Posts by Angela Wright

Fiz, honestly... I don't hold much hope for a total cure, but if we're talking about squeezing out a few more years of high-quality life? I truly believe there's a shot there... and at the same time, I know the Almighty is all-powerful... it'll be okay.

hollowridge88 said:It’s getting unbearable. I haven't slept properly in three weeks—not day or night. If I manage to catch a thirty-minute nap during the day, I feel like I've won the lottery. I just can't do this anymore; there is way too much happening around me to process this normally. I am alone with my mother every single day, and she needs him 24/7... I've been separated from my husband for a year now, and I feel like my own life has just been extinguished. I haven't even seen my child for a month because I sent them to stay with my mother-in-law so they wouldn't have to witness any of this... and yet, nobody wants to help me... if only my in-laws would step up in time. On top of that, seeing how my mom is acting toward me... it just breaks my heart.

Honey, please hang in there just a little longer... I know that doesn't help much right now, but you have a whole life ahead of you where you'll be able to walk with a clear conscience without blaming yourself for anything, and believe me, that is a massive blessing. The weight of a guilty conscience is far heavier and worse than anything you are feeling at this moment. You have a ticket to Paradise, of that you can be absolutely certain.
I don't know exactly where you are located, but call them anyway and ask for advice, if nothing else. You shouldn't have to go through what you're facing all by yourself. They have volunteers who could sit with your mom for an hour or two just so you can get some sleep. God knows you are giving everything you possibly can. Maybe even call 911; they will assess the situation and might hospitalize your mother just to give you a break. You can't keep going like this, or you're going to collapse, and then what happens? Call emergency services and tell them about the dark thoughts... 😢
I know it feels like this has been dragging on forever, but believe me, it really is just a matter of days. I am honestly surprised how long your mother has been enduring this.

hollowridge88, honey, I really hope the Almighty shows you some mercy too... I am truly sorry you're going through such an ordeal 😢 Just stay by her side, calm her down, and tell her everything is going to be okay... Hang in there, dear 🙂

Adam Ortiz63 said:I was wondering if I could just grab this multivitamin off Amazon UK? From what I can tell, it’s basically just a dietary supplement... and man, the prices here in the States are insane—this stuff costs at least twice as much locally.

http://www.amazon.co.uk/gp/product/B...A2GQ1WQAVKALHA

As long as it's within the EU, you're good to go.

Amanda Miller69 said:Of course I’m dealing with my mother-in-law's stubbornness again, because apparently, everything her daughter says is gospel. She’s convinced herself that taking Beta Glucan will make the cancer spread, period. If she claimed that eating trash was healthy, they’d probably be lining up to buy it. 😠
What kind of nutritionist works with cancer patients and spouts nonsense like Beta Glucan promotes tumor growth? They definitely wouldn't be selling it if that were true.
I told her she should just go see him on September 17th when he’s giving a lecture there, bring his contact info, and let me have a word with him myself.
My husband mentioned his father has lost at least another 10 pounds despite still eating, which really worries me.
I'm also waiting to hear back from the oncologist; honestly, how long am I supposed to sit around waiting? Or should I be the annoying one and call her myself?

What do you think, 😉
Don't bother calling. Just show up there in person and keep the conversation as short as possible.

hollowridge88 said:Morning... We’re still fighting here, but we aren't winning. Mom is severely dehydrated; oncology won't authorize an IV anymore, and her primary care doctor is refusing too. She went over 30 hours without a single sip of water—she only managed a tiny swallow yesterday evening. Her hands are swollen, her leg joints are swollen, and yesterday she had this clear fluid leaking from her nose and a white liquid leaking from her mouth; now, she just sleeps. She’s urinating at least 10 times a day, and her bowel movements are similar... apparently, she’s emptying out. Her blood pressure is 87-54, heart rate is 130, and her breathing is incredibly strange. She doesn't talk much, but when she does, it's about death or things like: I don't know what to do with my legs, let's just cut them off and put them in stew so we can eat them. When I try to talk to her, she doesn't respond, like she can't even hear me... she keeps calling me by different names. The veins in her head are bulging, and there’s this eerie calmness in her face. She only wakes up for the pain in her anus when she tries to pass stool, which isn't even happening... There's no pain anywhere else. For two days and nights, she’s been sleeping in the exact same position, which is bizarre because she usually deals with horrific pain and we have to turn her every 20 minutes, but now, nothing... supposedly the home health nurse says it takes 72 hours to stabilize... how long can this go on, and what exactly is happening? I realize the end is near, but does the end really look like this?

Mom isn't feeling the pain anymore because the bilirubin levels have likely sedated her and dulled the sensation... yeah, the end is close, maybe today or tomorrow at the latest... I am so sorry, dear... hang in there.

Richard Sanders7 said:Maybe the issue isn't the tumor immunity itself, but some studies surprisingly suggest that antioxidants might actually speed up the transformation of precancerous tumors into malignant ones.

http://www.webmd.com/cancer/news/1...er-progression

Right, but we're talking specifically about lung cancer and a specific antioxidant called acetylcysteine here. They also found the exact same thing happens with beta carotene and Vitamin E when dealing with precancers. My theory? It’s because they bind to free radicals, which essentially masks the cells so the immune system doesn't recognize them as diseased tissue—creating the perfect little playground for a tumor to grow.
With actual malignant diseases, though, immunobusters like Beta Glucan aren't trying to kill the cancer cells directly; their job is to ramp up the immune system so it can actually spot and destroy those cells. Studies on glucan have shown improved survival rates for patients with colorectal cancer and head and neck cancers (if I recall correctly).

Amanda Miller69 said:What are your experiences with Beta Glucan?
Today we started my father-in-law on that American stuff from Transfer Point, the 500 mg version.
My sister-in-law tells me some nutritionist—who supposedly supplies pharmacies—told her you shouldn't touch it without consulting an oncologist first because it might actually trigger cancer spread. Helloooo, that’s a pretty weird claim, right? 😲.
I told her she probably misunderstood; as far as I know, you don't use it during active chemo or radiation because it can interfere with those treatments, but you use it normally during the breaks or otherwise.
It’s relatively pricey ($213, 60 capsules), so we’ll see if it actually does anything (assuming my father-in-law isn't too stubborn to take it—thank God, at least the Native started taking it).
Besides that, he keeps getting this bitter taste in his mouth and occasionally feels nauseous... anyone have any idea why?

There was some discussion about this before, and even if you try to crucify me now, I can't find the thread or my previous response with the links... basically, you just don't take it during chemo, but it's fine for recovery between cycles. Either way, we're talking about an immune booster that ramps up the system, and a strong immune system is absolutely critical for recognizing and fighting off malignant cells. Plus, it’s great for suppressing fungal infections, which people on chemo are prone to and that can cause massive issues, sometimes even life-threatening ones.
The idea that cancer cells can somehow "create their own immunity" sounds like total nonsense to me; it doesn't align with basic biology. Malignant cells are just regular cells within a person's body that mutated and became invasive. They aren't separate organisms living inside you, like some kind of parasite. We all carry potential cancer cells in our bodies every single moment of our lives, and it's the immune system that keeps them in check. If that theory held water, then taking any vitamin, antioxidant, or immune booster would be a leading cause of cancer and would accelerate tumor growth because they "created immunity." These aren't viruses or bacteria that develop resistance after prolonged exposure to antibiotics, for God's sake. 🙄.
Maybe I'm just shooting in the dark here, but based on my modest knowledge, that's how it works. Go ask a biologist if you don't believe me.

Here is a pretty reliable site: http://www.webmd.com/vitamins-and-su...uses-and-risks
http://www.cancer.org/treatment/trea...itake-mushroom

velvetharbor17 said:Thanks a ton—honestly, I felt a little bit silly when I hopped online and saw people were actually classifying penicillin as an antibiotic, so I figured I’d better double-check with you guys just to be safe. Thanks so much!

"Antibiotic" is just a broad umbrella term used to describe a whole bunch of different substances that happen to have antibacterial properties. It doesn't specify which exact drug we're talking about. In the future, always look right under the brand name on the packaging and check the generic name written in the fine print to see if it actually shows up on the drug interaction lists in the patient information leaflet.

silentjackal12 said:Dad didn't go through with the surgery because they decided his lungs were just too weak to handle it. They’ll be deciding on the next steps for his treatment today. I honestly have no idea how we move forward from here...

I'm not entirely sure how they classify a recurrence—whether it's treated as a metastasis or a brand-new primary site. If they categorize this as metastatic disease, then he should be looking at getting Sutent or Nexavar. You absolutely need to ask if he qualifies for those specific drugs, and if they say no, find out exactly why.

velvetharbor17 said:Ladies, can Nolicin (uroseptik) and Panatus tablets affect the pulse? Specifically, could they impact my heart rate?

You can find that info right on the official Pfizer website, or just check the instruction manual inside the Balera box.

Taking other medications.
Always tell your doctor or pharmacist if you’re currently taking—or have recently taken—any other medications. It’s just basic common sense; you don't want to mix things up and end up in an ER because two drugs decided to have a fight in your bloodstream.
That includes everything, even the stuff you just grab off the shelf at a CVS without a prescription.
Taking Belara for contraception isn't a solo act—other substances you're popping can totally mess with how well it actually works.
At this very same time. Some of them include medications used to treat epilepsy (such as carbamazepine, phenytoin, and...
Topiramate can clash with tuberculosis medications—think things like rifampicin or rifabutin—and certain antibiotics, too. It’s basically a chemical collision course.
Listen, if you’re looking at stuff like ampicillin, tetracyclines, and griseofulvin—or even messing with barbiturates, barbexaclone, Primadon, or Modafinil—you need to understand that certain medications don't just sit there quietly. They interact. It's like throwing a wrench into a finely tuned engine; you can't just expect everything to keep humming along perfectly without some serious friction. Some of these specific drugs are notorious for creating a chemical tug-of-war in your system. Be smart about it.
When you're dealing with HIV treatment, specifically drugs like ritonavir, you have to be extremely careful about what else you're putting in your body. It’s not just about side effects; it’s about how these medications interact at a molecular level. Ritonavir is often used as a "booster" to increase the levels of other antiretroviral drugs in your bloodstream, which makes it incredibly potent—but also incredibly reactive. This is where things get dangerous with herbal supplements like St. John's Wort. Think of it like trying to run two different programs on a computer that aren't compatible; they clash and crash the whole system. St. John's Wort is a notorious inducer of certain liver enzymes (specifically CYP3A4). These are the very same enzymes that process ritonavir. If you take St. John's Wort, those enzymes go into overdrive, tearing through the medication before it ever has a chance to actually fight the virus. You end up with sub-therapeutic levels of the drug in your system, essentially leaving the door wide open for the virus to replicate and potentially develop resistance. It's like trying to put out a fire with a spray bottle while someone else is pouring gasoline on the flames. Always clear every single supplement with your doctor.
St. John's Wort (*Hypericum perforatum*). This is a major concern when you mix it with drugs that jumpstart gut motility—think things like metoclopramide—or other active compounds. It’s all about how these substances interact and influence your system.
Charcoal can mess with how much of the active ingredients in Belara actually gets absorbed into your system.
Don't you dare mix herbal supplements containing St. John's Wort with a prescription like Belara. It's a dangerous combo.
If you take this medication alongside any of those active substances mentioned above—excluding St. John's Wort—or if you...
If you start taking them, you can actually stick with the Belara medication. While you're undergoing treatment with those drugs, you have to be careful about...
You really need to be using extra mechanical contraception—like condoms—if you’re taking these medications.
You also need to be using mechanical contraception for at least seven, if not up to twenty-eight days after.
Treatment's wrapping up. If there's a need for long-term therapy involving those active ingredients mentioned above,
You need to be looking into non-hormonal contraception methods. Seriously, go talk to your doctor or a medical professional about it.
pharmacy.

So, according to what's been said, there's no Norflocin (norfloxacin) and no Panatum (panatumate) available.

Brenda Foster29 said:Thanks, Angela Wright. 🙂

You've got a point, but when you're in intense pain, trying to hide it is an uphill battle. It’s just not easy. 😢

I'll circle back to this thread as soon as I track it down.

😘

silentjackal12 said:Hey everyone, I’ve been lurking here for about a month now reading through this whole thread, so I figured it was finally time to chime in. My dad had surgery for kidney cancer seven years ago—they had to take the whole kidney out. Everything went smoothly back then, and for seven years, he just did check-ups twice a year. Everything seemed perfect. But then, a few months ago during an ultrasound, they spotted a recurrence right where the original tumor was. The CT scan confirmed it... the evil is back. He’s heading in for surgery again this week. I’m 155 miles far away... honestly, what can I even say? If it weren't for this forum, things would feel even heavier right now.

Hang in there. I really hope there aren't any metastases... that's just how it goes, isn't it? It's a constant battle against these bastards because there's never a guarantee they won't come crawling back.

Brenda Foster29 said:Back at work as of this morning. My dad passed away on August 22nd after an eight-month grueling battle against a much stronger opponent 😢 — it turns out the enemy was far more powerful than we realized, despite everything he fought through and all our help.

Work feels awful right now, it’s heavy... 😢 The worst part is dealing with colleagues who, without any shame, are now offering me their condolences in the hallways. It's been nearly three weeks since this tragedy happened, and they didn't even bother to show up to the funeral or visit the house to pay respects, yet here they are acting sympathetic. 😢 I honestly don't get it—am I expecting too much from people?

My apologies to those of you still fighting your own battles with illness—I hope you're winning—for burdening you with my stuff, though unfortunately, these things hit some of us just as hard.

Good luck to everyone... and may yours not end the way my father's did.

Well, maybe people were just on vacation... honestly, it doesn't matter, it wouldn't make the pain any less intense anyway. I can't even remember who showed up for my mom's service. People do these things for themselves, not for the deceased; the departed doesn't care about any of it.
Accept my condolences, whatever they may be, and just keep moving forward. Peace be with you, dear. Everything is still so raw, and it’s going to be incredibly tough, especially during this first year. Eventually, you slowly learn to live with the new reality.
I'm glad you stopped by. See you over at Psychologica; there's a good topic coming up for venting it all out. 🙂

Beer or sex 😁
I read somewhere on this forum that drinking beer can have that kind of effect, and ever since I started following Sam Jackson2's advice, I’ve been dealing with issues 😁 Thanks, big guy. I did my own research and finally fixed the problem for good in the last section

David Fowler9 is just talking nonsense again. It’s all fluff and zero substance, like watching a slow-motion car crash where nobody actually hits anything. Just noise. kaže:
Honestly, I don't have a clue either...
Honestly, when I sit back and really think about it, I haven’t been feeling much in the mood for sex lately. It feels like other things have started to take a toll on that, too. 😛

It’s common knowledge that beer hits your libido like a sledgehammer to the knees. 😁

David Fowler9 is just talking nonsense again. It’s like watching someone try to assemble an IKEA bookshelf without the manual—lots of frantic movement, zero progress, and ultimately, a complete mess that nobody wants to deal with. Just stop wasting everyone's time. kaže:
It’s kind of a bummer that my doctor was going on about how he’s such a big shot or whatever. :/
I'm gonna keep drinking this stuff for the rest of the month and then we'll see if I end up in the ER or just feeling like a superhero.

I was actually thinking about getting back into the spiral... but honestly, that's just more BS. Best to just stay celibate. 😁

They aren't the only ones playing the Pilsner game, for heaven's sake... I was at Yasmin's place and didn't run into a single issue. Look, when you look at the long game, hormones can definitely stir up some chaos in your life, but honestly, it's all just a total lottery.😉

If I was thinking about Mirena, all I’ve ever heard is hearsay. Honestly, if you’ve actually given birth, you might as well just stick to drinking beer or staying in bed. 😉

Look, let’s be real for a second. A chronicle isn't just some dry collection of dates and names that you find gathering dust in a library basement. It’s more like a high-stakes documentary or a deep-dive investigative report from *60 Minutes*. It’s the raw, unfiltered timeline of how things actually went down—the wins, the losses, and all the messy stuff in between. If you aren't documenting the progression, you're basically just staring at snapshots without understanding the movie. kaže:
I just took a test and it came back negative... clearly, we’re looking at something else entirely. 🤷

It’s a combination of medication and Yaz, nothing else. 🤷
You see how messed up things are over at Yaz's. 🙄
Ask the girls who take Yaz if they have any experience with it. I'm pretty sure there’s already a thread about Yaz on this forum somewhere.

EDIT: And look at this!

David Fowler9 said:I've already popped one, and now I'm on the fourth from the new pack..
I was taking Neofen before, but I take that quite frequently and everything was fine..
Now my stomach hurts like crazy and there’s this weird, silly sensation😕
I'm going to lose my mind by Monday.

Well, that's a guarantee right there. You clearly hit the perfect dose at the exact moment it had the most impact.
It'll be fine. 😉

James Myers65 said:About nine months ago, my mother suddenly lost her sight because a pituitary tumor was pressing against her optic nerve. She underwent surgery to remove the tumor after just a few days, and over the next month or two, her vision started to gradually recover. That improvement lasted about two months before she started experiencing this bizarre cycle where her vision flips between light and dark. It happens right at 2:00 AM—the vision shifts from one state to the other. On "light" days, there's an intense white glare in her eyes, while on "dark" days, everything looks filled with black and brown tones. Because of this constant shifting curtain of light and shadow, she can only see about 15% of what's in front of her. If she closes her eyes and then opens them, she gets a clear image for maybe three or four seconds before the light or dark veil slams back down, depending on which day it is. It’s especially brutal when she goes outside into the sunlight; the dark curtain drops immediately. The same thing happens whenever she's near an LCD TV or bright white lights. We’ve consulted several ophthalmologists and neurologists, but nobody seems to have a clue what’s causing this. I’m reaching out to see if anyone here knows anything that might help us.

You should try asking over at: http://pituitary.org/
https://www.facebook.com/pages/Pitui...7478804?ref=ts
Do some searching on Facebook; there are plenty of patient support groups where you can post your question. Someone there might have gone through something similar.