant every single day; I have to hand them to her and stay right there until she swallows them. She used to hide them or lie and say she took them when she hadn't. Thank you so much from the bottom of my heart...

One more thing... do you happen to know what her legal rights and options are? Since she's employed, her job is being incredibly supportive and giving her as much leeway as possible... but she just can't do any more work. She spends more time on medical leave than she does actually working. We are currently gathering paperwork to apply for Social Security disability benefits... do you know anything about that process? How long does the wait usually last?

How are you holding up through all of this? How are you doing?
Sorry for being so informal... I hope you don't mind me using your first name... 🙂

PS. She isn't my daughter, she's my mother-in-law. 🙂

Regarding that disability claim, her doctor needs to lay everything out clearly in the discharge papers from the hospital. She can't just show up before the board and say, "I feel bad, give me a check." I don't know the ins and outs of the legal stuff, so you should probably check with a lawyer or a social worker.

Besides, I'm only 28, so I'm not exactly in the same boat. A young brain runs at a hundred miles an hour—that's why it breaks easier, but it also bounces back faster than an older person's would.
William Evans10 William Evans10 Active Member
62 messages
joined Oct 2012
#3194 ·
David Vaughn75 said:Regarding that disability claim, her doctor needs to lay everything out clearly in the discharge papers from the hospital. She can't just show up before the board and say, "I feel bad, give me a check." I don't know the ins and outs of the legal stuff, so you should probably check with a lawyer or a social worker.

Besides, I'm only 28, so I'm not exactly in the same boat. A young brain runs at a hundred miles an hour—that's why it breaks easier, but it also bounces back faster than an older person's would.

I know... actually, both her doctor and her boss have already recommended she go on disability, so the approval shouldn't be the issue. We just need to gather all her medical records and get them over to him. I'm just not sure how long the backlog is for processing... but honestly, it doesn't matter much, I was just asking in case you knew something about it.🙂

You're 28... but she's been dealing with this for roughly 28 years...🙂

Is this something that runs in the family, like a genetic thing?

My husband (her son) didn't inherit it from her... yet he fell ill himself...
David Vaughn75 David Vaughn75 Regular
626 messages
joined Sep 2015
#3195 ·
William Evans10 said:I know... actually, both her doctor and her boss have already recommended she go on disability, so the approval shouldn't be the issue. We just need to gather all her medical records and get them over to him. I'm just not sure how long the backlog is for processing... but honestly, it doesn't matter much, I was just asking in case you knew something about it.🙂

You're 28... but she's been dealing with this for roughly 28 years...🙂

Is this something that runs in the family, like a genetic thing?

My husband (her son) didn't inherit it from her... yet he fell ill himself...

Any predisposition to psychosis is hereditary—it’s just that sometimes those genes don't actually trigger in certain generations.

And out of those 28 years, how much of that time has she actually been on medication?
William Evans10 William Evans10 Active Member
62 messages
joined Oct 2012
#3196 ·
David Vaughn75 said:Any predisposition to psychosis is hereditary—it’s just that sometimes those genes don't actually trigger in certain generations.

And out of those 28 years, how much of that time has she actually been on medication?

Oh goodness... I am not entirely certain. It has been an inconsistent struggle with this illness for a lifetime... She would take them for a month, then stop for three months. That was the general pattern. She never truly viewed herself as ill, merely "different"... Her mother even struggled with her until the poor woman passed away. That was roughly 10 years ago. Since then, her father didn't worry much about the pills. Now, both he and I are gone—well, he is deceased. Ever since I joined the family, I have taken on most of the responsibility for her care. She has been on continuous therapy for about two years now. Sadly, the illness has mostly been neglected.

As for the genetics, my mother-in-law's grandmother—who was also ill—was apparently suffering from a type of psychosis as well, based on everything I’ve gathered. Her condition was even more severe because she struggled with alcoholism on top of everything else. So, yes, it is definitely hereditary...

My husband does not have psychosis, though his nerves are certainly frayed, given everything he and his mother endured. He is 28 years old. Is there a specific age threshold for onset? I read somewhere that it usually happens in one's early twenties.

Now, I find myself quite fearful... I have a son who is only a year and a half old. Is there anything I can do to prevent him from getting sick, considering the high probability? Or does it not necessarily mean he will suffer, given that it was the women who carried that gene? I don't know about the generations before, but regarding those two women, I know for sure. If I were to have a daughter one day, is it possible she could fall ill too?
David Vaughn75 David Vaughn75 Regular
626 messages
joined Sep 2015
#3197 ·
William Evans10 said:Oh goodness... I am not entirely certain. It has been an inconsistent struggle with this illness for a lifetime... She would take them for a month, then stop for three months. That was the general pattern. She never truly viewed herself as ill, merely "different"... Her mother even struggled with her until the poor woman passed away. That was roughly 10 years ago. Since then, her father didn't worry much about the pills. Now, both he and I are gone—well, he is deceased. Ever since I joined the family, I have taken on most of the responsibility for her care. She has been on continuous therapy for about two years now. Sadly, the illness has mostly been neglected.

As for the genetics, my mother-in-law's grandmother—who was also ill—was apparently suffering from a type of psychosis as well, based on everything I’ve gathered. Her condition was even more severe because she struggled with alcoholism on top of everything else. So, yes, it is definitely hereditary...

My husband does not have psychosis, though his nerves are certainly frayed, given everything he and his mother endured. He is 28 years old. Is there a specific age threshold for onset? I read somewhere that it usually happens in one's early twenties.

Now, I find myself quite fearful... I have a son who is only a year and a half old. Is there anything I can do to prevent him from getting sick, considering the high probability? Or does it not necessarily mean he will suffer, given that it was the women who carried that gene? I don't know about the generations before, but regarding those two women, I know for sure. If I were to have a daughter one day, is it possible she could fall ill too?

Look, if your son does get sick—which, most likely, won't happen until puberty or adolescence hits—the absolute most important thing is catching it early. If you jump on treatment immediately, there's a massive chance of recovery. But if someone stays untreated for years without help, their personality can fracture so deeply that medication might only be able to stabilize them, rather than bringing them back to a total "normal." In cases like mine, 😁, it becomes incredibly difficult to fully bounce back.

The real nightmare, honestly, is our society. People will just label anyone with psychosis as "crazy" and try to push them away like they're something to be avoided.

But at the end of the day, psychosis is just a disease like any other. Some people deal with diabetes, others with epilepsy, and some just have messed up neurotransmitters. Anyone living with psychosis can live a totally full, awesome life. The key is staying busy and engaged, because our brains aren't biologically designed to just sit idle.
fadedlynx96 fadedlynx96 Active Member
72 messages
joined Jan 2013
#3198 ·
William Evans10 said:Oh goodness... I am not entirely certain. It has been an inconsistent struggle with this illness for a lifetime... She would take them for a month, then stop for three months. That was the general pattern. She never truly viewed herself as ill, merely "different"... Her mother even struggled with her until the poor woman passed away. That was roughly 10 years ago. Since then, her father didn't worry much about the pills. Now, both he and I are gone—well, he is deceased. Ever since I joined the family, I have taken on most of the responsibility for her care. She has been on continuous therapy for about two years now. Sadly, the illness has mostly been neglected.

As for the genetics, my mother-in-law's grandmother—who was also ill—was apparently suffering from a type of psychosis as well, based on everything I’ve gathered. Her condition was even more severe because she struggled with alcoholism on top of everything else. So, yes, it is definitely hereditary...

My husband does not have psychosis, though his nerves are certainly frayed, given everything he and his mother endured. He is 28 years old. Is there a specific age threshold for onset? I read somewhere that it usually happens in one's early twenties.

Now, I find myself quite fearful... I have a son who is only a year and a half old. Is there anything I can do to prevent him from getting sick, considering the high probability? Or does it not necessarily mean he will suffer, given that it was the women who carried that gene? I don't know about the generations before, but regarding those two women, I know for sure. If I were to have a daughter one day, is it possible she could fall ill too?

Here is my perspective, though I haven't studied schizophrenia extensively and things may have evolved. It used to be that the triggers were poorly understood beyond physical trauma or substance abuse, and while you can calculate hereditary risks through various studies found online, that risk generally stays well below fifty percent. Furthermore, even if the condition is inherited, it won't manifest as an exact replica of the parents' experience; schizophrenia presents in many forms, and it is highly unlikely for a son to inherit the exact same presentation as a parent.

Thirdly, if a diagnosis does occur, there isn't much recourse other than initiating treatment immediately, and ensuring the child avoids marijuana, which is one of the few proven triggers that can set the condition in motion.

I have two children and a heavy family history, though my primary focus has always been managing the risk of suicide, as my sister took her own life.
Brian Hayes43 Brian Hayes43 Member
39 messages
joined Mar 2013
#3199 ·
Hello everyone.

It’s been a long road... after nearly thirteen years of fighting my own internal battles—feeling completely misunderstood by everyone around me, navigating this entirely alone while stuck within the four walls of my own mind—I finally feel like I am standing on the threshold of leaving this darkness behind. It has been a slow process of trying to find myself, and after years of denial, confusion, and sheer desperation, I am searching for a way to purge the last remnants of this mental fog so I can attempt to build a functional, stable life.

To be honest, I am at a loss for where to even begin. I find myself able to deeply relate to what dorina.maja and User123 were expressing on the previous page. In my case, however, it hasn't just been about losing a sense of normalcy; it has felt like losing my entire existence for over a decade.

Now that I have finally gathered the strength and the will to actually talk to someone about this, I’ve spent some time searching for a local psychiatrist who could help me navigate this final stage of recovery, but my efforts have been unsuccessful. However, I stumbled upon this thread and the one regarding manic depression—there seems to be such a thin line between schizophrenia and bipolar disorder. Reading about things like electroshock therapy, heavy sedation, or even lobotomies makes me wonder if checking into a specialized psychiatric hospital might actually be the right move.

I was wondering if any of you all hang out somewhere in Real Life or perhaps on an IRC channel, somewhere where the conversation flows a bit more naturally in real-time than it does here on the forums?
Brian Hayes43 Brian Hayes43 Member
39 messages
joined Mar 2013
#3200 ·
fadedlynx96 said:Here is my perspective, though I haven't studied schizophrenia extensively and things may have evolved. It used to be that the triggers were poorly understood beyond physical trauma or substance abuse, and while you can calculate hereditary risks through various studies found online, that risk generally stays well below fifty percent. Furthermore, even if the condition is inherited, it won't manifest as an exact replica of the parents' experience; schizophrenia presents in many forms, and it is highly unlikely for a son to inherit the exact same presentation as a parent.

Thirdly, if a diagnosis does occur, there isn't much recourse other than initiating treatment immediately, and ensuring the child avoids marijuana, which is one of the few proven triggers that can set the condition in motion.

I have two children and a heavy family history, though my primary focus has always been managing the risk of suicide, as my sister took her own life.

If I may offer some personal insight, I can confirm this perspective with absolute certainty. In my own experience, I am convinced that cannabis was the spark that ignited my schizophrenia. Lately, I've even experimented with using it again under a "fight fire with fire" philosophy, simply to observe how my mind reacts, but I've found that once the high sets in, those dangerous delusions begin to take hold.

Current research suggests that the risk of developing schizophrenia is roughly 600% higher during the early teenage years, though that statistical likelihood tends to taper off as a person reaches their thirties.

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