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Psoriasis [PLEASE READ FIRST POST!]

Started by mistybear4 · · 👁 114 views · 2.3K replies

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Mark Fox44 Mark Fox44 Member
17 messages
joined Jan 2008
#1321 ·
Good morning, everyone! Just checking in before I make my next escape to the coast. I was actually quite sorry to hear that silentheron25 decided to call it quits; apparently, the ointments just weren't doing much for his skin. Honestly, I’d probably have done the exact same thing if I were in his shoes. Since we’ve watched him stay so incredibly motivated and eager to find a cure from the very beginning, there isn't a shadow of a doubt in my mind about his intentions. He was even describing those early wins with such genuine excitement before things leveled off.
I actually went through something remarkably similar a few years back during a trip to an ExxonMobil facility. My first visit two years prior had been absolutely perfect—I cleared about 80% of my skin! It happened right before summer, so I could strut around the beach feeling pretty fantastic. Of course, by the following autumn, everything seemed to reset, which was a bit of a letdown. Fast forward two years, and I decided to give the treatments another shot. Same time of year, roughly the same amount of coverage, driving up there every day in the same car (though it was two years older!), using the same local topical creams... and yet, after four weeks (twenty sessions), I saw almost zero progress. There was an Italian gentleman sitting near me who had been coming for years and paying top dollar for these therapies, only to give up after three weeks and head back to Italy feeling totally frustrated. We eventually concluded that they must have changed the active ingredients in the baths. When I mentioned this to the doctor, he actually confirmed that after twenty years, they had removed certain toxins from the formula! It’s highly likely those specific toxins were what actually worked for my particular type of psoriasis. Most other people were happy—some even said they felt better than ever—but since then, I’ve stayed away from the facility. Perhaps the difference was that during my first successful stint, I was using Herbalife products; maybe I was less stressed, or maybe something else played a role, but I remain convinced the key change was the chemical composition.
That’s why I want to echo what silentheron25 and Michael Ramos3 are saying: we are all essentially groping around in the dark regarding this condition. Sometimes we stumble upon a glimmer of light, but it always eventually flickers out—sometimes sooner, sometimes later, sometimes quickly, sometimes slowly. Still, we all chase that light, hoping it stays bright for as long as possible. The main thing is just making sure it doesn't burn us out! Oh boy, that got a bit poetic, didn't it? Maybe I should take my talents to an elementary school poetry forum instead.
As for me, the ointment has managed to clear about 20-30% of the patches while thinning out the rest. Alongside that, I’m focusing on "cellular nutrition" (not an ad, I promise, just trying to replicate my success from a few years ago!), taking Omega-3s and evening primrose oil. In the mornings, I apply Lipolotion (Excipial) or Bepanthen (Bayer), and during the day at the beach, I use diluted St. John's Wort oil mixed with olive oil, plus a bit of almond oil for the scent. My wife might actually kill me; she thinks I’m turning into a total metrosexual.
I'm really hoping that if I finally achieve the desired effect, it will justify all the time, effort, and money poured into this summer therapy. Best to you all, I'll check in again in a few days!
P.S. By the way, I tried wrapping the ointment under a layer of clear plastic wrap overnight, and I woke up around 2:30 AM from some absolutely maddening itching! For now, I am officially giving up on occlusion!
jadesailor14 jadesailor14 Regular
314 messages
joined May 2006
#1322 ·
Michael Ramos3 said:Just accept the things you can't understand or change.
\
Best,

🤣 🤣 🤣
That advice is mostly meant for you!
jadesailor14 jadesailor14 Regular
314 messages
joined May 2006
#1323 ·
silentheron25 said:Come on guys, don't be so difficult! Hey, jadesailor14, get involved here! It's about time you stepped up and sorted something out. 🙂

What was that?
Or I might just have to ban you! 😁 😁 😁
steelseal13 steelseal13 Member
26 messages
joined Mar 2007
#1324 ·
Hey everyone! I’ve been lurking here for quite a while now, watching you all become increasingly active 👍 so I finally decided it was time to jump in with a little post of my own.
After dealing with psoriasis vulgaris for 13 years, I’ve started feeling this nagging pain in the small joints of my hands and feet—plus, my ankles have started swelling up too. 😕 I recently went in for my first checkup at the Mayo Clinic, and the doctor told me it’s actually arthritis. 👎
Honestly, that was just the icing on the cake for me—just what I needed to make everything perfect.😳
I was wondering, has anyone else here had any experience dealing with psoriatic arthritis?
Robert Clark2 Robert Clark2 Active Member
121 messages
joined Apr 2008
#1325 ·
steelseal13 said:Hey everyone! I've been lurking here for a while now, and seeing how active you all are, 👍 I figured it was finally time to jump in and post.
After dealing with psoriasis vulgaris for 13 years, my small joints in my feet and hands started acting up, and my ankles are swelling too. 😕 I just had my first checkup at the Mayo Clinic, and the doctor told me it's arthritis. 👎
Just what I needed to make my life perfect, right? 😳
Has anyone else here dealt with psoriatic arthritis?

I'm going through the exact same thing, and it's been going on for ages. Two years ago, my ankles and feet were so swollen that even in the middle of summer, I couldn't find any shoes that actually fit.
The pain was brutal. Back then, my doctor put me on Neotigasno, and man, everything cleared up fast! My skin looked totally clean, like I never even had psoriasis. But that win didn't last long—the psoriasis came back, though maybe a little less intense than before.
The following year—last year, actually—I switched back to Neotigason. Everything was fine for about a month, and then suddenly, I end up in the hospital. My lipids, glucose, triglycerides—basically everything related to my liver went haywire. I stopped taking Neotigason immediately, and everything went back to normal.
Right now, the psoriasis has cleared up and my skin looks good, but as I'm sitting here typing this, my hand joints are aching.
I feel weather changes coming on instantly. I don't even need to watch the news; I just know.

Anyway, hope this helps someone out. Just know you aren't alone in this fight.
To manage the pain, I take Diclofenac.
Take care.
steelseal13 steelseal13 Member
26 messages
joined Mar 2007
#1326 ·
Robert Clark2 said:The pain was just unbearable—so, my doctor suggested I try Neotigasno,

I actually think my doctor mentioned that same medication to me once.
But honestly, once she started listing off all those side effects...😕 well, I had to stop and think for a second. She told me to really weigh my options, especially since my body is feeling so much inflammation right now—plus, this arthritis has finally decided to show up...

Thanks for checking in, Robert Clark2....
urbangull urbangull Member
22 messages
joined Feb 2007
#1327 ·
Since Michael Ramos3 is heading off on vacation, perhaps it’s high time we all took a breather from this endless debate over topical ointments and started a new thread. I think we’ve all grown a bit weary of the constant bickering and the desperate need to prove everyone else wrong. Let's just drop the whole ointment subject for once and talk about the sunshine, the beach, and the ocean. It is summer, after all, and we have access to the best natural remedies out there: the sun and the sea. :klaap:
Robert Clark2 Robert Clark2 Active Member
121 messages
joined Apr 2008
#1328 ·
We seriously earned this break:😎 ☕ 🥳 🙂 🙂 🙂 🙂
silentheron25 silentheron25 Newcomer
5 messages
joined May 2007
#1329 ·
Are you really going to ban me? What’s the deal? It’s not like I was even thinking about that 😁
I actually made it out to the beach this morning. I haven't been in over ten days because work has been absolutely draining me; I just haven't had the energy. I used the ointment again last night, and this morning I noticed my skin feels unbelievably smooth, though it's still incredibly red. Honestly, it looks like a plane could land on it from how much it's sunburned. It’s also itching like crazy—just wild, constant itching. In a few spots where it had faded, the redness came right back, but without those typical psoriasis breakouts. It's smooth as silk, no visible scaling at all. I’m just going to use up the rest of this ointment and see what happens. Ideally, I’d hit the coast every single day, but I can't manage that. It's not like I can just pack up and head out to the ocean whenever I want; life is too hectic, and frankly, I'm too lazy for that kind of stress. I agree, we shouldn't keep bringing up the ointment or arguing about it anymore. If you have it, use it; if you don't, don't mention it. Ugh, it's itching so bad right now, it's killing me 👎
rapidpanther41 rapidpanther41 Member
47 messages
joined Jun 2007
#1330 ·
I have no clue what’s going on here—I can't seem to get past page 57. Is anyone else stuck?
Gregory Mendoza3 Gregory Mendoza3 Active Member
79 messages
joined May 2007
#1331 ·
rapidpanther41 said:I have no clue what’s going on here, I can't see anything past page 57. What gives?

Just keep posting, man, and you'll eventually see way more than that

muhaha

🤣
Chris Morgan67 Chris Morgan67 Member
49 messages
joined Jul 2007
#1332 ·
rapidpanther41 said:I have no idea what’s going on, I can't see past page 57... ??????

🤣 🤣

Are you joking?

Of course you can't see those pages when they don't exist...🙏
rapidpanther41 rapidpanther41 Member
47 messages
joined Jun 2007
#1333 ·
Chris Morgan67 said:🤣 🤣

Are you kidding me?

Duh—of course you can't see those pages when they don't exist🙏

I wasn't joking, obviously—it's just that I didn't realize people barely talked on this forum. Guess it really is a total ghost town.😲 😲 👍
Michael Ramos3 Michael Ramos3 Active Member
196 messages
joined Apr 2007
#1334 ·
Greetings from the beautiful coast. Unfortunately, I can't find an internet cafe anywhere around here, or maybe I'm just not looking hard enough. It forced me to actually learn how to use my phone better, and here we are—this is how I’m getting online to write to you guys. I have to say, props to silentheron25 for being so determined to follow every single rule in the ointment's instructions, even though the manual basically just says "APPLY REGULARLY." You see, that itching you're feeling is exactly what was expected, so it means you're having a standard reaction. Just stay the course. Please, be persistent.
Michael Ramos3 Michael Ramos3 Active Member
196 messages
joined Apr 2007
#1335 ·
jadesailor14 said:🤣 🤣 🤣
that advice is mostly aimed at you

Well, I figure I have every right to speak up when some self-proclaimed expert decides to call me out. Tell him he has the right to just ignore posts that annoy him or that he disagrees with. If he gets that luxury, I don't see why the rest of us shouldn't have it too. Peace.
jadesailor14 jadesailor14 Regular
314 messages
joined May 2006
#1336 ·
I think we’ve covered everything there is to say about my treatment and really nailed down what it can actually do

Michael Ramos3, please stop with the constant sales pitch
we all know all about your "miracle cure" by now
if anyone actually wants to buy it or has a question you haven't already answered, they'll just reach out via PM
if you want to keep running ads on this site, go ahead and contact the marketing department to buy a banner

from now on, let's keep things strictly to news and updates 😁
silentheron25 silentheron25 Newcomer
5 messages
joined May 2007
#1337 ·
Here’s a quick update on where things stand. I’ve been applying the ointment again for a couple of nights now, and I can honestly say the patches on my hands are noticeably lighter—two of them are almost gone. My legs are looking pretty good too; the skin is actually smooth without any scaling, and the itching hasn't flared up there. That thick, nasty layer is finally lifting, though there’s still a hint of redness left, maybe just a shade lighter than before. That said, the itching is absolutely relentless. It gets even worse at night. Last night was so bad I actually realized I was hitting a sort of "itch ecstasy"—you know that feeling when you finally get to pee after holding it for way too long? It’s unbelievable. Everything is itching—legs, arms, back, everywhere. It’s just constant. I was down at the beach that day, and the heat didn't help matters. Just to be clear, I'm not trying to sell anything here; I'm just reporting on my own progress. After that initial disappointment, I'm feeling optimistic again. I’m heading back to the coast soon and plan to use this stuff until it's gone, hoping it finally clears everything out. 👍
rowdyskipper16 rowdyskipper16 Newcomer
2 messages
joined Jul 2007
#1338 ·
Greetings.
Would anyone be willing to answer a few questions for me?
rowdyskipper16 rowdyskipper16 Newcomer
2 messages
joined Jul 2007
#1339 ·
Greetings, everyone.
Chris Morgan67 Chris Morgan67 Member
49 messages
joined Jul 2007
#1340 ·
Go ahead and ask your questions, and we'll see if we can find some answers...🙂

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