#361 ·
Not sure what kind of filters those used lamps actually have or how much of a risk they really are, especially since you see so many warnings online about avoiding standard quartz.
Psoriasis [PLEASE READ FIRST POST!]
Started by mistybear4 · · 👁 56 views · 2.3K replies
Participants
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#362 ·
korkyra222 said:I’m pretty new to this group and I have to say, it’s genuinely helpful to hear everyone’s personal stories—we’re still waiting on some test results for my ten-year-old, so I figured I’d jump in and introduce myself.
It took my doctors nearly two years just to figure out what was actually going on with me—it's a process, believe me.😠
#363 ·
I'm reading up on this Vipsogal stuff and was wondering—is it actually based on corticosteroid? Like, does it really work as well as people say? Also, is it safe to use on kids?😕
#364 ·
Look, the issue lies within us, not against us. We need to fix things from the inside out rather than looking for external solutions. The fact that this even became public just proves there’s a systemic breakdown within our own ranks—we need to focus on that 120% and the problem will solve itself!
The establishment—Wall Street types and the rest of them—are just tearing us apart from within while we remain blissfully unaware. The solution is found in nature and within ourselves.
The establishment—Wall Street types and the rest of them—are just tearing us apart from within while we remain blissfully unaware. The solution is found in nature and within ourselves.
#365 ·
korkyra222 said:I'm new here—it’s actually great hearing everyone's experiences. We're still waiting on test results for my ten-year-old, so I figured I'd check in. Basically, this past summer, my little guy started getting these patches on his elbows that looked like ringworm; then, after a few months, the skin peeled off, which is when the pediatrician finally sent him for testing. The first dermatologist we saw was convinced it wasn't psoriasis and prescribed some hydrocortisone cream—everything cleared up in about ten days. But then, at the follow-up, a second dermatologist suggested it *could* be psoriasis, though she wasn't certain, and recommended just sticking to neutral moisturizers. Now, looking at it today, it seems to be reddening again... any thoughts?🙏
Regarding the doctors:
The first one claims it isn't psoriasis and hands out steroid cream—isn't that a bit odd?
The second one suggests it might be, yet recommends nothing but moisturizer—isn't that even weirder?
Since we're talking about a child, I'd love to hear more details. To give you context: I dealt with psoriasis for 16 years. I managed to clear it entirely and have been symptom-free for 4 months now—my personal record. Reach out if you want to discuss this further.🙏
#366 ·
Greetings, everyone.
I’ve just stumbled upon this forum and noticed quite a few people here dealing with psoriasis.
To give you some context, my journey started about a decade ago when the first patches appeared; from there, things progressively worsened every single year until I eventually reached a point where it covered nearly my entire body.
I have honestly tried just about every method imaginable—from strictly clinical medical treatments to various alternative remedies—and if I can offer any insight, the only thing that has provided genuine relief for me is UVB therapy.
I am actually undergoing my second round of treatment right now, and it has managed to clear almost everything away, leaving me in a relatively stable state for a few months at a time.
I realize this isn't a perfect, permanent fix, but as far as I'm concerned, it has been the most effective option I've encountered so far.
Best wishes to all of you, and please, do keep us updated on your own progress!!
I’ve just stumbled upon this forum and noticed quite a few people here dealing with psoriasis.
To give you some context, my journey started about a decade ago when the first patches appeared; from there, things progressively worsened every single year until I eventually reached a point where it covered nearly my entire body.
I have honestly tried just about every method imaginable—from strictly clinical medical treatments to various alternative remedies—and if I can offer any insight, the only thing that has provided genuine relief for me is UVB therapy.
I am actually undergoing my second round of treatment right now, and it has managed to clear almost everything away, leaving me in a relatively stable state for a few months at a time.
I realize this isn't a perfect, permanent fix, but as far as I'm concerned, it has been the most effective option I've encountered so far.
Best wishes to all of you, and please, do keep us updated on your own progress!!
#367 ·
Please don't take this the wrong way, but I can't help feeling that those of you living in a major hub like New York City just have so many more resources at your fingertips. Max mentioned there's even a psoriasis support group over near Pike Place Market, and from what I gather, they might even offer tanning services there. Now, some people might suggest just heading to a local salon, but honestly, as someone dealing with this myself, the idea doesn't really appeal to me; I worry I'd be turned away because they aren't informed, or worse, they'd let me use the equipment and then just regret it afterward. Someone else also brought up certain creams that you can order through a pharmacy near Pike Place Market. If I could just pick them up on the spot, I might actually make the trip down from San Diego, but instead, I have to travel all the way there just to place an order, head back to the city, and then wait another three days...
I suppose it could be simplified, but you have to admit that things are just a bit more difficult for us out here. Though, maybe that isn't even the worst part. You know what is? It's the fact that while I'm sitting here writing this somewhat depressing little note to you all, I've actually managed to trigger another flare-up just from the stress of it all. Not that it matters much, I guess; at least it gives me something to do while I'm searching my body for it. I should probably remember to number it.
Best regards! Let me know if anyone knows of any good options for those of us dealing with psoriasis along the Mediterranean Coast.
I suppose it could be simplified, but you have to admit that things are just a bit more difficult for us out here. Though, maybe that isn't even the worst part. You know what is? It's the fact that while I'm sitting here writing this somewhat depressing little note to you all, I've actually managed to trigger another flare-up just from the stress of it all. Not that it matters much, I guess; at least it gives me something to do while I'm searching my body for it. I should probably remember to number it.
Best regards! Let me know if anyone knows of any good options for those of us dealing with psoriasis along the Mediterranean Coast.
#368 ·
😘
Honestly, this is a deeply interesting question, as I have found myself in similar situations where things would be going perfectly with a girl until I undressed, only to be met with strange reactions—even though I always make sure to explain upfront that it isn't contagious. Perhaps we can't even blame people; one has to wonder how they would react if we didn't have psoriasis, facing someone covered in red patches right next to them in bed.
malady said:I’ve posted about this before, but I haven't received a single response regarding tattoos and psoriasis.
Furthermore, I felt as though I had been treated like an outcast with AIDS when they turned me away during a transfusion simply because of my psoriasis. Not a soul—not my GP, my dermatologist, nor even my dermatology professor—bothered to mention that I am ineligible to donate blood. Has anyone here actually attempted to donate blood before?
And on a slightly more intimate note: for those of you living with psoriasis, what is your sex life like? I am only 19, yet I have already encountered all sorts of reactions to my condition.
P.S. At the moment, I'm not using any prescription medications; instead, my mother ordered some cream containing salts from the Dead Sea. Although I was quite skeptical at first, I must admit this is the first autumn I haven't spent peeling.
Honestly, this is a deeply interesting question, as I have found myself in similar situations where things would be going perfectly with a girl until I undressed, only to be met with strange reactions—even though I always make sure to explain upfront that it isn't contagious. Perhaps we can't even blame people; one has to wonder how they would react if we didn't have psoriasis, facing someone covered in red patches right next to them in bed.
#369 ·
Henry Vaughn57 said:About the doctors:
The first one claims it isn't psoriasis and suggests Beloderm, which feels a bit off, right?
The second one says it might be psoriasis but just recommends a neutral cream—isn't that even weirder?
Since we're talking about a kid, I really need more specifics. Here's my deal: I dealt with psoriasis for 16 years. Finally kicked it, and I've been clear for 4 months now. That's my personal best. Shoot me a message so we can talk details.🙏
Look, there are tons of different types of psoriasis, and they often overlap. Some doctors just don't know how to tell them apart. Honestly, Beloderm works just a tiny bit better than a plain neutral cream, and you can't go wrong with a neutral cream since it won't cause side effects. But when a child is involved, you have to be super careful. I truly hope this doesn't flare up again, but I'm a skeptic. In my experience, it can disappear for much longer than yours, only to come roaring back later or pop up somewhere else entirely. I've even had doctors ask me, "What's going on with your skin?" and I was so sick of explaining that I'd just say "nothing." So, what do you guys think? Right now, I'm taking Mumiyo tablets dissolved in some pomegranate juice and honey. No side effects so far, and the discomfort is totally manageable.😕
#370 ·
Robert Clark2 said:There are several different types of psoriasis—and then there are combinations of them—that some doctors can't even tell apart. The effect of Beloderm is marginally better than a plain moisturizer, which at least won't cause side effects. When it comes to a child, you have to be careful. I sincerely hope it doesn't flare up, but I’ll remain skeptical—I've had situations where it vanished for much longer than yours, only to come back later and make up for all that lost time, or pop up in a completely different spot. There were times when even certain doctors would ask me, "What happened to you?" and I was just so tired of explaining that I'd tell them "nothing." So, I'll leave it to you to judge. Right now, I'm taking Mumiyo tablets dissolved in a glass of pomegranate juice and linden honey; no side effects, and my skin is within tolerable limits.😕
The first rule is that you don't give up. Between diet and the NONI Juice I use, you can manage this yourself without a doctor. The problem lies with us—doctors always try to treat the surface first. If you're stationed at an ExxonMobil refinery, they might give you a specific menu, but it's all useless if you go to sleep wrapped up like a mummy in nothing but 5% Belosalica. St. John's Wort, NONI, and absolutely no pork products in any form—that's how you control it.
🙂
#371 ·
Henry Vaughn57 said:Don't you dare give up—that’s rule number one! You can totally manage this on your own without a doctor if you watch your diet and stick to the NONI Juice I use. The real issue is us; doctors just want to treat the symptoms from the outside. It's like being stationed at an ExxonMobil refinery—you have a specific menu meant for you, but it's all useless if you go to bed wrapped up like a mummy in some 5% Belosalica balm. Stick to dandelion, NONI, and stay away from chocolate in any kind of pork dish to stay in control.
🙂
Whoops, I think you misunderstood my "mummy" comment—I wasn't being literal! I was talking about Shilajit, which is a natural resin found in the Altai Mountains of Russia. And look, I'm not trying to run an ad here; if you want details, shoot me a DM. I just read up on it online—just search for SHILAJIT. The Russian Federation actually recognizes that balm as official medicine. I have a book right here with totally natural recipes for a healthy life. Honestly, I was skeptical at first too, so I checked with a pharmacologist. They told me even perfectly healthy people use it!
#372 ·
I think everyone here is hitting the nail on the head, and I suspect most of us living with psoriasis probably realize this too—that the real work happens within ourselves rather than just being something we impose upon our bodies. However, I don't think we're quite right when we try to generalize about medications, specific treatment types, or even different variations of psoriasis itself. For one person, a standard application of Belosalica might clear everything up in maybe five or six days, whereas for someone else, that very same cream could actually make things worse. It’s the same story with initial treatments; someone might have an incredibly successful run with Belosalica, only to find their skin reacts poorly during the next round of application. Even things like dietary changes, like eating more fish, seem to help some people while doing absolutely nothing for others. I really feel it would be beneficial if there were more public discourse regarding our condition. I honestly can't recall ever hearing anyone discuss psoriasis on the radio or the news; in fact, I think I, along with many of you, probably didn't even know much about it until my own diagnosis. I'm not necessarily calling for massive public health campaigns, but perhaps there could be at least some sort of assistance or relief regarding the costs of treatment and medication. On a more personal note, back when I was younger, I struggled immensely with my self-confidence regarding my sex life because of all this. I was lucky enough, though, to meet a girl who, after learning what I was dealing with, truly stood by me in this fight against psoriasis; she'd even help out by regularly applying creams to the patches on my body and scalp. She eventually became my wife, and if God wills it, we're expecting a baby this coming June.
If I could just get this psoriasis under control.
p.s. and maybe win the Powerball too (just kidding)
If I could just get this psoriasis under control.
p.s. and maybe win the Powerball too (just kidding)
#373 ·
My brother developed psoriasis after some woman hit him with her car... probably just pure stress from the accident. He’s only 8 years old.
We’ve been bouncing from one specialist to another for a year now, and nothing seems to stick. Injections, endless creams, ointments, syrups... I’m starting to feel like my brother is just some test subject for doctors. It clears up for a few days, then everything flares right back up again. Does anyone actually have advice on what to do? We're at a loss. This morning, watching my mom rub his arms and legs, it was hard to look at. It irritates him so much, and the itching and burning... it's constant. Poor kid. He doesn't even cry when he gets an injection anymore. The staff at the hospital practically know him by name at this point. Any advice would be appreciated.
Thanks in advance, everyone.
We’ve been bouncing from one specialist to another for a year now, and nothing seems to stick. Injections, endless creams, ointments, syrups... I’m starting to feel like my brother is just some test subject for doctors. It clears up for a few days, then everything flares right back up again. Does anyone actually have advice on what to do? We're at a loss. This morning, watching my mom rub his arms and legs, it was hard to look at. It irritates him so much, and the itching and burning... it's constant. Poor kid. He doesn't even cry when he gets an injection anymore. The staff at the hospital practically know him by name at this point. Any advice would be appreciated.
Thanks in advance, everyone.
#375 ·
I don’t know much about this condition myself, but I did a little digging online. Honestly, your brother just needs to keep stress levels low—he'll need plenty of support and a lot of patience from the family to help him start turning a corner.
From what I gathered, he really needs to stay away from contact with metals and be super careful about his diet. He shouldn't scratch those blisters, he needs to limit his exposure to water, and he should apply a moisturizer immediately after washing up. He also can't have any irritating liquids—like laundry detergent—touching his skin. Even clothes washed in heavy detergents or fabric softeners could cause issues. It would probably be best if he skipped the scented bath salts, shower gels, and lotions entirely; sticking to fragrance-free, natural products is a safer bet. Cold compresses might help with the itching and stinging, and some people swear by adding a bit of vinegar to a bath—which helps the blisters dry out faster—but I wouldn't recommend playing chemist and experimenting too much. For skin care, borage or evening primrose oil seems to work for some. Of course, there's the actual medical treatment to deal with, too.
Everything I mentioned here is just based on what I already knew and what I managed to find on the web, so please, talk to a doctor before trying anything.
I really hope he feels better soon!
From what I gathered, he really needs to stay away from contact with metals and be super careful about his diet. He shouldn't scratch those blisters, he needs to limit his exposure to water, and he should apply a moisturizer immediately after washing up. He also can't have any irritating liquids—like laundry detergent—touching his skin. Even clothes washed in heavy detergents or fabric softeners could cause issues. It would probably be best if he skipped the scented bath salts, shower gels, and lotions entirely; sticking to fragrance-free, natural products is a safer bet. Cold compresses might help with the itching and stinging, and some people swear by adding a bit of vinegar to a bath—which helps the blisters dry out faster—but I wouldn't recommend playing chemist and experimenting too much. For skin care, borage or evening primrose oil seems to work for some. Of course, there's the actual medical treatment to deal with, too.
Everything I mentioned here is just based on what I already knew and what I managed to find on the web, so please, talk to a doctor before trying anything.
I really hope he feels better soon!
#376 ·
Basic said:Everyone here is absolutely right—and I suspect most people dealing with psoriasis realize this too—that the solution needs to come from within us rather than being forced upon us. However, we shouldn't generalize when it comes to medications, treatment types, or even the specific kind of psoriasis one has. For some, a standard dose of Belgrade works wonders in under a week; for others, it actually makes things worse. Even someone who had a massive success with Belgrade the first time might see a flare-up during their next application. Some find relief through herbal remedies while others don't... It would be great if there was more public awareness regarding our struggle. Honestly, I can't recall ever hearing about psoriasis discussed on the radio or TV—maybe some of you have, but for me, I probably didn't even know it existed until my own diagnosis. I’m not necessarily asking for a massive public health campaign, but at least some sort of assistance with medical costs or prescription prices would be fair. As for my sex life back in my younger days—it was incredibly difficult due to the insecurity this caused. Luckily, I met a girl who, once she understood what I was going through, stood by me in the fight against psoriasis; she’d regularly apply ointment to my skin and scalp. That girl became my wife, and if God wills it, we’ll be expecting a baby in six months.
If I could just get rid of this psoriasis once and for all.
p.s. and maybe win the Powerball (just kidding)
My first ointment was Belgrade, and it worked every single time—clearing up within a month—yet here I am, buying a third more than I used to. I've been stuck in this cycle for 14 years, only for it to vanish for four months during the winter because of natural remedies, a bit of willpower, and a whole lot of faith!!!!!🙏 👍
#377 ·
hey "Henry Vaughn57", maybe you're just keeping some stuff under wraps, huh?
I was scrolling through some old threads and I'm honestly not sure... I mean, if that were true, it'd be pretty heartless toward people and kids who are actually suffering. 😲
I was scrolling through some old threads and I'm honestly not sure... I mean, if that were true, it'd be pretty heartless toward people and kids who are actually suffering. 😲
#378 ·
Man, this ad is such a drag. I actually use that Belosalic ointment myself—or maybe it was Beloderm, I can't even remember which one anymore.
#379 ·
We just picked up some badger grease for my brother on his doctor's recommendation. We'll see if it actually does anything at all.
#380 ·
Adam Wells43 said:This whole thing feels like a total ad. I use that Belosalic ointment or Beloderm myself, too.
I was thinking more along the lines of "natural stuff"
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