Betty Wood71 said:Unfortunately, here I am on your pages too.
I need help from the experienced people here regarding what to do—whether we should take my father somewhere out of state if there's any hope, or if this is just how it is.
My father (74 years old, he used to be incredibly vital with zero health issues) unexpectedly discovered and had surgery for colon cancer a year ago. It had liver metastases that couldn't be touched because they were so widespread.
A month after surgery, he started chemo with Avastin plus cytostatics via IV every 48 hours, and he actually handled it quite well without nausea; he even regained his lost weight and his blood work looked okay.
He finished 18 rounds of chemo, but then everything started spiraling downward. The chemo stopped working, and his markers shot back up to 1000 after being down to 70.
His liver started hurting, his CRP hit 170, and he ended up hospitalized on antibiotics. Since then, while the pain has lessened slightly, his feet have started swelling, he’s lost his mobility, and he’s struggling with a cough.
Right now, his blood work isn't in any condition to continue chemo, and Dr. Vrdoljak has changed his therapy, though perhaps he should have done that sooner.
We would take him somewhere else if there was any way to get help, but none of the doctors have ever mentioned such an option, so I see that Angela Wright understands this stuff pretty well and I wanted to ask for some help and advice.
Thanks.
It looks like fluid is building up in his abdomen because his liver is in bad shape.
Try sending his records somewhere for a second opinion, but since Dr. Vrdoljak is the one handling him, it's unlikely he'll backtrack. Right now, the priority is stabilizing him so he can actually tolerate a different line of treatment. Don't be discouraged; the starting position was already uphill due to those distant metastases, meaning it was an advanced stage from the jump. At this phase of the disease, treatment options are pretty limited everywhere, and they're more or less the same regardless of where you go.
Ask Dr. Vrdoljak if the K-Ras test for Erbitux has been done for him. If he has the wild-type tumor cells, then Erbitux is indicated. Erbitux is a smart choice, much like Avastin. I suspect he might still be able to move into a second or third line of treatment, though I can't say for sure.
You have to find a way to accept that at this stage, the goal shifts entirely to extending quality of life. Seek help with that mindset, because otherwise, you're just making things harder for him. I'm telling you this from experience. With the right targeted therapy, he can still get some good, quality time.