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Bone Marrow Donation

Started by Brian Mitchell44 · · 👁 6 views · 131 replies

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Participants Brian Mitchell44Amy Rogers2brightdriver8Edward GreenWalter Myers4Hannah Davis18brisknomad6William Murphy2jadesailor14Grace Green6jadeskipper18Paul Phillips3lonebadger6Jose Miller3Justin Foxcopperwalker21Alexander Hernandez32Christian Doyle3Jacob Wood9Paul Barnes4Eric Robinson81Emily Martinez5Jose Lewis69Carol Hughes61 …
Jose Miller3 Jose Miller3 Regular
446 messages
joined Mar 2024
#81 ·
I think we were there on December 23rd—back during those days when they were running that pre-event promo over at Times Square in Washington, D.C.
Emily Martinez5 Emily Martinez5 Newcomer
7 messages
joined Jan 2007
#82 ·
Honestly, I was just wondering why we haven't received any kind of confirmation following the drive.
They didn't even mention—not once, mind you—that they'd be sending anything out via mail.
Edward Green Edward Green Regular
335 messages
joined Sep 2008
#83 ·
Emily Martinez5 said:They didn't say a single word about us actually getting anything, did they? 😕
But sure, we got a tiny chocolate bar instead. 😬

I was out with my partner today—they didn't mention sending anything, and honestly, we didn't even get a chocolate bar. 😢

I had this dream last night where I arrived at 2:55 and nobody was there anymore. I felt so crushed and just started sobbing... I guess I'm losing it too. 🤣
Carol Hughes61 Carol Hughes61 Newcomer
1 message
joined Mar 2007
#84 ·
I went ahead and submitted my sample as well... and I have to say, it truly is a wonderful feeling! 🙂
We were given Coca-Cola, some pastries, a calendar, and even a badge...
They never mentioned anything about us receiving items through the mail.
mellowgull80 mellowgull80 Member
18 messages
joined Nov 2010
#85 ·
I received my water and the TVIX results🙂
I was over at May Square to provide the sample, but I haven't heard anything back yet...🙄
jadeskipper18 jadeskipper18 Member
14 messages
joined Aug 2007
#86 ·
Quote:>
0 plus says:
I got my results back and everything was fine🙂
I was over at Times Square, gave them my sample, but still haven't heard anything back at home...🙄>
Honestly, I don't know what you guys are even waiting for—when I went in to get tested at the Mayo Clinic, the doctor didn't mention anything about receiving stuff in the mail, nor did I ever actually receive anything.😕
Alexander Hernandez32 Alexander Hernandez32 Member
28 messages
joined Nov 2006
#87 ·
Nothing gets sent back home. What are you guys even talking about??

The only time they actually reach out is if they find someone sick who needs a match specifically like you. That’s when you give your consent again and move on to the extra testing.
mellowgull80 mellowgull80 Member
18 messages
joined Nov 2010
#88 ·
Alexander Hernandez32 said:Nothing gets sent back home. What are you guys even talking about??

The only time they actually reach out is if they find someone sick who needs a match specifically like you. That’s when you give your consent again and move on to the extra testing.

👍
In that case, I clearly misunderstood the situation.😳
Jose Miller3 Jose Miller3 Regular
446 messages
joined Mar 2024
#89 ·
mellowgull80 said:👍
In that case, I clearly misunderstood the situation.😳

and I guess I totally misread it too 🙂
mellowgull80 mellowgull80 Member
18 messages
joined Nov 2010
#90 ·
Jose Miller3 said:and I guess I totally misread it too 🙂

Or perhaps the explanation we were given simply wasn't clear enough.🤔
brisknomad6 brisknomad6 Active Member
222 messages
joined Nov 2012
#91 ·
jadeskipper18 said:Quote:>
0 plus says:
I got my results back and everything was fine🙂
I was over at Times Square, gave them my sample, but still haven't heard anything back at home...🙄>
Honestly, I don't know what you guys are even waiting for—when I went in to get tested at the Mayo Clinic, the doctor didn't mention anything about receiving stuff in the mail, nor did I ever actually receive anything.😕


But wait, did you at least sign some kind of paperwork while you were there, and they kept a copy for their records?
jadeskipper18 jadeskipper18 Member
14 messages
joined Aug 2007
#92 ·
Does everyone actually have to fill that out? I've got the paperwork sitting right here at my place
brisknomad6 brisknomad6 Active Member
222 messages
joined Nov 2012
#93 ·
Ugh, look... with how crazy things are right now, they probably haven't even had a chance to make copies yet. We didn't get that paperwork either, and we're still waiting on it to show up at our place via USPS...

That's basically what we're talking about here 🙂
Alexander Hernandez32 Alexander Hernandez32 Member
28 messages
joined Nov 2006
#94 ·
brisknomad6 said:Ugh, look... with how crazy things are right now, they probably haven't even had a chance to make copies yet. We didn't get that paperwork either, and we're still waiting on it to show up at our place via USPS...

That's basically what we're talking about here 🙂

If you want, I can go ahead and ask more questions.

But, from what I understand, it wasn't actually because of the crowds (they could have easily used carbon paper, for example)—it's more that I have a feeling it isn't even standard procedure for us to get our own copy.

They need our information so they can contact us, right? But we already know our own details, don't we? It’s all right there on the first page.

As for the back of the form and that whole potential consent issue—that part is still a bit of a question mark. We agree to be added to the registry, but if we didn't agree to that, we wouldn't have shown up in the first place, so that seems obvious. Then there are other points like, "I consent to being contacted for renewed consent." This isn't some formal contract or legal document. If you actually become a donor, then further procedures follow. Honestly, I'm not really sure how this expanded edition would even work, considering there are already 13,000 people involved.
Alexander Hernandez32 Alexander Hernandez32 Member
28 messages
joined Nov 2006
#95 ·
A doctor over at the Mayo Clinic—the one heading up this whole initiative—confirmed that you won't be receiving anything in the mail. So, just take a deep breath and try to relax. 😁
brisknomad6 brisknomad6 Active Member
222 messages
joined Nov 2012
#96 ·
So, I guess we both totally misread the situation 🙂

thanks for the heads up 🙂
Alexander Hernandez32 Alexander Hernandez32 Member
28 messages
joined Nov 2006
#97 ·
brisknomad6 said:So, I guess we both totally misread the situation 🙂

thanks for the heads up 🙂

No worries at all. 😘

If there are any more misunderstandings—just ask, okay? Even if I don't have the answer myself, I'll pass the question along to someone who does. 🙂
Jose Lewis69 Jose Lewis69 Member
18 messages
joined Mar 2007
#98 ·
So, like, where can I actually go to sign up and donate blood for the registry? And does anyone happen to know if there's an event coming up soon?
jadeskipper18 jadeskipper18 Member
14 messages
joined Aug 2007
#99 ·
You can always just head over to the Mayo Clinic—that’s what I do, anyway.
mellowgull80 mellowgull80 Member
18 messages
joined Nov 2010
#100 ·
Alexander Hernandez32 said:No worries at all. 😘

If there are any more misunderstandings—just ask, okay? Even if I don't have the answer myself, I'll pass the question along to someone who does. 🙂


It's good to have you here🙂

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