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Bone Marrow Donation

Started by Brian Mitchell44 · · 👁 5 views · 131 replies

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Participants Brian Mitchell44Amy Rogers2brightdriver8Edward GreenWalter Myers4Hannah Davis18brisknomad6William Murphy2jadesailor14Grace Green6jadeskipper18Paul Phillips3lonebadger6Jose Miller3Justin Foxcopperwalker21Alexander Hernandez32Christian Doyle3Jacob Wood9Paul Barnes4Eric Robinson81Emily Martinez5Jose Lewis69Carol Hughes61 …
Robert Perez7 Robert Perez7 Newcomer
2 messages
joined Sep 2012
#121 ·
Here is that link from last week's report:

They managed to save 11 lives just this year alone!
And if you count everything up until today, that’s 23 lives saved total... 🙂

I'm actually planning on signing up for the Registry myself soon... 😍
brightnomad11 brightnomad11 Newcomer
5 messages
joined Feb 2013
#122 ·
Has anyone on this forum actually donated bone marrow before?

I’m heading to the gym soon, so I was wondering—what kind of pain are we talking about after the procedure? And if I understood correctly, you stay at the hospital for three days?
Sam Collins4 Sam Collins4 Newcomer
6 messages
joined Jul 2010
#123 ·
brightnomad11 said:Has anyone on this forum actually donated bone marrow before?

I’m heading to the gym soon, so I was wondering—what kind of pain are we talking about after the procedure? And if I understood correctly, you stay at the hospital for three days?

Just thought I'd stir things up here and answer the question in passing, though you've probably found the answers by now since everything is laid out on the website anyway..

I think you might have misunderstood how this works; they don't just ask for bone marrow immediately. They wait until they find a matching patient, then they call you, and that's when you decide whether you want to donate stem cells or bone marrow. That call could come tomorrow, or it could be ten years from now, or it might never happen at all—by which point you might not even care about going to the gym anymore.😉
From what I've read, the pain feels like you took a heavy hit right in that spot. Honestly, even if it means staying away from the gym for a month, isn't it worth it to save someone's life? And besides, it doesn't always have to be bone marrow..
shadowharbor21 shadowharbor21 Newcomer
1 message
joined Dec 2013
#124 ·
Can someone over the age of 60 actually donate bone marrow? I'm mainly asking because I'm wondering about the potential risks to the donor given their age.
mistyjackal842 mistyjackal842 Active Member
206 messages
joined May 2012
#125 ·
I think I read somewhere that they only call on people up to age 40 to register and donate to the Ana Rukavina Foundation. I'm not entirely sure if that's what you were asking about or if you meant something else altogether.
wearyseal7 wearyseal7 Newcomer
3 messages
joined Sep 2014
#126 ·
I'd probably go with a chestnut core myself.
Can you even hang out in Miami anymore?
wearyseal7 wearyseal7 Newcomer
3 messages
joined Sep 2014
#127 ·
Sam Collins4 said:Just thought I'd stir things up here and answer the question in passing, though you've probably found the answers by now since everything is laid out on the website anyway..

I think you might have misunderstood how this works; they don't just ask for bone marrow immediately. They wait until they find a matching patient, then they call you, and that's when you decide whether you want to donate stem cells or bone marrow. That call could come tomorrow, or it could be ten years from now, or it might never happen at all—by which point you might not even care about going to the gym anymore.😉
From what I've read, the pain feels like you took a heavy hit right in that spot. Honestly, even if it means staying away from the gym for a month, isn't it worth it to save someone's life? And besides, it doesn't always have to be bone marrow..

Can't you just donate it and have it sit in some kind of bank or something?
Or does it only happen when someone specifically needs it?
Elizabeth King31 Elizabeth King31 Member
13 messages
joined Nov 2011
#128 ·
Bone marrow donation isn't exactly your run-of-the-mill procedure... I mean, why bother extracting the marrow if they aren't going to call you up later in life and tell you that you're the perfect match for someone based on your HLA and all those other specific antigens?
On the "Voluntary Blood Donation" thread, there’s been a lot of talk lately about bone marrow donation, so I decided to pull this one out:
Back at the end of August, the Leukemia & Lymphoma Society called me. They wanted to know if I’d consent to having my blood sample undergo extra testing alongside samples from two others—three of us Americans—because we seemed to be a strong match for a patient over in Poland. They went through the whole routine of asking "female-centric" questions, like whether I was pregnant or breastfeeding (which, for the record, I am neither). This extra testing is just to figure out which one of us is the absolute *best* match. The doctor promised to update me on the results regardless of the outcome, even if I don't end up being the top donor candidate. But it's been 10-14 days since they said they'd call, and I haven't heard a peep...
Up until a year or so ago, signing up with the foundation could only happen at the Mayo Clinic, where I originally registered, but now you can do it all over the US. You can even do it in Miami, though which hospital specifically 🤷 Google knows...

Sure, you can find plenty of misinformation if you go digging online, but you won't find that nonsense on the official foundation websites. Everything regarding the procedures and all the necessary details is laid out there, so honestly, that's your best bet...
mistyjackal842 mistyjackal842 Active Member
206 messages
joined May 2012
#129 ·
From what I can recall, there used to be local events held in different towns, maybe just out of the back of some tent, where you could go to provide a blood sample for the Ana Rukavina Foundation.
Carl Thompson6 Carl Thompson6 Member
39 messages
joined May 2008
#130 ·
Hey there! Does having an autoimmune disease affect bone marrow donation? Like, can someone still be a great candidate regardless of their diagnosis? Also, does weight matter if you're under 110 lbs? I’m assuming not, but I figured I’d ask since I know you can't, say, donate blood if you're under 110 lbs.
Nicholas Myers Nicholas Myers Active Member
163 messages
joined Jan 2012
#131 ·
Generally speaking, autoimmune diseases act as a contraindication for bone marrow donation.
lonegull81 lonegull81 Newcomer
5 messages
joined Dec 2017
#132 ·
Carl Thompson6 said:Hey there! Does having an autoimmune disease affect bone marrow donation? Like, can someone still be a great candidate regardless of their diagnosis? Also, does weight matter if you're under 110 lbs? I’m assuming not, but I figured I’d ask since I know you can't, say, donate blood if you're under 110 lbs.

Sorry for the late reply, just seeing this now, but I wanted to drop an answer here so it's available for someone else down the road.😁

I have Hashimoto, which is an autoimmune thyroid condition, and because of that, they wouldn't even let me sign up for the registry.

When you're filling out the screening forms for the registry, they dig into your medical history, and the second they spot an autoimmune issue, it's an automatic rejection.
My aunt saw how crushed I was and asked for my specific diagnosis, thinking maybe they might overlook some minor stuff, but once you mention Hashimoto, you might as well forget about it.

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