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Posts by placidorca16

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Direct Messages in Forum Help! ·
northernpilot2 said:Report posts like this using the report icon .

I’ve tried using that little exclamation point to report some guy who keeps hounding and insulting me in my DMs—multiple times, actually—but honestly, I haven't seen any results.😢 He's still at it. Is there actually a next step, or am I just shouting into the void?😕
Vestibular neuritis / balance issues in Health ·
It could be coming from your spine, but there are plenty of other possibilities—honestly. You should probably start with a full neurological workup just to be safe.
Data privacy in electronic health records (EHR) in Women's Health ·
Sophia Wells72 said:It’s not like we’re living in the Stone Age—actually, with this digital health rollout, we’d be the second or maybe third country in Europe to pull this off. We have this knack for rushing headlong into things just to impress the big shots in the EU. It was the same deal with Bologna, and—God forbid—it’ll be the same here: a flimsy system riddled with glitches. I’m just hoping they actually bother to vet this properly and give it the green light only after they patch up all these practical holes.

The fact that people's medical records are already sitting in the Department of Health and Human Services database without patients getting any actual guarantees regarding data protection pretty much tells you everything you need to know about this whole setup. To me, it screams unprofessionalism at this stage alone. Even if you question how reliable those old handwritten files are, at least they're easier to secure than stuff stored electronically.

And yeah, obviously, this is just another way to play nice with European bureaucracy—just like Bologna, which is already proving to be a step down from what we had before.
Data privacy in electronic health records (EHR) in Women's Health ·
melloworca6 said:I’m speaking strictly as a moderator here.
If you feel like any of my posts were offensive, just hit that little report button next to my comment. We have other mods who will review your report—and don't worry, the admins stay completely neutral.

Plus, there's a dedicated "Feedback and Suggestions" subforum down below—if you've got beef with how I moderate or anything else I write, feel free to take it there.

Oh, don't sweat it—I wasn't actually trying to report you. You didn't offend me. It was more of a... phenomenological observation, I guess.😉

Since we're critiquing each other—maybe take a look at your own tagged posts once in a while?☕ Other than that, I'm totally fine with us still hanging out, if you're cool with it.🙂 Honestly, I'm not one to hold a grudge.
Data privacy in electronic health records (EHR) in Women's Health ·
melloworca6 said:Look, I'm done. It’s clear talking to you is just a waste of breath.

I started this thread because the abortion discussion went totally off-topic—not because I wanted someone to baby me or be straight-up rude. Honestly, honey, you clearly misunderstood how an American forum works—if someone doesn't jump on your bandwagon, you just grab them by the collar and start nitpicking their posts until they fit your narrative. This isn't your first rodeo, either—I'm definitely not the only one you've pulled this stunt on. I'm out; feel free to keep shouting into the void. 👋

Fine, if that's your take. 🤷 Whatever helps you sleep at night.

I have no idea which of my sentences I supposedly "twisted."🤷 I quoted everything verbatim and added my own commentary. Is that against the rules now? You’re actually the one labeling my posts as "paranoid," "whiny," or "rude"—and since you're a moderator, you think that's okay. Unlike you, I haven't resorted to name-calling.

Sure, I defend my position—but I do it through the proper channels here. As far as I know, quoting a sentence or a paragraph is perfectly legal on this board, and everyone does it—you included. Apparently, I'm being "rude" simply because you can't force your opinion down my throat. It’s a shame you think we all need to think exactly the same way just to have a conversation.👋
Data privacy in electronic health records (EHR) in Women's Health ·
melloworca6 said:I asked you nicely—do you even have a clue how this whole system is actually going to look? You don't. So, how can you already be typing away about potential abuse when you haven't the slightest idea how it’ll function or who’s going to have access to what?

You’re basically asking questions and then immediately answering them yourself—so, what exactly am I supposed to add to that? If you've already decided what my response is going to be, I guess there isn't much left for me to say.

Any system can be rigged—so what, we’re just supposed to go out and hang ourselves?

Did I say that somewhere? Seriously—be a little fair and at least give me credit when you quote me.

Every single field has its share of hacks and its share of pros—medicine is no exception. Jumping straight to the assumption that healthcare workers are just out to exploit people feels a little paranoid, honestly.

That’s your take—and look, I’m not arguing with you there. But honestly, do you really think repeating that it's all just "paranoid" is actually going to get you anywhere?😕 You’re more than welcome to put your full faith in the system—I mean, you have that right. I also have the right to think the whole thing is a joke. So, what now? Are you actually trying to talk me out of my opinion—or just forcing me to change my mind?🤷

Sorry you had to deal with those types—but honestly, they’re just outliers. Most people in the field are actually decent and take their jobs seriously.

All it takes is one single person to threaten your rights or your status—if the system isn't actually looking out for you—and that’s plenty. No need for a crowd.

As far as I'm concerned, as long as people just stay quiet and don't report stuff like data leaks or medical malpractice—yeah, there are definitely those who won't call out a doctor for screwing them over because they’re terrified of being treated poorly if they ever need that hospital again—well, until then, this kind of nonsense is just going to keep happening.

And how exactly would you know that people "aren't reporting" things? — just curious.🤷 Look, you really should have figured that out on your own—honestly. Reporting it isn't nearly enough—not by a long shot.But seriously—it’s necessary. Prove it.Getting results from our legal system is—as I’ve already pointed out—a massive headache that can drag on forever. I'm not going to bore you by repeating myself.

If you actually thought starting a thread meant everyone would just nod along and feed your ego—well, you clearly missed the entire point of a public forum.
Data privacy in electronic health records (EHR) in Women's Health ·
melloworca6 said:Look, please tell me—do you actually have any idea how these digital health records are even going to work? You don't—and neither do I.

So why trigger all this panic when nobody has a clue what this whole system is even going to look like.

And yeah, this is my business—I’m not trying to make myself the center of attention here—but I have just as much right to an opinion as you do. Your thing is that you're freaking out and panicking for no reason. Honestly, I have no idea what you were trying to achieve by suggesting that if my employer finds out about my medical history, I'll be stuck in court for ten years before I can prove anything.
I know how this works; I'm not clueless. I know how to use the internet to find answers just like you. I've just decided not to let it get under my skin.

Look, I don't care if you interpret the bold text that way, but maybe your own posts could be taken the same way sometimes. Regardless, I don't owe you a breakdown of my logic—I'm just stating my view, same as you. I mentioned employers and the courts merely as an example of how slow the American legal system can be, not because I think you're "clueless," as you put it. I hope using examples isn't against the rules, especially when they're relevant to the topic. And, obviously, I have absolutely nothing against your decisions, nor did I say I did.

Whether you want to call my concerns about potential data misuse or privacy breaches "panic" is up to you—you're free to decide that it's something I simply don't care about.
Data privacy in electronic health records (EHR) in Women's Health ·
melloworca6 said:Why wouldn't our digital IDs work exactly like that?

Because in the USA—where corruption is basically a lifestyle choice—that’s just how things go.

placidorca16, honestly, it doesn't bother me—I don't even stress about this stuff. I've got way bigger fish to fry than worrying if someone spotted my ID card.

Well, that's your prerogative—you aren't the subject here anyway.
Data privacy in electronic health records (EHR) in Women's Health ·
melloworca6 said:It’s funny how everyone's jumping on the bandwagon regarding these digital IDs, yet nobody seems to care that a bunch of different people can peek at their bank accounts too.🙂

Not quite. I just said abuses are possible in other areas—but that's not what we're talking about here.😁

If you're willing to risk your own life in certain situations, who are we to judge? Everyone does what they think is best for them.

I couldn't agree more.

I'm not worried about those digital IDs because I know how the systems work at major banks—I trust these will function similarly. There will be a clear paper trail showing exactly who accessed my info and when. If anything leaks, we'll know precisely who was looking. Honestly, I'd go as far as to say it might actually make it easier to report anyone leaking data to the public.

In this country, it can take an entire decade to go from filing a complaint to getting a court ruling. If an employer refuses to hire you—say, because of a health issue—you're going to be waiting a long, long time.🙄
Data privacy in electronic health records (EHR) in Women's Health ·
Lisa Moore61 said:So what’s the actual plan here? Just sit around this forum, venting bitterness and bile, trashing doctors, acting all superior, and waiting for someone else to magically build us a functional legal system?
right

Hey, that might be your move—but everyone’s got their own way of doing things, and nobody’s obligated to shout it from the rooftops if they don't feel like it.
Data privacy in electronic health records (EHR) in Women's Health ·
Lisa Moore61 said:If people actually have reason to worry about medical records, we aren't talking about women getting routine procedures—it's the patients with early-stage Parkinson's, or those who've been in psychiatric wards, etc... because if the system leaks, I doubt they'll ever find jobs again...

So, you're basically admitting that digital records pose a massive risk to medical privacy.

if you're conscious enough to care about your own health, why does small-town gossip matter? if you chose an abortion, that's your call and you should stand by it—so why all this bitterness over who knows what?

That shouldn't be your concern. Everyone’s entitled to their own bitterness—just like everyone's entitled to their own opinion, I guess.

I'm not saying it's okay to violate doctor-patient confidentiality in any scenario, but it's interesting how no one with MS or myasthenia gravis is chiming in here—people whose lives could be totally derailed if their diagnosis leaked publicly.

And how exactly would you know who's showing up here and what they're dealing with?
Data privacy in electronic health records (EHR) in Women's Health ·
If you ask me, moving everything to digital health records is basically a direct assault on privacy and data security. I mean, sure, people can abuse systems in other industries too—but still.
Data privacy in electronic health records (EHR) in Women's Health ·
melloworca6 said:So, what counts as a penalty to you?

Under the law—usually fines, losing your license, or jail time if things get criminal—it all depends on how much damage that little slip-up actually caused. But personally? I don't think just talking too much is the real issue. To me, a doctor being negligent, careless, or just flat-out wrong with treatment is a way bigger deal.
Data privacy in electronic health records (EHR) in Women's Health ·
melloworca6 said:Let me ask you something. If you found out that your GP or OBGYN—doesn't matter which one for this—had leaked your medical info to someone else, and you knew for a fact it could only have happened because the doctor or a nurse just couldn't keep their mouth shut, would you report them?

I’d report it—but only if there was an actual chance of getting things sorted and seeing that gossip actually punished. If there wasn't a real shot at justice, I wouldn't bother wasting my time, energy, sanity, or money—which, unfortunately, is a common way to live in the US.
Data privacy in electronic health records (EHR) in Women's Health ·
melloworca6 said:Did anyone actually claim this wasn't happening? 🤷 We've all been shouting from the rooftops that this shouldn't be allowed—and that people need to report it.

Well, you can't complain about the heat when you're the one playing with matches.
Data privacy in electronic health records (EHR) in Women's Health ·
Lisa Moore61 said:They really are. Across every single field—even doctors are just people, after all. The old Romans had a saying about that...

True—it’s just that when they mess up, the fallout tends to be a lot more dramatic than most other professions.

That's why we need to fight back against them—constructively, obviously.

Yeah, except in this country, not everyone actually has equal access or even a fair shot at fighting back.

What matters more is how difficult—or even impossible—it can be to help a patient when their medical history isn't complete. That can end in tragedy.

Agreed. Though, not every single fact ends up being equally relevant.
Data privacy in electronic health records (EHR) in Women's Health ·
melloworca6 said:No, but maybe try to chill out with the poking.

Fine. Only thing is—if we’re being totally honest here—you were poking too.

Just realize that not everyone thinks the same way.

Well, I never actually thought that—not once. Not sure why you took it that way, though.
Data privacy in electronic health records (EHR) in Women's Health ·
Sophia Wells72 said:But let's be real—we're all talking about data privacy here, as if the law is actually being enforced yet. We don't even have a clue what the actual practice looks like, whether it'll even stick, or how it's going to function in the real world...

And that’s exactly my point. The potential for abuse is wide open.
Data privacy in electronic health records (EHR) in Women's Health ·
Lisa Moore61 said:As far as those articles go—unfortunately, they're wrong. God forbid they actually get something right, 😁 but that’s not really what we’re here to talk about.

It’s fine if you don't care what people think of you—really, it is—but this is a public forum, and as such, there are certain norms and standard ways of behaving.

Regarding the medical error part—since I have no clue what happened, I didn't even offer advice. I just suggested that whatever is eating at you, you should probably deal with it, because keeping it bottled up is obviously bad for your health.

Make up your mind: do you want to discuss this or not? If you do, provide the actual data needed for a decent conversation. If not, don't drag it out.

There is a massive difference between medical malpractice and a treatment complication. If you’ve already reached out to an investigative judge, the medical board, or a patient advocacy group, then I assume you've done your due diligence—and if it truly was malpractice, the person responsible will face the consequences.

One little side note—just food for thought, though I'm not looking for a debate or planning to engage with any insults or sink to the level of communication I've been reading on this thread for the last few pages.

No system is perfect. We expect our doctors to be highly educated, 100% infallible, and completely up-to-speed on every new discovery... yet we deny them access to scientific journals. Between healthcare reforms turning them into glorified administrators sweating over whether their paycheck gets docked for prescribing a necessary drug instead of just sticking to a list, our entire medical system is basically crumbling.

P.S. You aren't the only one who has dealt with tragedy. It might just be someone else's blessing to realize that while the doctors did everything they could, the system itself failed to provide adequate diagnostics and treatment, leaving the body to simply give out due to a series of unfortunate circumstances...

It's true that scientists and professors have access to research databases. They might not have every single one, but they have most of them.

Communication standards should apply to everyone equally.

I wasn't asking for a "suggestion," nor is that even the point here.

I have no intention of debating that here.

I am well aware of the distinction between medical malpractice and complications during treatment. In this case, the person responsible hasn't faced any consequences—they've actually been promoted.

A systemic failure is one thing; an individual error is another.

I never claimed to be the only one who has gone through a tragedy. In this specific instance, the doctors were nowhere near doing everything they could. That whole "case" was even all over the news.
Data privacy in electronic health records (EHR) in Women's Health ·
Lisa Moore61 said:I just can't—there’s actually such a thing as a code of ethics. You could try reaching out to the medical board and asking; I'm pretty sure you'll get some stats, though they probably won't hand over specific names and faces.
Or maybe try a patient advocacy group.

I already talked to the investigating judge, and apparently, those records don't exist.

Look, if you think patients are experts who can connect all the dots based on stuff they find online, then they should just go treat themselves.
It's total nonsense—to actually research a modern consensus, you need access to databases and journals that are basically locked away from regular people unless they want to drop $10-$40 per single article. And let's be real, most patients aren't doing that.

Anyone actually working in the scientific community has access to those, obviously.

Whether you have a reason to be bitter or not, just talk to her directly about what happened. Or take action. Venting here is just rude—it makes you look bad and, more importantly, it’s not helping the topic or the discussion at all.

Honestly? I couldn't care less what you or anyone else thinks of me. And regarding the medical error involving someone close to me—I wasn't asking for your advice. If things were as simple as you seem to think they are, we wouldn't be dealing with a fatal outcome.

If you aren't happy with your doctor, you can always switch providers. Patients have the right to choose.

That ship has sailed. The patient is dead.