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Psoriasis [PLEASE READ FIRST POST!]

Started by mistybear4 · · 👁 78 views · 2.3K replies

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brightmarlin110 brightmarlin110 Newcomer
2 messages
joined Apr 2007
#581 ·
Counseling services in Spain. 01 3874 667.
I guess I'll think about it a bit longer, but if I end up trying it, I might post a report.
And if anyone here has already dealt with this, maybe let me know how it went?
Jose Murphy7 Jose Murphy7 Member
13 messages
joined Apr 2007
#582 ·
Chris Morgan67 said:Shoot me a PM🙂

Restored 🙂
Robert Clark2 Robert Clark2 Active Member
121 messages
joined Apr 2008
#583 ·
Chris Morgan67 said:Sure thing, but they haven't found anything good enough to give us in pill form yet😬 so they just hand out creams.

Using them really boosts the quality of life for anyone dealing with psoriasis.👍

If you're looking at oral treatments for psoriasis, there's Accutane made by Roche. I personally took it starting at 30mg, then I'd drop the dose by 10mg every month until I was just taking 1mg every other day. It honestly worked wonders for me, but man, the side effects are absolutely brutal. Plus, I had to go in for blood work every 10 days to monitor my liver enzymes, lipids, glucose, and all that stuff. I wouldn't recommend it to just anyone. Luckily, I didn't run into any major issues myself.
Chris Morgan67 Chris Morgan67 Member
49 messages
joined Jul 2007
#584 ·
Robert Clark2 said:For treating psoriasis orally, there's an antipsoriatic called NEOTIGASON produced by Roche. I took it starting at 30mg, then lowered my dose by 10mg every month until I was back to 1mg every other day. It actually worked for me, but NEOTIGASON comes with a catastrophic list of side effects. On top of that, I had to get blood work done every ten days to monitor liver enzymes, lipids, glucose, and so on. I wouldn't recommend it to anyone. Luckily, I didn't experience any adverse reactions myself.

I'm familiar with that one too...😬

They are heavy medications with quite a few side effects...👎
Jose Murphy7 Jose Murphy7 Member
13 messages
joined Apr 2007
#585 ·
Robert Clark2 said:...plus, I had to get blood drawn every ten days just to monitor my liver enzymes, lipid levels, glucose, and all that. I wouldn't recommend it to anyone. Luckily, I didn't run into any major side effects.

I heard somewhere that psoriasis might be linked to liver dysfunction. Does anyone have experience with this or any data on it? Do doctors usually run liver panels for this?
Robert Clark2 Robert Clark2 Active Member
121 messages
joined Apr 2008
#586 ·
Chris Morgan67 said:I've dealt with that too😬

but we're talking heavy-duty meds here, and they come with a whole list of side effects.👎

Look, if you've just got a little patch of psoriasis on your elbows or knees, sure, an over-the-counter cream or ointment does the trick. But what happens when everything hits you at once? We're talking plaque psoriasis, erythrodermic psoriasis, and psoriatic arthritis all crashing the party at the same time...
What do you guys think?
Jose Murphy7 Jose Murphy7 Member
13 messages
joined Apr 2007
#587 ·
Psoriatic arthritis is basically just an extension of psoriasis (along with a few other variations), and unfortunately, it’s not all that uncommon... I get where you're coming from—when you're in that kind of pain, you aren't exactly picky about what kind of medicine works.
Jose Murphy7 Jose Murphy7 Member
13 messages
joined Apr 2007
#588 ·
Quick question: we're currently treating my son with herbal therapy, but per the instructions, we're only applying it below the waist. For anything above the waist, we were told to use brandy if he gets itchy, but that only helps for a few minutes before the itching kicks back in. Does anyone have recommendations for a neutral soothing agent instead?

O.T.
Any logo ideas for psoriasis.info...? Please and thank you...
Robert Clark2 Robert Clark2 Active Member
121 messages
joined Apr 2008
#589 ·
Jose Murphy7 said:Question: We’re currently treating my son with herbal therapy, but following instructions, we only apply it below the waist. For the upper body, we were told to use brandy if he gets itchy, but that only helps for a few minutes before the itching comes right back. Does anyone have a recommendation for a neutral remedy?

O.T.
Any logo ideas for psoriasis.info...? Please help!

🙂 Personally, I don't think putting alcohol on irritated skin is a great move—it feels like a temporary fix and can actually make the irritation worse. Have you thought about trying an aloe cream with Neven? Or maybe you've heard of Shilajit balm from the Altai Mountains? You could even try Shilajit tablets dissolved in natural pomegranate juice mixed with some honey. If you want, I can send you the recipe.
nimbledriver81 nimbledriver81 Active Member
96 messages
joined Aug 2007
#590 ·
Jose Murphy7 said:Question: We’re currently treating my son with herbal therapy, but following the instructions, we only apply it to his lower half. For anything above the waist, we were told to use brandy if he gets itchy—but honestly, that only helps for a few minutes before the itching comes right back! Does anyone have a recommendation for a more neutral soothing agent?


You really ought to consult Dr. Markovic over at the Cedrus Center.

Robert Clark2, I would suggest the exact same thing to you!
Chris Morgan67 Chris Morgan67 Member
49 messages
joined Jul 2007
#591 ·
Robert Clark2 said:If you just have a bit of psoriasis on your elbows or knees, a simple ointment or cream might do the trick. But what happens when everything hits you at once—vulgaris, erythrodermic, and psoriatic arthritis...
I'd love to hear your thoughts.

In those cases, it’s likely a combination of treatments. Immunosuppressants, oral medications, physical therapy, topical creams, and phototherapy...
Chris Morgan67 Chris Morgan67 Member
49 messages
joined Jul 2007
#592 ·
Jose Murphy7 said:Question: We're currently treating our son with herbal therapy, but per the instructions, we only apply it below the waist. For the upper body, we were told to use brandy if he gets itchy, but that only provides relief for a few minutes before the itching returns. Does anyone have a recommendation for a neutral remedy?

Try applying a body lotion or baby oil to his skin. Something like Nivea...

That usually helps soothe the itching for me...👍
Jose Murphy7 Jose Murphy7 Member
13 messages
joined Apr 2007
#593 ·
Thanks for all the input, everyone. For now, we'll just stick to a basic body lotion or maybe some oil. While I'm going through this treatment, I really don't want to mess with anything else that isn't completely neutral.
Maria Doyle27 Maria Doyle27 Newcomer
1 message
joined Apr 2007
#594 ·
I was hit with psoriasis when I was nineteen, following a prolonged stretch of depression and self-pity—which, if I’m being honest, probably served as the trigger, since there isn't a single case of it in my family history... and it's a particularly nasty variety, psoriasis inversa generalisata, meaning there isn't a single inch of skin that hasn't been affected, which is just terrifying.

I tried treating it with every conceivable corticosteroid under the sun, both the standard ones and the experimental stuff, but absolutely nothing worked until I finally sought treatment at Petroleum... they prescribed me certain petroleum-based oils and creams, and the effect was instantaneous, and I mean literally immediate!

Of course, there was this wonderful window of time where it had completely vanished, yet everything came rushing back about six months ago, and now I find myself once again covered from head to toe, feeling utterly miserable because the warmer weather is approaching and I feel forced to hide my arms and legs.

In general, during that period when the flare-ups had almost entirely subsided, I was quite meticulous about my diet—well, I cut out red meat and refined sugar (meaning, essentially, every sweet treat imaginable), white flour, coffee, and alcohol (though, naturally, I made exceptions on the weekends 😁 )....I could have easily lost weight just by breathing, but I definitely felt better. And I made a conscious effort not to get overly stressed, trying to maintain a positive outlook... every single doctor I saw (and I cycled through about seven or eight of them) insisted that having a positive mindset accounts for nearly fifty percent of the battle, while the rest is down to diet, regular check-ups, boosting the immune system, and so on.

I don't know, that Petroleum treatment truly did wonders for me, clearing almost everything off my body, though I never could quite manage to resolve the issues on my scalp entirely.😠
swiftscout8 swiftscout8 Active Member
87 messages
joined Apr 2007
#595 ·
brexy24 said:CALL THIS GUY AND REACH AN AGREEMENT; HE'LL HELP YOU OUT. AT LEAST HE HELPED ME.

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I've figured out that stress is my main trigger. After a few high-pressure situations, I developed patches within just a couple of weeks. It starts as a tiny pimple that eventually turns into a scab. If I don't treat it, it starts spreading. For me, the only thing that works is salicylic acid. I know all about the side effects, but if I want to live a normal life, I'm forced to use it. Of course, I don't use it constantly; I have to give my skin time to recover from the treatment. Zinc is my absolute worst enemy... it just irritates and inflames my skin even more.
Jose Murphy7 Jose Murphy7 Member
13 messages
joined Apr 2007
#596 ·
I’ve been trying to step away from the daily grind during the holidays, which is why I didn't get this posted sooner:
I hope you all had a blessed and peaceful Christian Easter surrounded by family and loved ones—taking that time for yourself is actually vital for your health.
My wish for everyone is that you find a little pocket of peace and love within yourselves, discovering a personal source of strength and calm to help guide you forward with faith and confidence.
Sending my best wishes and blessings to you all.

Just as Easter represents a promise of faith for Christians, I hope you all can hold onto a belief in a better tomorrow, free from this obnoxious illness (or at least without its most obvious symptoms)...
Grace Green6 Grace Green6 Newcomer
5 messages
joined Apr 2007
#597 ·
I tried reading through everything, but I lost steam once I hit that back-and-forth argument with MacGregor.

I've been dealing with psoriasis for about 18 years now—basically two decades.
Elbows, palms, feet, nails... it’s a mess. Honestly, I've made my peace with it and don't let it get to me, though my elbows can be a bit of a pain. Whatever.

Here is the routine I stick to when I really need things to improve:
Cut out meat—try it for at least a month and you'll see a difference, 100%.
Cut out all fats except olive oil.
Vegetables, vegetables, fruit, grains, then more vegetables... you get the idea.
Omega 3 is a must.
Duovit multivitamins.
Vitamin D drops.
And Labolan cream.
In between, I use St. John's Wort infused in olive oil—it works wonders.

When I actually follow this regimen and happen to be by the coast, it clears right up.
But I'll admit, I lack the discipline sometimes, so I slip up and have to start all over again.
mistybear20 mistybear20 Newcomer
8 messages
joined Mar 2007
#598 ·
Grace Green6 said:I’m basically rubbing myself down with St. John's Wort infused in olive oil—it’s practically the law!

Wait, where on earth do you even find St. John's Wort pre-mixed with olive oil? I’ve been hunting for that exact combo everywhere and totally struck out. I can find them separately at the health food store, but finding them already blended together is like finding a needle in a haystack!
Chris Morgan67 Chris Morgan67 Member
49 messages
joined Jul 2007
#599 ·
mistybear20 said:Where on earth do you find St. John's Wort infused in olive oil? I've been hunting for that exact thing without any luck; I can find them separately, but never together...

Every bottle of St. John's Wort you buy is already infused in olive oil.
There isn't really another way to get it. I pick mine up from Holy Planta for about five dollars...👍
Zachary Scott67 Zachary Scott67 Newcomer
6 messages
joined Jan 2009
#600 ·
I’m pretty sure stress is the main trigger—at least from what I’ve seen with friends or family dealing with psoriasis. Definitely hit the beach this summer if you can, the ocean air helps, but otherwise maybe look into some relaxation stuff... like autogenic training or whatever. Once you sort out the stress or whatever mess brought the psoriasis on in the first place, it should start backing off gradually.

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