Psoriasis [PLEASE READ FIRST POST!]

So, I’ve managed to skim through almost every post in this thread (though I definitely glossed over a few). I originally landed on this forum looking for answers about psoriasis, but I have to admit, I'm finding way more bickering than actual information. That said, on our specific site, this remains the best resource we have for psoriasis info.
We’ve been dealing with this for just over a year now. Unfortunately, it’s not me struggling with it—it's my son. I say "unfortunately" because I think he’s having a much harder time with it than I would at my age. My wife has a bit more background here since her father dealt with severe psoriasis (he's symptom-free for quite a while now), so when our kid was first diagnosed, she honestly went into a total panic.

In my search online so far, I've run into mountains of contradictory advice. One thing helps one person but hurts another; one group swears by a certain method while others claim the exact opposite; some say it's incurable while others argue that's not true, and so on.
Basically, it's a sea of misinformation and very little substance.

My question (mainly for those who have been following this topic for a while): Does it make sense to launch a dedicated website specifically for psoriasis? (If one already exists, I haven't stumbled upon it yet). I'm thinking of a hub that gathers all the relevant medical papers in one spot, lists and explains various medications and treatments, offers expert advice, includes a forum (obviously), and things like that.
Of course, the goal would be to find doctors, herbalists, and other specialists willing to contribute content. But more importantly, we'd need a crew of volunteers to keep the site updated, organize the articles, moderate the forum, and lobby for professional input and expert advice. As for the costs, I don't see an issue there—you can consider the design and hosting part handled.

To repeat: Is there any interest in a project like this, and would anyone be willing to volunteer?

Jose Murphy7 said:I’ve managed to read through most of the posts in this thread (skimming some, of course). I originally stumbled upon this forum while searching for answers regarding psoriasis, though I have to admit I’ve encountered far more bickering here than actual concrete answers. Still, within our corner of the web, this remains the most information-dense spot for psoriasis...
We’ve been dealing with this for just over a year now. Unfortunately, it isn't me struggling with it, but my son. I say unfortunately because I suspect his experience is much harder than mine would be at his age. My wife has more history with this since her father dealt with severe psoriasis—though he hasn't shown symptoms in quite some time—so getting the diagnosis for our child was a moment of pure panic for her...

In my online research so far, I’ve run into mountains of contradictory info. One thing helps one person but hurts another; one person recommends one thing while someone else suggests the exact opposite; some claim it's incurable while others argue otherwise...
It’s a lot of misinformation and very little substance...

My question (mainly for those who have been following this topic for a while): Does it make sense to launch a dedicated website specifically for psoriasis (if one doesn't already exist—I haven't found one)? I’m thinking of a platform that centralizes all relevant medical literature on the condition, lists and explains various medications and treatments, offers professional advice, includes a forum (naturally), and so on...
Of course, we would need to find doctors, herbalists, and other specialists willing to contribute to the content. But above all, we would need a group of volunteers to help update pages, organize texts, moderate the forum, and lobby for expert input... As for the initial costs, I don't see an issue there (design and hosting are essentially taken care of)...

To repeat: is there any interest in such a project, and are there any volunteers willing to jump in?...

Unfortunately, a project like that doesn't exist. I've been planning to start a site focused solely on psoriasis for a long time, but I simply don't have the bandwidth between work and college...👎
If you actually move forward with this, I would be happy to provide plenty of useful information. I feel I have mastered the theory behind this condition...😳

This is currently an INCURABLE chronic disease, and all preparations merely alleviate the symptoms rather than curing the psoriasis itself...

urbangull said:Hi everyone. I wanted to switch things up here and ask a question. For about two months, I’ve been using Zorac at 0.05%, and it worked perfectly. However, for the last week or so, I’ve moved up to the 0.1% strength. The issue is that now my healthy skin is developing these red patches right after I apply the ointment. I'm not sure how to proceed—whether I should stop the treatment entirely or just go back down to the 0.05% Zorac. If anyone has experience with this, I'd appreciate some insight...

I don't have personal experience with it, but I am familiar with the medication. It’s relatively new to the US market and quite aggressive, which is exactly why I tend to avoid it...

I was told you should only apply it strictly to the psoriasis patches, because if it touches the surrounding healthy skin, it can cause irritation and redness.

It shouldn't be used long-term either; otherwise, it loses its effectiveness, irritates the skin, and could potentially lead to internal organ damage.

My suggestion would be to either take a break from the Zorac for a while or simply revert to the 0.05% version...

Chris Morgan67 said:...if you decide to take this on, I'd be happy to share a lot of useful info. At least theoretically speaking, I feel like I've mastered the ins and outs of this condition😳 ...

The reality is, I can't pull this off alone either. I've worked on massive projects before, so I know one person can't juggle all these moving parts. Thanks for the offer, though—I'll be leaning on you👍.
Does anyone have connections to specialists who might want to get involved (strictly educational, no ads allowed, obviously)?
Any specific ideas for what we should actually cover? What kind of information was hardest for you guys to track down when you first started (or even now)?
Do you think it would make sense to start a national patient advocacy group or an association for families here in the US?

Addition:
We can handle a lot of the heavy lifting ourselves. We could act as a central hub for all publicly available data regarding the disease, medications, and various therapies. We could also host a forum where people swap personal experiences, discuss standard treatments versus alternative methods, and just generally trade insights...
In my opinion, the most critical thing will be bringing experts on board—people who can jump in occasionally to write about new treatments and answer specific questions.

Based on everything I know now, I'm certain of one thing: psoriasis isn't just one single issue; it shows up in so many different forms and severities. Plus, treatments are incredibly personal—what works for one person might do nothing for another. Because of that, the whole goal of this project (whatever we end up calling it) should be to gather as much data as possible and organize it logically.
Who knows, maybe someone could even use this research for a Master's thesis🙂...

Jose Murphy7 said:I wonder if it might be worth establishing a national association for patients and their families here in the States...

There is an association for psoriasis patients here in America. They don't maintain a website, but they hold their conferences at the local Mayo Clinic...🤣 It really just comes down to a conflict of interest...

When it comes to dermatologists, they often have signed agreements with cream manufacturers, leading them to recommend the exact same products to everyone. That’s why you see them all pushing that Zorac gel lately, even though it belongs to a rather "old school" category of antipsoriatic treatments on a global scale...

The fundamental question remains: why hasn't Medicare started covering calcipotriol yet? It’s being prescribed everywhere else globally, and it clearly offers the fewest side effects and the longest-lasting results compared to other treatments. It feels like someone is intentionally blocking it...👎

Chris Morgan67 said:There’s an American psoriasis association...
As for dermatologists, they usually have deals signed with cream manufacturers... the real question is why Medicare doesn't cover calcipotriol yet here in the States...

I’m fully aware of all those issues. The pharmaceutical lobbies and Medicare's rigid stance are especially frustrating—honestly, I wish they’d hire at least one person dealing with these "neglected" conditions to help make decisions. That’s exactly why I want to start something independent, free from ads, and based on actual, verified info.
I mentioned the association because there needs to be legitimate pressure on the Department of Health and Human Services and agencies like Medicare, but I’d love to know what the current association actually does. It’s almost ridiculous that they don't even have a website in an era where everyone looks for answers online.
I’m going to try to track down and reach out to some psoriasis specialists this week. Any leads would be appreciated.

P.S.
For example, we’re currently testing some herbal remedies we picked up in Canada a few days ago. We couldn't find anything about the treatment or the herbalist online, but we got a personal recommendation. Since conventional medicine has been a total bust for us, we didn't really have a choice. I’m a bit skeptical myself, but we'll see how it goes, and I’ll post the results later (though the herbalist himself is pretty anti-advertising). I don't want to get ahead of myself; the treatment isn't cheap, it takes a lot of time, and I have no idea if it actually works or how long the effects last.
In this situation, it would be incredibly helpful to hear from others who have tried this specific therapy, but I haven't found anyone. That’s why I wish there was a site for this—not a site run by some herbalist or pharma rep, but a place where patients themselves share their experiences. I think that would help weed out a lot of the scammers and dangerous treatments.

I have been struggling with this wretched condition myself lately, which prompted me to spend quite some time digging through various online resources... Following a bit of logical deduction, I have come to the conclusion that topical creams simply cannot be the ultimate solution. If a cure is even within reach, it would have to be achieved from the inside out, given how many indicators point toward this actually being a systemic circulatory issue.

In Japan, on the other hand, the condition is relatively rare. This is often attributed to the significant influence of climatic, social, and economic factors on its prevalence.

I don't know much about Japan, though it strikes me that their unique dietary staple might be the consumption of raw fish... I am uncertain about other contributing factors, so perhaps someone else here might be more knowledgeable on the subject.

Adults living with psoriasis face an increased risk of suffering a heart attack, according to research conducted by American scientists at the University of Pennsylvania.

Once again, we return to the circulatory system.

Research findings indicate success in alleviating psoriasis symptoms through dietary interventions that affect polyunsaturated fatty acid and eicosanoid metabolism, thereby achieving a reduction in inflammatory processes.

Examples include diets rich in omega-3 fatty acids, vegetarianism, low-calorie diets, and intermittent fasting. For patients with gluten sensitivities, a gluten-free diet can also improve psoriasis symptoms.

It seems the dietary approach is quite similar to what one would use for cardiovascular diseases.

I would very much welcome your thoughts and comments on this matter.

It’s interesting to note that psoriasis rates seem highest in places like Norway, where the diet leans heavily on fish.

To this day, nobody can say for certain what triggers psoriasis. We just know it's an autoimmune issue—the immune system essentially overreacting...

I've heard from several people that going gluten-free makes a noticeable difference, though not everyone with psoriasis reacts to gluten. Regardless, maintaining a balanced, light diet generally helps manage any chronic condition.👍

Well, everything is fine, really; I certainly didn't expect such a straightforward solution... It simply strikes me that all these various miracle creams and ointments are a complete dead end. A compromised immune system isn't something you can fix with topical applications. If a cure actually exists, it would have to be administered intravenously or orally...

Charles Chavez said:It’s all fine; I didn't expect it to be that simple. It just seems to me that all those miracle creams and ointments are a complete dead end. You can't fix a compromised immune system with topical creams. If there's a cure, it would be administered intravenously or orally...

True, but they haven't found an oral option for us yet😬 so they just prescribe creams instead.

Improving skin health certainly does wonders for a psoriasis patient's quality of life...👍

I'm Mario, originally from Ann Arbor. I found my way to this specific ointment and tea through some people I know, and honestly, I am beyond thrilled with the results. Psoriasis!!! It started showing up about 3 or 4 years ago, and after countless failed attempts with various creams and seeing all sorts of specialists, nothing seemed to work. That was until I heard about this DOCTOR... He’s based in Mexico, so you'll need to give him a call and talk things through. Then, you just need to find someone who can help coordinate getting everything delivered directly to your door. Once you connect, he'll explain the whole process—it is absolutely worth the effort. I wish you guys the best of luck. The cream is a total game-changer; it's completely natural with zero harmful ingredients like corticosteroids. It's very gentle on the skin, and the tea is as easy to drink as chamomile tea. Plus, it really helps soothe inflammation around the eyes—I was genuinely blown away. In less than two weeks, the patches on my legs completely cleared up, so I truly believe this is what you've been searching for. If I remember correctly, the price for one ointment and one cream is roughly $67. If you're going to order, my advice is to grab more of the ointment and less of the tea, because the ointment goes faster; I still have more than half of my tea left, and I apply the cream twice a day, morning and night. Also, you should bathe in plum extract during the treatment, which actually helps a lot. Just ask the guy everything you want to know; he'll explain it all and send over a checklist to follow while you're undergoing the treatment. IT IS WORTH IT, TRUST ME. And if you want more specifics, just shoot me a PM and I'll be happy to help.

Anonymous said:I'm Mario, originally from Ann Arbor. I found my way to these ointments and balms through some people I know, and honestly, I'm incredibly grateful for that. Psoriasis... it started hitting me about 3 or 4 years ago. I tried countless creams and went to all sorts of specialists, but nothing seemed to make a dent. It was just one failed attempt after another...

Mario, you've posted this exact same thing a few times now in this thread. I want to believe you mean well, but anyone actually looking for a solution has probably already scrolled through everything and found the info by now. Doing it this way starts to feel a bit like an ad.

I suspect he truly just wants to be helpful; otherwise, he would have simply taken on the legal representation himself instead of having to reach out to Mexico. As for my own situation, I will most likely give this specific treatment a shot, since there isn't a massive amount of money at stake here🙂 . Actually, I’ve been dealing with this issue on my elbows for several years now, though it started becoming quite aggravating this year once it began appearing on my scalp. So, if I decide to try it—and once I actually do—I will be sure to report my results back to you all...

Charles Chavez said:The guy probably just wants to help...

I’d prefer to believe that too, honestly. But that's exactly why I want to get these independent sites off the ground—to give us a better way to swap experiences. The domain is already locked down; right now, I'm just sketching out the site map. If you have any ideas for how to organize the content or what should be on there, please throw them my way. Also, if anyone wants to volunteer to help build this out, just hit me up here or send an email.

As for how much fish we should actually be eating, I’ve heard plenty of conflicting takes on that too... Either way, there's a massive difference between something fresh off the boat and those frozen fillets that have been sitting in a freezer since who knows when.

I finally managed to score some calcipotriol-based ointment! It’s called Sorel, and you can't find it anywhere here in the States, but I picked it up while I was traveling through a spot near $33 and honestly? So far, so good. It seems pretty legit!

Jose Murphy7 said:I prefer to believe that too, but seeing how much we learn from sharing experiences, I want to launch some independent sites. The domain is already secured; right now, I'm just mapping out the architecture. If anyone has suggestions for the organization or content, please let me know. Also, if you're interested in volunteering, feel free to reach out here or via email...

Check your PM🙂

Hey everyone.
I've got this early-stage autoimmune stuff, and it flares up whenever I'm stressed. Haven't touched any standard meds yet.
I don't know if you caught it, but there was this dermatologist on CNN yesterday talking about some bio-elixir method for psoriasis. Apparently, it's all about detoxing and resetting your immune system. They say it takes about ten days—side effects might happen during that time—but then it’s supposedly a permanent fix. It’s pretty pricey, though.
I mean, it sounds a bit too good to be true, like something out of a cartoon, but I'm still mulling it over (kind of like Professor Baltazar). If anyone here has actually tried Dr. Car or this specific method, please let me know what happened.

Thanks in advance.

brightmarlin110 said:Hey everyone!
I'm dealing with the early stages of this whole autoimmune mess—it flares up whenever I'm stressed out. Haven't touched any of the standard meds yet.
Not sure if you caught it, but there was this dermatologist on CNN yesterday talking about some bio-elixir method for treating psoriasis. Apparently, it’s all about detoxing and resetting your immune system. They say it takes about ten days—might have some side effects during the process, I guess—but then they claim the cure is permanent. Obviously, it's pretty pricey.
I know, I know... sounds totally sketchy, like something straight out of a cartoon, but I'm still mulling it over (kind of feeling like Baltazar here). If anyone has actually tried Dr. Markovic or this specific method, please let me know.

Thanks in advance.

Hmm, probably best to talk to the doctor directly first to see if it's legit. Might be worth a shot—if it works for psoriasis, maybe it'll handle neurodermatitis too. You got any info on her? A phone number or something? I'd like to reach out. Thanks.

Jose Murphy7 said:Mario, you've posted this exact same thing a bunch of times now. Look, I want to believe you mean well, but anyone actually looking for an answer has probably read everything already. Doing it this way? It's starting to look a lot like an ad.

🙂 So, I actually talked to the guy. He said he sends over the description along with his ointment and teas. Just so you know, the tea is about $15, and the 50g jar of ointment is also around $15—maybe $12 depending on the exchange rate. If the stuff actually works, it's a steal. If not? Well, you can judge for yourself... and don't forget you've got shipping costs on top of that!