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Support resources for families dealing with cancer and other serious illnesses

Started by James Cox6 · · 👁 236 views · 3.9K replies

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Participants James Cox6Lisa White54shadowmason6Angela Wrightbrightgardener8Melissa Moore39James Martinez3Grace Stewart6Megan Fowler78Zachary Howard2Ashley Rodriguez41Douglas Lee13rowdyheron17placidheron24slyseal28jadesailor14Michael Newman3jadetinker42Benjamin Grant6wanderingharbor61cosmicviper76Dana Baker37Jason Torres5Peter Chavez6 …
Angela Wright Angela Wright Regular
731 messages
joined Feb 2007
#2561 ·
placidscout87 said:Unfortunately, parts of this aren't true. Vidatox is an actual medication, officially registered as such, which means clinical trials were actually conducted. It’s been proven to have anti-cancer, anti-inflammatory, immunoregulatory, and analgesic effects. It’s been in use for about 20 years, following 15 years of clinical testing. During that time, beyond just improving the quality of life for patients dealing with cancer pathologies, there have been documented cases of remission—specifically involving breast, uterine, and brain cancers.
The only official website for this drug is: http://www.labiofam.cu/congreso-internacional
where you can actually see how the drug affects cancer cells.

Best regards

The only thing I see on that page is a pile of registration forms for a convention and some news claiming they have evidence that scorpion venom—from an edemic Cuban species—works on uterine cancer cell cultures, which is what Mileva already posted about. And let's be clear: that is an in vitro study. Even someone who hasn't seen a DivX movie would realize that's a massive distinction. So, there's really no point in preaching or lamenting here. Based on that, we don't have anything to get worked up about. ☕
What exactly is "registered" remains a total mystery.
In modern, verified medicine, the alpha and omega of competence is finding information on MEDLINE, which is the world's premier database for registered drugs (and if you want a drug registered for a specific indication, there is a very specific process I laid out in my previous post). That is an undeniable fact.
If anyone wants to convince themselves, here is the link—just type Vidatox into the search bar yourselves.
melloworca6 melloworca6 Regular
551 messages
joined May 2010
#2562 ·
I honestly think that after this post from Angela Wright, all talk regarding this medication on this subforum is officially over.
Kate Brooks2 Kate Brooks2 Active Member
74 messages
joined Aug 2011
#2563 ·
Here I am again, 🙂 and this time I actually have some good news to share. My white blood cell count, which had plummeted to a terrifying 0.6, has finally climbed back up to 4.2. It turns out that fighting for every single sip and every single bite was absolutely worth the struggle. Before we started this therapy, they had even dipped as low as 6.4, so we’re staying optimistic and pushing hard to see if we can nudge those numbers even higher. Best regards
fadedtrucker5 fadedtrucker5 Active Member
80 messages
joined Feb 2011
#2564 ·
Kate Brooks2 said:Maybe I should update everyone on our situation... My brother-in-law feels pretty good, no nausea or pain or insomnia, but the appetite thing is still an issue. He tries, but he just can't swallow solid food—not that it hurts to swallow, his body just won't take it. He manages maybe 10 bites of solids a day, but he drinks plenty of beet, carrot, lemon, apple, and grapefruit juice. He’s also drinking Noni and orange-lemon lemonade and royal jelly (he likes the royal jelly best, though I worry he might be overdoing it). On top of that, he takes Propolis, Glucan, Selenium, Lana oil, and some vitamin/mineral pills with iron and iodine. We started giving him one glass of liquid nutrition daily yesterday because we're worried about weight loss. Looking at it all, I guess it isn't terrible since he gets what he needs, but without solids, his stools are just liquid and it's a struggle 😢 I read somewhere about a syrup that only a doctor can prescribe which supposedly works miracles for appetite. It's usually given to people with anorexia or those who
suffer from these nasty diseases and AIDS. If anyone knows anything about it, let me know... we need to do something about this. Our patient looks healthy but is just incredibly thin,
especially now that he's only 67 kg at 1.82 meters.

Maybe try Resource shakes? 🙂

Edit: Started working, so I can't get on the forum as much as I'd like!
Big hugs to everyone fighting and to those supporting someone who is. 😘
Praying for you all, you're in my thoughts and I'm sending hope and positive energy! <3
Kate Brooks2 Kate Brooks2 Active Member
74 messages
joined Aug 2011
#2565 ·
fadedtrucker5 said:Why don't you give those nutritional shakes a shot? 🙂

Edit: I've actually started working again, so I won't be able to hang out on the forum nearly as much as I'd like!
Sending a huge hug to everyone out there fighting their own battles, and to those of you supporting someone who is! 😘
I am praying for all of you; you are in my thoughts, and I’m sending nothing but hope and positive energy your way! <3


I'm really glad to hear you've started working; there is something undeniably encouraging about stepping back into your old routine and life.
I haven't quite warmed up to the idea of those shakes yet... what can you tell me about them?
fadedtrucker5 fadedtrucker5 Active Member
80 messages
joined Feb 2011
#2566 ·
Kate Brooks2 said:It’s good you started working again; I guess getting back to your old routine is encouraging.
I'm just not really feeling those shakes yet... what can you tell me about them?

They're basically small protein shakes with a mild flavor that are super nutrient-dense. I suppose one would be enough since they act as a meal replacement, providing about 300-500 kcal each. There are various flavors, and they're mostly meant for people who are undernourished or can't handle solid food. It might be worth a try, I guess.👍

🙂
Ashley Grant86 Ashley Grant86 Newcomer
7 messages
joined Aug 2011
#2567 ·
Kate Brooks2 said:Well, I'm back again 🙂 and actually bringing some decent news for once. My white blood cell count crawled up from a measly 0.6 to 4.2. Turns out fighting for every single bite and sip was actually worth the effort. They were down at 6.4 before we started therapy, so fingers crossed we can nudge them up even more. Best regards


regards Lili. So glad to see everyone staying tough and things looking up.
You just gotta have faith. Like the old saying goes, half the battle is mental, and I’ve got zero doubt everything's gonna turn out fine.
Keep that positive energy going. All the best.
It's definitely heading in the right direction seeing those WBC numbers bounce back.🙂🙂🙂
Kate Brooks2 Kate Brooks2 Active Member
74 messages
joined Aug 2011
#2568 ·
fadedtrucker5;35561579 said:They are essentially just small protein shakes that taste mild but pack a massive nutritional punch. Honestly, drinking one of those should be more than enough since they function as full meal replacements, providing anywhere from 300 to 500 calories each. They come in various flavors and are specifically designed for people who are malnourished or simply can't manage solid food anymore. It would definitely be worth giving them a shot.. 👍

🙂[
Oh, you're talking about those... we actually introduced him to them. He stuck to them for three days straight, but now that he’s eating properly again, we’ve phased them back out. He had the chocolate and vanilla ones 🙂
How are things on your end?
Where is BU BU hiding? What's the word with her?
I hope you all are doing well; I'm keeping my fingers crossed for everyone.🙂🎉
Kenneth Gonzalez7 Kenneth Gonzalez7 Newcomer
7 messages
joined Nov 2008
#2569 ·
Hey everyone.
My friend is dying from bone cancer. 😢
She’s only 30.
She spent two or three years battling thrombosis, and then this past January, she ended up being hospitalized.
She was stuck in the hospital for four months. The diagnosis—bone cancer. They didn't even perform a single surgery while she was there.
She’s coming home in month five to start chemo. She finished her sixth dose at the end of August—so, right about now—and just got her test results back. They're bad.
It spread to her lungs, and there’s some stuff on her brain too (she’s going in for an MRI because of that)....
She sought out three different opinions. They all told her the same thing: it’s terminal, get ready, the chemo isn't working, you’ve only got a few months left... 😲 That’s basically what she told me yesterday.

I just don't get it... what now? Where do we go from here? What do we even do? I asked if this means no more chemo, or what, but she doesn't even know herself... she's still waiting on the medical board review and the MRI results....

"You have a few months left." ...HOW MANY?? That could be two, five, seven, or nine... that's not a small difference!!!

Is there any hope? Any way to extend those months...? 🙂
John Richardson6 John Richardson6 Newcomer
3 messages
joined Jul 2011
#2570 ·
Hey Elizabeth Perez33 😬
I finally finished all my tests yesterday... thankfully, it isn't leukemia. It turns out it's aplastic anemia (which feels almost identical to leukemia at first due to the symptoms).

But I'm sticking around with you guys, since one scary diagnosis is officially behind me now..

Kate Brooks2, glad to see you're making progress 🙂

Emily Edwards19, I am so sorry about your friend 😢😢

(School starts for me soon, so don't worry if I go MIA for a bit)
vividsailor7 vividsailor7 Active Member
217 messages
joined Sep 2011
#2571 ·
Emily Edwards19 said:Hi everyone!
A friend of mine is dying from bone cancer.😢
She’s only 30.
She spent 2-3 years fighting thrombosis, and then this year, back in January, she ended up in the hospital.
She was hospitalized for 4 months. The diagnosis was bone cancer... they didn't even perform a single surgery while she was in there.
In month 5, she comes home and starts chemotherapy. After receiving 6 doses by the end of August—which is right now—she had her tests done, and they are bad.
It spread to her lungs, and there's something on her brain too (she's heading in for an MRI because of that)....
She sought out three different opinions—they all told her the same thing: it's incurable, get prepared, chemo hasn't helped, you have a few months left........😲 That’s basically what she told me yesterday.

I don't understand... what now? Where do we go from here? What do we do? I asked if that means she won't be doing chemo anymore, or what? She doesn't even know herself... she's still waiting for the medical board review and the MRI....

"You have a few months left".....HOW MANY?? That could mean 2, 5, 7, or 9 months... that is not a small difference!!!

Is there any hope? Any way to extend those months...?🙂

Her doctors are the ones who know. You have to wait for the medical board and the MRI; once that happens, more will be known. As for your questions, I can't answer them. 1. There isn't enough data. 2. I don't have the exact diagnosis. 3. I am an internist, not an oncologist. "Is there any hope, any way to extend those months...?" Right now, I simply don't know.
Kenneth Gonzalez7 Kenneth Gonzalez7 Newcomer
7 messages
joined Nov 2008
#2572 ·
vividsailor7 said:Her doctors are the ones who know—we just have to wait for the tumor board review and the MRI results before we get any clearer answers. Honestly, I can't give you specific answers right now because, well, first, there's just way too little info. Second, I don't have a definitive diagnosis yet. And third—and this is important—I'm an internist, not an oncologist. As for whether there's hope or ways to extend those months... I just don't know. Not yet.

Thanks anyway.
Yeah, we really just have to sit tight for the specialists and the MRI... maybe they'll adjust the treatment plan after that...🤷

Elizabeth Perez33 thanks😢 so much.
vividsailor7 vividsailor7 Active Member
217 messages
joined Sep 2011
#2573 ·
Emily Edwards19 said:Thanks! Actually, I stand corrected.
Yeah, we just have to wait on the medical board review and the MRI results... maybe they'll decide to move forward with the treatment plan.🤷

Elizabeth Perez33 Thanks!😢

Could they resume treatment? It’s certainly possible. But honestly, the absolute most important thing right now is that you don't lose hope. If you come across any new information regarding the condition, or if something just doesn't make sense to you, please—just ask. I'll do my absolute best to break it down and explain it as clearly as I can.
Angela Wright Angela Wright Regular
731 messages
joined Feb 2007
#2574 ·
vividsailor7 said:They might be able to restart treatment. It’s possible. The most important thing is to hold onto hope. If you find out anything new about the condition or if something doesn't make sense, please feel free to ask—I’ll try my best to explain things to you.

vividsailor7, you are such a breath of fresh air😍 on this thread, where people are basically searching for doctors with a magnifying glass. I started this discussion a while back, but so far, we've only had a handful of experts show up. The last person who popped in was just there to insult the intelligence of everyone dealing with this.😢
Huge respect to you 🙏 and I really hope you can still find ten minutes a week to check the latest posts and offer your insight and support.
Make sure to swing by www.webmd.com because we could really use some help over there too.
vividsailor7 vividsailor7 Active Member
217 messages
joined Sep 2011
#2575 ·
Angela Wright said:vividsailor7, you are such a breath of fresh air😍 on this thread where everyone is basically searching for doctors with a candle in their hands. I started this discussion ages ago, and so far, we've only had a handful of experts show up. The last person who bothered to comment was nothing but an insult to the intelligence of everyone suffering here.😢
Major props to you🙏 and I really hope you can find ten minutes a week to check out the latest posts and offer some insight and support.
Drop by www.healthline.com because we need help over there too.

No problem at all. And regarding that last person who came in just to insult the intelligence of sick people...😢 I know exactly how that goes because cancer runs in my own family, so I actually get it—unlike some of my colleagues who act like they know everything. Check out www.healthline.com because we need help there as well. Go ahead and Register!
Kenneth Gonzalez7 Kenneth Gonzalez7 Newcomer
7 messages
joined Nov 2008
#2576 ·
vividsailor7 said:They might continue treatment—it’s definitely possible. The main thing is just not to lose hope. If you find out anything new about the situation or if things aren't making sense, please feel free to ask, and I'll try my best to explain what I can.

thanks.
My friend is actually away at the beach for a week right now, so once she gets back, I'll see her and hopefully we'll have more clarity. Honestly, until the specialist board meets and the MRI results are in, we're basically flying blind... maybe they really will keep going with treatment, but... I asked her about it just yesterday, and she was like, "What's the point?"—apparently, even the doctors told her the same thing, that the illness is incurable... there's no cure...

It just confuses me—if they aren't going to treat it because it won't help, then why just sit at home and wait...😢
how am I supposed to help in those tiny little increments?😢
Kate Brooks2 Kate Brooks2 Active Member
74 messages
joined Aug 2011
#2577 ·
B5, I am truly relieved to hear it isn't leukemia. Reading your post honestly gave me such a massive sense of relief. Just keep studying and once you find a moment to catch your breath, please reach out.

vividsailor7, I want to personally thank you as well for stepping up and taking the time to shed light on all these things we clearly don't understand yet.

Emily Edwards19, I am just so incredibly sorry... I sent you a private message. Please, don't let this get the best of you!
Angela Wright Angela Wright Regular
731 messages
joined Feb 2007
#2578 ·
Emily Edwards19 said:It confuses me how they can say "THEN"—if there's no treatment because it isn't working—that you should just stay home and wait...😢
how exactly are those scraps supposed to help?😢

There’s a whole field called palliative medicine designed specifically for patients in the terminal stages of an illness. We're talking about people for whom curative medicine has exhausted every single option; the goal here is to ensure a high quality of life and manage pain as long as possible.

That said, based on my own experience, I strongly suggest getting all your documentation translated and seeking a second opinion from a legitimate global center of excellence. Unfortunately, doctors here in the States aren't always up to speed on everything, nor do they have the funding or the infrastructure to implement certain methods or protocols that are already standard practice elsewhere. For instance, Fighter's husband had an incredibly rare form of sarcoma, and once local options were completely tapped out, Fighter's reached out to the Dan Farber institute in the USA for a second opinion. They actually came back with six different potential paths, one of which involved joining a clinical trial. Sadly, they couldn't make the study work in time, but the point remains: a door might still be open if you know where to look.
Jerry Sullivan2 Jerry Sullivan2 Newcomer
5 messages
joined Oct 2011
#2579 ·
I have a question regarding a condition that isn't technically malignant, yet it is incurable.

Someone very close to me is currently in the terminal phase of multiple sclerosis. She is immobile, her immune system is practically non-existent, and she has become extremely frail. What is actually killing her are the infections; they trigger fevers that, in turn, cause neurological damage. Her kidneys are struggling—she’s on a catheter—she’s being fed via a feeding tube, and there is fluid in her lungs (though not enough to warrant a puncture). According to the doctors here, she shouldn't have made it past two months, but somehow she stabilizes, recovers slightly, and then every few days, everything resets.

Generally speaking, even when she is discharged from the hospital, things are never truly "clean." We were told that it’s impossible for her to maintain sterile urine because those bacteria can't be fully eradicated; instead, we just wait for a fever to spike and then hit it with antibiotics like a fire extinguisher.
She is currently placed in a private medical facility where she receives 24/7 nursing and medical supervision.

When I asked if there was any way to support her during those brief windows between hospitalizations—perhaps some kind of immune booster—they suggested elderberry. They mentioned it might help slightly with hydration, along with some cranberry tea.

Today, I purchased a probiotic supplement that is supposed to strengthen the immune system, so I am curious about your thoughts on this. Here is what the instructions state:

"Composition: Six strains of live bacteria targeting various intestinal locations. A specialized combination including enzymes. Recommended use: Eliminating harmful residues, pathogens, and mold bacteria from the body; boosting immunity across all ages (pregnant women, infants, children, and adults); normalizing and regulating bowel movements for acute and chronic diarrhea/constipation; restoring intestinal flora and fauna during and after antibiotic therapy, urinary tract infections, and bladder issues..."

I also picked up a different herbal blend for urinary issues, just to give her a break from the cranberry tea. It’s a mixture of birch, nettle, mint, and a few other herbs.

Any advice?
Kenneth Gonzalez7 Kenneth Gonzalez7 Newcomer
7 messages
joined Nov 2008
#2580 ·
Kate Brooks2 said:Emily Edwards19, I am seriously so sorry... I just sent you a private message. Don't let this get to you too much!

thanks... I'll hit you up via PM...

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