Posts by Anonymous

Angela Wright said:She went under the knife because it was just a superficial part. But when the recurrence showed up right at the edge of the incision, they refused to operate again. They told us they simply don't do that kind of thing.😕 My guess is they passed on surgery because my mom turned down oncology treatments immediately after her first procedure, so once the recurrence hit, they suggested radiation and Temodal instead.

When exactly were they diagnosed, and what specific type and grade are we looking at?
My aunt isn't speaking very clearly right now 😢 Did the doctors mention if this might just be temporary?

Nicole Edwards76 said:I’m so sorry I haven't had the strength to reach out until now. Like Angela Wright mentioned, my mom passed away from Glioblastoma last week—exactly one year after her surgery.
Guys, even though we lost this fight, I truly, deeply hope that you all win yours. If anyone needs to talk or has questions, please feel free to message me.
Take care,

Nicole Edwards76, I am so incredibly sorry... Please take care of yourself and get some rest. Give yourself all the time you need to process everything. Sending love.😘 😘

brightgardener8 said:wickedangel, honestly, you might find things easier if you didn't have that info weighing on you. If it were me, I’d choose to forget I ever heard it. It just kind of casts a shadow over everything you try to do...
By the way, Amanda Williams64 and I are sisters, so you can imagine how complicated things get.
Sending love to everyone.

ohhh... wishing you all nothing but the best. May God help us all through this..😳

Angela Wright said:Go ahead, try to guess where my mom's tumor is located.🙄
Supposedly, that's where the "emotional center" is located.

The limbic system—on a medial section? They couldn't have operated on that area, right?😳

Grace Fowler said:The pain has let up a little today, and I can actually eat without it being a struggle. Honestly, seeing you all here means the world to me. Even if what I'm posting feels heavy sometimes, checking in here has become my daily therapy...
Sending love to everyone, Grace from the edge🙄

Hang in there, Grace. We're in this together. 🙂 Sending you so much love and strength! 😘

I swear, I keep having this exact same dream where I’m walking down a flight of stairs, suddenly miss a step, and then my whole body jerks awake...

Anonymous said:Quick question for anyone who's seen this already:
How many little ogres does Fiona end up having? 😍
I need to know for a giveaway I'm running. 😳

Three little ogre kids... Two boys and one girl...

Angela Wright said:😲 my mom fell ill at 55, too...
I actually wrote out a psychological profile of my mother once. I'm sharing it here because maybe some of you will see a connection. A few people dealing with Glioblastoma have already told me how much it "chilled them to the bone" to read her profile, because it felt like they were reading about their own loved ones.

She was always under intense pressure—finishing college, launching her own business... then back in '95, her father passed away—my grandfather. Then, just seven years ago, my dad—her only brother—died suddenly from a heart attack, and it took her years to truly recover from that hit. She threw herself back into work, always striving for more, always wanting to do better. She is incredibly driven, and honestly, seeing that kind of willpower and ambition gives me hope that she can fight this SS-gad too.
Thank you all so much. If it wasn't for this community, I don't know how I'd pull through this...

Amanda Williams64 said:Yeah, she had her surgery on April 11th. Let's just say Mom is doing okay right now—she’s handling the treatments well, which is really the most important thing at this stage. She still struggles with concentration, especially when it comes to reading. Sometimes she'll read the same paragraph over and over, and by the time she hits the end, she starts from the top again without even realizing she just finished it. That said, I think things are looking up slightly. She's still pretty disoriented, though; she'll head left when she means to go right, or vice versa. Also, one of the lasting effects of the illness is that half of her visual field is gone, so she can't see anything on her left side (even though the tumor was on the right, above her ear). It makes it hard for her to notice things on her left, especially parked cars—she keeps bumping into them with her side mirrors.😳
I just hope medical science advances enough to finally put an end to this monster once and for all. 🙏
Best,

I visited her two days after the surgery, and she just burst into tears (which isn't like her at all). Then, the very next day, she didn't even remember I had been there. She's out of the hospital now and doing better—she's up and walking around—but her speech is a bit weaker. I have so much going on with my college coursework, but I really want to go see her myself to see how she's holding up.😢 How long do the Temozolomide and radiation treatments usually last? And is it possible for her to come home between treatment sessions, or does she need to be under constant medical supervision?
And honestly, 😢 I hate even asking this... but how much time am I realistically going to have with her given this diagnosis and these treatments? 😢😢😢

Amanda Williams64 said:I’m really hoping Mom is the first and last person in our family to deal with this awful disease, especially since she’s only 55.
My grandfather had sarcoma a few years back—he’s still doing well and, God willing, will hit 85 this year.
Sending love to everyone!

My aunt is also 55. How is your mom holding up? Did she have surgery?

Angela Wright said:I'm still here.😳
My mom hasn't changed at all. Honestly, I’d give anything just to hear her speak one more time.
In my family, we’ve dealt with cancer before—my paternal grandfather passed away from melanoma at just 45, even though it's the kind of thing treated in an outpatient clinic nowadays. Then there was my maternal grandfather who passed at 74 from complications related to prostate cancer. He had heart issues too, and he wasn't exactly the type to stay on top of his medication.

What gives me some hope is thinking about how back in the '50s, people were dying from things that are totally curable now. Maybe we'll see the same thing happen with Glioblastoma. Research is moving toward developing a vaccine that could turn Glioblastoma into something manageable—more like a chronic condition you live with and just get boosters for when symptoms flare up. Unlike other cancers, Glioblastoma is actually a perfect candidate for this kind of approach because it doesn't spread to other organs, which usually makes treatment way more complicated.

But since she's at stage IV, 😢I was reading online that the outlook is pretty grim.😢 Even if they head in that direction with the research, I’m terrified that by the time a vaccine actually hits the market, it might be too late.😢

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Why hasn't she checked in yet, Angela Wright? I really hope her mom is doing better..
Has anyone else here dealt with a family case of Glioblastoma?

Wild Horde👍

No comment at all?

Honestly, there aren't any actual medical issues here, just aesthetic ones.
It doesn't sting, it doesn't ache, and there’s zero discharge or anything like that...
I just really hate the way it looks.

I'm thinking this happened because I was masturbating without using any lube—basically just going dry.
Since I'm uncircumcised, it's probably just due to some dry skin issues.

Maybe you could even try using a skin cream or moisturizer to help keep her skin flexible.