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Psoriasis [PLEASE READ FIRST POST!]

Started by mistybear4 · · 👁 136 views · 2.3K replies

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Elizabeth Lee49 Elizabeth Lee49 Member
42 messages
joined May 2007
#1001 ·
Hey there,
I haven't been active on this forum for quite a while now, but don't think for a second that I've stopped following along with all your posts... First off, I want to wish everyone who started using the balm nothing but success, and I'm eagerly waiting to hear how things turn out for you. If the results end up being good, maybe I'll finally dive into that adventure myself... It’s clear everyone here has such a great spirit, and I really respect those attitudes. Keep pushing forward!!!!!!! Sending a special shout-out to Gregory Mendoza3—wishing him absolutely nothing but the best and a sure recovery. Much love to you all, Gabby is always watching over you.
Elizabeth Lee49 Elizabeth Lee49 Member
42 messages
joined May 2007
#1002 ·
Sophia Campbell73 said:Michael Ramos3, thanks for the kind words... If I didn't have faith in God, I wouldn't even be having these kinds of conversations with you all.
When my psoriasis first hit, it felt like the end of the world. For years, only my family knew what I was going through. Eventually, things shifted slightly—I stopped hiding it quite as much, but those stares and questions... they were still too much to handle. Over the last five or six years, though, I haven't been hiding. I can answer questions about my skin patterns more easily now. I'm actually seeing my hair stylist and getting my makeup done again...
I've accepted this condition... or at least, I think I have.
I still have those little moments of crisis, but they pass quickly. Honestly, I don't really have the luxury of self-pity when I have three kids who need me 24/7.
I truly hope this is the end of the road for my psoriasis.
P.S. I'd look ridiculous in a swimsuit for the rest of my life. I'd have to find help somewhere else...
Glory to the Lord!!

Sophia Campbell73, don't lose hope. There are plenty of us out here. Keep your head up.👍
Grace Green6 Grace Green6 Newcomer
5 messages
joined Apr 2007
#1003 ·
After reading the description of this balm... I know exactly what we're dealing with. I used an identical cream from an herbalist back home, based on petroleum and various herbs.

It works, sure, but only while you're actually using it. It cleared everything up for me, but once I stopped applying it, everything came roaring back within a week.

The real issue with this stuff is that it leaves black stains on everything and smells absolutely horrific. It’s basically useless to me because I can't exactly walk around in public with pitch-black elbows. Plus, that balm from Healed is way too expensive; this version from Kajtezović is three times cheaper.

Maybe it’ll work for the rest of you, though. Honestly, I hope it does.

If any of you are in the area, I can give you the number so you can pick some up locally.
Gregory Mendoza3 Gregory Mendoza3 Active Member
79 messages
joined May 2007
#1004 ·
Grace Green6 said:Now that I've actually read the description of this balm... I know exactly what we're dealing with... I used an identical cream back in the day from that herbalist Kajtezović over in Bihać, made on a petroleum base mixed with some herbs.

Look, it works, but only while you're actually slathering it on... it cleared everything up for me, but the second I stopped using it, everything came roaring back within a week.

The real headache with that balm is that it leaves these nasty black stains on everything and smells like absolute death... it’s just totally useless for me because I can't walk around out in public with pitch-black elbows... plus, that stuff from Michael Ramos3 is way too expensive... this Kajtezović version is like three times cheaper.

Maybe it'll work for all of you though, I honestly hope it does..

For those of you living in the States, I can give you the number so you can just grab some locally.

Look, I'm not here to start some massive debate about anyone's personal observations or opinions, and I'm definitely not trying to push any specific type of therapy on anyone...

But honestly, it feels like everyone is being a bit too quick to judge... I've tried plenty of balms based on tar or petroleum before... I went through two or three different kinds and not a single one did a damn thing for me!

Actually, one of them made my skin look absolutely horrific... it was terrifying...

This stuff doesn't strike me as being like those old balms, though... it looks more like resin mixed with something else... maybe spruce resin or something similar (just a guess) ... it smells different and it washes off way easier—like, completely—so you aren't walking around with blackened knuckles or staining everything you touch.

Besides, the four of us are testing it out right now, so pretty soon almost everyone on this forum is going to have actual results... and once it runs out, we'll see if the flare-ups come back or not (take my word for it), and then we can finally put an end to this whole endless argument about this balm. It either works or it doesn't... either it comes back fast, or it stays away, or it's gone for good... and we're just gonna need a little patience to find out.

Right?
mistybear20 mistybear20 Newcomer
8 messages
joined Mar 2007
#1005 ·
Hey everyone! I've got a quick question for those of you who are using the balm. I’m using it myself right now, and I was wondering—do you guys just wait for the skin to flake off naturally on its own, or do you actually help it along by gently peeling it once you see it's almost ready to come loose?
Michael Ramos3 Michael Ramos3 Active Member
196 messages
joined Apr 2007
#1006 ·
Repeating this again (my apologies to those who already read it).

Petroleum..........................................................................0%
Heavy metals....................................................15X below the limit
Bacteria......................................................................................None whatsoever
Alcohol.........................................................................................0%
Corticosteroids.....................................................................0.0000000000%
Chemicals....................................................................................0%
Plant roots......................................................................................YES
Olive oil..........................................................................................YES
Herbs..............................................................................................YES
Resins.............................................................................................YES
Whatever else I don't know yet (still my father's secret alone)...............YES

Apply to healthy skin......................................................................YES
Apply to open wounds.....................................................................YES
Use for people with hypersensitive skin.........................................YES
Ingest..............................................................................................NO
Apply in the shower.........................................................................NO
though if you do, rinse it off
Apply to genitals and mucous membranes.........................................YES
Removes dandruff.............................................................................YES
Works on other skin issues too.........................................................YES
Other uses we haven't found yet (God willing)..............................PROBABLY

If I remember anything else, I'll add it.

Regards
Michael Ramos3 Michael Ramos3 Active Member
196 messages
joined Apr 2007
#1007 ·
mistybear20 said:Quick question for those using the balm. I'm using it too and wondering—do you just wait for the skin to flake off naturally, or do you actually peel it once it looks ready?

Go to any grocery store; they sell linen gloves meant for sauna use. Use one of those to scrub while you shower in the morning. It’s firm enough and it's natural. That’ll take care of everything that's ready to come off, or what's likely to drop off by tomorrow, hopefully. Keep yourself hydrated during the day with Nivea or something similar—Gregory Mendoza3 and copperviper102 were just talking about that. My dad never had access to these kinds of creams back in the day, which is why he still swears by Nivea.

Post here or send me a private message letting me know how long you've been using it and what kind of results you're seeing.
Please.
mistybear20 mistybear20 Newcomer
8 messages
joined Mar 2007
#1008 ·
I haven't seen any massive breakthroughs just yet since I only applied it for the first time last night, but as soon as I start seeing some real progress, I'll definitely jump back in here and let you guys know!
Chris Morgan67 Chris Morgan67 Member
49 messages
joined Jul 2007
#1009 ·
Grace Green6 said:Reading that description... I know exactly what they mean. I used a similar petroleum-based herbal ointment from a local herbalist back home...

The truth is, it works, but only while you're actually using it. It cleared everything up for me, but once I stopped applying it, everything came rushing back within a week...

The issue with these ointments is that they leave black stains on everything and smell absolutely terrible. It’s just not practical for me; I can't exactly walk around with black elbows... plus, that stuff from Michael Ramos3 is way too expensive. This herbal version is about a third of the price...

Maybe it will work for all of you, though. I truly hope so...

For those living in the States, I can pass along a number if you want to pick some up locally...

Looking at the description of that balm, it sounds like something I've tried before...
A family friend has been making her own version of this for years, keeping the recipe close...

It's dark brown, quite thick, and has that heavy scent of petroleum, herbs, and grease. It stained my clothes and the smell is quite intense...
Casey Miller9 Casey Miller9 Member
44 messages
joined Jan 2008
#1010 ·
Chris Morgan67 said:Reading the description for that balm, I feel like I've tried something pretty similar before.
A family friend of mine has been making her own version of that balm for years and keeps the recipe close.

The stuff is dark brown, pretty thick, and smells like petroleum, herbs, or grease. It stained my clothes and the smell is intense.

Everything there is spot on—except it doesn't really smell like petroleum. More like some kind of pine resin, I guess, maybe?
urbangull urbangull Member
22 messages
joined Feb 2007
#1011 ·
Robert Clark2 said:🙂 Soap, Pavlović baby cream, and Vitamin A—those are all fine enough. I haven't really messed around with patches, though. As for Butavat ointment or cream, I’ve definitely had experience with that. 👎 Skin poison—that’s my honest advice: stay far away from it. I have no idea how they even manage to get products like this onto our shelves. I actually heard from a friend who works as a pharmacist that it gets distributed through... Black.Regarding the markets—if I recall correctly, the packaging displays a pharmacy label and the price listed in Euros (though written in Greek). I actually reached out to an eminent professor of dermatology at a major skin clinic in Skopje, and the moment I mentioned that I was using this, he immediately forbade it. My subsequent treatment plan was switched over to Neotigason.
My advice? Go see a professional dermatologist regarding the Butavat issue, and for heaven's sake, stop recommending it to anyone else. If I recall correctly, even Gregory Mendoza3 ran into trouble because of it.

It seems you have some experience with Butavat, much like Gregory Mendoza3. However, I have a different perspective to offer than what you both are suggesting. In my own city, I actually ran into someone who used Butavat and managed to clear up all their psoriasis symptoms entirely. They stayed completely clear for two years straight, right up until today, when a tiny spot just popped up on their elbow. Robert Clark2, would you mind sharing the name of that eminent professor from Mexico? I’d like to consult with them before I decide whether or not to start using this myself.😕
urbangull urbangull Member
22 messages
joined Feb 2007
#1012 ·
Hello Gabby. I’ll switch over to Mexican for a moment, though I hope nobody takes offense at that.
It’s great that they aren't present here. I’m from Veles and have been dealing with psoriasis for seven years now. I was wondering if you could tell me where you source those Chinese patches. Best regards.
Sophia Campbell73 Sophia Campbell73 Member
36 messages
joined Jun 2007
#1013 ·
It honestly feels like most of these greasy ointments and creams do more harm than good at this point.
From now on, I’m sticking to just St. John's Wort oil and calendula cream—though, if I'm being real, I'm a little worried that might not be enough to actually keep this thing under wraps. I'll hang on for a bit longer to see how Michael Ramos3's balm works before I decide whether to add that to the rotation.
On top of all that, my nails have been messed up for a few years now, and my joints are killing me (mostly my hands, especially the left one). About a year ago, I finally went to see a Dermatologist, and they prescribed some topical stuff—something like Sinelar or whatever—along with some anti-inflammatory meds (which I never take) and told me to get tested for rheumatism. The results came back negative, so I basically just stopped going.
I’m kind of at a loss here because I don't even touch painkillers. For now, I'm just powering through, but I don't think I can keep playing it this way if things keep getting worse.
Robert Clark2 mentioned he was dealing with psoriatic arthritis—does what I'm going through sound like that?
Sophia Campbell73 Sophia Campbell73 Member
36 messages
joined Jun 2007
#1014 ·
Hey silentheron25, thanks a million for that mixture you shared. It’s actually the exact same ratio I’ve been following straight out of Maria Treben’s book. I’ve even been making my own ointment using Rosopas juice, though—full disclosure—I just got a little warning here on the forum to be careful with Rosopas. According to the book, I should also be doing baths with black alder or chamomile, but honestly, I haven't gotten around to trying either of those yet.
Regarding the diet, definitely skip the raw apples—not a good idea—but having an apple compote every day is fine.

BEST REGARDS!!
silentheron25 silentheron25 Newcomer
5 messages
joined May 2007
#1015 ·
Look, Sophia Campbell73, I’ve never actually been a huge fan of those baths. As for the balms, people always bring up that one from the herbalist Kajtezović. I still have some lying around, and honestly, before I started using the oil from Healed, I tried that one too. It helped a tiny bit with the redness, but it just wouldn't clear up completely. There is a massive difference between the Kajtezović balm and the stuff from Healed—they aren't even in the same league. I can send over a photo if you really need to see the difference, but even just looking at the ingredients, it's obvious. Tonight marks my third time applying the Healed oil. I've got plenty of patience, and I truly believe it's going to work.
Robert Clark2 Robert Clark2 Active Member
121 messages
joined Apr 2008
#1016 ·
urbangull said:I see you've had some experience with Butavat, just like Gregory Mendoza3. Honestly, I’ve got a different take on this one. Back in my hometown, I actually ran into someone who used Butavat and completely cleared up all their psoriasis. They stayed clear for two whole years—totally spotless—until just recently when a tiny spot popped up on their elbow. Robert Clark2, any chance you could drop that famous professor's name from Mexico? I really want to check in with them before I decide whether to give this stuff a shot or not.😕

Hey urbangull! I really want to help you out here. Just a heads-up: Butavat is a super strong corticosteroid. I ended up wrecking my own skin using it—it actually triggered erythrodermia for me. It made my skin so thin that I’m constantly freezing now. Since my skin barrier is basically shot, my body can't hold onto its heat anymore; the warmth just escapes right through.
In the end, you won't get anything out of it. It'll just be a total waste of your time and cause damage you can't undo. You're honestly just setting yourself up for an even bigger disappointment later on.
Gabby and Gregory Mendoza3 both used it, so why don't you just ask them what they think?
I'll shoot you a private message with the name of this amazing doctor. Honestly, you should just head over to her clinic for a full exam—it’s worth it. Just try to pull some strings and see if you can get a good referral or a solid connection there!
Robert Clark2 Robert Clark2 Active Member
121 messages
joined Apr 2008
#1017 ·
Casey Miller9 said:Everything there is spot on, except it doesn't smell like oil or petroleum. It’s more like a pine resin scent, if that makes sense.

Exactly! It smells just like pine and has that same color. I'm just not sure if it's from Healed or
some other herbalist out there.
A buddy actually gave it to me to help me out—he got it as a promotional sample from someone. That was about three years ago.
I know I have some stashed somewhere in the house, probably a 50g pack in some loose packaging. Let me go hunt for it.
Robert Clark2 Robert Clark2 Active Member
121 messages
joined Apr 2008
#1018 ·
Sophia Campbell73 said:It feels like most of these fats and creams do more harm than good.
From now on, I'm sticking to just St. John's Wort oil and calendula cream, though I'm worried that might not be enough to keep this thing under control. I'll wait a bit longer to see how the balm from Michael Ramos3 works before I try that too.
On top of that, my nails have been affected for years now and my joints are killing me (mostly my hands, especially the left one). A year ago, I went to a Dermatologist and they gave me some ointments—something like Sinuar or whatever—along with a sedative prescription (which I never take) and told me to get a rheumatism test. That test came back negative, so I didn't bother going back.
I'm really stuck on what to do because I don't even take pain relievers. For now, I'm just pushing through, but I don't think I can hold out much longer if this keeps getting worse.
Robert Clark2 mentioned he has psoriatic arthritis—does my situation sound like that?

Hi everyone!
Yeah, I deal with arthritis too, and my advice is to pay close attention to it because it’s a heavy hitter when it hits alongside psoriasis.
Believe me, sometimes I struggle just to grab my morning coffee with my left hand,and I still can't quite pull it off..
Blood tests for rheumatism in people with psoriatic arthritis usually come back negative, whereas for rheumatoid arthritis, they're positive about 70 to 80 percent of the time.
Psoriatic arthritis usually hits the small joints in your hands and feet, but in tougher cases, it can move into your spine or hips. And look, I don't want to scare you, but there are definitely some rougher cases out there.

You really have to stay on top of the arthritis issues, just like you do with the psoriasis.
Like I always say, I can handle the hand pain since it's invisible, unlike the psoriasis which shows up for everyone to see. But honestly, I moved past that mental struggle a long time ago.
My best advice? Go see both a Dermatologist and an Orthopedist while you're still able to.👍
rapidpanther41 rapidpanther41 Member
47 messages
joined Jun 2007
#1019 ·
The devil was really getting under my skin today, so I ended up spiraling down a rabbit hole and combing through every single post by Michael Ramos3. And honestly? It’s wild—his father actually tried almost every single remedy mentioned on this entire forum, and there's an answer for every single one of them. I can't say I blame the people who went out and bought whatever remedy Michael Ramos3 suggested; if I were being attacked by skin issues on that kind of scale, I’d probably do the exact same thing. I mean, what have you got to lose? It's that old logic—how much is your own health actually worth to you? The guy is just telling it like it is. Official medicine isn't helping us, but he’s offering a hand—sure, there's a price tag attached, but compared to the cost of our actual well-being, it's practically pocket change.
Elizabeth Lee49 Elizabeth Lee49 Member
42 messages
joined May 2007
#1020 ·
urbangull said:Hello GABBY. I’ll try my hand at some Mexican now, hope nobody minds...
It’s great that you aren't here right now. I'm from Veles and I've been dealing with psoriasis for seven years. I wanted to ask where you get those Chinese patches from. Best regards...

Hello Goran,
You can find those Chinese patches at any pharmacy that carries Replek; they're the main importers for them. So, if there isn't a pharmacy in Veles, you'll have plenty of options here in Skopje. It really just depends on how much area your psoriasis covers... if it's just small spots, you might be able to get them healed, but if it's widespread, it probably won't work. As for Butavat, I don't have a very strong opinion myself. In the early years, it helped me out, but not anymore. I only use it on tiny areas now, but it doesn't seem to have an effect... I've likely become resistant to it. Plus, honestly, it dries out the skin too much, so I tend to avoid it now. There's a new medication called Zorac that just arrived here in Skopje. I picked some up at Zegin about a week ago. I'm not quite sure what the results are going to be yet, but I'll let you know... Regards...👍

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