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Schizophrenia - General Discussion

Started by briskgull27 · · 👁 574 views · 7.5K replies

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Nicole Barrett76 Nicole Barrett76 Regular
515 messages
joined Sep 2009
#4621 ·
Laura Castillo6 said:So, does someone actually need to be on antipsychotics for the rest of their life, whether we're talking about schizophrenia or just a single episode of acute psychosis?

I don't believe that is necessarily the case, though I cannot say with absolute certainty. Is it not more likely that the dosage required is significantly lower than what one would see in cases of schizophrenia? Perhaps Larry Lewis would be able to provide a more thorough and detailed explanation regarding this distinction.
Larry Lewis Larry Lewis Regular
819 messages
joined Dec 2010
#4622 ·
My diagnostic journey started with acute psychosis, then shifted to schizoaffective disorder, and finally settled on schizophrenia.

Now, you hear stories about acute psychosis being something you can actually overcome—people living completely medication-free after a few years. But for me? That just wasn't the reality. Life isn't always that clean-cut.

I have a close friend who was stuck on meds for five years following an acute psychotic episode, but he managed to taper off entirely—he's totally stable and healthy now. It’s one of those things where everyone's path is just... different.

EDIT: Just a side note for anyone wondering—the dosage levels for schizoaffective disorder and acute psychosis aren't actually that far apart.
Laura Castillo6 Laura Castillo6 Active Member
238 messages
joined Sep 2016
#4623 ·
Hey Larry Lewis, did you go through several different episodes before they finally gave you a definitive diagnosis, or was there just one long stretch of symptoms where they were leaning toward an F20 diagnosis?

I remember reading somewhere that doctors can actually spot specific brain changes on scans in people living with schizophrenia. Did you ever end up having any imaging done, like an MRI or something similar, to check things out?
Eric Mitchell55 Eric Mitchell55 Active Member
236 messages
joined Jan 2013
#4624 ·
I can't say for sure about Altec, but I went through a few episodes myself before they finally gave me a schizophrenia diagnosis...

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Larry Lewis Larry Lewis Regular
819 messages
joined Dec 2010
#4625 ·
Laura Castillo6 said:Hey Larry Lewis, did you go through several different episodes before they finally gave you a definitive diagnosis, or was there just one long stretch of symptoms where they were leaning toward an F20 diagnosis?

I remember reading somewhere that doctors can actually spot specific brain changes on scans in people living with schizophrenia. Did you ever end up having any imaging done, like an MRI or something similar, to check things out?

I’ve had my fair share of episodes—true, deep-seated lapses in sanity. For the longest time, I was just teetering right on that razor-thin line between being perfectly functional and losing my grip entirely... just drifting in that gray area where you aren't quite "normal" but you haven't completely snapped yet. It was an exhausting way to live, honestly—constant mental tightrope walking—until 2008, when everything finally just... broke. I hit a wall. I snapped. Complete and total collapse.

I haven't gone out and gotten an MRI or anything—not that I've actually sat down to schedule one—but if you ask me? I’m convinced my brain is pretty much fried. It’s a combination of things, really... part of it is definitely the illness itself, which has been a relentless beast, but a huge chunk of it has to do with the absolute mess of a lifestyle I led back when I was younger. You know how it is—those years where you think you're invincible and just burn through everything like there's no tomorrow. Looking back, it's hard not to feel like I'm paying the price now for all those questionable choices.

It is an uphill battle for any young man navigating mental health struggles—it truly is. I spent almost my entire twenties completely underwater, just drowning in it all. Now that I’ve hit my thirties, things have stabilized somewhat, which is a relief, I suppose, but let’s be honest: the exhaustion is real. There is this lingering, bone-deep fatigue from managing the symptoms—it’s like running a marathon every single day just to stand still. It drains your battery so thoroughly that your drive, your actual will to engage with the world, just starts to wither away. Constant struggle eventually wears a person down to the core.
Laura Castillo6 Laura Castillo6 Active Member
238 messages
joined Sep 2016
#4626 ·
Even while you were on the medication, did you still deal with episodes, or was it more that you stopped taking them and then the symptoms started coming back?
Eric Mitchell55 Eric Mitchell55 Active Member
236 messages
joined Jan 2013
#4627 ·
Laura Castillo6 said:Even while you were on the medication, did you still deal with episodes, or was it more that you stopped taking them and then the symptoms started coming back?

Honestly, it was kind of both...
It’s probably easier to just say that back when I was 21, I ended up being hospitalized at the psychiatric ward more than ten different times.
If I remember correctly, I was never in there for less than a month at a time...
Laura Castillo6 Laura Castillo6 Active Member
238 messages
joined Sep 2016
#4628 ·
So, basically, if someone like me—someone who’s dealt with just one episode that required a hospital stay and ended up with an acute psychosis diagnosis—is left wondering, is it really possible that I can't get a clear picture of what's actually going on or exactly what I'm dealing with?
Eric Mitchell55 Eric Mitchell55 Active Member
236 messages
joined Jan 2013
#4629 ·
Laura Castillo6 said:So, basically, if someone like me—someone who’s dealt with just one episode that required a hospital stay and ended up with an acute psychosis diagnosis—is left wondering, is it really possible that I can't get a clear picture of what's actually going on or exactly what I'm dealing with?

Yeah, pretty much.
Larry Lewis Larry Lewis Regular
819 messages
joined Dec 2010
#4630 ·
Laura Castillo6 said:So, basically, if someone like me—someone who’s dealt with just one episode that required a hospital stay and ended up with an acute psychosis diagnosis—is left wondering, is it really possible that I can't get a clear picture of what's actually going on or exactly what I'm dealing with?

How much time has actually passed since you were admitted to the hospital? Are you still experiencing any lingering symptoms? And more importantly, what kind of prognosis is your psychiatrist giving you?
Laura Castillo6 Laura Castillo6 Active Member
238 messages
joined Sep 2016
#4631 ·
July 2014. Honestly, the biggest issue was that I ended up with a pretty subpar psychiatrist. Instead of just switching doctors, I made the mistake of quitting my meds cold turkey after about four and a half months. According to him, I should have stayed on them for at least six months while he slowly tapered me off. Fast forward to now, and I’m heading back for a re-evaluation with a top-tier neuropsychiatrist. I actually have an appointment in two days, and my plan is to be completely transparent—just lay it all out there, tell him exactly how I’ve been feeling and what happened. If he decides I need to be back on medication, then so be it. I’ll take them for as long as I need to, even if it's for the rest of my life.

Because of everything I went through, I’ve developed this lingering, nasty fear of having another episode. My anxiety is through the roof lately, and for the last few days, I've had this weird sensation, almost like I’m drifting off to another planet. Though, I suppose that feeling might be a bit deceptive; I remember when I was actually in the middle of that state, I wasn't even aware of what was happening to me.
Larry Lewis Larry Lewis Regular
819 messages
joined Dec 2010
#4632 ·
Just take it easy, Laura Castillo6—don't let the fear get the better of you, because honestly, there's a real, fighting chance that you're going to pull through this
Larry Lewis Larry Lewis Regular
819 messages
joined Dec 2010
#4633 ·
Laura Castillo6 said:The thing is, these memories from that whole episode are just now starting to flood back—all while I’m in the middle of treatment and stuck in the hospital. It’s all wrapped up in this intense anxiety and fear... it makes me feel like I might just lose my grip again.

Look, that’s completely normal—I went through the exact same thing myself. Even today, those mental movies of my darkest moments play on loop in my head, and they can be pretty unsettling—though, for me, it isn't fear so much as a deep sense of regret over things I said or did, or just the sheer weight of what I had to endure.

Don't let the fear of slipping back into psychosis consume you; dwelling on it is a losing battle. Instead, try to rationalize everything that happened during that period when things were out of control. Just try to process it... move past it... eventually, you have to find a way to leave it behind.
Laura Castillo6 Laura Castillo6 Active Member
238 messages
joined Sep 2016
#4634 ·
Larry Lewis said:Look, that’s completely normal—I went through the exact same thing myself. Even today, those mental movies of my darkest moments play on loop in my head, and they can be pretty unsettling—though, for me, it isn't fear so much as a deep sense of regret over things I said or did, or just the sheer weight of what I had to endure.

Don't let the fear of slipping back into psychosis consume you; dwelling on it is a losing battle. Instead, try to rationalize everything that happened during that period when things were out of control. Just try to process it... move past it... eventually, you have to find a way to leave it behind.

I hear you. That whole experience is just brutal. I actually read somewhere that taking Omega-3 fatty acids can help act as a sort of defense against psychotic disorders, so I think I'm going to start taking some soon.
David Vaughn75 David Vaughn75 Regular
626 messages
joined Sep 2015
#4635 ·
Laura Castillo6 said:July 2014. Honestly, the biggest issue was that I ended up with a pretty subpar psychiatrist. Instead of just switching doctors, I made the mistake of quitting my meds cold turkey after about four and a half months. According to him, I should have stayed on them for at least six months while he slowly tapered me off. Fast forward to now, and I’m heading back for a re-evaluation with a top-tier neuropsychiatrist. I actually have an appointment in two days, and my plan is to be completely transparent—just lay it all out there, tell him exactly how I’ve been feeling and what happened. If he decides I need to be back on medication, then so be it. I’ll take them for as long as I need to, even if it's for the rest of my life.

Because of everything I went through, I’ve developed this lingering, nasty fear of having another episode. My anxiety is through the roof lately, and for the last few days, I've had this weird sensation, almost like I’m drifting off to another planet. Though, I suppose that feeling might be a bit deceptive; I remember when I was actually in the middle of that state, I wasn't even aware of what was happening to me.

Wait, hold up—are you actually having a psychotic episode again, or is it just the intense fear of one happening?
Laura Castillo6 Laura Castillo6 Active Member
238 messages
joined Sep 2016
#4636 ·
David Vaughn75 said:Wait, hold up—are you actually having a psychotic episode again, or is it just the intense fear of one happening?

The fear of an episode
David Vaughn75 David Vaughn75 Regular
626 messages
joined Sep 2015
#4637 ·
Laura Castillo6 said:The fear of an episode

Look, I’m basically in the same boat as you when it comes to this mess😬—I dealt with one relatively minor episode once, but man, those follow-up panic attacks were absolutely brutal.
Nicole Barrett76 Nicole Barrett76 Regular
515 messages
joined Sep 2009
#4638 ·
Laura Castillo6 said:I hear you. That whole experience is just brutal. I actually read somewhere that taking Omega-3 fatty acids can help act as a sort of defense against psychotic disorders, so I think I'm going to start taking some soon.

I certainly would not wish to disappoint you, but the EPA/DHA dosages required for actual therapeutic healing are truly massive. Depending on how severe the symptoms are—and yours are currently mild—dosages can reach anywhere from 25 to 35 grams when treating Alzheimer's, severe schizophrenia, or other profound psychoses.

Furthermore, such immense quantities of these acids can have a negative impact on one's immune system. If you feel inclined to delve into the English literature, you might simply copy and paste these specific terms into Google. "Omega-3" "rob paul to pay peter".

Or perhaps "Omega-3" immunity
.
Because of the vast amounts of Omega-3 naturally consumed by the Sami, their immune systems are nearly non-existent; however, they do not require a robust immunity, given that microorganisms reproduce much more slowly and weakly in the freezing cold of the northern hemisphere.

If I were in your position, I would first attempt taking at least 1000mg of niacin combined with 200-300mg of all other B-complex vitamins, along with two or three milligrams each of biotin, cobalamin, and folic acid. While the standard recommended doses are significantly lower than this, please do not let that discourage you, for it is only the high doses that truly take effect.

Additionally, one should consider Vitamin C in the form of calcium, potassium, or sodium ascorbate (though calcium is superior), in amounts ranging from 500 to 1000mg.
Laura Castillo6 Laura Castillo6 Active Member
238 messages
joined Sep 2016
#4639 ·
My pharmacist actually told me the other day that I could bump my Omega-3 intake up to three capsules a day if I wanted to. Right now, I’m just sticking to one daily, mostly because I’ve been reading up on all those studies suggesting it can help prevent certain psychotic symptoms from developing in the first place. It's pretty fascinating stuff when you dive into it.
Nicole Barrett76 Nicole Barrett76 Regular
515 messages
joined Sep 2009
#4640 ·
Laura Castillo6 said:My pharmacist actually told me the other day that I could bump my Omega-3 intake up to three capsules a day if I wanted to. Right now, I’m just sticking to one daily, mostly because I’ve been reading up on all those studies suggesting it can help prevent certain psychotic symptoms from developing in the first place. It's pretty fascinating stuff when you dive into it.

I understand completely. I used to take two 1000mg Omega-3 capsules myself, yet I found absolutely no relief from them. Is it any wonder that I felt a much more significant improvement once I started taking 200mg of Vitamin B complex twice a day?

The amounts of Vitamin B complex typically found in standard multivitamins are often laughably low, serving merely as a bare minimum to prevent things like beriberi rather than providing actual therapeutic value.

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