Posts by Angela Wright

Susan White5 said:So, I'm looking for some feedback here...
Breakfast: Green tea with honey, 2 tablespoons of oats and 1 tablespoon of flaxseeds mixed with Activia yogurt, a pear
Snack: Half a large apple
Lunch: Lentil, potato, and carrot stew, one slice of whole wheat bread
Snack: Decaf coffee with soy milk, 2 fiber Granola bars
Dinner: A small can of tuna, mixed salad (tomato, bell pepper, onion, sunflower and sesame seeds, olive oil, apple cider vinegar), half a slice of whole wheat bread

Breakfast: Looks fine, though I’d probably drink the green tea without honey about thirty minutes before eating, then save the honey for the oatmeal portion.

Lunch: It's decent, provided you aren't strictly focused on weight loss. If you are, you should probably cut back on the legumes and potatoes, and stick to raw carrots—cooking them actually bumps up their glycemic index.

Dinner: Totally solid, although you'd get much more nutritional bang for your buck eating fresh fish instead.

Overall, this seems to be working well for you.👍

coastalangler84 said:First off, I have to say this thread is fantastic. I stumbled upon it by accident, and honestly, it’s something I could have really used a few years back... 😢

It all boils down to what’s causing the swelling—whether it's "just" circulation issues or lymph drainage being blocked by some kind of growth...

There's a lot to weigh here. There is a specialized Pain Management Clinic at MD Anderson Cancer Center, and they can offer some genuinely smart advice. To give you a specific example, our experience with the Fentanyl patch was that it managed the pain effectively (with the occasional extra Percocet thrown in), and my mom stayed completely lucid, which we didn't expect from a medication that falls under the opioid category. She was even proactive about making sure the patch stayed on, marking the box herself to track how many hours had passed since she applied it 🙂 Obviously, you have to be careful with dosing: start with the lowest possible dose and stick strictly to the instructions regarding when to swap out the patches.

I am terrified of giving her anything that might cloud her mind, because right now, communicating with her is already such a struggle.
Her edema seems to be caused by a mix of Dexedrine and poor circulation due to her lack of mobility. Her blood pressure and heart rate are perfectly normal, so diuretics aren't an option (we tried them, the swelling dipped slightly then came right back, and her potassium and blood pressure both plummeted). Aspirin Protect has been the most helpful thing, helping us maintain a sort of baseline state. I've also considered bringing in a massage therapist for lymphatic drainage, but her doctor warned me against it, fearing it might dislodge a potential blood clot... but I keep thinking, what's the worst that could happen? At worst, she passes away, which is likely coming soon anyway, but at least the drainage might ease her suffering if it works. What do you all think about trying the drainage?😳

slymoose4 said:It looks like there’s a new cancer treatment that actually has a shot at shrinking tumors. It's called Dichloroacetate, chemically known as Cl2CHCOONa (sodium salt of dichloroacetic acid Cl2CHCOOH). Researchers over at Albany University in Canada have been looking into this for a while now, reporting that they've seen tumor reduction as high as 70% after just three weeks of use—and that’s using a tiny dose of about 10mg per kg of body weight (roughly 1 gram of the substance daily!). According to some unofficial websites run by the researchers, Michelakis and Dr. Archer, it’s highly probable that this won't affect two specific types: sarcomas and small cell lung cancers.

The drug itself isn't expensive—we're talking $1 to $2 a day. Since you can't patent the substance, Big Pharma has zero incentive to fund the research, but since the stuff is already proven to be safe from other studies, it won't be long before it starts being used clinically.
You can find out more here:

http://www.thedcasite.com/

Best,

😁 I've actually already posted about this before.😉

Olivia Lewis75 said:Yeah, it’s Myogelosis in the deltoid and trapezius muscles—those are just the Latin names for them. By the way, they actually sent me for an EEG and an EMG of my limbs (I mentioned an MRI earlier, so if anyone wants to call me out, I might have mixed up the terms).
Basically, I hope you've already seen a doctor. If that area around your neck and shoulders is killing you, or if you can't even handle a massage because the pain is too intense, you might be dealing with something similar. Good luck.

That’s brutal. Honestly, it feels like every other person who spends half their life sitting at a desk deals with this.😲 So, are you feeling any better now?

jadesailor14 said:but Mary, why do you keep picking fights with Chemist?

😕 What are you even talking about?

Actually, it doesn't matter—this whole situation has just become weird and I honestly have no idea where this is headed...

I told her privately what was bothering me about Chemist, and she decided to take it public...
hollowraven posted some arguments involving both Chemist and myself, so I responded...

Can we please just stick to the topic? If anyone has other questions, take them to private messages.

hollowraven said:I actually joined this forum specifically to follow the discussions on car seats and child safety, which is why I chose my handle. Looking at what Chemist wrote, it’s pretty obvious she knows her stuff—her username isn't just a random choice; it’s directly tied to her profession. Now, I’d love to take a swing at your little nickname, but since this sub-forum doesn't have any moderators, I’ll just practice some self-restraint and censor myself. 🙂

As for whether you’re going to trust me or Google when it comes to how you spell "corticosteroid," 😂 that's your call. But honestly, you won't have much of a choice; there isn't a single legitimate website on the entire internet that spells the word the way you do.

Chemist wasn't trying to humiliate you. You were the one being rude to her and everyone else who disagreed with you, especially since you didn't have a single shred of actual evidence to back up your stubbornness. And let me tell you again—it’s no shocker that you completely misinterpreted what your doctor told you, considering you couldn't even be bothered to learn how to correctly spell or pronounce the very term you're trying to argue about.

Fine, whatever. See ya.👋

Anonymous said:So, I finally called the Mayo Clinic and booked an appointment for Monday. I’m scheduled for a neurological exam $83, and then we'll see what else they need to do and what the damage to my wallet will be since I don't have coverage through them... the receptionists there are actually really sweet 😁

Finally, thank God something is actually happening. Just a heads up—if they end up sending you for a CT or an MRI, get ready to shell out an extra $1,000-$667. But hey, just take it one step at a time.😳

Sarah Ward84 said:For several years now, I've been dealing with changes in my finger joints. One of them has actually started swelling up and looking a bit crooked. My specialist told me it’s just osteoarthritis, mostly down to genetics—not rheumatoid arthritis, so there's nothing to really fear. As for Glucose, you can take it if you want, but it’s not mandatory; it won't hurt, but whether it actually helps is entirely up to the individual. Naturally, those little bumps are painful while they're growing (though I wouldn't say I'm passing out from the pain), but they are incredibly frustrating. You're supposed to watch your diet and avoid things like ice-cold water, though again, I'm just repeating what my doctor said: you can't stop it or cure it to make it go away.
Glucose isn't a corticosteroid; those are reserved for severe cases of rheumatoid arthritis.

I have issues in the joints right under my nails. You can't actually see anything on the surface, but if I happen to shake hands with someone who has a firm grip, the pain hits me so hard I nearly black out. It all started with this intense tingling in my hands every single morning. Did you deal with that tingling and pain too? And if so, how much time passed before those visible deformities started showing up?

hollowraven said:It sounds exactly like you—preferring to take my word for it despite having no clue what my actual profession is, other than being a chemist based on a username that clearly hints at science. Oh, sure, let's just assume your doctor was wrong... I don't even want to entertain the idea that someone working in the American healthcare system actually holds a medical degree yet believes corticosteroids can be bought over the counter (whereas Glucosamine sulfate is indeed available without a prescription). Why not just admit you misunderstood your doctor, or physical therapist, or whoever you were talking to, and call it a day?
By the way, if I were you, I’d double-check the spelling of that cortico... whatever on Google. Maybe I'm just a biologist and clearly don't know anything. 😉

What I'm doing here isn't "believing" me; it's called caricature and sarcasm. Just because someone has a username that alludes to a specific field doesn't mean it defines them. (Look at yours: judging by your handle, you're probably stuck in a 🤣 ).

I wrote down exactly what happened. If it hadn't gone down this way, you wouldn't be so confidently citing the ID number of a doctor who wasn't even named (even though she said to be there, which implies we're talking about some imaginary person), so I went ahead and looked her up myself... honestly, what's the issue now? The fact that Glucosamine sulfate is sold over the counter felt strange to me too given what I thought I knew, but since this isn't my field, I was waiting for one of those "experts"—aside from the chemist—to explain it without being condescending to someone who was simply mistaken.
Anyway, the matter is settled, and I see no reason to keep dragging this out...

hollowraven said:Unknown, maybe it's because you're busy picking fights over whether glucosamine is basically a corticosteroid or something...

Picking fights?👍 I wasn't arguing—I don't do that, it's just too much drama for me...

Anonymous said:I went to the ER and they told me my blood pressure was totally fine. They just gave me two shots in the butt and told me to take it easy for a few days... then they sent me straight home! I felt dizzy all day long and even a little bit the next morning. I'm feeling okay now, but honestly, I'm pretty worried about it!

😲 That is absolutely terrible. I learned a little trick along the way: if you're dealing with this over a weekend, head straight to a neurological emergency ward. You tell them you're feeling miserable—mention the dizziness, the nausea, the vomiting—and they’ll fast-track you to the neurologist on call and get you straight into a CT scan. It might feel a bit manipulative, but it's nothing compared to how they just brushed you off earlier.😳

Anonymous said:Hey everyone 👋 I’m new here and I’m honestly freaking out! A few days ago, I got hit with such intense dizziness that I ended up in the ER... they basically told me they couldn't figure out what was wrong and that I should follow up with my primary care doctor. So, I did, and he referred me to a neurologist... but the specialist can't see me for another month 😲
The thing is, I’m almost never sick—I have no idea where to turn to get this checked out sooner! Does anyone have any good advice? Maybe a recommendation for a private clinic or something similar? Help me out

So, what actually did them at the ER? Did they run a CT scan or something similar?

I know you can typically use supplemental insurance to snag one specialist visit a year. If I recall correctly, the monthly "subscription" cost sits right around $50 (for those budget-friendly plans), depending on which provider you use. Based on some personal and family experiences, I've come to realize that having that extra coverage isn't a bad move at all; we literally had every single test completed within a week, whereas waiting through public healthcare would have left us sitting around for over a month.

hollowraven said:I’m taking shots at you, not the meds. 🙂 It’s honestly no surprise you’re misinterpreting everything you read, especially since you couldn't even spell the name of the drug class you’re trying to lecture experts about. For the record, they aren't "kortikosteroEoids," they're corticosteroids. I guess Google isn't all it's cracked up to be...

🙄Forget Google, I've got you to rely on.
Besides, why should I care about perfect spelling? I'm hardly an expert, just like nobody else on this entire forum.

Oh, you really made my day. Knowing there are people as flawless as you still walking this earth makes it so much easier to breathe.🙏

hollowraven said:Wait, so it turns out we're actually talking about a cytotoxic drug? 😂

Double-check everything—see if they're corticosteroids or if we're actually dealing with corticosteroids. 😎

Look, the reason you’re sitting there smirking at me is because our doctors think they're the ultimate authority on everything, so they just throw terms around and then twist the interpretation to fit whatever they want.
It must be nice having such a perfect life where you don't have to deal with the daily grind of questioning their every word—even though your job has absolutely nothing to do with medicine, chemistry, or any other field for that matter. You can just stick to your own lane. There is a massive amount of misinformation being handed out by doctors all over this country, not to mention the sheer volume of fake news floating around regarding cytotoxic drugs, which you seem to love mocking with that condescending attitude of yours!

Olivia Lewis75 said:I dealt with something pretty similar a few years back. I completely lost feeling in two fingers on my left hand, and honestly, it terrified me. They sent me in for an MRI, and while the scans looked fine, it turned out those fatty deposits around my neck and shoulders were actually compressing a nerve, which is why the sensation vanished. They treated me with all sorts of electrical stimulation therapy, and eventually, thank God, the feeling came back. Since then, I haven't missed a single physical therapy or massage session. Seriously, go see a doctor immediately.

Maybe it's Myogelosis? I mean, how much damage can that actually cause?😲

My mom is dealing with massive swelling in her wrists and ankles—the hands and elbows are the absolute worst right now. We picked up some herbal massage oil from a local healer who swears it works almost instantly, so we're going to see if there's any truth to that.😳

Has anyone here dealt with this kind of edema? Does anyone know a truly effective way to get rid of it or at least dial it back?

For a while, whenever her hands started throbbing, we tried a makeshift remedy: tying a triangular bandana to the headboard above her bed and sliding her arm through it, hoping to manually drain some of that lymphatic fluid. It didn't really work; it just ended up making her elbow look like a giant bun.

Right now, she can't stand any pain except for this intense aching in her hands and feet, which honestly looks pretty severe.😢

brisknomad6 said:Angela Wright, where are you now that it’s time to apologize to the people you were so rude to?

including your little outburst just now 👎

You love to mock and sneer, but when it comes down to apologizing, you suddenly turn weak...

Really classy move, you’ve truly shown your true colors

By the way, Jose Miller3 was the one mentioning the UN because of me, so now you feel entitled to take that rudeness out on me.

I started a thread regarding Glucosamine sulfate where I apologized simply because I wanted to address the spread of misinformation (http://www.example.com/thread/217797) that I actually encountered on several occasions. I can't say I imagined any of this, because that would be a lie. In fact, it would be easier if I had just made it up, because right now I am deeply bothered by why and how this happened.

I don't believe I was being rude, and I honestly have no idea what you interpreted as mockery or sneering, because that isn't who I am. Perhaps the only thing you could view as "rude" is the fact that I didn't blindly trust some random person on an internet forum whose credentials I don't know; instead, I trusted someone I sat across from face-to-face in a clinic who gave me incorrect information—but I suppose that's just down to your own personal standards.

The only thing I feel is cheated 👎 , because once again, I fell for false information provided by "brilliant" doctors.

I reached out to the doctor who originally gave me that advice regarding corticosteroids and Glucosamine sulfate, and it turns out (even though I distinctly remember our conversations multiple times>🙄 ) that there was just a massive misunderstanding. She actually meant that Glucosamine sulfate can be taken alongside certain corticosteroids as part of a rheumatoid arthritis treatment plan. Anyway, the confusion is officially cleared up.🙏 🙏 🙏

My bad to anyone whose day I made miserable by being overly inquisitive.😛

Has anyone here actually used Glucosamine for arthritis or osteoarthritis? How much of a difference did it make for you?
The word from my physician is that since the issues are currently limited to my finger joints, I shouldn't expect much relief—though, given our recent mix-up, I’m starting to wonder if that’s another misunderstanding too.

Susan Scott5 said:I mean, honestly, everything just kind of swells up at once, you know? It’s like all the meat starts 🙄 bloating out, almost like it's expanding into a single massive, swollen lump

Sleeping Beauty😍 😁
Does that actually hurt?

brisknomad6 said:Look, it’s just chemistry😉

but you still haven't wrapped your head around that, have you?

Actually, I disagree🙄 . Not because of the science, but because she basically went on a rant after I pointed out that Glucosamine sulfate falls under the corticosteroid category. She didn't just take issue with that; she actually started attacking the idea that rheumatoid arthritis is treated with corticosteroids at all. So, I shared a link (http://www.mayoclinic.org/diseases-conditions/rheumatoid-arthritis/diagnosis-treatment/dlc-20353951) that explains the whole thing clearly, and instead of addressing the facts, she just played the victim, claiming I was being disrespectful to her patience and blah blah blah...

Honestly, nobody is an all-knowing walking encyclopedia... you learn stuff as long as you're breathing. That goes for everyone, just so we're clear.🙂