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Posts by Angela Wright

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EEG Headset/Electrode Setup in Health ·
Arthur Moore8 said:Thanks for getting back to me. Any chance you could pull that show up for us if it's listed here?
http://www.us.realitytv.tv/TV/Guid...319#ajaxWindow

Here’s the link for that Little miracles episode:
http://www.us.realitytv.tv/TV/Guid...entId=30132263
If you have cable, keep an eye out because they rerun shows all the time. I noticed they list contact info, so it might be worth reaching out to them directly. Ask when that specific episode is scheduled to air again or if there's any way to get a recording of it.
They actually have an episode airing today at 11:10 AM and 6:15 PM, so there's a good shot it'll pop up again.🤷
Double Vision in Health ·
Amanda Parker13 said:She went in for an MRI of her head, and all they told her was that there's some kind of tumor present—one that apparently has absolutely nothing to do with her vision issues. 🙄
I honestly can't wrap my head around these doctors. It’s absolutely mind-boggling that after seeing all those specialists, not a single one of them could actually come up with a diagnosis. It's just unbelievable.

Did she get an MRI or a CT scan? There’s a massive difference between the two—it’s like trying to study a specimen through a high-powered microscope versus just squinting through a magnifying glass.
Go see Dr. Demarin over at Mercy Hospital. She’s an outstanding neurologist. Honestly, it feels like something is seriously wrong here, and we need to figure out exactly what it is as soon as possible. You’re going to have to be relentless and really lean on the medical staff to get results; if you don't push them, they won't lift a finger. Unfortunately, that's just how the system works.
I don’t know which clinic you went to for your checkup, but you have to be relentless. You need to keep pushing and hunting for answers in every corner possible until someone finally gives you a straight answer. Don't just take "we don't know" for an answer.
Then you've got those private clinics like Medicol or Sunce. Look, yeah, it’s going to cost you a pretty penny, but at least they actually give a damn about solving your problem.
Double Vision in Health ·
Amanda Parker13 said:Please help, and sorry if this topic has already been covered somewhere else...

Basically, my mom has been struggling with a constant issue for about a month or two now. She’s seeing double, and the only way she sees normally is by squinting one eye shut.
She’s gone through all sorts of tests—everything from visual field exams to seeing neurologists, ophthalmologists, and getting head CT scans...
By total coincidence, they found some kind of tumor on the CT scan, but they also told her that the tumor has absolutely nothing to do with her vision. They aren't going to touch it; they just want her to come back in a year for another CT to see if anything changes.
She’s had blood work done and went to god knows how many other appointments, but nobody can tell her what’s happening or find the actual cause of all this..

She’s feeling desperate and doesn't know what else to do because she can't function properly.. aside from the double vision, there aren't any other symptoms... she’s always dealt with headaches, but those were always just a result of stress.

Please, if you know of any specialist who could figure out what's causing these issues, or if you have any idea what might cause this, please help..

Thanks in advance

Go to the neurologist at Mayo Clinic, then take all the paperwork and imaging to Dr. Paladin or anyone on his neurosurgery team; everyone there is top-tier. It’s possible your mom has some kind of edema—basically swelling caused by the tumor growth—that’s putting pressure on the optic nerve. That's just my amateur guess, though. You need an expert radiologist to interpret the results. Getting an MR would be the best move.
Ed, we’ve already talked everything through, but I want to leave my mark here too—just a sincere expression of how much it hurts that things had to end this way.
😢
I’m standing right here with you and my sister.
EEG Headset/Electrode Setup in Health ·
Arthur Moore8 said:Has anyone here dealt with this before?
Since I’m dealing with epilepsy and a standard EEG isn't catching the source, they need to do a more detailed study. Basically, they drill into the skull to place electrodes directly near the brain to pinpoint exactly where the seizure activity is happening.
After that, they’ll decide if surgery is actually an option. It should all be happening soon at the Mayo Clinic. Now, it’s just up to me to decide if I’m okay with going through with it.
It's the brain we're talking about, so it feels like a huge deal and isn't exactly common. Since I don't personally know anyone who's been through this, I figured I'd ask if anyone here has any insight or experience?

Yesterday, I was watching a segment on reality TV about exactly what you're describing. It focused on a ten-year-old girl who was suffering from upwards of ten seizures a day. The procedure involves opening the skull first, placing electrodes directly onto the brain, and then threading them out through small holes in the skull—it looked like about twenty wires poking through. Then they stitch the scalp back up with temporary sutures. They monitor the patient for about 24 hours to identify the exact epicenter of the seizures. There was a huge concern that the activity might be centered in her speech area, which would have disqualified her from the surgery. I assume that's the case for any critical functional center. Fortunately, they determined that wasn't the case, and they operated the very next day. They removed the diodes, excised the problematic area, and then briefly repositioned the probes on the surface to confirm everything was stable. They stitched her up, and that was it. She stayed in recovery to ensure things stabilized, because epilepsy is tricky like that—sometimes another part of the brain can pick up the "habit" of seizing. The girl seems to be doing great; she hasn't had a seizure in a month.

Personally, if my seizures were that frequent, I’d jump at the chance.
Just like Scott Allen10 said, stop bothering her.
With a body that old, anything can happen—from a sharp verbal jab to just suddenly "shutting down." It’s almost certainly neurological. Brain changes, specifically aging and cell death, start kicking in around fifty and just steadily progress from there. There isn't much you can do about it; that's just how the human machine works.

Grandma has had a long, full life. Give her whatever time she has left—however much that may be—to live out her days with dignity, being cared for and surrounded by the peace and warmth of her family. That is what you can actually do, and it's what I truly recommend.
Grace Stewart6 said:God knows how they managed to define it."
Can you please tell me how they actually found and defined him? My dad is constantly running searches that lead absolutely nowhere.

There’s an entire case study detailed over on the association's forum.
Kenneth Mitchell2 said:Hey everyone...
Yesterday, I got hit with some terrible news. My father was diagnosed with lung cancer.
It's stage four. I don't know anything about the specific location or the exact type of carcinoma yet—I didn't really have the chance to properly process everything the doctor was saying.

The thing is, about two and a half years ago, he suffered a heart attack. After that, following nearly 40 years of smoking, he finally quit!
He needs three bypasses...
He was actually scheduled for surgery just now (December 17, 2008), but while they were running all the tests and getting him ready, they noticed something on his lungs... so he’s been in the hospital for about 7 or 8 days now, waiting on results that I honestly thought wouldn't be this bad...

Yesterday, he agreed to start chemotherapy immediately. He had his first round, he's having his second today, and he'll have his third tomorrow.
And I’m hoping—God willing—that he can come home right away.🙂

From what I can gather, the situation is extremely serious, but it isn't necessarily the end of the road quite yet.
The doctor mentioned there's a risk of complications because of his heart and vascular issues; at his age and condition, his system is going to struggle with the chemo,
so the big question is how many rounds he can actually handle...

Since my schedule is packed and I haven't had a moment to research everything—especially with the added stress of moving out of our current place since we just sold it—I’m asking anyone who has concrete information
to please post it here.
...I tried to read through the forums, but I just don't have the time right now.
I managed to skim about ten pages from the beginning and a few from the end, but that's about it.

Thanks in advance to everyone.

It's most likely small cell lung cancer. That's very common in former smokers. You can find a full breakdown of it on sites like WebMD.

I am so incredibly sorry to hear this.😢
slyrider11 said:Hi everyone.
I’m honestly just relieved to have stumbled upon this corner of the internet because I’ve been taking hit after hit for weeks now, and I’m running out of hope.
My mother has been diagnosed with end-stage stomach cancer. The tumor isn't just palpable; it's visibly massive. They attempted a bypass surgery so she could at least swallow some food and liquids, but the procedure was a failure because they found things were far worse than anticipated. Her entire abdominal cavity is compromised; the cancer has metastasized aggressively and is invasive—it’s like a fungal growth, much more sinister than anything else I can imagine.
The prognosis is grim. They’re telling us it’s stage four and there isn't much time left. People who know her through work at the hospital and understand the severity of the situation tell me my best bet is to pray she doesn't suffer too long. That's the most anyone can do when you're dealing with a situation where help arrived far too late.
She knows. She's fully aware of everything, and it’s impossible to lie to her face for long. She hasn't fully processed it yet, and neither have I, nor anyone else for that matter.
I sought a second opinion, but the specialists at the Mayo Clinic told me there’s nothing more they can do—I had been hoping they could just excise the tumor entirely—but according to the scans, it's just progressed too far.
I had actually made my peace with the idea of a bypass, hoping that once she regained some strength from chemo, we might squeeze out a few more years... and she was hoping for that, too. Then comes the shock. Even a bypass is off the table. The stomach tissue is like concrete; everything is overtaken. There isn't a millimeter of room left. There is no hope beyond a merciful end. It’s horrific.
She’s in the hospital now, incredibly weak because she hasn't been able to eat for months, and lately, she can't even keep down water. She’s faced dangerous dehydration several times and is constantly thirsty.
She’ll likely be coming home soon. I don't know if I have the strength to feed her—or myself—any more false hope, because this time, there's no foundation to build it on. And she's just too young...

Dear slyrider11, hope only begins once you accept reality. Help her find that acceptance by accepting it yourself; fight together and take whatever chances are left, no matter how slim. There is no other way. I know how devastatingly hard this is, but you both have to try to stay composed and rational.
Hang in there.
Herbalife thoughts? in Health ·
Kimberly Davis52 said:🤣🤣🤣

And that’s not even the best part😍!...if you just grease her palm with a little extra cash, she might just spill the tea on how to join that "joyful, singing, dancing, compassionate, and love-filled" Herbalife crew. 👍👍

"We're your new family! We'll handle all your problems, so just hand over every cent you have and trust us... just trust us..."👍👍👍
Herbalife thoughts? in Health ·
Adam White15 said:Hey there!
.......

Look, if you don't want to get banned for such a pathetic attempt at advertising, my advice is to just delete this post while you still have the chance.
Child is in pain in Health ·
Noah Hughes said:I just did a quick search for shingles online, and honestly, it doesn't look anything like what I'm dealing with (at least regarding the other symptoms)... Man, it’s clearly just some weird child... 🙂

Thanks! 😉

Look, don't go relying on those internet photos. Shingles can manifest from deep within the skin moving outward, and it doesn't always look like the textbook pictures you see online. God forbid, but you really should see a doctor. If it's just a child, it might be an inflamed one that needs treatment with an antibiotic ointment.
Child is in pain in Health ·
Noah Hughes said:I know this might sound a bit ridiculous, but it’s happened to me before, and since it feels so bizarre, I figured I'd ask.

I've got this subcutaneous child popping up on my back—nothing huge or unusual—but whenever I press on it, I get this sensation in my lower right abdomen. It's not an intense pain, per se, more like a nagging discomfort, and it seems to radiate about four inches diagonally toward my right shoulder.

I'm curious if there's actually a connection between the two.

This has happened a few times now; as far as I can recall, it's always been a child on my back paired with abdominal pain in different spots. Everyone thinks I'm just pulling their leg because it sounds so weird, but I think it's better to be safe than sorry.

Hmm, could be shingles. You should head to a doctor and make sure you mention that specific connection. If it is shingles, you really need to get on top of treatment immediately.
granitebadger21 said:Diana, I’m thinking of you constantly. You can do this—you’re my biggest inspiration. 😉

I have a question... can cervical cancer metastasize to the adrenal glands?

Technically, cancer can spread almost anywhere, but please don't drain yourself by spiraling over "what-ifs" before we even know what's actually happening mid-treatment.
Try to stay level-headed and stick to the facts for now.
Hugh
Best walkers for seniors? in Health ·
I caught a glimpse of her in the hospital ward a while back. It’s a good sign, honestly.👍
@Grace Stewart6/">@@Grace Stewart6
It’s most likely that "occult" tumor—if I recall the terminology correctly. There are certain types that are notoriously difficult to pin down. We actually dealt with a case over at the association's forum recently that we were lucky enough to finally identify properly.

@Grace Fowler/">@@Grace Fowler
Look, honey, the most important thing right now is that you're staying just as tough and determined as ever, and more importantly, there's a new option on the table. Life is nothing but constant fluctuations; even with your illness, you've hit a rough patch... but things will improve—they have to.

@casualpanther1/">@@casualpanther1
Serge, I find myself thinking about you guys quite often. I don't have your number anymore since it was saved on an old phone that's long since dead, otherwise I would have called you in a heartbeat. I really hope everything is still going well and that there hasn't been a recurrence. I’d love for you to post on the association's website; we desperately need more positive stories when it comes to dealing with glioblastoma.
Dan reached out. He'll be back home soon and will check in then. Honestly, I was starting to get really worried.
rapidseal49 said:At 6:30 this morning, we lost yet another young life...😢

My cousin, Peter (24), passed away following a battle with a brutal, aggressive illness....😢

Hang in there, everyone. Keep fighting......

rapidseal49, I am so incredibly sorry for your loss😢. Peter, rest easy in a place far more beautiful than this valley of tears
Dina, I just heard things took a turn for the worse and you ended up in the hospital😢. Please let us know how you’re doing as soon as you see this—or have your husband reach out. We are all incredibly worried about you. If there is anything at all you need, don't hesitate to ask.
We love you
Dealing with bronchitis? in Health ·
Look, chest pain when you take a deep breath isn't exactly a rare occurrence. It’s not necessarily an agonizing sensation, but more like this constant, nagging tension sitting right on the edge of actual pain.
Try picking up some Iceland moss syrup—you don't need a prescription from a doctor for that, and it actually works. You could also brew some sage tea, caramelize some sugar, pour the tea over it, and sip on that. Get yourself warm and try rubbing some Tiger Balm on your chest.