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Posts by Zachary Howard2

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Betty Sanchez82 said:I feel so lost right now. I honestly have no idea who to turn to or how to even navigate this forum properly. My father was diagnosed with cancer last week. They mentioned his stomach is involved, but apparently, that isn't even the primary issue. There are metastases near his liver, and I am just desperate for any advice anyone might be able to offer. Please help.


From what I understand, if he undergoes surgery for his stomach, they will likely attempt to clear those metastases near the liver at the same time. Following that, chemotherapy will be the next step. It’s quite important that he starts taking some dietary supplements—something like high-quality propolis—to boost his immune system and act as a strong antioxidant. You can usually find these at a local pharmacy, maybe near $47, or you could order them through General Electric; I believe it’s actually a bit more cost-effective that way. His diet is also going to undergo a massive shift since he won't have a functioning stomach; they'll likely connect his esophagus directly to the small intestine, which means he'll need to stick to very light, soft foods initially (your doctors will give you specific instructions on that). I know receiving a diagnosis like this is an absolute shock to the system, but please try to stay strong. He’s going to need as much encouragement and support as you can provide. Try to maintain as much of a sense of normalcy as possible given the circumstances.
Wishing you all the best in this fight.
Has anyone heard anything from Grace Fowler lately? She’s completely vanished from the forum.
Alenka, rest in peace😢
My deepest condolences go out to Alenka's family.

I was nearly moved to tears yesterday after reading that article in The Washington Post. It really seems like human lives mean absolutely nothing to our Secretary. 👎
Angela Wright said:Read this and see the absolute disgrace of a Secretary of Health:

Who is going to take responsibility for this beautiful woman? Who will have the decency to look her family in the eye when they inevitably come looking for their vote during election season?☕
Absolutely disgusting.🙂

If this involved his own family or some high-ranking politician, you can bet that medication would have been approved in record time. Since there are so few people suffering from this specific disease, it’s clearly not worth the effort to get the drug added to the Medicare coverage list. To them, eight young lives aren't worth the administrative headache.
As long as the money keeps flowing to certain people—I mean, even professional athletes get paid millions of dollars without a second thought—they're happy.
Scum.😠
neonhound32 said:My mother was just diagnosed with bone cancer or possibly leukemia. It’s a devastating situation; she has lost a significant amount of weight, she's practically immobile, and quite frankly, she's lost all hope and her spirit is completely broken.
It’s been two months of endless running from one specialist to another, only for them to finally sit her down today and tell us exactly what we’re dealing with. Honestly, I'm in total shock. It’s been incredibly heavy, and I’m sitting here struggling to process everything—I don't even know if she's going to make it.
I stopped by the hospital to see her earlier today. I spent some time tidying up her space and made her a few sandwiches. She managed to finish about half of her yogurt, too.
Tomorrow, I’m heading in to have the bone marrow biopsied. Once we finally get the exact diagnosis on the specific type of cancer, the doctors will begin the actual treatment plan.
Does anyone have any experience with this? I’m just wondering if my mom is going to be okay.


A friend of my late mother is currently battling leukemia—I'm not entirely sure which specific type—but he’s been managing it for seven years now. He goes in for testing whenever necessary and has even undergone treatment with Flucytosine. Given that he’s also dealing with epilepsy on top of everything else, I have to say, he looks remarkably good and is holding up incredibly well. He’s truly showing a lot of courage.👍
Grace Fowler said:Hey there, fighters!!
I’ve been a bit MIA lately because I’ve been dealing with an acute bout of sciatica (and let me tell you, it hurts like hell). To make matters worse, the painkillers and injections haven't done much of anything. And just to keep things interesting, my fever spiked again to 101.7°F. My bloodwork shows a massive inflammatory response—CRP is sitting at 187.8 when it should be under 5—which points to some kind of infection. It doesn't look like my kidneys or bladder are the issue, but if things don't settle down by Monday despite the antibiotics, I'll have to head straight to surgery. Fingers crossed everything stabilizes...
Not exactly thrilled about this, but here we are:-)
Sjebana : Hang in there, I know you CAN do this!!!!!
Best, Dina

I'm hoping for some good news on Monday, just like everyone else. I deal with lumbar sciatica myself, so I truly understand how miserable this feels.
Keeping my fingers crossed for you. Stay strong.👍👍
Adam Myers22 said:My father passed away two days ago after suffering for 15 months. I want to thank everyone for their posts, especially Angela Wright.

KG, please accept my sincerest condolences😢. Your father is in a much better place now, and I hope there is some small comfort in knowing his suffering has finally ended. That was the only thing that helped me when my mother passed. Hang in there.
Brenda Walker58 said:I’ve been lurking on this forum for quite some time now, weighing whether or not I should actually contribute anything meaningful. It isn't exactly a comfort to realize how many people here are fighting battles remarkably similar to my own—it’s a heavy realization to know there are so many of us dealing with such devastating circumstances—but there is a certain relief in reading about others who are simply finding ways to push forward. So, here is my story.
About three years ago, my father underwent surgery for a renal cell carcinoma that had essentially taken over his entire left kidney. For three years, he went in for check-ups every six months, always arriving with all his paperwork ready—CT scans, blood work, the whole bit. Then, last year, around August, he started experiencing this vague, nagging pain in his right leg. It wasn't localized specifically, just a dull ache high up near the gluteal muscle. We spent four months cycling through various specialists before an ultrasound finally revealed a 12.5 x 8cm tumor on his sacrum—a recurrence of the renal cell carcinoma. And of course, that wasn't the end of the bad news. It turns out there are metastases in his lungs. He is doing okay for now, currently undergoing treatment with Sutent (one 30-tablet pack of 50mg doses costs around $0.00, and he's already on his third round). I find myself agreeing with someone else who posted previously: our healthcare system is fundamentally broken. This medication is technically covered, yet practically unreachable because the cost is astronomical. It really makes you wonder why we spend our entire lives working and paying into a system that fails us when it matters most. To make matters even more overwhelming, my mother is also ill. Just a month or two after Dad's diagnosis, she was diagnosed with breast cancer. She went straight into surgery and is currently navigating chemotherapy; she has her third session in a week. She's handling it relatively well—no vomiting, just the occasional headache and, naturally, some hair loss. On top of all that, my grandmother passed away two weeks ago. She was my rock, the person I leaned on through everything, and losing her has been devastating. Honestly, this whole situation feels like a prelude to something even harder.
I am not sharing all of this to vent or play the victim, though believe me, the urge is there. I just wanted to share my experience in case it offers any solace to someone else. I am not the type to throw in the towel, and I have no intention of giving up on my life, regardless of how chaotic things feel right now. We all navigate these tragedies in our own way, but I try to hold onto the thought that this, too, shall pass. That is my mantra in the midst of this madness.😉
Hang in there, everyone.


Best,
I am so sorry you're going through such a brutal stretch. I've walked a very similar path. Three years ago, I lost my father to a heart attack, my grandmother passed away last year, and just about a month ago, my mother passed from ovarian cancer.
It's incredibly difficult, but life doesn't stop moving.
Wishing you and your family strength in the fight ahead.👍
Elizabeth Diaz60 said:This heartbreaking Thursday, my dear mother passed away. She was only 49. It’s been nearly three years since her diagnosis (a glioma), and she had been immobile for this past year. She spent her final ten days in the hospital due to complications. Her condition fluctuated during her stay, and we truly held onto the hope that she might be able to come home.
She spent her entire life, including those difficult final years, surrounded by those who loved her most. Even in her final moments, she wasn't alone. My sister, my wife, my sister's partner, and I were all right there by her side. Just as she did throughout her whole life, she fought until the very end.
She was an extraordinary woman. She lived entirely for her family—for her children, her husband, and her parents. She always looked after us, never herself.
Thank you for everything, Mom!
You will live on through us and through our children forever.


My deepest condolences.😢
Amy Jones20 said:Hello,

Has anyone here actually tried using shiitake mushrooms as a supplement for cancer treatment?

We have breast cancer in the family, and I've heard about this Dr. Jakopović—I think that's his name—who advocates for mushroom therapy, claiming it's effective.

I’m really hoping to hear some firsthand experiences if anyone has them before we commit to this route, especially since one course of treatment costs roughly $1167 and you need several of them....


I bought some shiitake-based capsules for my mom once. They're marketed for immune support, antioxidants, and supposedly preventing tumor spread. A box runs about $230 or so, and if I recall correctly, it comes with 60 capsules. My neighbor actually splits her orders, so let me know if you want in on the next batch.
As for that doctor, I haven't heard of him, and frankly, I don't trust people like that.
Grace Fowler said:Hey everyone!
So, I’m back from my trip to New York City... honestly, I had an absolute blast. :-) But, because life clearly loves to throw me a curveball just when things are going too smoothly, I went in for my routine tests today ahead of tomorrow's follow-up. And well... total bummer. :-( Even though my ultrasound and chest X-ray results came back looking good, I picked up my tumor marker results at 6:00, and that one crucial number—the one we watch so closely—jumped from 29 last time (about two and a half months ago) all the way up to 70. Just great. I was absolutely livid at first, but now I’ve somewhat settled into a state of quiet resignation... I can't exactly stay in "angry mode" forever. I’m seeing my oncologist tomorrow to see what the verdict is. As I said, you can only be so furious before you run out of steam. I hope you're all staying brave and keeping up the fight. Sending my best to everyone; I'll check back in once I have more news.
Vasa Din

I'm glad you had such a wonderful trip, and try not to let those markers get to you—they tend to fluctuate. The most important thing is that your other scans look solid. You know as well as I do that markers can spike just from a simple infection or even a bad cold.
Good luck.👍
Melissa Kim45;14049016 said:Exactly. Funny how that works. 😁 How is your dad doing after the surgery? Keeping my fingers crossed for him. 🙂

...she’s actually begging people to come over and bring her some Lexapro. One person tells me about it, and then someone else actually shows up with it. Honestly, what kind of person is capable of bringing 3mg Lexapro to someone in the exact state my mother is currently in—physically and mentally? I ask her if what I'm providing isn't enough. It is. In the morning, I ask how she slept. She says fine. And then, suddenly, she becomes too much of a burden for everyone else, claiming she can't sleep and that nobody wants to help her. You can't say a single word to her without hearing, "You're always just mocking me." I'll grab my phone to call someone, and she'll snap, "They're going to take everything from me!"

My mother did very similar things when she was in the hospital. She would complain incessantly about the hospital food, and since we weren't allowed to bring anything from the outside (due to her stoma, or so the doctor said), she’d accuse us of starving her and call her friends to beg them to bring her beef stew with potatoes, candy, and whatnot. Fortunately, those women would always call me first to ask if they were allowed to. It was the same deal with medication; while she was taking her sleep aids and sedatives, she would plead with us to bring more, but when I told her she was already getting them via IV (because she saw it on the chart by her bed), she’d insist she couldn't sleep and so on. It was agonizing to stand my ground against her (my heart would just break; I wanted to give her everything) and then have to watch her afterward, looking like a toddler who didn't get their toy. She wanted that damn stew so badly, and for her own good, I refused to bring it. If I had known she would leave us so soon, I would have brought it just to fulfill that last craving, even if she only managed two bites. I don't think I'll ever be able to eat beef stew again.
It's all the illness talking. I know it's incredibly hard, but you'll get through this; humans are capable of enduring far more than they even realize. Do what you can to indulge her—within reason, of course (if she's not allowed Lexapro, then obviously not)—maybe regarding the TV or something similar. My mom used to nag me constantly, and now, I find myself missing it terribly.
Wishing you the best of luck.🙂
Nancy Hernandez43 said:I’m so sorry you’re going through this... but if it helps at all, you aren't alone in dealing with heavy illnesses hitting close to home.

My mother was diagnosed with ovarian cancer, and just a week later, my aunt’s mother-in-law traveled to be near us—since we're a small family spread across three different cities—and unfortunately, she suffered a massive double heart attack on the way. At one point, we genuinely didn't know which fire to fight first.

Once things finally settled down six months later, I found myself fighting a losing battle at my university against a professor who acted like a total monster, tearing into me even after I warned him that I was mentally fragile and still reeling from everything. That was when I finally opened up to my brother about how much I was struggling, since nobody at school was looking out for me. Around that same time, I found out through my mother’s specialist that I might have developed diabetes due to stress and poor lifestyle habits. I felt physically sick at the thought of having to tackle that on top of everything else. I started cutting out refined sugar gradually, and after three months, they confirmed I don't have diabetes, though I do need to stay strictly vigilant.

As if that wasn't enough drama... I've actually shared this before, but I'll say it again. My father ended up in the hospital on his own birthday. My mother thought he was just joking around when he woke her up saying he needed to go to the ER. It turns out, my mother was diagnosed with cancer on his birthday, so we always joke that she was "reborn" on that day. When he arrived at the hospital, the doctor couldn't believe he had driven himself there, especially since a five-minute trip took nearly half an hour because he was clearly in pre-infarct condition. To this day, they still aren't entirely sure what happened to him (it wasn't a full heart attack), though he does deal with high blood pressure.

Looking back on it all now—nobody is out to get us. It's just that life wears us down, and when we're already exhausted by our own struggles, it becomes even harder to process the fact that our loved ones are suffering too.

It will get better; you just have to try to keep a positive outlook.


I know things will improve. I am truly sorry you've had to endure such difficult circumstances.
My aunt and I were actually talking yesterday about everyone we've lost, and the timeline is pretty grim: my father passed away from a heart attack in 2005; my grandmother died of natural causes in February 2007; in the summer of 2007, my mother's brother's wife passed away from the same type of cancer my mother has; then in 2008, my mother passed away; and just a few days after her, her uncle passed, followed shortly by her other brother being diagnosed with cancer. I suppose that's enough for one lifetime.
Sorry, everyone—this is totally off-topic and probably doesn't belong in a space where people are actively fighting their battles. I hope that in time I can start thinking more positively, as I usually consider myself an optimist.
Angela Wright said:Things will get better eventually.

Sure, if we're lucky. I just wish they'd put a stop to all these deaths and illnesses first.
If I weren't so preoccupied with making sure my life doesn't get too "peaceful," I might actually have time to process this. Just a few days after my mother’s uncle passed away—heart failure, naturally—I gave his wife a call today just to check in. She dropped a bombshell: her son, my mom's cousin, was diagnosed with bladder cancer and has been stuck in the hospital for several days now. It honestly feels like someone is systematically picking off our family members one by one; it all started when my father passed away three years ago. At this rate, I’m left wondering who’s next on the list.😢
"Is it possible that people suffering this much subconsciously retreat into their own little world just to escape the pain?"

I honestly think both the anesthesia and the illness play a role; that’s what our doctor at the hospital in Long Resa told us. Over her final few days, my mother drifted into this state where she was barely conscious, and if she did speak, it was just a handful of words.
She passed away about a month after undergoing an incredibly grueling surgery—twelve hours under general anesthesia—and, truthfully, she just wasn't herself anymore once that was over.
It feels like a mercy, or perhaps a grace from God or just the body’s own survival instinct, allowing someone to drift away from reality. I’ll always be haunted by the question of whether she actually knew she was dying, or if she felt any fear. But there's no way to know now.
Please forgive my heaviness; it’s only been two weeks, and today happens to be Mother's Day, and she isn't here.🙂
Melissa Kim45;13941927 said:As far as everyone else is concerned, I have one message from the bottom of my heart:
To all those people who said things to my mother like, "Did you hear that little bird died? This little bird died because..."—and now comes the sentence I don't have the courage to even utter: "...because of cancer!"
Why on earth would you tell a woman battling a serious illness that someone else passed away from the very same disease she’s fighting?

I couldn't agree more. I never said things like that to my mom, nor did I ever let anyone else do it either. I didn't mention when a colleague's mother passed away from breast cancer, and I certainly didn't tell her about my friend's father whose brain cancer had spread everywhere. I focused solely on the positive examples. I'd tell her, "Look at Dina," (that was my way of bringing her up) and how she's been fighting for ten years straight. Or, "Look at my friend's dad," who was given six months to live with brain cancer but is still here ten years later (mentioning the survival without the grim details of the decline). Or, "Look at this friend" who beat breast cancer twenty years ago, while her husband has been battling leukemia for seven years. Those kinds of stories. Everything else is just completely inappropriate.
quietpilot87 said:Just a quick question—how do you all deal with malicious comments?
Most people aren't intentionally evil, but everyone reacts differently. Some people just seem to thrive on other people's misfortune, while others feel so much sympathy that they end up reacting clumsily.

The thought occurred to me recently after my mother ran into an acquaintance whose wife had passed away from cancer. Even though my mom is well into her recovery, he threw out a comment along the lines of, "Don't worry, you won't be around much longer either."

I mean, we’re all aware that people battling cancer aren't exactly living to see a hundred, but I think comments like that are a genuine psychological blow to the patient. Even if there's a grain of truth to them. Why do people lack basic decency? If they can't show it to themselves, they should at least show it to someone else. 😢

And what are you supposed to do in a situation like that? Keep in mind, these are entire social circles you used to be part of, and suddenly it feels like the best move is to just start avoiding them altogether.


My late mother used to handle nonsense (not quite this specific type, but nonsense nonetheless) by simply saying: "I don't even feel sick; it's like it isn't even happening," and she would spite the illness and the world by traveling everywhere and going to theaters and concerts. Unfortunately, she couldn't fully shake the disease, but at least she lived those two years to the fullest and fought until the very end. These crude individuals allow themselves to vent their frustrations because they lost a loved one, and frankly, you shouldn't have to give them any thought. Just keep moving forward with courage.👍
shadowmason6 said:Dr. Majerović was recommended by both Fiza (🙂) and myself, so I'm planning to get an appointment this week. My mom is still stuck at the Mayo Clinic because they couldn't perform her colonoscopy on Friday; apparently, her system wasn't cleared out enough. She has trouble holding onto enemas, so she’s spending the weekend drinking some sort of syrup that seems to be working better. Honestly, maybe that’s TMI...😁 I just hope they can pull it off tomorrow, because this whole fasting and waiting game is really starting to take a toll on her mental state.
On another note, I noticed some discussions on previous pages regarding anesthesia during colonoscopies. I know for a fact that patients in the States—and yes, I realize that’s a long way off, but I mention it only to point out that it’s a standard practice and that we aren't being treated like lab rats here—are routinely sedated for the procedure! No one at the hospital has even brought it up as an option.
Regarding the diagnosis, everything I know has been verbal so far. However, looking at her chart today, I saw Npl. colon desc. i. o. I assume nothing is definitive yet since we're still waiting on the biopsy results from the scope... I'm guessing "Npl." stands for neoplasm? That sounds significantly worse than adenoma, doesn't it? :-(


There’s an article at this link about Dr. Majerović saving a woman with an invasive tumor.
http://e-chicago.info/portal/vijesti/...kilograma.html
Wishing you all the best.🙂
shadowmason6 said:I can only imagine what you're going through. I barely even knew my own father; he passed away when I was only four, so my mother ended up being my entire world. Just the thought of potentially losing that one remaining pillar of support—it’s heavy.
I truly believe it takes time, and hopefully, the people who care about you will help you navigate this stretch. Lean on them right now and keep staying strong.
🙂


My nephew had his First Communion today, and it hit me harder than usual—that profound sense of missing my own parents. I know things are difficult for you; for me, my mom was everything during those three years following my dad's passing. It seems like these absences always feel most acute during the holidays (Christmas, Easter). This past Easter was particularly brutal for me because Mom was already doing quite poorly leading up to her surgery. It was easily the hardest Easter of my life.
We just have to find the strength to keep moving forward.
Sending a big hug.🙂