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Psoriasis [PLEASE READ FIRST POST!]

Started by mistybear4 · · 👁 114 views · 2.3K replies

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Gregory Mendoza3 Gregory Mendoza3 Active Member
79 messages
joined May 2007
#1341 ·
silentheron25 said:So here's a little update on how I'm doing. I've been slathering on the aloe vera again for a few nights in a row, and honestly, I can finally say the patches on my hands are visibly lighter—like, you can barely even see them anymore. On my legs, where it used to be the worst, the skin is actually smooth now with zero scaling, and the itching isn't even happening there, so that nasty crusty layer is just gone; maybe there's still a tiny bit of redness left, but even that's fading. But man, the itching? It's relentless, like nothing I've ever felt in my life, and at night it gets absolutely brutal. Last night I was scratching so hard I swear I hit some kind of trance state—you know that feeling when you finally get to pee after holding it forever? It’s pure bliss, seriously unbelievable. Everything itches—legs, arms, back, my whole damn body, it's everywhere. I was down at the beach that day too and the heat was killing me. And look, I'm not trying to sell anyone anything, I'm just telling you what's happening with me, but after that little setback I had, I'm feeling pumped again. I'm heading back to the coast soon and I'm gonna power through this stuff until it's all gone and this whole mess finally clears up. 👍

Fingers crossed!👍
A Anonymous Veteran
3.6K messages
joined May 2005
#1342 ·
I’ve been battling psoriasis for five years now—it’s hit my hands, my fingernails, and my feet. I feel like I’ve tried just about everything under the sun: Noni juice, aloe vera, St. John's Wort oil, Dermovat cream, Daivonex, Daivobet, Elocon, Neotigason pills, and right now, I'm trying Methotrexate tablets. This psoriasis has a life of its own; it constantly peels and flares up. It drives you absolutely crazy, though eventually, you just learn to live with the chaos. Does a real cure actually exist?
Maybe some medications work for others, but I haven't found anything that truly does the trick for me yet.
This is my first time posting here, and honestly, I’m just glad I stumbled upon this blog. It helps knowing I’m not alone in dealing with all this (sorry for the language, but you know what I mean).
My quality of life isn't what it used to be before this started, but there's nothing to be done but keep fighting. That's Life.👍
Robert Clark2 Robert Clark2 Active Member
121 messages
joined Apr 2008
#1343 ·
sverige;9397857 said:.Is there actually a cure for psoriasis?

The truth is, mainstream medicine hasn't found a definitive cure yet. It's more about management than a magic fix.👎

So, what kind of psoriasis are we talking about here??🙂
urbangull urbangull Member
22 messages
joined Feb 2007
#1344 ·
Sweden. As specified by:
I've been battling psoriasis for five years now, specifically targeting my hands, fingernails, and feet. I’ve cycled through just about everything you can think of: Noni juice, aloe vera, castor oil, Dermovat cream, Daivonex, Daivobet, Elocon, and Neotigason tablets; currently, I am trying Methotrexate. My psoriasis essentially lives its own life—it constantly shifts and migrates, which is enough to drive anyone mad, though eventually, you just grow accustomed to the chaos. Does a cure actually exist?
It’s highly probable that certain medications are working wonders for some people, yet I have yet to encounter a single treatment that offers me any actual relief.
It’s my first time stopping by here, and I’m genuinely glad I stumbled upon this blog. It's a relief to realize I’m not the only one dealing with this whole mess—excuse my language, but I think you all understand exactly what I mean.
Quality of life isn't exactly what it used to be since this illness took hold, but there isn't much point in dwelling on what's lost; you just keep fighting because, well, That's Life.👍

Welcome to the forum. You certainly aren't alone here; there are plenty of us all searching for that one elusive remedy that seems perpetually out of reach. Personally, I believe we should all just embrace our circumstances and move forward. We are healthy people who simply happen to be dealing with a specific issue—and let's be honest, everyone is dealing with something. Accept it, keep your head up, and just live your life. 👍 We’ll find something eventually; we just have to stay persistent.😍
Chris Morgan67 Chris Morgan67 Member
49 messages
joined Jul 2007
#1345 ·
Hey everyone... heading to the coast soon. I can't wait.😍

I have to say, I'm actually quite proud of myself. Despite some major stressors lately (taking my college entrance exams 😍), my psoriasis hasn't flared up at all. In fact, my skin has never looked better 👍

I make sure not to scratch or pick at it. I always shave first, take a gentle shower using Palmolive creamy gel, and then apply a tiny bit of oil while my skin is still damp.👍

While I'm at the beach, I plan on swimming a lot. I'll stick to sunbathing only in the early morning before 10 AM or after 5 PM, and I'll be showering regularly using Cantabale and olive oil.
wearywalker9 wearywalker9 Member
12 messages
joined Mar 2007
#1346 ·
Hey there!!
just wanted to drop in and say hi to everyone...
honestly, I am just so incredibly happy with how things are going... I think the biggest thing is just staying away from scratching, you know? So, yeah, plenty of sunshine, trips to the beach, using some oil... and I haven't had a single flare-up or even one little spot in the last month.... though I have been taking fish oil on the side, along with some other supplements containing folic acid and B vitamins specifically for skin health...

I think someone mentioned something about fumaric acid earlier, but wait, is that actually the same thing as folic acid???

Catch ya later!!!
Chris Morgan67 Chris Morgan67 Member
49 messages
joined Jul 2007
#1347 ·
wearywalker9 said:Hi there!
Just wanted to check in and say hello...
I’m actually quite happy with how things are going... I think the key is just avoiding scratching. Between the sun, the ocean, and using oils...I haven't seen a single new spot pop up in the last month.... though I have been taking fish oil along with some folic acid and B-vitamin supplements specifically for skin health...

Someone mentioned fumaric acid earlier—is that the same thing as folic acid?

Best regards!

That's wonderful.🙏 🙏

In my experience, oils seem to be the most effective treatment for psoriasis, whether applied topically or taken as a supplement...

It really comes down to staying hydrated with oils and resisting the urge to scratch...😍 😍
jadesailor14 jadesailor14 Regular
314 messages
joined May 2006
#1348 ·
Chris Morgan67 said:(just finished my college orientation 😍)

🎉 Way to go!

My family and I were also going through the whole enrollment process this year, so I totally get how it feels! 🙂
Maria Chavez55 Maria Chavez55 Active Member
56 messages
joined Feb 2008
#1349 ·
Hey there 🙂!
I haven’t been part of this group for very long—maybe just about a year 👍 😁 . My elbows on both arms, both shins, and one knee are acting up. It's diagnosed as psoriasis vulgaris. During the winter, it flares up on my scalp and parts of my body too, though the sun has cleared that up for now. For treatment, I've tried light therapy at a local clinic and topical corticosteroids. While I was doing that, I started reading everyone's stories here, which gave me enough courage to ditch the heavy-duty steroids and stuff like that. Unfortunately, nothing I've tried so far has actually worked. 🙄 Am I a hopeless case, or have we just not known each other long enough yet, my new friend and I? 😁 Anyway, I don't have much else to say, just wanted to say hi and renew my membership.
Oh, and I do have one question for my fellow ladies dealing with redness on the legs: how are you hair removing? My legs are in such bad shape that a razor is my only option
Chris Morgan67 Chris Morgan67 Member
49 messages
joined Jul 2007
#1350 ·
jadesailor14 said:🎉 nice one!

We were enrolling this year too, so I know exactly how it feels 🙂

thanks!😘

With all that stress, it’s honestly a minor miracle my skin hasn't flared up...😛 😍
Chris Morgan67 Chris Morgan67 Member
49 messages
joined Jul 2007
#1351 ·
Maria Chavez55 said:What do you use for hair removal? My legs are at a point where shaving is my only real option.

I've been using a men's razor for years now, and honestly, it’s the only thing that works for me.👍
Proper hair removal really makes a difference, though; it helps those flakes shed faster so the creams can actually penetrate...

It costs nothing to try using oils instead.
Just apply a little baby oil to damp skin right after you shower, wait a minute, and then lightly pat dry with a towel.
You won't feel greasy, and your skin will thank you...
Maria Chavez55 Maria Chavez55 Active Member
56 messages
joined Feb 2008
#1352 ·
So, I actually tried those oils like you suggested, but honestly? It backfired on me big time. I’m almost embarrassed to even admit it since they seem to work wonders for everyone else, but for my skin, all that grease just sat there. Instead of moisturizing or feeding my skin like they’re supposed to, they actually made the dry patches even worse. 😕
Right now, I’m just tanning and using some Vaseline. There isn't much improvement, but at least the itching and flaking aren't nearly as unbearable.

I still have my old epilator that has both a plucking head (from back in the day before psoriasis ruined everything) and a shaver head, so I just stick to the shaver now.
Chris Morgan67 Chris Morgan67 Member
49 messages
joined Jul 2007
#1353 ·
Maria Chavez55 said:I actually gave those oils a shot based on your suggestion, but they backfired on me. It’s almost embarrassing to admit since they seem to work for so many people, but instead of hydrating my skin, the grease just ended up drying everything out even more.😕
I'm currently tanning and using some Vaseline petroleum jelly. There hasn't been much improvement, though at least the itching and scaling aren't quite as unbearable...

I have an old epilator from the days before my psoriasis kicked in—it has both a waxing head and a shaver head—so I've just been sticking to the shaving attachment lately.

I am truly sorry to hear that.👎

If you're interested, I’d suggest picking up a decent electric razor. I personally find Braun to be excellent... it lasts at least two years, has three heads, and provides a really clean shave.
The hair grows back faster with an epilator, but using a manual razor is just a disaster...👎 👎
silentheron25 silentheron25 Newcomer
5 messages
joined May 2007
#1354 ·
I’ve been under massive amounts of stress lately—just a constant cycle of feeling wired, sweating, and getting easily irritated every single day. My psoriasis isn't actually receding, but at least I'm not seeing any new patches pop up. My skin feels remarkably smooth now, though, without any of that flaking. I’ve been using Nivea lotion after my showers, which helps take the edge off the itching. I also deal with psoriasis vulgaris, including three spots on my hands and both big toes. It’s causing some issues; two of my fingers have actually started swelling and aching slightly. I’m really hoping it’s not arthritis setting in. 😕
Chris Morgan67 Chris Morgan67 Member
49 messages
joined Jul 2007
#1355 ·
silentheron25 said:I’ve been under an immense amount of stress lately; I'm constantly on edge, sweating, and just irritable. It’s been like this every single day. My psoriasis isn't really receding, though no new patches have appeared either. At least my skin feels smooth now without the scaling... I've been using Nivea lotion after my showers, which helps soothe the itching quite a bit. I also deal with psoriasis vulgaris, including three spots on my hands and both big toes. They're causing some issues—two of my fingers have actually started to swell and ache slightly. I'm just hoping it isn't arthritis setting in... 😕

I suspect RA might eventually settle in my right ankle and hand as well...

You might want to try soaking your nails in a mixture of apple cider vinegar and water... many people dealing with psoriasis swear by it...👍
copperviper102 copperviper102 Member
38 messages
joined May 2007
#1356 ·
wearywalker9 said:Hey there!!

Someone was mentioning some kind of fumoric acid—is that the same thing as folic acid???

Cheers!!!

I mentioned fumoric acid earlier (which isn't the same thing as folic acid) because it's the main ingredient in those Fumaderm tablets I used back in the day. Those pills are pretty heavy-duty, and honestly, you usually have to order them from Germany. They worked wonders for me while I was on them, but the second I stopped, everything came crawling right back. Though, I do know a guy over in Austria who hasn't had a relapse even after a six-month course. He’s been clear for maybe a year or two now and is pretty happy with the results. The only real difference between his routine and mine is that at one point he was popping more than six tablets a day—which is actually the max daily dose listed on the label. By the way, a box of those will run you about $180, and you get 100 tablets in a pack. All in all, it's pretty expensive business...😬 Hope that answers what you were looking for....
copperviper102 copperviper102 Member
38 messages
joined May 2007
#1357 ·
Alright, here’s a quick little update on how things are looking for me lately... For the most part, my skin is totally clear right now. I haven't seen any sign of those old marks coming back, and thankfully, nothing new has popped up either. Honestly? I’m feeling pretty damn good about it...🤣I've been hitting up the tanning salon twice a week since I'm planning to head out to the coast this August, so who knows, maybe the UV exposure is actually doing something to help...👍Anyway, that's all I've got to say for now...
Hey everyone...
wearywalker9 wearywalker9 Member
12 messages
joined Mar 2007
#1358 ·
okay...
thanks everyone🙂

mwah...
Elizabeth Barnes47 Elizabeth Barnes47 Newcomer
5 messages
joined Apr 2007
#1359 ·
Hello everyone

It’s been quite a while—maybe two months—but I felt I really ought to check back in with you all. Back in April, I posted here about using common wild bramble; I basically boil it into a tea and soak myself in it. My psoriasis has almost entirely cleared up. All that’s left are these small white patches, about 1 cm in diameter, where everything originally started. The skin isn't scaling there anymore, it's just white. I suppose I’m hopeful those will fade within the next month or so. Using various shower gels tends to irritate my skin, which I imagine is typical for those of us dealing with psoriasis, and applying oils afterward actually makes things worse. As someone else mentioned here once, that specific combination—using a gel followed by oil after a shower—used to drive me absolutely mad with itching. Soaking in water infused with boiled bramble, however, feels incredible; I can't quite find the words to describe it. My skin feels so soft that I don't even feel the need for oils or creams after bathing. I have to admit, I almost gave up after the first week because I wasn't seeing any visible changes. But I decided to stick with it, and after three weeks, when the scaling had halved, I knew this was the right path for me. Bramble. Those who have managed to clear their skin say it can take anywhere from three to six months of using this method. It took me three. I realize that might sound like a long time to some, but three months is nothing compared to a lifetime.
For anyone who missed my posts from April, I've copied them below:

Boil a handful of bramble leaves in 1-2 liters of water for 10-15 minutes. Soak the affected areas in the warmest water possible for about an hour, both morning and night. Try to use the youngest leaves available and, if possible, always prepare it fresh. I've met people who cleared their skin in just a month using this method, though for others it took longer due to lack of discipline or skipping sessions. Bramble is easy to find and completely free, so give it a try; I truly believe you won't be disappointed. I've only been doing this for a few days and the buildup is already gone, leaving my skin a healthy pink. Most importantly, the itching has stopped.
Since I was traveling, I realized I forgot to mention one thing: after soaking in the bramble infusion, you should rinse off and apply a cream—calendula is the best in my opinion. I used to have skin on my elbows that would crack and bleed, but after just a couple of days of soaking, it healed and hasn't cracked since. Since I've only been soaking for two weeks and am feeling much better, I'll keep posting updates here regarding how the treatment is progressing and what the skin looks like. Just a quick heads-up for those unaware: bramble is toxic if ingested, so please don't drink the infusion; just be careful with how you prepare it. You don't need to worry about toxicity when soaking, as it isn't absorbed through the skin that way.
Sophia Campbell73 Sophia Campbell73 Member
36 messages
joined Jun 2007
#1360 ·
Hey everyone,
A special welcome to all the new members—sorry you had to join us, but glad you're here.
So, I finally picked up that ointment from Michael Ramos3 yesterday and started applying it last night, though just on my legs for now. Honestly, the application itself and even the smell aren't too bad—totally manageable—but man, the washing part? It’s a whole ordeal. I think I might try mixing in some oils like a few people mentioned. We'll see how it goes, fingers crossed for the best. I'll keep you guys posted on how it turns out.
Take care!

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