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Disability assessment process

Started by Kyle Reed30 · · 👁 5 views · 102 replies

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Participants Kyle Reed30Daniel Green98Grace Ramosmistyjackal842David Palmer5mistybear56darksurfer4placidrider48cosmiclynx79mellowskipperLaura Cox5Nicholas Davis4Brandon Newman95feralridge3redpilot37Rebecca Thomas4
Kyle Reed30 Kyle Reed30 MemberOP
45 messages
joined Oct 2021
#1 ·
Hello.
I’m reaching out because I need some clarity on a few things. Thanks in advance to anyone willing to help. I’ve dealt with a lifelong condition that was only just diagnosed now that I'm in my 20s. It qualifies as a disability. Now, I'm being directed toward the medical assessment process to determine eligibility for disability benefits or specialized employment programs. If you have gone through a medical evaluation for disability, please answer the following:

1. What does the actual procedure look like once you hand your records over to your primary care physician and explain that specialists (private doctors who examined me) have recommended a formal assessment?

2. What happens during the evaluation itself? What kind of questions should I expect?

3. How long does the whole process typically take?

4. Does this entire evaluation process have any connection to the Department of Social Services? Specifically, does a social worker ever conduct a home visit for someone with a disability? I saw something about that online, but I might have misinterpreted it.

My special education teacher suggested the best move is to head down to the Department of Social Services with my documentation to figure out what my rights are. In your experience, if I visit them first, will a social worker eventually show up at my house?

If there is anything else critical I should be aware of, please let me know.
Daniel Green98 Daniel Green98 Member
22 messages
joined Apr 2020
#2 ·
Kyle Reed30 said:
Hi there!
I’m posting because I’m looking for some answers to a few questions, and thanks in advance to anyone who can help out. I’ve had this condition since birth, but it was just finally caught now that I'm in my 20s, and it qualifies as a disability. They're sending me for a medical evaluation so I can hopefully get disability benefits or find specialized employment. If anyone here has gone through a medical board evaluation, please help me out with this:

1. What does the whole process actually look like after you take your records to your primary care doctor and tell them that specialists (private doctors who saw me) are referring me for an evaluation—and they even noted it on the report?

2. What is the evaluation itself like? Like, what kind of questions do they ask?

3. How long does the whole thing take?

4. Does this entire evaluation process have anything to do with the Department of Social Services? Does a social worker ever come to a person's house for any reason? I saw something about that online, but maybe I misunderstood how it works.

My special education teacher told me the best move is to head down to the Department of Social Services with my paperwork to see what my rights are. Do you guys think a social worker will end up coming to my place after I visit their office?

If you can think of anything else important that I might be missing, please let me know.

There’s actually a thread about this somewhere already; try searching for it, because you'll probably find all the answers you need right there.

I'm from Denver, and from what I know, the way it works here is your primary doctor fills out all the specific paperwork for the disability board along with everything else required.
Then they call you in for the hearing, where they review the files, ask a couple of questions, and that's basically it. It goes pretty fast.

One thing that's super important in my experience—and this might sound crazy—is to show up in a tracksuit, skip the makeup, and act like you didn't sleep a wink last night. I know, it sounds totally ridiculous, but they judge you based on how you look. If you show up all dolled up and looking polished, they'll act like you aren't in pain at all and have zero issues.
The questions are usually stuff like how you're feeling or what your expectations are. Sometimes they'll even do something like drop a pen on the floor just to see if you pick it up.

The best ways to answer are:
"I feel completely exhausted because of my condition."
"I'm just hoping that my health improves eventually, and I'm hoping being recognized as disabled will help me find work I can actually manage."
And as for the pen? You grab it by leaning over slowly, maybe grabbing onto a table or something for support, and moving really, really carefully...
That's basically how it goes here.
Kyle Reed30 Kyle Reed30 MemberOP
45 messages
joined Oct 2021
#3 ·
Daniel Green98 said:
There’s already a thread about this somewhere. Try searching for it; you'll find the answers you're looking for.

I’m from Denver. Here’s how it works: your primary care doctor fills out the disability commission paperwork along with all the supporting documentation.
Then you get summoned to the board. They review the files, ask a few questions, and that’s it. It moves fast.

For instance, in the US, it's vital to show up in a sweatshirt—no makeup, nothing. And act like you barely slept last night. I know it sounds ridiculous, but they judge by appearance. If you look put-together, they assume you aren't actually struggling.
The questions are basic: how are you feeling, what are your expectations? They might even drop a pen on the floor just to see if you pick it up.

Your responses should be:
I feel exhausted due to my medical condition.
I hope that my health improves eventually, and that recognizing my disability will help me find work I can actually manage.
And as for the pen? You pick it up by staring at the floor, bracing yourself against the table, and moving incredibly slowly...
That’s the playbook here.

Thanks for the input. I searched the forum but couldn't find a topic like this, and even if I did, it probably wouldn't address my specific concerns.

My condition is highly specific, so I can't exactly fake looking "unwell" since it doesn't manifest visually.
Kyle Reed30 Kyle Reed30 MemberOP
45 messages
joined Oct 2021
#4 ·
Can someone else weigh in if they have the answers? I really need this sorted out.
Thanks.
Grace Ramos Grace Ramos Member
45 messages
joined Jul 2013
#5 ·
Just head down to the Department of Social Services and fill out the application there. Before the pandemic, you could expect to wait about a month for an evaluation. Usually, they just go over your paperwork, have a quick chat with a social worker, and then you're stuck waiting for them to call you back. Then, they’ll tell you you’re perfectly fine—even if they originally estimated your disability at something like 50%—simply because you're living at an address where someone else is receiving benefits through $333. After that, you just pack up and go home.
mistyjackal842 mistyjackal842 Active Member
206 messages
joined May 2012
#6 ·
Either just dive into the work however you can manage, or honestly, just look for opportunities abroad. I’m just... I'm so incredibly exhausted. Losing my parents has left me completely drained. It’s been so hard processing the way they passed—it feels like they were both victims of really negligent medical care. I find myself spiraling over it at night, which means I barely sleep. I know I have to push through all of this, and I still need to go in for more medical checkups, though I really, really don't want to. I suppose I'm doing these tests for my own sake, just so I can stay healthy enough to keep working. And ever since I lost my family, the heat has been almost unbearable for me. Finding work was always a struggle before, too. But, I guess there's always some kind of way forward in life. Personally, I would love to move overseas for work. The best times in my life were when I lived abroad, even if I never actually held a job there. People tend to be kind where you go, even if you always feel like an outsider. I dealt with so many rejections looking for work here in the States, even for jobs I was perfectly qualified for. But, you have to keep hoping. Everything is harder now because of the pandemic, but I still think if someone truly wants a job, they can find one. Like Bunjac wrote, it was such a good point. He isn't having a bad time living in Ireland. Even if you're always seen as a stranger wherever you land.
David Palmer5 David Palmer5 Active Member
80 messages
joined Jan 2024
#7 ·
Kyle Reed30 said:
If anyone else happens to know the answers, please let me know. This is really important to me.
Thanks!

Here you go:
https://www.zosi.gov/department/evaluations/
mistyjackal842 mistyjackal842 Active Member
206 messages
joined May 2012
#8 ·
My mom worked right up until she hit sixty-five, even though walking was getting pretty difficult for her. I honestly thought... well, I figured it would be easier for her once she could just relax at home. But it wasn't like that at all. She couldn't settle into being at home because she’d spent her entire life working. My situation was different, though. I had such a hard time finding work—unless someone gave me a referral—and even then, it was usually just temporary gigs. Since I was living with my parents, it didn't feel like such a huge deal at the time. But of course, I was frustrated. Seeing my mom, who was already older and getting weaker, heading out to work every morning while I kept getting rejected from jobs... it sucked. And I know I'm not the only one who has dealt with that. Now, things are much harder since I lost my parents. They provided this sense of security that's just gone now. It's truly sad. I actually looked into caregiver benefits because my dad was bedridden for six years, but I ended up deciding against it. First off, you can't really claim that status for your own parents, and besides, I kept thinking if his condition got any worse, I'd have to put him in an assisted living facility for a while. I mean, I'm not a nurse, and the home health aides we had didn't seem particularly skilled to me... they mostly just acted important for no reason whenever they showed up for their visits.
Kyle Reed30 Kyle Reed30 MemberOP
45 messages
joined Oct 2021
#9 ·
Grace Ramos said:
Just go to the Department of Social Services and file the paperwork. Before the pandemic, you could expect the evaluation to take about a month. It’s mostly just them reviewing files, followed by an interview with a social worker. Then you wait for their call, only for them to tell you you're perfectly fine—even if they estimated you at 50% disability—simply because you share an address with someone collecting $333. Then you're just sent home.

Well, you’ve certainly managed to worry me. 🙂 Heaven forbid I have to rely on the people I live with. They’d be tracking my every move and acting shocked once they realized what I've actually dealt with regarding this condition. Honestly, it’s because of people with that kind of mindset that my illness wasn't even caught until my 20s, despite me having it since birth.

My condition is rare. Not "rare" in a scientific sense, really, but more like unrecognized and misunderstood. Even my special education teacher told me that nobody truly grasps how much this condition actually limits a person's daily life.
Kyle Reed30 Kyle Reed30 MemberOP
45 messages
joined Oct 2021
#10 ·
mistyjackal842 said:
My mom worked right up until she turned 65, even when her mobility started failing. Personally, I thought she’d be better off resting at home. She wasn't. She couldn't adjust to staying put because she spent her entire life working. My situation was different; finding a job was a struggle unless someone pulled strings for me, and even then, it was usually just temporary contract work. Since I lived with my parents, it didn't matter much at the time. But it was frustrating—watching my mother, older and weaker, head out to work every morning while I faced constant rejections. I wasn't alone in that, though. Now, things are harder since my parents passed. They provided a sense of security. It's genuinely bleak. I looked into caregiver benefits since my father was bedridden for six years, but I ended up passing on that too. You don't qualify for those specific statuses for parents anyway, and I figured if his condition worsened, I'd have to put him in a nursing home for a while. I'm not a nurse, and the home health aides I dealt with didn't seem particularly skilled—they mostly just acted superior during their visits.

Hey.

I get your point, but your mother's situation and mine are worlds apart. Your mom was fortunately healthy and capable of working until age, whereas I've dealt with a condition since birth. This isn't something that develops with old age; it's a developmental disorder. Believe me, I would work if I could. Because of parental neglect, my condition wasn't officially documented until I was in my mid-twenties. For the last five years, I've been cycling through jobs every six months or so—often lasting only two weeks before they let me go due to "lack of fit." You suggested moving to another country, but that's not an option. I won't go into the details now, but it boils down to the fact that my condition would make navigating life abroad even more impossible.
Kyle Reed30 Kyle Reed30 MemberOP
45 messages
joined Oct 2021
#11 ·
Do you think I actually stand a chance at getting disability benefits—or even finding employment for people with disabilities? My situation isn't like the typical case where a 40-year-old worker damages their spine at a factory, gets denied benefits because they can technically still perform their duties, and ends up trapped in a cycle of working all day just to collapse in pain the moment they get home. That’s not me. My condition is entirely different. Because of my specific symptoms, I am fundamentally incapable of holding down any kind of job. My work history is practically non-existent; I try various roles, but I'm usually let go within two weeks or, at most, a month. People are always baffled, wondering why I can't grasp things or function properly. This is a developmental disorder, though it encompasses much more than that. We aren't talking about someone needing to grind through five more years until retirement; we are talking about my entire life. How does this distinction change things in the eyes of an evaluator?
Kyle Reed30 Kyle Reed30 MemberOP
45 messages
joined Oct 2021
#12 ·
David Palmer5 said:
here:


I read that link ages ago. If anyone actually knows anything, please just give me detailed answers to the questions.
Grace Ramos Grace Ramos Member
45 messages
joined Jul 2013
#13 ·
Kyle Reed30 said:
Man, you really have me worried now. 🙂 God forbid I ever have to rely on the people I live with.

The folks over at the Department of Social Services look at everyone's household income when you're filing paperwork for assistance and nursing care benefits.

Kyle Reed30 said:
Do you think there's any chance I could actually qualify for disability benefits? Or maybe even find a job specifically geared toward people with disabilities? I'm wondering how much this whole situation actually carries weight when an evaluator looks at my case.

If I remember correctly, you can qualify for a full disability rating of 80% through the Department of Social Services, provided it isn't related to a workplace accident or military service.

Once you’re done with the psychologist, they’ll sit you down for a chat with someone from the Department of Social Services. They’re going to grill you on how you actually get along with the people you live with. This is your chance to lay it all out—describe your living situation and your relationships honestly—because that input can really influence whether they decide to step in and help. As for the work capacity assessment, that’s handled by occupational medicine. Usually, they’ll send you over there either directly from the unemployment office or through your employer.
Kyle Reed30 Kyle Reed30 MemberOP
45 messages
joined Oct 2021
#14 ·
Grace Ramos said:
The folks at the Department of Social Services look at everyone's household income if you're filing paperwork for caregiver assistance.

As I recall, you can qualify for permanent disability if your impairment hits over 80%, provided it wasn't a workplace accident or military service.

After the medical evaluation, you'll have an interview with a social worker. They’ll ask how you get along with the people in your house; you can explain your living situation there to see if you'll qualify for aid. As for determining work capacity, that's handled by occupational medicine—they usually send you over from the unemployment office or directly from an employer.


Fine. My family's income probably won't be an issue since I don't have a condition requiring constant care.

Can you clarify the part about getting permanent disability with over 80% impairment? I read a regulation that suggested a different path (or maybe I misread it?). It stated you could qualify with at least 30% impairment, and then the $500 is the maximum, which gets adjusted based on the specific percentage.

Also, do I go to the Department of Social Services first, or do I hit the primary care doctor and then the medical evaluator first?
mistyjackal842 mistyjackal842 Active Member
206 messages
joined May 2012
#15 ·
I don't want to pry into anyone else's medical business. But my mom... she dealt with frequent venous thrombosis, including a pulmonary embolism once, so she ended up back in the hospital every few years because of it. Then in 2007, she started dealing with arterial insufficiency—blue foot syndrome, claudication, all that. On top of everything, she was managing kidney issues and thrombocytopenia, yet somehow she still managed to work for three more years after all those setbacks, right up until 2010 when she passed at 65. She would have kept going much longer if she could have. Her job was high-responsibility, mostly sitting, but she had to make it in every day. She was lucky, though; people truly respected her at work. Since she was the most senior, she got first pick for her vacation time. After I lost my parent, I felt this urgent need to just jump straight back into working. I actually got a call about a job before I even had a chance to handle my dad's final arrangements. I was rushing through everything just to get there, though I guess they probably didn't even expect me so soon. They told me on Wednesday that they needed someone by Monday. It was the middle of the month. I pleaded with them, asking if I could just have one more week of freedom. Looking back, I realized I needed to slow down. It was mid-September and the heat was intense; I had been through such a massive shock, and I think that’s why I felt so physically weak. It feels better now that the weather has cooled off. But I suppose a person fights as long as they can—you don't just give up. It's just that those higher-paying roles... they're so hard to land. And honestly, I feel like every worker should have at least every other weekend off. It doesn't seem right to me for someone to be working 16-hour days. I mean, I've worked 9 or 10-hour shifts a few times right before a vacation, but I always had my weekends free.
Kyle Reed30 Kyle Reed30 MemberOP
45 messages
joined Oct 2021
#16 ·
Grace Ramos

It would likely look something like this:

Eligibility for disability benefits due to physical impairment applies to policyholders with a verified impairment level of at least 30%, provided it resulted from a workplace injury or an occupational disease.
mistyjackal842 mistyjackal842 Active Member
206 messages
joined May 2012
#17 ·
It feels like you have the Department of Social Services breathing down your neck your entire life... they’re always watching, always running assessments on you. I guess I just could never handle someone constantly monitoring my every move like that.
mistyjackal842 mistyjackal842 Active Member
206 messages
joined May 2012
#18 ·
That’s exactly why I never even wanted to apply for caregiver status for my dad—not that I would have even qualified for it, anyway. Honestly, you have no idea how many malicious people are out there. I get it, finding a job is tough right now. But to suggest that someone needs to be constantly supervised? It’s just awful. A person is born to be free and live their own life. Maybe I was being a bit too blunt at times, and this one woman who acts like she’s so important didn't exactly take my feedback well. But you really have to realize that you encounter all kinds of personalities. She was absolutely livid with me. In a way, I think she even tried to get back at me. In the end, I was actually worried about running into trouble because it was clear her intentions weren't good.
Kyle Reed30 Kyle Reed30 MemberOP
45 messages
joined Oct 2021
#19 ·
mistyjackal842 said:
I don't judge other people's medical issues. But my mother dealt with recurring venous thrombosis—including a pulmonary embolism once—so she was back in the hospital with vein issues every few years. In 2007, arterial insufficiency kicked in: blue feet, claudication. On top of that, she had kidney issues and thrombocytopenia. Despite all that, she kept working for three more years until 2010, reaching age 65. She would have worked longer if she could. Her job was high-responsibility but sedentary. However, she still had to show up. She was lucky; her colleagues truly respected her, and being the senior staff member, she got first pick for vacation time. After losing a parent, I wanted to jump right back into work immediately. I actually got a call for a position before I even had time to settle my father's affairs. I rushed through everything just to make it, though they probably didn't even need me that fast. They told me on Wednesday they needed someone by Monday. It was mid-month. I begged for just one extra week off. Later, I realized I needed to slow down. It was the middle of September and sweltering hot; the shock I went through likely caused that weakness I felt. It's better now that the weather has cooled down. But look, a person fights as long as they are breathing; there are no retreats. It's just hard to land those higher-paying roles. Also, I believe every worker should have at least every other weekend off. Working 16-hour days is wrong. I’ve pulled 9 or 10-hour shifts right before a vacation, sure, but my weekends were always free.

Good luck to you; you'll find something eventually. 👍
I get that your mother's illnesses weren't easy, but your mother UNDERSTOOD THE JOB AND WAS CAPABLE OF DOING IT, whereas I am NOT. Your mother faced physical ailments—if we want to put it that way—that acted as barriers, but I simply cannot grasp the nature of the work. My symptoms manifest as an inability to comprehend the task at hand. I know this is complicated for you to wrap your head around because I can't be too specific without being identified, but if I explained it clearly, you'd understand.
Kyle Reed30 Kyle Reed30 MemberOP
45 messages
joined Oct 2021
#20 ·
prilika said:
Your whole life becomes one long session of social work oversight. Constant monitoring, constant judgment. I’ve never wanted anyone breathing down my neck like that.

What's the logic there? Care to elaborate?
Thanks.

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