Amy Hayes28 said:Just send me what it says and I'll translate it for you.
Hey girl, everything good? I just sent you a DM.
4549 posts shown.
Amy Hayes28 said:Just send me what it says and I'll translate it for you.
Karen Fox36 said:Hi everyone,
I haven't posted in a while because my schedule has been absolutely slammed. It’s finally been confirmed that my mom has Glioblastoma IV 😢, but honestly, I don't have the luxury of sitting around crying; I need to channel every ounce of my energy into fighting this thing. I just need a little guidance. We managed to get some injections—specifically Iscador 0.1 and 2. We haven't started administering them yet, though, because the instructions are all in German and I only speak English🙄 Can anyone give me some advice on how to go about giving these to her?? I would be incredibly grateful. Also, my aunt is flying in from England soon and she's bringing a huge haul of supplements and stuff she tracked down at pharmacies over there that she heard might help (pineapple root tablets, shark cartilage, Q10, various oils, etc.)
I’ve honestly lost all faith in doctors lately. My husband is going through the exact same thing—over the last year, he’s developed at least 20 of those hard, fatty lumps all over his body. When he finally went to see a physician to ask about them, she basically just shrugged and said, "It’s nothing, do you want surgery or not?" It took everything I had just to convince him to go in the first place, especially since these aren't just tiny bumps; they are large, noticeable lumps that appeared incredibly fast. And her reaction was just that? Dismissive? Naturally, he isn't going back to her, but he hasn't seen anyone else either because he just doesn't know who to trust anymore.
Amanda White81 said:I’ve been struggling with my weight for quite a while now—the last few years have been a constant battle with being chronically underweight. Nothing seems to work to help me put on any actual mass. Every time I go to see my doctor, she just brushes me off like I should be thanking her; she acts as if I’m one of those girls dreaming of being thin... HELLO ???? I am anything but happy about this when I feel like a walking skeleton. I’m 5'6" and only weigh 99 pounds. She just tells me to eat more—as if that’s easy when I have zero appetite—and that's where the conversation ends.
So, about two months ago, they found a clear cyst on one of my ovaries, and my CA125 levels were up at 50. I went to a private clinic to get a full blood panel done—everything from biochemistry to hematology and a urinalysis—and took the results straight to my doctor to see if everything looked normal. She barely even gave them a glance. Barely. 😲 😲 So, when I finally confronted her about it—like, "Hey, what exactly does it mean that my sodium levels are low?"—she just looked at me and said, "Well, you clearly need to start eating more salt."🙄 And honestly? I have a massive salt habit.😕
Basically, no matter what I asked her, she just brushed it off like it was nothing—totally trivial. But there are six different things flagged in my lab results that clearly aren't right. I actually asked her for a referral (to some specialist, I don't even know where) just to rule out parasites or something similar, since someone mentioned that could be the culprit behind my lack of appetite and weight loss. Instead of actually listening, she immediately just scribbled me a prescription for Pfizer.😲 😲 Why would I even bother watching that? I’m just here to take my pills... I mean, HELLO ????
I’m looking for recommendations for a solid GP—someone who actually takes the time to listen. I need a doctor who won't just brush me off, but will sit down, hear out my health concerns, and have a real conversation about what's going on. If you know someone like that, please let me know. It isn’t about the money. I just want to hear a damn intelligent explanation, an actual opinion, or some kind of useful suggestion, because her constant dismissiveness is driving me absolutely insane. If she wasn't such a nightmare to deal with, I wouldn't feel like a walking skeleton, especially since my lab results are actually looking fine.
I really need some help here—I’m honestly spiraling. My gynecologist is telling me I need surgery to remove a cyst, but given how thin I already am, I’m terrified. I’m scared that going through this is just going to make me lose even more weight...
🙂
Thanks in advance! 🙏
electricpanther17 said:I wasn't anemic either—and I’ve already seen a neurologist, who confirmed everything is perfectly fine from a neurological standpoint.
crimsonmason44 said:God really gave you a unique gift—that knack for comfort and encouragement that helps me and so many others who are struggling..
Amy Hayes28 said:Why the pain? Why the loss of consciousness??
I’m honestly at my breaking point here.😠
I don't know what you want from me. If you have something to say, just say it. Stop wasting everyone's time with one-word posts. kaže:
Greetings to all you fighters!
I honestly want to thank you all for the compassion I’ve found here. I read your posts with a heavy heart, feeling like I'm right there with you in every moment. But lately, I’ve been burying myself in work just to stay afloat—running away from this grief and pain that hits me harder every single day. In those first few weeks, we were running on pure adrenaline and survival instinct. We managed to hold it together through sheer willpower, but now that initial shock has worn off, and everything is becoming increasingly difficult. I don't know if this is how it's supposed to feel. It's like the reality is finally sinking in—that he isn't here anymore. There are moments where I catch myself starting to say something to him, only to be slammed by the realization that he's gone. It’s a crushing wave every single time. I can't even wrap my head around the fact that he's truly gone. And then there’s that senseless question: Why him? During his illness, I never once wasted my energy asking "why." I didn't have the capacity for it. But now, I find myself feeling this simmering anger—anger at the sickness, and anger that he had to leave us. There aren't enough words in the English language to describe this emptiness. I feel like I might never actually accept the truth of his passing. As you can tell, I can't even bring myself to use the word "died."
I want to thank everyone here for being part of this, and especially those who had the guts to get this whole thing off the ground. I’m sharing some of my most private thoughts with you all right now... it honestly feels like you're the only ones who actually get me. To everyone else out there, I put on a brave face. People tell me all the time how strong I am, how well I'm handling everything, and how much I've got it together. But that's just the act. In reality, I'm falling apart behind closed doors—waking up in tears and going to bed in tears.
brightgardener8 said:Angela Wright, did you get some rest? How's your dad holding up without you around?
Peter Thomas23 said:So, I decided to take my blood work results down to the doctor, and let me tell you—the second I sat down in that chair, I knew exactly what was coming. It’s always the same story with her. She doesn't mince words, either. She looks me straight in the eye and tells me, "You're eating like there's no tomorrow." And when I asked if things were actually as dire as she was making them sound? She basically told me that while it isn't an immediate crisis, if she told me everything was fine, I’d just go right back to my old habits anyway. The breakdown is simple: my triglycerides are through the roof, which basically means my liver can't process the junk I'm shoving into it, and as a result, my liver enzymes are spiked. My reading hit 51, even though the limit is supposed to be 48. So, she’s officially put me on a three-month ban from pretty much everything I actually enjoy eating. Dammit. She also dropped a bit of perspective, mentioning that there are people out there walking around with cholesterol levels at 12, so apparently, I'm not the worst case scenario. Still, the lesson learned is this: it's worth getting your blood checked at least once a year. Up until now, I was lazy and only went every two years, but from here on out, I'm doing it annually. No excuses.
And here’s the kicker... they tell me if I just stick to a healthy diet, everything will go back to being "normal." Yeah, right. As if losing another 45 pounds is just going to happen overnight. Honestly, screw that. I’ve got plenty of work to do before next summer rolls around.
Just figured I’d throw this out there—might be useful for someone.
Carol Sanchez2 said:So what exactly is a PET/CT scan? I actually went in for a mole checkup the other day since I have quite a few, and my dermatologist flagged a couple of them for monitoring. She just looked at them, so I don't really get how she can tell if something is bad just by looking. Shouldn't there be some kind of lab test or deeper screening?
Elizabeth Gonzalez55 said:Hello to all the brave souls on this forum.
My partner is only 24, and he’s been living with melanoma for five years now. We honestly thought surgery had settled everything; we had such big plans for our future, but then a PET/CT scan two weeks ago showed metastases in the lymph nodes.
Even though I've spent these past few years living in constant fear of a result like this—knowing deep down this scenario was always a possibility—I still can't wrap my head around it. My entire world just flipped upside down in an instant. Nothing feels the same anymore; even colors and sounds feel different. Nothing.
The only thing keeping me going, the reason I get out of bed every single morning, is this tiny sliver of hope: the belief that he might actually be the one to beat those stupidly small positive statistics. And I am going to do absolutely everything in my power to help make that happen. That’s why I’m here—I want to hear about everyone's experiences, any advice, or useful info. Anything at all that can help, especially if anyone has specific insights regarding malignant melanoma.
Starting today, I’m going to go back and read this thread from the very first post; I’m sure a lot of valuable things have already been shared.
electricgardener14 said:Hi everyone,
my husband is finally coming home tomorrow after finishing his fourth round of chemo. His blood work is an absolute disaster—he’s pale as a ghost, weak, and just completely wiped out. I am desperate for any advice on how to get his blood counts back up and how to fix his digestion, because he's really struggling there too. All these medications they have him on are just causing terrible constipation.
Hang in there, everyone,
electricgardener14
crimsonmason44 said:Hey everyone!
First off, my heart goes out to anyone here dealing with the loss of a loved one..😢
To lighten things up a bit, we finally have some actual good news. My dad went in for his scans last week after finishing two rounds of chemo (he was diagnosed with lung adenocarcinoma and brain metastases, which were operated on in early July; the initial prognosis was only 3-6 months)
And... the results are incredible. His brain looks clear, no metastases, and the lung scans show absolutely nothing—it’s like the shadows just vanished..🤷 It all feels surreal right now, but I know I have to hold onto this hope..🙄 Since miracles really can happen!! But I am stuck on one thing: if the scans look this good, why does he still have to go through more chemo?!
The doctor said we should be extremely pleased, but he didn't call it a miracle; Dad still has two more cycles of chemotherapy to complete.. What do you all think about this situation?! Obviously, I’m beyond happy, and this gives us the strength to keep fighting, but I'm also pretty confused..🤷
Hang in there, everyone. Stay strong.👍
Grace Fowler said:Hey everyone!!
Just checking in quickly from Germany, where I've started my three-week immunotherapy round (those last six chemo sessions absolutely wrecked me). Everything seems fine so far... honestly, the level of patient care here is worlds apart from what we deal with back home. My doctor was really pleased with how I'm responding, so fingers crossed my next update is even better news. I want you all to know that even though I'm fighting my own battle, I'm right there with you in spirit, rooting for you in those selfless struggles you face for your loved ones. For me, this forum feels like—"Good morning, I'm heading out to grab coffee with friends." Thanks for everything. Grace
Elizabeth Collins60 said:My dear friends, I’m feeling a little lost here... unfortunately, we’ve lost another one to this cruel disease. My dad passed away this past Sunday, October 21st, at 1:30 PM. The tears just won't stop falling; honestly, I still haven't wrapped my head around the fact that he’s gone and I won't see him again. I can't stop picturing him lying helpless in bed—that's not how I want to remember him. In my mind, he’s always out there in his stroller with our dog, just wandering through town while we grab a coffee. We have so many shared memories, so many beautiful moments, and it feels like he's still living inside me... even though every day gets harder and harder. But I don't regret anything. I gave him everything I had, staying by his side until the very end, and now I’m looking after Mom day and night. He was special, we had such a unique bond, and I was always his "little snowflake."