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Psoriasis [PLEASE READ FIRST POST!]

Started by mistybear4 · · 👁 142 views · 2.3K replies

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Elizabeth Lee49 Elizabeth Lee49 Member
42 messages
joined May 2007
#1041 ·
Sophia Campbell73 said:What are the odds that a child will develop psoriasis if their mother has it? I struggle so much seeing every single little spot on my kid's skin. If anyone has any insight or experience, please let me know.
Greetings from a worried mom!

Sophia, don't panic unnecessarily... first off, it really depends on how many people in the family have psoriasis and which side of the family it comes from, but it absolutely doesn't mean that because Mom has it, the kids have to. It all comes down to so many different factors... mainly a person's constitution and how their immune system is holding up. From what I know, a child doesn't necessarily catch it just because the mother has it. In my family, for instance, nobody else has it—honestly, nobody even remembers anyone ever having it—yet here I am. So, there aren't really set rules with this thing. I have a little boy too, but I don't think he's going to get it. Just try to stay positive. THE RULE IS THAT THERE ARE NO RULES. Don't worry more than you have to. Last year, my son broke out in these big rashes while we were on vacation... for a split second, I started doubting myself, but it didn't matter since it cleared up so fast for him. I realized afterward I was probably just being paranoid and crazy, jumping straight to psoriasis like everyone else does here. Don't weigh your kids down with this fear... they might never even deal with it. You can actually fight psoriasis just by keeping a positive mindset. I hope this helps ease your mind a bit... especially when the kids are healthy, happy, and acting totally normal.
Best,😍
Chris Morgan67 Chris Morgan67 Member
49 messages
joined Jul 2007
#1042 ·
I was just browsing through The Psoriasis Foundation website...

It turns out about 10% of the population carries the psoriasis gene, yet it only actually develops in roughly 2-3% of people...
silentheron25 silentheron25 Newcomer
5 messages
joined May 2007
#1043 ·
Gregory Mendoza3, his skin looks absolutely terrible right now, but what can you do? I honestly think this balm is going to help. It hasn't fully healed me yet, but I can definitely see changes: the scaling is gone, the color isn't that angry red it used to be, and the patches have thinned out significantly. As for the smell and the messiness, that's an easy fix. I don't use Nivea cream; I just use Nivea lotion after I shower. The cream itself is way too greasy and a pain to spread, whereas the lotion is much easier to apply and you don't go through nearly as much of it. Personally, I wouldn't bother going to the hospital—they'll just try to push those industrial ointments that don't actually heal anything and just end up damaging your skin further.
Nicole James Nicole James Regular
313 messages
joined Dec 2010
#1044 ·
So, there are actually 195,000,000 people out there who look just like me... Wow... I'm really not alone 😁
Chris Morgan67 Chris Morgan67 Member
49 messages
joined Jul 2007
#1045 ·
Gregory Mendoza3, I'm asking you once more—if you're reading this, please go see a doctor.
The specific type of psoriasis you're dealing with can be quite serious...

A doctor!!!!
silentheron25 silentheron25 Newcomer
5 messages
joined May 2007
#1046 ·
http://images.google.com/imgres?imgur...%3Dus%26sa%3DN

Once you step out and actually see what’s happening, you realize things can always get worse. It’s honestly unbelievable how much junk is out there. Then you look around and see people just destroying themselves, poisoning their bodies with all kinds of crap and showing zero respect for their own health. There’s just no easy way out of this mess. 👎
Chris Morgan67 Chris Morgan67 Member
49 messages
joined Jul 2007
#1047 ·
silentheron25 said:http://images.google.com/imgres?imgur...%3Dus%26sa%3DN

Once you see what’s actually out there, you realize things can always get worse. It’s honestly unbelievable how much nonsense exists. Then you look around at people destroying themselves, poisoning their bodies with all sorts of junk, and completely ignoring their health... and there's just no way to fix it all. 👎

But honestly, getting worked up over this isn't going to get us anywhere.
We are where we are, dealing with this condition.

It took me quite a while to come to terms with it, but I finally have, and I'm proud that my entire life doesn't revolve around psoriasis anymore...👍
Kate Collins82 Kate Collins82 Newcomer
3 messages
joined Jun 2007
#1048 ·
Hi everyone.
I’ve been lurking on this forum for quite some time now, but I just haven't found the right moment to jump in.
My biggest wish is for everyone here to finally get rid of their psoriasis—or at least find some lasting relief!
My own journey started about four years ago.
It hasn't reached the extreme levels some of you deal with, but it's still a struggle...
I feel like I've tried everything under the sun, yet it always comes back! I might get a few months of clear skin, and then it's right back to square one.
I noticed that ZaleCENI mentioned having something from his old routine... how would I even go about trying that since I'm living in the US (and I'm not exactly rolling in extra cash)?
Michael Ramos3, please reach out to me somehow—I'm not quite sure how this works... I've left my Email in the details!
Sophia Campbell73 Sophia Campbell73 Member
36 messages
joined Jun 2007
#1049 ·
Gabby and Chris Morgan67, thank you both so much for the kind words and the support. It really means a lot. I’m holding onto the hope that you guys are right and that I’m just spiraling for no reason. Honestly, this is the first time since becoming a mom that I've even let this doubt slip out—I've never actually said it out loud or shared it with anyone before. In moments like this, I can't help but spiral into wondering if I was being selfish when I decided to have kids... like, am I potentially sentencing them to deal with this condition their whole lives? If the worst were to happen, God forbid, I know I'd carry that guilt forever, even though I didn't choose to get sick myself.
I'm not going to freak out, but I honestly don't think I'll ever truly shake this feeling.
P.S. In my entire family—which isn't exactly huge—only one uncle (out of four brothers) has psoriasis, plus me.
Chris Morgan67 Chris Morgan67 Member
49 messages
joined Jul 2007
#1050 ·
Sophia Campbell73 said:Gabby and Chris Morgan67, thank you both so much for the comfort and support. I really hope you're right and that I'm just panicking for no reason. This is actually the first time since becoming a mother that I've let this doubt surface... I've never voiced it or even shared it with anyone before.In moments like this, I can't help but wonder if I was being selfish when I decided to have children by potentially condemning them to carry this condition their whole lives. If heaven forbid it happens, I know I'll feel guilty, regardless of the fact that I didn't choose to get sick myself.
I won't panic, but I don't think I'll ever truly shake this feeling...
P.S. In my small family, only one uncle out of four brothers has psoriasis, along with me.

Don't think like that!
While psoriasis can be awful, most people only deal with a few spots.

Just imagine if your own mother had killed you because some old fortune teller told her you'd end up with psoriasis...😲 🤣

I am incredibly happy with my life, and psoriasis is just a side note...🙂
Sophia Campbell73 Sophia Campbell73 Member
36 messages
joined Jun 2007
#1051 ·
You’re probably right—honestly, I’m doing pretty well with my psoriasis today, though if I had been sick back then, I really wish my mom had just done exactly that. The place I live is... well, let's just say it's pretty backward when it comes to this stuff, and honestly, most other things too. Everyone has their flaws, sure, but everyone here spends so much time pretending to be something they aren't—and man, you have to admit, that’s a heavy burden to carry.
I’m a completely different person now compared to the girl I was at the start. Seriously, every single bit of positive encouragement on these pages has helped me more than I can say—and keeps helping, too.
Still, every once in a while, a little streak of doubt or just a tiny dose of fear flies through my head. Like, what if...
Maybe it just looks that way in this corner of the internet, but I’m not a negative person in general, even if life has thrown some pretty brutal situations my way that tried to break me.
silentheron25 silentheron25 Newcomer
5 messages
joined May 2007
#1052 ·
Personally, I think there's a bit of selfishness involved in deciding to have kids just because society says it's "normal." Look, my views are a little different from the crowd, so don't take this too personally, but here's where I stand: I don't plan on having children—not because of psoriasis, but because I just don't see myself as a parent. It’s better not to bring someone into this world only to force them to deal with their own set of struggles just because that's who I am. Plus, passing down these genes knowing you'll likely hand off this psoriasis burden to some kid down the line? I'm not a fan. I remember how rough things were when I was younger, and seeing someone else go through that because of genetics feels wrong. If I ever do decide to have kids, I'll probably adopt; there are plenty of kids out there waiting for a home. Bringing new lives into the world feels a bit selfish right now, especially when people everywhere are struggling daily just to access basics like food, water, or dealing with the consequences of HIV, which I can't stand. Having kids is a huge responsibility, and adding this medical mess on top of it? It's better to skip it if we're already dealing with these issues. That's just my take on it... hopefully, I won't get flamed for saying that, right jadesailor14? 😁 👍
The balm actually works, though it moves pretty slowly and the redness hasn't cleared up yet. I'll manage, though. It'll get better day by day.
Chris Morgan67 Chris Morgan67 Member
49 messages
joined Jul 2007
#1053 ·
@silentheron25—that’s just your take... I don't agree at all, but I respect it, and honestly, nobody's going to hand you a red card for saying it, goodness knows...😬

@Sophia Campbell73—I get why one would wonder... but I truly believe your children will have the most beautiful lives imaginable, and the mere possibility of developing psoriasis won't change that.🙂
Michael Ramos3 Michael Ramos3 Active Member
196 messages
joined Apr 2007
#1054 ·
silentheron25 said:Personally, I think it’s actually a bit selfish to have kids just because society says we "have" to. I have different views than most, so don't get too worked up, but here's my take: I don't plan on having children because of psoriasis, but also because I just don't see myself as a parent. It's better not to have them at all than to bring someone into this world only for them to deal with their own set of struggles because of who I am. Passing down these genes, knowing you'll likely hand off this psoriasis burden to some kid down the line, doesn't sit right with me. I know how hard it was when I was younger, and seeing someone else live through it again is tough since it's genetic. If I ever do have kids, I'll probably adopt; there are plenty of kids out there waiting for help, and bringing new ones into the world feels a bit selfish right now, especially when people are struggling daily just for basics like food, water, or dealing with the consequences of HIV, which I'm allergic to. It isn't simple. You shouldn't have kids only to pile more misery on them. That's just my stance... hope that doesn't get me canceled, jadesailor14 😁 👍
The balm works, though it's pretty slow and the redness is still there. I'll manage. It'll get better every day.

Let's save this heavy topic for when you are finally Healed from psoriasis. I bet everything will feel different then.

Regards
copperviper102 copperviper102 Member
38 messages
joined May 2007
#1055 ·
So, it’s been exactly one week since I started using the balm, and just like I promised, I’m checking in to give you guys the lowdown on where things stand. Honestly, getting into the routine hasn't been nearly as brutal as those first few days—you even get used to the smell after a while, I guess😁—so things are definitely looking up on that front. My scalp is pretty much clear now (it’s actually been totally clean for two days), and those red patches above my ears have faded to a much lighter shade of crimson. The inside of my ears looks great too, and everything around my eyes is back to normal. But the biggest win regarding my ears? That intense pain I kept complaining about is finally gone...🙏 On my chest, there’s this one larger patch that actually looks even brighter red than it did two days ago... (and since I’m a naturally impatient guy, I really wish this whole process would just pick up the pace😳). Down "below," things are looking better than ever today... it's still red, sure, but it’s lost that angry, bright look and seems to be starting to fade. Again, the most important part is that the pain is gone, and that tight, pulling sensation has finally let up👍 🙏 🤣
Bottom line: I’m stoked with how this is going. Now, the only thing I’m sitting around waiting for is that itching sensation (because apparently, that’s supposed to be the sign that the psoriasis is finally dying off... hallelujah!). Man, I’m restless though... I catch myself wishing I could just strip down and shower completely naked without a care in the world. I know, I know, I'm just sitting here wasting time and being impatient when I know this stuff takes time to work, but man, I am ready for this to be over😁
Cheers to everyone, and a special shout-out to Gregory Mendoza3... I hope things are starting to turn a corner for you too (unless you’ve already checked yourself into the hospital)
Elizabeth Lee49 Elizabeth Lee49 Member
42 messages
joined May 2007
#1056 ·
silentheron25 said:I honestly feel like it might be a little selfish to have kids... since there's this pressure that we all *have* to have them and that it's just the "normal" thing to do. I have slightly different views than most people, so don't take this too hard, but here's my take. I don't intend to have children because of the psoriasis, but more because I just don't see myself as a parent type. It feels better not to have them than to bring someone into this world who has to deal with certain flaws or struggles just because that's how I turned out. Plus, passing those genes down knowing you'll likely hand that psoriasis gene to someone, somewhere, down the line... I don't like that feeling. I know how hard it was for me when I was younger, and seeing someone else live through that again because of genetics... it's tough. If I ever do have kids, I'll probably adopt. There are plenty of kids out there waiting for help, and bringing new lives into the world feels a bit selfish to me these days, especially when everyone is struggling just to get the basics—like food, water, or dealing with things like the consequences of HIV, which I'm sensitive to. It’s not that simple. You shouldn't have to have kids only to give them additional misery if one of us is already dealing with this. That's just my view on it... probably won't win any awards for it, right jadesailor14? 😁 👍
anyway, the balm seems to be working, it's just going pretty slow and the redness is still there... but I'll manage somehow. It'll get better every day

Kids are the best thing in life. Sure, they aren't easy, there are problems every single day and a lot of stress, but I think the happiness that comes from their little lives can't be compared to anything else. When my son hugs me and tells me I'm the best mom in the world, or when he pets me with those tiny hands and tells me he learned everything from me... man, psoriasis has nothing to do with that. Kids are an invaluable source of joy and positive vibes in any family. Believe me, there is nothing better. I respect your perspective, but please consider mine while you're weighing whether or not to have them. (My recommendation is to have them). Life is just better with them. As a mother, I know because I've felt it, and nothing compares to the love for a partner. This love for children is the real, honest, pure stuff. Best, (just think about what I wrote)😉
silentheron25 silentheron25 Newcomer
5 messages
joined May 2007
#1057 ·
I hear you, and I totally get where you're coming from regarding your kid. Personally, I’ve always felt that kind of lifestyle just isn't for me—I've had that mindset since I was a teenager, and honestly, nearly ten years later, nothing has changed. Of course, nothing is impossible; I could certainly grab my kid's hand and face things head-on, but it’s just incredibly difficult. And it's not even about the psoriasis specifically; it's more this deep-seated conviction that kids just aren't my thing. dragon, if your hair is long or even just medium length, just shave it all off already. When I shaved mine down to almost nothing, everything cleared up—I just started using a basic gel shampoo. My back and legs still itch constantly, and while the skin there is actually smooth now, the redness is still super obvious, even if it is fading bit by bit. Eventually, it'll clear up and that'll be that. Anything else is out of the question.
silentheron25 silentheron25 Newcomer
5 messages
joined May 2007
#1058 ·
So, I’ve been using the balm for a week now. While I can see the swelling has gone down slightly, the redness just isn't budging, and my hands are looking exactly the same as they always do. It might be marginally better, but honestly, you could still see the irritation from an airplane window.
Sophia Campbell73 Sophia Campbell73 Member
36 messages
joined Jun 2007
#1059 ·
Chris Morgan67, thanks for being such a sweetheart and keeping things so positive. Honestly, I think everyone around you is just lucky to know you.
Stay happy always, and I really hope your biggest "struggle" in life ends up being nothing more than psoriasis.
Sending love and a big hug!
urbangull urbangull Member
22 messages
joined Feb 2007
#1060 ·
Hello everyone. It’s good to see such an optimistic mood and plenty of praise flowing through here. Does anyone happen to know anything about DIPROSALIK? I understand it can be sourced in Bulgaria.

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