brightviper22 said:Can you describe those episodes? I had two in two years, both for good reason. The first was after a breakup—I hadn't eaten or slept for weeks, just cried constantly. My entire routine was trashed, and then I went to take three finals in one day😲. Naturally, I didn't pass the first one because I blacked out and started seizing. Ended up in the ER on an IV, got brain scans, and then sent home. Then there was the second time; I hadn't slept, and I ended up taking eight 400mg Seroquel pills—that's 3200mg. Instead of passing out, my grandma woke me up and I was just completely drained. Total shutdown. One minute I'm at the emergency room, the next I've got knots on my head from hitting the radiator and my heart racing at 150 BPM. Honestly, it doesn't even feel like epilepsy to me. More like a total brain power-down. I tend to push my body past its limit, so maybe that's just how it shuts off. My labs aren't great either, but I can say the anti-epileptic helps. It calms me down and helps me sleep better. Starting tomorrow, I'll be taking two 🙂
And then there's the other thing. Every once in a while, when I'm exhausted, I get these tremors. Like a bolt of lightning hits me. I'll be walking on flat ground and almost collapse because everything flashes white for a split second🤷
Mine are kind of like derealization, but not quite. Not sure how to best describe it, so I'll just tell you what happened the other day.
I worked from 7:30 to 4:00. Took my last Xanax at 1:00 PM and stayed awake until about 1:00 AM. I couldn't even follow a show (was watching Family Guy, nothing that needs heavy focus), just some random junk with subtitles. My brain literally just turned off. Like falling asleep with your eyes open. It only lasts a second, so I don't fall on the floor or anything like that, which is why my epi is considered mild. Afterward, though, my coordination is shot, and sound and vision get all distorted—like I'm seeing and hearing through a tunnel. I'm aware of everything, but also... not. Time stops feeling linear; it’s more like being stuck in one terrible moment. And it lingers for a bit, you know?
Now, the recent stuff might be fatigue, but sometimes it happens in the middle of the day for no reason at all. Tired, well-rested, hungry, full, happy, pissed off—doesn't matter. Ever since I started the meds, it happens way, way, way less often.
Glad the anti-epileptic is helping you; it's been a lifesaver for me.
restlesstrucker15 said:I was wondering, if I'm prescribed this for those other issues, does it cause heavy sedation by the second day? For my current condition, they suggest taking 10 or 25 before bed. The problem is that by the next day, I struggle with anything that causes drowsiness; I just couldn't adjust to it with things like Xanax or Seroquel. If it does cause sedation, does that eventually wear off after a while?
Man, 😢 I wasn't aware you both dealt with epilepsy. It isn't easy, though it seems you both have things under control. 😉
Skickas FR
It doesn't make me feel drugged, at least not personally. I take mine at night, and yeah, getting out of bed in the morning is a struggle, but honestly, that’s just how my body works. It takes me a good few minutes to actually feel human once I'm up. I don't feel loopy or high or anything like that.
Sure, it might bug you at first—my doctor gave me a heads-up about that—but it usually settles down after a week or two. As for me, I didn't feel any of that initial fuzziness at all.