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Posts by Zachary Howard2

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brightgardener8 said:Dear friends,
Over these past 20 months spent on these forums, I’ve found it incredibly difficult to read the posts when you all lose your loved ones. I truly felt your pain because I knew that eventually, I would be standing right where you are.
My mother passed away yesterday. 🙂
She had been suffering for far too long, so in a way, there is a small sense of relief knowing her struggle is finally over.
I sincerely hope she is in a much better place now.

Things just won't feel the same without her.

I wish you all nothing but strength as you navigate your own hardest battles.

Dear Ed,

please accept my deepest condolences.
Grace Fowler said:My dear friends—and I say "dear" because you truly are—I’m checking in with what is likely the most difficult news I have ever had to share on this forum.
The PET scan results were quite grim; there are numerous positive lymph nodes scattered everywhere, literally from my neck down to my pelvis. It’s revolting. The biopsy on the neck node confirmed the scan's findings: we are looking at adenocarcinoma. On a somewhat brighter note, the placement of the port in my right kidney was successful, which means there is a real possibility I can start systemic chemotherapy to try and shut this thing down. If I happen to sound a bit down, please don't take it personally; my will to live remains massive, and I have no intention of giving up. I’ll be heading to an oncology board meeting in the next few days to determine our next steps.
PLEASE, MY FRIENDS, when you read this, don't let it weigh you down. Instead, just cross your fingers and think, YOU CAN DO THIS, DIANA!!!
Your support and positive thoughts mean the world to me.
Sending hugs,
Diana!!


Diana, dear,

Don't let that monster win. Keep fighting; I know you have it in you. I am praying for you every single day, along with everyone else facing these battles. Hang in there—sending you so many good vibes and 🙂🙂🙂
rapidseal49 said:At 6:30 this morning, we lost another young life...😢

My cousin, Peter (24), passed away from the complications of a severe and aggressive illness....😢

Everyone, please stay strong and keep fighting......


rapidseal49, please accept my deepest condolences. It’s heartbreaking whenever anyone passes, but it hits especially hard when they are so young.😢
quietpilot87 said:My mother passed away this morning.

Our entire family is profoundly grateful for the time we were given—both for her sake and for ours. It sounds surreal, but in the context of everything we've been through, there couldn't have been a more beautiful outcome.

I feel a sense of peace knowing I truly understood the magnitude of who she was, and that I managed to make sure she knew it while she was still able to receive it. She was the kind of soul who, until her very last breath, never harbored a single bitter thought or an ounce of selfishness. She never once complained; instead, she spent every moment looking out for everyone else—especially Dad, my brother, and me, making sure our mental well-being stayed intact.

Her heart was so incredibly vast that even trying to write about it feels almost trivial, as if words would fail to capture the depth. During this critical stretch, there were moments where I felt completely overwhelmed, only to be steadied by the sheer love and strength of this woman.

A magnificent soul... fly high. I love you.


Please accept my deepest, most sincere condolences.
briskscout583 said:Hi everyone,

I won't get bogged down in medical diagnoses or debates about potential cures; I’m reaching out because I desperately need some guidance regarding urgent placement and professional nursing care for my dad...

The facts:
- He is 67 years old.
- An active smoker from age 15 to 65.
- Vascular system atrophy.
- October 1st: Suffered a mild stroke (which coincidentally was my mom's first day of retirement)—during this time, they also discovered a shadow on his lungs. He was discharged from the hospital on November 14th to a pulmonary specialist facility near Jordanovac.
- October 30th: Diagnosed with advanced adenocarcinoma in both lungs with metastases—he has already started chemotherapy.
- November 2nd: A second stroke (right on my birthday)—this one was much more severe, clearly visible on the CT scan. It caused heavy ischemia in the frontal lobe, leading to dementia. He doesn't recognize me or my mother, has no sense of time or place, and currently requires physical restraints to stay in bed.
- Friday, Nov 8th, 4:00 PM: The hospital informed us he will be discharged this coming Monday, Nov 11th.

Given how incredibly difficult it would be to provide care for him at home in his current state (managing catheters, IVs, and being bedridden/restrained), I urgently need recommendations for a facility or nursing home that can accept someone in his condition and provide dignified care. (Fortunately, finances aren't an issue for us right now).

From what we've gathered so far, most facilities seem to be completely full, especially those with immediate availability by Monday.

I am looking for information on:
- Which institutions are reputable and professional (even when we aren't there visiting)?
- What are the typical costs?
- Where might there actually be an opening?
- Any other suggestions?

Thanks in advance.
Best,


I placed my mother in a facility near the outskirts of town, and I have to say, they were professional until the very end. For the first three weeks, there is no cost (unfortunately, my mother only survived eight days, as she had advanced cancer). You proceed via a referral from a primary care physician—just ask the hospital staff to write a recommendation. After the initial three weeks, you pay for a month, and then you can go back to having three weeks covered. Visiting hours are every afternoon and on weekends.
Whatever you do, don't even consider that place in New Marof; I've heard nothing but bad things about them from pretty much everyone.

Good luck.
Take a look at this... at least there's some good news for once.
Jonathan Doyle55 said:Thanks for the info, though I honestly have no idea how you manage visiting every single day from all the way out in New York City... How do they handle sudden emergencies, like if an organ fails or there's a bowel obstruction requiring a stoma? Is the medical staff actually competent? Are they approachable, and did you feel like they truly stood by her when things got difficult?

We didn't go every day, just twice—she passed away eight days after we arrived. I assume they have all the necessary equipment for emergency situations; my mom didn't require any specific interventions. She passed due to liver failure, and she simply fell asleep. From what we saw, the staff was genuinely wonderful and attentive to the patients. The moment Mom mentioned she was in pain, a nurse appeared with an injection. The doctor always took the time to talk with us (we called every day), and he was consistently kind and compassionate. They are also very transparent regarding a patient's condition. During those eight days, we didn't bring any gifts or anything of the sort. Once Mom passed and we returned to the facility, we left behind the items she still needed, such as diapers, medication, and so on. One day, when Mom wasn't answering her phone, we called the nurse; she went to check on her, told us to call again, and even handed Mom the phone so I could hear her voice—even though she was already quite disoriented and weak.
Jonathan Doyle55 said:Unfortunately, things didn't go our way, and my mother has been diagnosed with metastases. We’ve been briefed on what comes next, and frankly, it isn't going to be pleasant. Since she lives alone, we're torn: should we arrange for someone to come stay with her, or move her into a high-quality (humane) facility where she can receive proper care until the end, allowing us to visit her daily?
We went through something similar with my father, but back then, the decision was made to keep him at home. The issue was that we simply couldn't provide the level of medical care he needed, and I honestly feel like he suffered more because of it, even though he was with us...😢
Does anyone know of or can anyone recommend a good facility or nursing home in New York City? (Apparently, they won't take her at the hospital in Manhattan because they don't have space for patients in this condition, nor does MD Anderson Cancer Center)...thanks in advance..🙏


I am so sorry you're going through this. If I were in your shoes, I would suggest looking into a long-term care facility out in a suburb like Dug Resa. It’s a bit more dignified than the options in Marof. My own mother spent her final days there. I wasn't able to care for her at home either, because she was immobile, incontinent, had a stoma, and was dealing with constant pain from metastases throughout her body. In the facility, she was kept clean, tidy, and fed (well, as much as she could manage), and they provided her with pain management and compassionate care until the very end. We actually dropped in once unannounced just to check on her—she had been telling us she’d had an accident, which turned out not to be true. I am truly grateful to the doctors and nurses in Dug Resa for allowing my mother to pass away with dignity, something I wouldn't have been able to facilitate at home. Hang in there; I'm sending you a big 🙂 because I know exactly how you feel.
bluegull18 said:.... they found metastases in the liver; the cancer has spread. The doctor was blunt with us—told us not to hold our breath, that there’s no more help to be given. It's just a matter of how many days are left.


Dear bluegull18, my mother unfortunately lost her battle as well. She also had liver metastases, and if it offers you any solace, she didn't suffer terribly; eventually, her liver just gave out, and she simply drifted off to sleep. It is incredibly difficult, especially when you realize the end is inevitable and medicine has run its course, but please pray for her—that God takes her home and that she finds peace. I might sound callous right now, but that was truly the reality with my mother. During those last few weeks, I found myself praying for her to pass, just so she wouldn't have to exist in that fragile, hovering state anymore. I won't go into the specifics of what she suffered through here; you can find those details in my previous posts.
Hang in there. I’ve already lost both of my parents, along with my grandparents, and I’m only 30. Life keeps moving forward, no matter how surreal or unfair that feels.🙂
🙄
Maria Jones40 said:Honestly, people, I am genuinely baffled by some of you. I have no idea what century you think we’re living in. Nowadays, things are actually discussed openly. Of course, not every single detail is laid out for the patient—not everyone needs to carry that weight—but the family is always kept in the loop. Especially when dealing with a serious illness, the family deserves to know everything, provided they are willing and able to process it. If half the population in America struggles with basic comprehension, that’s a separate issue entirely. But you don't have the right to constantly bash medical staff or spread blatant misinformation just because you're unhappy.

Look, keeping the family informed is one thing, but is lying really necessary? The surgeon told my brother and me that he had extended our mother's life by three or four years, even though the cancer had already metastasized everywhere. She passed away a month later. Hello? Helloooo???
He could have simply said he performed the surgery to prevent an intestinal blockage and to ensure she didn't suffer needlessly (she had ovarian adenocarcinoma). Instead, I spent three weeks hunting him down at Mayo Clinic over those lies. After she passed, the nurses finally let us know they knew all along there was nothing more they could do.
Then there's my friend's case: her uncle died of lung cancer, and nobody told him anything—though he was already quite frail from brain issues. Then, out of nowhere, the doctor basically drops the bomb at the very end: "Yeah, you have lung cancer, and you've got about a month left."
Where on earth do you live, dear? I realize doctors are human too, and after seeing so much tragedy, they can become desensitized. Sometimes they act incredibly blunt just as a defense mechanism against the emotional toll. But they know—especially oncologists—that they aren't treating minor sniffles or hypochondriacs; they are treating people facing terminal illnesses, and that is heavy work.
Taylor Kelly9 said:I might have missed a few threads here, so I was wondering—where does everyone pick up their royal jelly?

I’ve been getting mine from my neighbor; she actually sells those kinds of supplements. If you’re interested, I can check with her to see if she has any left in stock.
frozencobra25 said:My father lost the hardest battle of his life this morning at 6:10 AM.

Another wonderful man, loved by everyone, succumbed to a glioblastoma that unfairly forced its way into our lives on May 9, 2007, changing everything forever.

My father was a hero who fought until his very last breath, and until that moment, he was surrounded by me and my mother. He finally fell asleep, exhausted and worn out, leaving behind a body that had endured so much. In one word—he is free.

Everything still feels somewhat surreal; no matter how much I knew how the fight would end, or how much I prepared myself for this exact moment, it arrived far too soon.

I am just grateful that Mom and I were able to share such beautiful moments with him over this past year. He knew he was never alone; he was always surrounded by the people he needed most and those who loved him most.

A huge thank you goes to Angela Wright, a guide who chose her words with the empathy of someone who has walked this same difficult path.

Thank you.


Please accept my sincerest condolences.😢
Melissa Kim45 said:My mother fought an incredibly long battle. She was a winner in her own right, and a massive one at that.

She passed away this morning.

Thank you all for everything; I truly care about this community. Please keep fighting the good fight for us—stay brave and give it your all.

I'll check back in later with more details once things settle down.


Please accept my deepest condolences.😢
dustyranger11 said:My father passed away today. For him, at least, the suffering has finally come to an end.
I want to thank everyone here who offered support through this forum.
I still have a little bit of Ensure and Prosure left over, so if anyone could use them, please let me know.
Now I’m just facing the emptiness and those heavy, messy days ahead without him.


Please accept my sincerest condolences.
Do you think this will be making its way over to the States anytime soon?
Kimberly Green23 said:My stepfather unfortunately lost his battle today. If there is any solace to be found, it’s that he didn't suffer for long. We could spend our time debating whether he could have dug deeper to find the strength to keep fighting, but that isn't how it went; he simply lost the will to hold on and surrendered to fate. He wouldn't let us try to pull him back from that lethargy. I am deeply grateful to Melissa Kim45 and Linda Wright5 for their support, as well as the other women on this forum who helped us with their advice. I'll continue to follow along here, and if I can offer any helpful advice of my own, I certainly will.

Please accept my sincerest condolences.😢
slyseal28 said:It's heartbreaking... I just saw an article about it in the Free Press...

My dear friends, nothing is going to change unless we all raise our voices together. It isn't enough to have two or three people trying to stir up a storm. This requires a collective effort from everyone. I’m asking you, if you haven't already, please sign our petition and send it to the patient advocacy group's address.

When there are rallies or organized actions, show up. Bring your family, your friends—anyone you know. Real change only happens when we refuse to back down and keep insisting on it.


In my office alone (within my specific department), we've managed to collect about 100 signatures, and we aren't stopping there. Since it's a massive corporation (T-Mobile US), we expect to gather a huge amount of signatures.
Grace Fowler said:Hey everyone!!
Just checking in to let you know things are more or less status quo. We managed to sneak away to the coast for a few days, but about ten days later—bam. Everything went south. A fever hit, the lab results looked grim, and we rushed back to Chicago at lightning speed. We’ve had our consultations, and for now, the advice is... nothing. Just rest. Seriously? That’s their big medical breakthrough? Apparently, enough rest should theoretically calm my temperature, but honestly, I doubt it. So, I guess for the next few days, I’ll be playing the part of a decorative pillow, staring blankly at some mindless TV shows...

Fighters,
I really hope everything is going okay with the Pigeon and that you're all leading the charge toward a win.!!
Nancy Hernandez43, I'm keeping my fingers crossed that you're still holding strong!
Misice, I bet you're already tan as a dark chocolate bar by now...
Angela Wright, Zivaj, do it for me too
Greetings Din


Don't back down; I know you're going to come out on top.🙂
slyseal28 said:Dear Grace Fowler, sending you a huge hug!

Things have taken a turn for the worse here... and frankly, it’s much more complicated than we ever anticipated.

His blood work looks okay for the most part (leukocytes were at 8.9 today; it's just the erythrocytes, hemoglobin, and hematocrit that are running low, plus his liver enzymes are elevated as usual), and after the second round of Gemzar, we dealt with some minor fever issues, which we managed to knock down with a Voltaren suppository. However, over the last two days, his cough has intensified to the point where it irritates him so badly he ends up vomiting everything he eats. He didn't sleep a wink last night because of it, so first thing this morning, we headed to a private clinic—the Mayo Clinic—to get a chest and heart X-ray. Long story short, the results aren't good. The Radiologist actually looked at me and said, "As an old doctor, I have to tell you first that I am incredibly sorry." I nearly collapsed right there. Thank goodness the Pigeon was waiting outside and didn't hear that sentence. The Radiologist suspects pneumonia has set in... And the worst part? He's already on antibiotics...
Afterward, I took him over to the medical center downtown, and he had to be admitted. I spoke with the doctor, and she actually thinks it might not be pneumonia; she mentioned they compared his current scans to the previous ones and didn't see any significant changes. Instead, she believes we're seeing side effects from that first line of chemo—that miserable Adriamycin, which is known for being cardiotoxic.

We also had a cardiac ultrasound yesterday, and our cardiologist gave us a brief update, mentioning there are some changes to his heart valve... We won't get the full report and explanation until Monday. Regardless, the situation is grim.

He's been weak all week, getting exhausted incredibly fast... and he's struggling so much to breathe...

The absolute worst part is how hard this third line of chemo is hitting... what if we have to stop? If his heart is starting to fail, what are we supposed to do then??? Ugh... To hell with sarcoma! I hate it with everything in me!


I am so incredibly sorry things have turned this way. Your guy is a fighter and he isn't going down without a fight. Hang in there.👍
"I've heard those theories about how fasting can shrink cancer cells, so I'm curious to see what Vitamin C actually brings to the table."

My boyfriend was diagnosed with leukemia, and unfortunately, it was caught quite late. He managed to get things under control using that Brewster treatment (I might have misspelled the name), and now he’s out there hiking the Rocky Mountains, just walking around and keeping everything stable for the time being.
I'm hoping this Vitamin C approach yields some success as well.