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Psoriasis [PLEASE READ FIRST POST!]

Started by mistybear4 · · 👁 21 views · 2.3K replies

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goldenstag213 goldenstag213 Member
32 messages
joined Jan 2007
#2221 ·
Hey everyone!

I haven’t posted since I started using the Psorex cream and the Life Honey, so I figured I should check back in and share my results with you all.
To be precise, I followed the instructions exactly until ten days ago, making it a total of 35 days.
The cream has a really heavy petroleum smell, which isn't ideal because no matter how many times you wash, you just can't shake that oily scent. The honey is perfectly fine, though, and easy enough to consume.
During the first ten days, my psoriasis actually seemed to flare up slightly, but after that, the patches flattened out completely and leveled with my skin; however, some redness still lingers. Now that I've finished—mostly because summer is here and it's a hassle to only wash every three days, not to mention the rule about avoiding direct sunlight while using the cream—I honestly feel like if I had pushed through for another month, I would have been totally clear. My skin felt incredibly smooth and soft, and the redness had definitely faded.
I went swimming and sunbathing twice, which actually seemed to boost the effect even more. I still have some spots, but they are barely noticeable now; from about a yard away, it looks like there's nothing there at all.
Since it's summer, I'm just going to stick to swimming, tanning, and using olive oil, but as soon as the season ends, I'll be starting back up with the Psorex and the Life Honey.
Shout out to silentheron25—I hope things are going okay on your end too. Sending my best to all my "colleagues" dealing with this condition. HANG IN THERE; better days are coming for us (sunshine and the beach!). And hey, if any of you ever find yourselves vacationing in California, let me know so we can grab a drink!👍👍👍
goldenstag213 goldenstag213 Member
32 messages
joined Jan 2007
#2222 ·
Michael Myers11 said:I honestly thought I’d get some actual answers to my two questions from this community...
but clearly, I was just being optimistic...(apparently)
I laid out two specific questions and not a single soul—and I mean absolutely nobody—has bothered to step up and help me out. Based on what I read when I first joined this forum, I had this naive impression that everyone here looks out for one another, but it seems I’m the exception to the rule.
It doesn't matter, though; I'll just have to figure this out on my own, and I suppose I should say THANKS AGAIN for the lack of assistance.

Real classy behavior...👎👎👎👎

Sandra Gomez56, please forgive me for not providing the number yet; I will absolutely post it by tomorrow, or if you prefer, I can send it via private message... My apologies once again...

Michael Myers11,
there is no need to lose your temper quite yet; as silentheron25 pointed out, it is highly likely that no one actually has the answers you're looking for.
However, I did happen to watch a documentary regarding snake venom and its effects on psoriasis, and I know they are currently in the testing phases. The hope is that a minute amount of a specific type of venom, administered via subcutaneous injection, could completely reverse the skin changes caused by psoriasis. But again, I must emphasize that this is strictly in the research stage, which means it won't hit the market for at least several more years. As for that Topisolon cream, I did a little digging online for you; you can find it in Canada or throughout the European Union, and you might even be able to order it online. A 30g tube goes for about $22, but as for whether it actually works, I can't say for sure—it looks like you might have to wait and see.
I hope that provides some clarity!🙂
silentheron25 silentheron25 Newcomer
5 messages
joined May 2007
#2223 ·
You really need to keep applying it for a bit longer. Once things settle down and your skin smooths out, it’ll likely clear up for good. My own issues vanished completely the first time I used Psorex. Mine isn't perfectly clear yet, though—it's been pretty gloomy lately, raining all day today, so I can't even get out to the beach, which puts me a bit behind on my routine. It'll probably improve soon, though. Also, the ointment doesn't have that heavy petroleum smell; it smells more like herbs, even if I can't pick up the scent as strongly anymore. As for that guy, it would be a stroke of luck if we could finally track him down. Cheers everyone, hope you're all doing as well as can be expected.
Aaron Anderson5 Aaron Anderson5 Newcomer
2 messages
joined Apr 2009
#2224 ·
goldenstag213;14459364 said:Hey everyone!

I haven't posted since I started using the Psorex cream along with Med Života, so I figured I’d jump back in here and give you guys an update on how things are going.

Could you please explain a bit more about that therapy? What exactly is Med Života, where can I actually find it, and what's the proper way to use it? As for the Psorex, I think I used it a long time ago, but honestly, I'm not even sure if that was the right name. Was it maybe a cream that felt more like a thin body lotion, packaged in a large tube with red, white, and blue colors? Thanks in advance! 🙏
goldenstag213 goldenstag213 Member
32 messages
joined Jan 2007
#2225 ·
tuzna;14511169 said:
goldenstag213 said:Hey everyone!

I haven't really posted anything since I started using the PSOREX cream along with the Life Honey, so I figured I should check back in and share my results with you all.

Could you please explain this therapy to me in a bit more detail? What exactly is this "Life Honey," where can I find it, and how am I supposed to use it? As for the Psorex, I think I used something similar a long time ago, but I'm not entirely certain if that was the correct name. Was it perhaps a cream that felt more like a thin body lotion, packaged in a large tube with red, white, and blue colors? Thanks in advance. 🙏

Both the Life Honey and the Psorex are completely natural products.
The honey is taken three times a day before meals, while the ointment should be applied once daily, preferably in the evening. I managed to pick everything up at an herbal apothecary called unknown located in unknown.
If you're interested in giving it a try, just send me a private message and I'll get you all the details you need.
Sean Fox8 Sean Fox8 Newcomer
2 messages
joined Jun 2008
#2226 ·
Michael Myers11 said:I've been lurking on this site and following this specific thread for a few months now.
I’ve been dealing with psoriasis for about ten years now, just like most people on here. I haven't found a single doctor who actually knows what they're doing, except for one specialist I saw in North Mexico four years ago. He claimed he "cured" me, but we'll see about that.👍
My mom was vacationing at the coast recently and ran into a woman selling those little topical patches. She picked up two of them for me as a trial run, about five bucks each. I tested one out on my thigh just to see if they actually worked. Honestly, for the last four years, I’ve dealt with this recurring issue that flares up occasionally, but it only ever hits that specific spot. It usually clears up after a couple of days, but it keeps coming back right there.
I’ve tried placing an order a couple of times now, but the lady on the phone keeps telling me there aren't any direct bus routes from North Mexico to our area—only service to Washington, D.C. or New York City, both of which are way too far out of my way. I've been chewing on this for a while. I'm not trying to run an ad for anyone here, but if anyone wants the full rundown, just shoot me a message.

I have two URGENT questions:
I’m looking for information on that snake venom you guys were talking about earlier. What exactly is it called? Does anyone know where or how I can get my hands on some? Also, if anyone has a direct link to that video showing the kid getting those injections, please send it over.

Has anyone ever used that German cream, TOPISOLON? A few people asked me if I wanted them to pick some up for me, but I’m on the fence. I've honestly never heard of it or seen it before, so I have no clue what it actually does. They mentioned it's supposed to be for psoriasis, but I don't know.

I need someone to answer these two questions ASAP. I’ve got a deadline by the day after tomorrow to let them know whether I'm pulling the trigger on this purchase or not.

I’ve been wanting to say this for a while, but I haven't quite had the nerve to speak up until now—even if it's just online.

Love you guys. You're the best.👍👍🙏👍

Hey.

I’ve been dealing with psoriasis for over a decade now, and honestly, it just keeps getting worse. I’ve cycled through countless creams, but if I’m being blunt, nothing has actually worked. The only thing that offers any relief is salicylic acid, but that’s strictly for my scalp. I agree that sunlight and trips to the coast are the best remedies, but that’s a temporary fix—once summer ends, everything flares right back up. Standard stuff like Zorac hasn't done a thing for me, and neither did Freederm, which I ordered online. My last attempt was that Colostrum-Dermacell cream from that Swiss brand, but again, zero results. Total waste of money. The only thing I haven't tried yet is those natural herbal creams made by local healers, like the woman you mentioned. I've seen people on various online boards claiming those homemade remedies actually helped their skin, so could you pass along her contact info? Since I'm based in North Mexico, maybe I can get in touch and have those bottles sent over. If I could just get my skin clear for even a few months, it would be a massive win.

Sean Fox8@gmail.com

All the best.
Raymond Gray2 Raymond Gray2 Member
18 messages
joined Oct 2013
#2227 ·
I haven't scrolled through this whole thread yet—but I just wanted to chime in on what I've heard regarding psoriasis... People say it’s actually a blood and liver issue that just shows up on your skin. Sounds a bit out there to me (just an alternative take), but there might be some truth to it because I know someone who dealt with a really nasty case. They tried using these herbal ointments, but it actually made everything swell up and things got way worse... however, after a while, it all cleared up—even though they had sores and crusting all over their body... and now they're totally fine! From what I understand, modern medicine doesn't have a real cure for it...
Adam Wells43 Adam Wells43 Member
12 messages
joined Nov 2009
#2228 ·
Sandra Gomez56 said:PLEASE TELL ME AGAIN WHICH TEAS YOU WERE DRINKING—WHAT ARE THEY CALLED EXACTLY? I'VE BEEN DRINKING GREEN TEA FOR OVER A YEAR NOW AND IT DROPPED MY Pfizer LEVELS. CALENDULA CREAMS, THANK GOD THERE'S EVEN STUFF THAT ISN'T PRICEY. BIG HELLO FROM Texas!👍

So, look, I still drink a mix of herbal and green tea every single day—just a couple of cups—but back when I was trying to totally clear up my psoriasis, I was drinking this specific blend a friend of mine from an unknown town in the Midwest used to get for me. She’d pick it up out in the Appalachians from some local herbalist. It’s basically a combo of white oak bark, calendula, nettle root, nettle seed, and dandelion root. Honestly, just go to a local herb shop or even a pharmacy and ask them to whip up a blend like that for you. Sadly, I don't have the herbalist's phone number or address on hand, but I can try to track down where she actually found that spot in the Appalachians.
rapidhawk82 rapidhawk82 Newcomer
3 messages
joined Jul 2008
#2229 ·
Has anyone here actually dealt with psoriasis on their toenails and toes? I'm looking for what actually works—what are the best treatment methods out there...
silentheron25 silentheron25 Newcomer
5 messages
joined May 2007
#2230 ·
I’ve got this issue with my nails, too. I can't quite put my finger on what it is, but I'm pretty sure there are all sorts of supplements out there designed for this. I remember back when my mom was younger, she used to take some kind of brewer's yeast to help her hair and nails stay healthy. I know there are specific nail vitamins available, though I can't recall the exact brand. Someone here probably knows the name. My nails are actually doing okay right now, but I went through a phase where they were so brittle they were practically crumbling. You really have to maintain them; I make sure to use lotion regularly so skin doesn't build up underneath. If you let that happen, it dries out and creates a buildup under the nail bed that eventually causes it to crack because there's just no room left.
Sean Foster81 Sean Foster81 Newcomer
3 messages
joined Jun 2008
#2231 ·
I’ve been battling psoriasis since I was thirteen, and now that I’m twenty-three, I find myself facing several questions:
1) Has anyone here actually used BIOCIL oil before?
2) What is the best way to wean myself off corticosteroids—specifically that unknown cream containing desoximetasone? If I stop using it for even a few days, especially on my face, things take a turn for the worse, so I’m at a loss for what to do.

And finally, I have a rather scandalous suggestion: if you're looking for quick results, maybe consider a life of crime. I’m planning on starting to strip cars soon, and frankly, I couldn't care less about any moral lectures, though if anyone else is interested in that kind of thing, feel free to hit me up privately. My real question is, which models are the most profitable to dismantle, and what should I do with them afterward? My current plan is just to cut them up and sell them for parts or scrap metal, then trade all that cash for creams and lotions. Also, does anyone know anything about those specialized fish treatments? Is it true that a 21-day therapy session in San Francisco runs you about $1,200?
Michael Ramos3 Michael Ramos3 Active Member
196 messages
joined Apr 2007
#2232 ·
Hey, Sean Foster81.

You can't just quit steroids cold turkey. You have to taper off incredibly slowly. We’re talking a reduction process that can take up to six months—and if you’ve been on them long-term, you might be looking at a full year.
This is also their window for poisoning your system. You need to start a liver detox at the same time. A real treatment—one that actually shows up in your bloodwork—takes about four to six months. It has to be custom-tailored to your specific situation and how your body reacts; you can't just randomly grab whatever "liver cleanse" you heard about on some health blog. It requires strict dietary changes and calorie reduction too.
If you’re interested, I can shoot you a DM with the number for this guy out in Romania. He’s a herbalist who handled a similar situation for me. Honestly, despite all the heavy hitters—specialists from the Mayo Clinic and big-city infectious disease doctors—he was the only one who actually made progress with my liver.

Regarding your suggestion about picking up some extra income, it's fine.
Of course, that’s only if you decide to blow all your cash on those fancy goldfish. If you go down that road, you're definitely going to need a second job on top of working on the car.
Instead of wasting your time looking at cars, you should probably just spend that energy reading through every single page on this forum. It’ll give you a much better idea of what people have actually gone through here.
Maybe you’ll finally realize that obsessing over "cars" isn't actually going to help you find a solution for your psoriasis.

Big hello to our "innovative" new member.
Kate Williams41 Kate Williams41 Member
47 messages
joined Mar 2008
#2233 ·
Sean Foster81 said:I've dealt with psoriasis since I was 13, and now I'm 23. Is it true that a 21-day therapy session in San Francisco costs 1200 euros?


That's just not right. I'm actually heading out this summer to see an unknown specialist, and that's in San Francisco!!!
The price is 840 euros, or in dollars $2000!!
That covers the entire treatment....not including lodging. The cheapest place Mary can find is probably around 11 euros a night, I think.....
And for the reservation, you send $333 ahead of time or 150 euros!! That's already included in the $200 total of 840 euros!!
If you want to go this summer, you better hurry up. I was honestly worried I wouldn't snag a spot....summer is coming fast, and the rush is huge right now!!
As for how well it works, I can't say for sure yet because I haven't gone! But honestly, even if it doesn't work, I won't regret it....I'm ready for any outcome, even if it's ineffective....
I just want to know that I tried!! And it has nothing to do with corticosteroids...

You can find everything at www.psorijaza.net. The director, Mary, is Mary Bacac. You can get all the details by emailing info@psorijaza.net. Just ask her anything; she is truly wonderful and writes back so clearly about whatever you need!!

Good luck!!! Best wishes
silentheron25 silentheron25 Newcomer
5 messages
joined May 2007
#2234 ·
Look, I honestly don't get why you're dropping that much cash on something that basically does nothing. Those fish treatments aren't going to cure your psoriasis; all they really do is strip away the scales, and you can do that yourself just by soaking in some water. It’s actually wild to me how many people see an opportunity to exploit others just to line their own pockets. If you're near the coast, just go swim in the ocean. I headed out to the beach earlier while the weather was actually decent, and I had a school of small fish swimming right around my legs today—as soon as I rubbed them, the scales were gone. The ocean is better than anything else out there. It stings a little bit, but trust me, you're better off spending that money on a trip to Miami instead of these treatments. I'm telling you this as a friend because I know you want to fix this as badly as anyone else dealing with this nightmare, but don't make the same mistake again. That's not pocket change, and the "cure" rate is practically zero. Believe me, I'm speaking from over 15 years of experience, and unlike those companies, I have zero interest in selling you anything. Sunlight and salt water are the real answers, maybe paired with some natural creams—something like Aveeno worked wonders for me personally. But hey, it's your call.
Michelle Parker3 Michelle Parker3 Newcomer
1 message
joined Jul 2008
#2235 ·
Hey everyone, I’m going to throw out a bit of a weird question here—but I have a feeling you guys will get where I'm coming from 🙂
Sun and the ocean are pure gold for psoriasis; we all know that. For me, my skin clears up completely every year after summer—it stays clear for months at a time, which is honestly amazing. But unfortunately, I don't have any vacation days left this year, and I'm nowhere near the coast right now. Is there any way to actually take sick leave for this? Like, officially? My goal is really to try and get this under control, not just to squeeze in a little summer trip 😢 so, does anyone here work in HR who can give me an answer? Pleaseeeee 🙂
Kate Williams41 Kate Williams41 Member
47 messages
joined Mar 2008
#2236 ·
silentheron25 said:Girl, I honestly don't know why you're dropping all that cash on basically nothing. Those little fish can't actually cure psoriasis; they just scrape off the scales. And you can do that yourself just by soaking in water. It's wild to me how much people turn this into a business just to get rich. If you're at the coast, just swim in the ocean. I went recently when the weather was nice, and a school of tiny fish surrounded my legs while I was scrubbing the scales off. The ocean is the best thing ever. It stings a little, but trust me, going to the beach is better than wasting money on this. I'm telling you this because I want to help—we all want to beat this thing. But don't rush into this blindly; it's not cheap, and the cure rate is basically zero. Believe me, I have over 15 years of experience with this. I'm not here to sell you anything. Sun and salt water are the answer. Maybe some natural creams like Psorex, which worked wonders for me personally. But hey, it's your call.

Look, the decision is mine!!!!!
That's exactly why I'm doing it! Besides, I'm already at the coast, so if I decide to hit a beach, I've got a full 21 days to do that... even though I doubt it'll work!!
Because if I hadn't worked up the courage to try this, I would never have gone to the ocean on my own and shown everyone what I'm dealing with. Sometimes I can't even stand looking at myself. Where am I supposed to go? People are staring! Honestly, I'm doing this for my mental health too, because I absolutely loathe this disgusting disease!!!
I know that even if it helps, it probably won't last longer than two years. And I know there's a chance it won't help at all!! But it hurts... so I'm going for it, period!!
To be honest, I'd rather pay for this than spend whatever crazy amount I've already wasted on stupid drugstore creams that were "clinically tested" and blah blah blah... they cost like $67... all those creams, capsules, gels, ointments... I paid through the nose for them, and for what? Nothing worked!!
I'm only 19, and I want to do this FOR MYSELF!!! Even if I'm a little scared it won't work, if it fails, I won't regret it! People can say whatever they want. So many different brands and products have been mentioned on this forum... who could even try everything? I've had enough... I can't even remember everything I've tried anymore!!! Everyone's body reacts differently to everything! You can't rely on anything, especially with an incurable disease. There isn't one single cure, period! Everyone just uses whatever they want or whatever someone recommends...
Besides, a disease is a disease. No matter what it is, you have to treat it from the inside. Topical stuff is just a temporary fix. It feels good while you're applying it, then you stop and everything goes back to how it was!!
And besides, those little fish aren't just nibbling scales like you said. During the treatment, as they "nibble," they release an enzyme called dithranol that prevents the rapid cell turnover (which is the whole problem with psoriasis), and that's how they control it!!

And from what I've noticed, the placebo effect works great for me, so I'm putting my faith in that too, even if it doesn't technically count!! When someone gives me something for my psoriasis, if I tell myself it's going to help, it actually does help—at least for a little while!!
So, I believe in that power of belief. Maybe it'll save me, who knows... hope is the last thing we have...
Thanks for the advice, really. I want everyone to be healthy just as much as I do!!
But at the end of the day, every one of us does what we do for ourselves... and what our elders advised us to do... don't skimp on your health!!!! Health is everything... and we all know that very well!

Hey everyone, hope you're all doing great!
Lawrence Ramirez3 Lawrence Ramirez3 Newcomer
1 message
joined Oct 2009
#2237 ·
Michelle Parker3 said:hey guys, I know this sounds a little weird, but I figured you all would get where I'm coming from 🙂
Sun and the ocean are absolute gold for psoriasis—everyone knows that. Every year after summer, mine clears up completely for a few months, which is amazing. Unfortunately, I don't have any vacation days left this year, and I live nowhere near the coast. Is it actually possible to request medical leave for this, like, officially? My goal is to actually treat it, not just go for a summer trip 😢 so, does anyone here work in HR or something who can answer? pleeeeeease 🙂

You can definitely ask for sick leave and get it. Honestly, your best bet is seeing a dermatologist to prescribe heliotherapy 🤣 I think that's what they call it—basically tanning and swimming twice a day. Just do it in the morning and late afternoon when the sun isn't brutal. Tell the derm you need the sick leave so your primary care doctor can sign off on it. If your GP won't budge, just find a new one.
stormygull22 stormygull22 Newcomer
9 messages
joined Feb 2008
#2238 ·
I just saw my primary care physician. She told me I could come in to get a medical leave of absence and she’d give me 15 or 20 days. Instead, she wrote me for 10 and said to come back for a follow-up, then she'd easily extend it. Honestly, I think she should have done the same for you; just explain that you need to get to the coast and you have to go. She'll help you out—she knows what's up. Now, it really depends on your employer and how they handle things. We all know how most companies act when someone tries to take sick leave. Most of them aren't great about it.
Michelle Parker3 Michelle Parker3 Newcomer
1 message
joined Jul 2008
#2239 ·
Thanks, everyone. I’m going to try asking nicely first—see if they'll just let me take it out of my PTO once I'm actually eligible. If that doesn't fly, I'll probably just call in sick. Honestly, it's easier knowing I have the legal right to it on paper 🙂 because at the end of the day, official is official 😉
Sean Foster81 Sean Foster81 Newcomer
3 messages
joined Jun 2008
#2240 ·
Has anyone here actually tried those doctor fish treatments before?

Michael Ramos3, I honestly cannot wrap my head around such an absurd suggestion. I have spent plenty of time scrolling through previous threads on this forum, and while I have seen some nonsense before, what you just said takes the absolute cake. To start with, I weigh about 130 pounds, and given my height and age, going on a strict "diet" would be a disastrous move for my health. Furthermore, this "backwoods herbalist" who claims to be a rival to a "specialist at Johns Hopkins" is, in my humble opinion, nothing more than a street dealer, and I have no interest in being part of that lifestyle, nor should anyone else be encouraged to join.

Kate Williams41, you just confirmed my worst fears regarding this situation; if I understood the context correctly, you were implying that the treatment won't just cost me $1,200—it’s going to cost me much more than that, provided I don't end up tossing and turning all night like a restless child.

I feel compelled to add one more thing: PEOPLE, PLEASE STOP RECOMMENDING THE BEACH! Speaking from my own personal experience when I was sixteen, I went on vacation to Miami. Before the trip, my infection was limited strictly to my face, but after spending forty-two days by the ocean, I came home with flare-ups all over my knees and elbows. It got even worse when I was eighteen and spent twenty days seaside in Seattle. Even though I made it a point to shower immediately after swimming, once I got home, I ate some melted ice cream that ended up triggering scarlet fever. That's that condition where your skin feels like sandpaper; normally, people might just have slightly rough skin, but for me, it acted as a catalyst that caused my infection to expand by a staggering 30%.
That is my take on the supposed benefits of the coast. I am certainly not claiming this happens to everyone, but as far as I am concerned, the beach and the desert are cut from the same cloth. Just think about it for a second: even Egypt was once a fertile land, but they irrigated the soil with seawater until the salt turned the entire region into a wasteland. I simply want to urge everyone to exercise extreme caution.

And there is one more thing: does anyone have experience using that unknown cream? It really helps me because the infection recedes, but I am fully aware of its carcinogenic reputation, yet I find myself completely unable to quit using it. I only used it on my face for four or five days, and the infection flared up by about 10% across my face. Now that I am back on it, things settle down within a few days. As for the rest of my body, those areas can handle it longer, but I have been relying on this cream for over a year now, and I honestly don't know what to do—how on earth am I supposed to break this habit?

And finally, just one last thought: Michelle Parker3 is asking how to go about securing medical leave. My advice is simple: just grab every single cent in the vault and run for the hills! Hahahaha!
As one of our members pointed out, we all need to share a little joke now and then.🙂
That is all for now; just remember to fight relentlessly and without mercy, and if you happen to recover by some miracle, please don't go crying over spilled milk or lost enemies.

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