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Psoriasis [PLEASE READ FIRST POST!]

Started by mistybear4 · · 👁 74 views · 2.3K replies

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Rachel Williams15 Rachel Williams15 Newcomer
2 messages
joined Jan 2007
#401 ·
Hey everyone,
I haven't scrolled through the entire thread yet, but honestly, I think I might have something useful to share here...
My dad has been battling psoriasis for years now, and trust me, he’s tried pretty much everything under the sun.
Some things worked for a bit, some didn't work at all... nothing was a miracle cure.
Then, he came across this priest out in rural California (Small town in rural USA) who gave him this specific cream.
I don't know the exact ingredients, but if I had to guess, it’s probably some kind of herbal blend mixed with fungi.

HE IS BEYOND HAPPY WITH IT!!!!!!!!!!!!!!!!
If anyone actually wants the contact info, just shoot me a DM and I can pass along the number.
Later,
Chris Morgan67 Chris Morgan67 Member
49 messages
joined Jul 2007
#402 ·
Marin 1 said:There’s a massive difference when it comes to shower gels; most aren't even pH balanced. As for lotions, none of them have done a thing for me. Standard shampoos are a nightmare, too—I’ve tried everything from the extra gentle ones to specialized formulas, but they all irritate my scalp. Only the Vichy shampoo with the red square on the bottle works for me. It’s actually mild enough not to cause irritation.
I think I'll give those oil treatments a shot.

I apply olive oil to my scalp twice a month to help clear away any flaking. Occasionally, I'll use some Betnovate lotion or try a Biologique Recherche Squaphane shampoo.
Regarding shower gels, I've already shared my thoughts, but right now I'm using those milky Dove washes and they work perfectly for me.

Let us know how those oils work out for you; hopefully, they provide some relief...

By the way, I recently started using beeswax salve from Apimela. You can find it at most major grocery stores like Walmart or Target for about five dollars, and honestly, it's been wonderful!
Henry Vaughn57 Henry Vaughn57 Member
10 messages
joined Jan 2007
#403 ·
Lawrence Ramirez3 said:In severe cases, nothing—not even a prayer—is going to help. Honestly, I don't know what people are looking for here. It’s full of scammers. When it comes to that Noni juice or whatever you want to call it, German researchers have done extensive studies and concluded it's just selling snake oil. That juice is practically worthless.😉


You deal with psoriasis and have likely wasted enough money to know exactly how useless this stuff is—so stop the nonsense! Give us some actual facts!
👍
Chris Morgan67 Chris Morgan67 Member
49 messages
joined Jul 2007
#404 ·
This is why we're here—to support one another and share what we know...👍
Walter Thompson Walter Thompson Member
11 messages
joined Jul 2006
#405 ·
I’ve been sitting here reading through what my fellow psoriasis sufferers are posting, and I honestly can't believe some of it. There are just some incredibly rude people out there. I always viewed this forum as a way to gather information or, at the very least, a place to exchange experiences, but lately, it feels like you practically have to beg someone just to get the name of a product or treatment that they claim actually worked for them.
So, if you happen to have any solutions or tips, I’m asking you—please—just write them down right away. There really isn't any need to wait until we all get frustrated and start flooding your inbox with pleas for help, because, believe me, this really isn't a joke for us.
Chris Morgan67 Chris Morgan67 Member
49 messages
joined Jul 2007
#406 ·
Walter Thompson said:I’ve been reading through what my fellow psoriasis sufferers are posting, and I honestly can't believe it. There are some truly inconsiderate people here. I always viewed this forum as a resource for information or at least an exchange of experiences, yet apparently, you have to practically beg someone just to get the name of a product that they claim helped them.
Through this platform, I am asking you: if you have found a solution, please, I beg you, share it immediately. Don't wait until we are all driven to frustration by having to plead with you... this really isn't a joke to us.

Hey, what happened?
We already have over 20 pages of threads filled with info on medications and treatments. I know because I've written quite a few posts myself, so it would be helpful if you actually read them—I really don't have the energy to keep repeating everything.
There is plenty of info out there about psoriasis, especially if you know English.👍

But I think people still haven't grasped one fundamental thing: psoriasis is now considered a chronic, incurable condition. There simply isn't a prescription out there right now that provides a total cure for those of us dealing with it.

I honestly don't have the heart to keep typing this out. My advice is to move away from the steroid creams, stick to daily showers, use oils, and try phototherapy...

👍
Lawrence Ramirez3 Lawrence Ramirez3 Newcomer
1 message
joined Oct 2009
#407 ·
Chris Morgan67 said:I rub olive oil into my scalp twice a month to get rid of the flakes. Sometimes I use some Belo lotion and wash with Bioré shampoo.
I already posted about my experience with shower gels—right now I’m using those milky ones from Palmolive and they work great for me.

Let me know how those oils work out for you; hopefully they help.

By the way, I recently started using bee balm from Apimel. You can find it at most big grocery stores like Walmart for about $4, and honestly, it's been awesome!

Looks like almost everything works for you... must be nice. 🙂
I tried oils a few times, but it just leaves you feeling greasy and damp, even if it spreads easily. The itching stays, too—like my skin is still starving for something. I think base creams work better for me. I might give the oil another shot, though.
I tried using Trixer (Avène) once; it's actually pretty decent. Good for quick relief when things itch instead of reaching for corticosteroids.
Also, if anyone has tips on hygiene or non-steroid topical treatments that actually work, let me know.
Chris Morgan67 Chris Morgan67 Member
49 messages
joined Jul 2007
#408 ·
Persistence is everything. You won't see a miracle overnight, but I can promise you that after a week of staying on top of it, your skin will feel noticeably softer and the scaling will start to subside.

For me, the best routine is showering in the evening and following up with oil...
swiftwolf18 swiftwolf18 Newcomer
8 messages
joined Jan 2007
#409 ·
Yeah, I’m planning on starting phototherapy in about two or three weeks, and I'm thinking of pairing it with some Psorcutan 5 cream to see how it goes. Right now, my psoriasis covers roughly five percent of my body. My hope is that once I grind through a 45 to 60-day stretch of phototherapy, I'll be in the clear for at least half a year. That said, I’d really appreciate hearing from anyone who has actually used Psorcutan 5 before.
Chris Morgan67 Chris Morgan67 Member
49 messages
joined Jul 2007
#410 ·
swiftwolf18 said:Yeah, phototherapy is my main plan for a couple of weeks from now, but I’m also going to try using Psorcutan 5. Right now, psoriasis covers about five percent of my body, so once I finish a 45 to 60-day course of light therapy, I should be clear for at least six months. I'm just looking to hear from anyone who has experience using Psorcutan 5 cream...

I’ve already mentioned that it works wonders—though personally, I prefer the ointment over the cream; it seems more effective for those of us dealing with this. When paired with phototherapy, the results are fantastic, and it's safe for long-term use...

It’s a world of difference compared to something like Benzagel or Selsun Blue... there's really no comparison
A Anonymous Veteran
3.6K messages
joined May 2005
#411 ·
Sorry to just jump in like this, but I’m dealing with this exact same issue. I’ve also been using Psorcutan 5, which I manage to get my hands on through some private channels from Germany. Just a quick question, though—how long is it actually safe to keep using Psorcutan 5, and what kind of side effects or contraindications should I be looking out for?
Chris Morgan67 Chris Morgan67 Member
49 messages
joined Jul 2007
#412 ·
rolexx said:Sorry to barge in, but I'm dealing with this too. I've been getting my hands on Psorcutan 5 through some private channels from Germany. Just a quick question—how long is it safe to use, and what should I watch out for?

You can find plenty of info online about that.
Psorcutan 5 can be used over a longer period—usually about three months—provided you don't exceed one tube per week.
It’s best applied to skin that has been pre-treated with oils; it spreads more easily and seems to work better that way.
Apply it in a thin layer without using any occlusive dressings. As for side effects, there's skin thinning, and if you overdo it, I believe it could impact the kidneys or liver...
swiftwolf18 swiftwolf18 Newcomer
8 messages
joined Jan 2007
#413 ·
I stopped by my usual pharmacy today to ask about picking up some Psorcutan 5 ointment, and they gave me the bad news: apparently, I’m looking at a two-week wait just to get it in stock. It's a bit frustrating, honestly. However, I heard someone mention that if you go to that pharmacy over on Broadway, they can usually have it ready in maybe two or three days. Does anyone know if that's actually realistic, or am I just chasing shadows?
Chris Morgan67 Chris Morgan67 Member
49 messages
joined Jul 2007
#414 ·
swiftwolf18 said:I stopped by my local pharmacy to ask about Psorcutan 5 ointment. They told me it might take about two weeks to order. However, someone mentioned that the pharmacy over in downtown Manhattan can get it in just two or three days. Is that actually realistic?

I could probably have it delivered within 2-3 days...
It costs about $43
Timothy Jackson6 Timothy Jackson6 Member
16 messages
joined Feb 2008
#415 ·
So, I finally picked up my Psorcutan 5 ointment today—I actually ordered it last Tuesday. Fingers crossed it actually does the trick, right? Does anyone know how often I should be applying this stuff, or if there’s anything else I should be pairing it with to make it work better?
swiftwolf18 swiftwolf18 Newcomer
8 messages
joined Jan 2007
#416 ·
Chris Morgan67 said:that I should have it within two or three days.
It’ll run me about $43

That’s great... I actually called them up earlier today, and the woman on the line told me I’d be looking at a four to five-day wait before $43 arrives. I had no idea; I was under the impression it would show up around $58👍
Walter Thompson Walter Thompson Member
11 messages
joined Jul 2006
#417 ·
Chris Morgan67 said:Hey, what happened there?
I think we already have over twenty pages of threads here, and there's quite a bit of information regarding medications and treatments scattered throughout. I know this because I've personally contributed quite a few posts myself, so it might be helpful if you took some time to read through them, as I don't really have the energy to keep repeating everything.
There's plenty of info out there about psoriasis, and honestly, it’s even easier to find if you search in English.👍

However, I feel like people just haven't quite grasped one fundamental reality, which is that psoriasis is now considered a chronic, incurable condition, and I suppose there isn't any single medication a doctor can prescribe that will completely cure someone once and for all.

I'm honestly feeling a bit drained from typing all this out again, so if I may offer some advice, I'd suggest moving away from those steroid creams or Beloderma, and instead focusing on daily showers, using oils, and trying phototherapy.

👍

Well, I appreciate the effort, but I was actually referring to certain individuals who act as if they're waiting for someone to just hand them the name of a magic pill. I truly see people here who genuinely want to help and do provide support, but I guess you have to admit there are others who won't help you, yet won't stop making things difficult either. I suppose I am a perfect example of how stress and anxiety can trigger a flare-up.
Chris Morgan67 Chris Morgan67 Member
49 messages
joined Jul 2007
#418 ·
Timothy Jackson6 said:I picked up my Psorcutan 5 ointment today after ordering it last Tuesday. I'm hoping for some relief. How often should I be using this, and is there anything I should pair it with?

I sent you all the details via MAC Cosmetics DM.
There’s no need to combine it with anything else, though I have heard people get better results by alternating between Betamethasone and Psorcutan 5 alongside phototherapy.
Personally, I'm done with Betamethasone, so...

@swiftwolf18/">@@swiftwolf18-👍

@Walter Thompson/">@@Walter Thompson-I think most people actually want to help, so I just ignore the rest. Just ignore them...😬>
Lawrence Ramirez3 Lawrence Ramirez3 Newcomer
1 message
joined Oct 2009
#419 ·
Do I need a prescription for this? Can I just order the meds without one? And how much does the ointment actually do if I don't pair it with phototherapy?
Chris Morgan67 Chris Morgan67 Member
49 messages
joined Jul 2007
#420 ·
Lawrence Ramirez3 said:Do I need a prescription? Is it possible to order the medication without one? And how effective is the ointment if used without phototherapy?

Everything you mentioned can be obtained without a prescription.

The ointment is quite effective...
Please, just take a moment to read through the last few pages of this thread...

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