My dad actually had better results with Xeloda than any other medication he’s been on. What’s the specific diagnosis? I'm curious what you're looking for—feel free to shoot me a DM if you want to chat privately.
Thanks for the quick reply, Lano! Since I'm not exactly an expert on oncology or anything, I'm mostly just looking for real-world experiences from people who've been through it. My dad actually started his first dose of Xeloda yesterday—he's dealing with rectal cancer. Just really hoping everything goes smoothly...
Hey everyone fighting the good fight out there! I was wondering—has anyone here actually been on Xeloda? I'd love to hear what your experience has been like so far.
slypuma said:It’s me again... like I mentioned before, my mom has leiomyosarcoma. They removed the primary site—her uterus and ovaries—but there are spots on her lungs and they suspect the liver might be involved too. We know the prognosis isn't great, but you never stop hoping. Her doctor in San Francisco is recommending chemo, though from what I've read online, the results aren't always there. A family friend, who's a doctor in New York City, suggested we talk to Dr. Smith in San Francisco. Has anyone here dealt with him? I also found an email for a specialist in Germany at a sarcoma referral center—I'm thinking about sending the records over there. What I really need to know is: should we agree to this chemo, or push for a second opinion? I mean, what's the point of the suffering if it won't work?? Also, I'm thinking of getting some Berry concentrate for her—does that actually help with immunity, and where can I find it? Just any local pharmacy? Thanks.
I am so incredibly sorry to hear about those diagnoses. This type of tumor is extremely rare and aggressive—you guys are facing a very tight timeline. My advice? Get those consultations with the doctor in Germany immediately! Doctors in San Francisco just don't see these specific tumors often enough, so I wouldn't recommend wearing yourselves out there—the wait times alone are brutal. And honestly, when Angela Wright suggests getting a consultation in NYC, she's onto something. You can pick up some concentrated Berry juice at Whole Foods. Good luck!
Lily and silvercanyon7—I am so incredibly sorry for the loss of your loved ones. My heart goes out to you both! Let's just trust in God that they’re in a better place now, far away from all this earthly suffering.
I remember using Dex Neomycin drops back in the day—I used them for outer ear inflammation—but these days we’ve got Maxitrol, which actually has a slightly broader spectrum against microbes than the old Dex Neomycin did.
quietpuma19 said:Thanks, you really helped me out!
No problem at all! Honestly, though—the whole surgery thing depends entirely on what kind of cancer we're talking about and where it’s actually located. Some people bounce back super fast if it’s just a smaller tumor, but if it's a bigger one... man, that's a real grind. Feel free to shoot me a DM with the specifics.
Honestly, I’d much rather have what I earn through my own hard work than anything handed to me on a silver platter. If I were in a position to do it—man, I would love to be the one doing the giving. Amen! 🙂
quietpuma19 said:No, because everything here goes through the doctor—I’m actually thinking about calling them directly. I haven't gotten a straight answer as to why there's a delay or why I haven't been called in yet. They're claiming it's due to a strike, so I wanted to see if anyone on this forum has any actual info on whether people are really being put on hold for these kinds of surgeries... especially when every single day matters.
I know from firsthand experience that they don't make you wait for procedures like this—my surgeon told me exactly that just last month. There is simply no waiting! I honestly have no idea why they haven't reached out to you if this is an urgent situation. It doesn't make any sense to me.
quietpuma19 said:That’s what I thought too—but we aren't in New York City, and the surgery was supposed to happen at the end of October in NYC. So far, nobody has reached out. When I tried asking around, no one could actually give me a straight answer on when it might happen, and the clock is ticking. I'm wondering if anyone else is dealing with this kind of thing?
Ugh... seriously?! They really should have contacted you by now. Have you tried calling them to see what's going on?
casualharbor9 said:The thing is, I mostly just know people who have cancer but *don't* own a massive retail chain. They end up at the doctor only to be told they'll have to wait seven or eight months for a screening. By the time that window finally opens, they don't even need the screening anymore. Meanwhile, the guys running the big corporations? They can just buy out an entire diagnostic wing. They can buy the therapy that actually buys them more time.
At the end of the day, they still die in agony. Honestly, I’d much rather have a clear mind—something that lets you find a sense of peace even during the hardest times—than a mountain of cash used to chase a recovery that’s basically an illusion. You can try to buy time, but at the end, this body is just fragile packaging. But hey, you’ve got your perspective, and I respect that!🙂
Richard Wells said:But honestly, having cash definitely helps when it comes to staying healthy. When you have it, you can afford better food and live a little better. Plus, if things go sideways, it’s way easier to grab meds or pay for a procedure. You know, all that stuff.
I know plenty of people who would trade their entire retail empire in a heartbeat if they could just be free from cancer. Money isn't everything—believe me.
Nicholas Myers said:AS plus Enbrel (etanercept)—we're talking ankylosing spondylitis here. 🤷
That’s actually why I was asking—that acronym wasn't clear to me at all in the title. I know a little bit about this medication, though—I've seen a few patients being treated over at the rheumatology clinic... decent results so far, anyway, but honestly, it's such a small group of people I actually know who are on biologic Enbrel.
Money comes and goes. Honestly, I don't care about being loaded—as long as I can cover my bills and keep things running, I'm good. At the end of the day, my health is what actually matters most 🙂
slypuma said:God help us... I'm crossing my fingers that tomorrow's PET CT comes back clear and there's nothing to worry about. Does the report come out right away, or what?
It's happening as soon as tomorrow. Good luck with everything!
quietpuma19 said:Hi everyone! I could really use some help—this is regarding lung cancer. The appointment was supposed to be at the end of this month, but nothing has happened yet. Do you know if surgeries are still being performed despite the strike? It's at Dubrava Hospital.
Since malignant diseases are emergencies, surgeries are still moving forward regardless of the strike.
Chris Gonzalez3, have they given you any painkillers yet? That blood clotting process is going to take at least 5 to 7 days—there's just no way around it. You've got to power through, though I know it’s absolutely brutal. If the bleeding gets any heavier, don't wait—get straight back to your surgeon for a checkup.
I can't help but think about the late Snow White whenever someone brings up Vertex Pharmaceuticals—especially remembering her uphill battle with Medicare when they refused to cover her treatment costs at first... honestly, this whole law just makes me sick. 😢
It sounds like your tooth might just be sensitive to impact—I actually went through the exact same thing myself. Honestly, though? It’s probably worth getting an X-ray done just to rule everything out and give yourself some peace of mind.
Look, I’ve got a massive issue here—I can only handle traveling via the interstate or by train. Anything else? No chance at all! It’s even a struggle for me to go out on a sailboat because my motion sickness is just that bad 😢