Posts by Angela Wright

slyseal28 said:It’s her, alright. But look, it isn't even about being angry anymore—it's more like this heavy sense of sadness. Everything was perfect while he was seeing her. Now that radiation is on the table, she just can't take him in. She’s actually pushing us to stay with her instead. She told us—and I am quoting her directly here—“Bioenergy consists of life rays, whereas radiation consists of death rays.” If we opt for the radiation, she says she can't guarantee anything for us. I even asked her, "Well, can you give us any guarantees if we stay with you and turn down the radiation?" And she couldn't even answer that.
I'm pissed at her because she flat-out rejects medicine, chemo, and radiation as cancer treatments. Personally, I could never make the call to reject modern medicine, let alone pressure my husband to do the same. You get what I'm saying? That's why I'm frustrated. Plus, she claims he’ll be radiating for the rest of his life, insists she’ll never be able to hold children again, and goes on about how if I sleep with him, I'll be irradiated too and end up sick herself. All that talk has really soured things for me. Aside from that, regarding all the support she provided during chemo, I have nothing bad to say. But I can't stand it when someone categorically denies reality. I mean, hasn't medical science advanced?😕
Maybe it used to be like she says, but nowadays, shouldn't things be a little better?

Yeah, I heard the exact same thing from her.👎
Let me tell you what I think about bioenergy and cancer:
In theory, maybe you could beat it with bioenergy, but in practice, it’s nearly impossible. We're talking about deep energetic imbalances here. To actually treat those, you'd need an insane number of continuous hours of treatment. It’s physically impossible for the practitioner to sustain, and it's equally impossible for the patient to endure—not to mention the massive financial drain.👎
In my opinion, she’s most successful with milder issues, especially autoimmune stuff, but cancer... 🙂
She had a patient with microcellular lung cancer (a 100-day diagnosis) where there was absolutely nothing else to do except go with radiation and chemo, yet she avoided them for those 100 days. The woman rejected conventional treatment and went to see her day and night; she even followed her all the way to India. In the end, that microcellular cancer just morphed into some other type of cancer—I can't remember exactly, but I recall her showing us before-and-after photos. The first image of the lungs looked like Swiss cheese, and after the sessions, there were only a few spots left. Eventually, the woman just got exhausted by the constant following and ran completely out of money. Her condition worsened, and even though she could have fixed everything right then with one surgery and radiation, she refused. She kept waiting to feel slightly better so she could go back to the treatments. Sadly, she passed away three years after the initial diagnosis—suffocated, specifically—and the pathology report didn't even find a single metastasis elsewhere in her body.

slyseal28 said:Regarding healers, we were seeing this energy worker who had been working with him from November through last week. We chose her primarily because we wanted some kind of supplemental support while he was undergoing chemotherapy. Throughout his entire chemo process—he’s finished six cycles now—his blood counts never once tanked, nausea only lasted about four days after treatment, and he didn't lose his appetite or anything like that.
Did she actually help us? Who knows...

The situation has shifted now that radiation is on the horizon. She won't be working with him during the radiation phase, which has left us feeling incredibly frustrated with her. Whether we have any right to be angry is something I can't say, but honestly, it just feels easier to stay mad.
Now I'm hunting for someone else—whether it's an energy healer, a holistic practitioner, a homeopath, a local folk healer, a shaman, or 😬—who can provide that extra layer of support during radiation, since that's going to hit his blood counts and overall system too.
Diet-wise, given how intense the chemo (Doxorubicin/Holoxan) is, we haven't gone full macrobiotic. We did cut out pork, red meat, and heavy fats. Instead, we've leaned heavily into fish (lots of it) and vegetables (though we've always eaten plenty of those anyway).
He's also drinking Noni juice.

If you're talking about that specific energy practitioner my mom used to see—that very well-known lady with the bun, originally from Cincinnati—then you really shouldn't be angry at her. Apparently, these practitioners find that their hands physically react, like wounds opening up, if they work on someone who has undergone radiation. In our case, she told us she has to wait at least three months after the final radiation session before she can work on a patient again, and even then, she can't use direct touch; she can only work from a distance. Naturally, those sessions aren't nearly as effective as the ones performed before radiation.
I have a friend who beat Hodgins a decade ago and finished her radiation just 97 days back. She didn't bother telling the practitioner she'd had radiation (she figured it didn't matter since it was so long ago) and went to her for a completely unrelated issue. But the moment the woman laid hands on her, she recoiled and said, "You've had radiation—why didn't you tell me?"

Alright folks, I'm checking in too!
I got absolutely wrecked this past Wednesday—ran a 102 fever, likely some allergy combo acting up alongside a sinus infection🙂. I've been taking Claritin, which is helping things settle down👍
Honestly, the world has basically stopped spinning here the last few days because I've been out of commission, though at least dad has stepped up a bit🙏. He called a doctor over by the Boardwalk to see what else we can do for Mom. My gut tells me they won't admit her, but I'm hoping they'll at least take her in for half a day and get some mannitol into her to stabilize things, because I'm convinced her edema is spiraling. Her lip has been twitching constantly for a week now and she can barely speak; she gets blocked up mid-sentence, trying to say something and then just stopping. That’s what scared me the most—not being able to tell me where it hurts or if it even hurts at all...😢

Charles Edwards, I've been meaning to reach out to you for a few days now but haven't had the chance; as soon as I catch my boyfriend, he's also a bit out of sorts right now.

As for Skype, sounds good! I just don't want to post my address publicly, otherwise I'll be terrorized by every random person from the Middle East, and I keep my profile under my real name because I use it to track down family overseas. Basically, I can send it to everyone via private message, just shoot me a request🙂

Rebecca Miller61 said:Thanks. I’ve been digging through some English articles too, but there isn't much out there.

It's the same story here—they prescribed me a regimen of 60-80 mg of prednisone daily, so let's hope it actually does the trick.

Anyway, Prof. Smith was the one who made the diagnosis, so I'm just praying they didn't miss the mark again. This is my third attempt at getting this right; the first two diagnoses were total misses.😠

I'm just hoping this isn't linked to any of those specific diseases mentioned. Honestly, I'd say there's maybe a 40-50% chance it's something else entirely.

I'd probably be feeling other symptoms by now, because aside from what's listed, I feel perfectly fine.

Look, if you ask me, the whole thing smells like an allergy that just happens to manifest on the skin looking like Pyoderma gangrenosum.🤔
I'm no doctor, but sometimes I have a pretty good gut feeling about this stuff... have you done any allergy testing yet?
In my experience, doctors love to jump straight to a complex diagnosis while completely ignoring the most trivial symptoms.
For months, they've been treating me with various eczema creams for my hands, claiming it's neurodermatitis, fungus, blah blah blah... It settles down for a bit, then flares right back up. Recently, my eyes started stinging, my palate got itchy, and my nose started running... I took some Claritin and all the symptoms vanished along with that hand eczema. Turns out, it was just an allergy that had been messing with me for months, even though they kept insisting it was neurodermatitis.👍

Rebecca Miller61 said:After endless testing, they finally gave me this diagnosis.

Does anyone actually know anything about this? There’s next to nothing online; apparently, it's some rare condition where they don't even pinpoint the actual cause. I have to be admitted to Salisbury Hospital in a week. 😕

I'm terrified there might be something much more sinister hiding underneath this. My immune system feels completely shot—I caught the flu for the first time in ten years, and I haven't been able to shake this cough since. A few weeks before all this started, I picked up several different vaccinations for an overseas trip, so I can't help but wonder if that played a role.

My skin gets itchy sometimes, and my eyes feel irritated too. To make matters worse, I've dropped 10 pounds over the last three months without trying at all. I couldn't even pull that off when I was hitting the gym regularly, and I've never been one for sudden weight fluctuations.

The whole situation just feels wrong.

I managed to track down this medical text about it for you:
http://www.reddit.com

neonranger32 said:So, there is this issue with the eyelid—it's also known as a chalazion, a cyst, or even a papilloma.
Can anyone please tell me more about this? Or maybe share a link? Honestly, anything helps, just quickly if possible. Thank you!😘

Here,
http://www.emedicinehealth.com/chala...ion%20Overview you could have easily just Googled this yourself; there's plenty of info out there.😉

slyseal28 said:How do you cure a gene?

Well, you just asked the million-dollar question.😁

The cold truth is that you can't just "fix" a bad gene once it's there. However, if we look at the long game, medical science is working toward a future where we can use IVF to modify an embryo's genetic makeup, hopefully scrubbing away those predispositions to various diseases before a child is even born.
Think of it this way: having a genetic predisposition isn't a guaranteed death sentence; it’s just a loaded gun. It doesn't mean you'll definitely get sick during your lifetime. What interests me far more than the genes themselves are the "triggers"—those environmental factors that act like a match to a fuse, igniting that faulty gene and kicking off abnormal cell division, which leads to things like cancer. Smoking, for instance, is one of those massive triggers, along with several other high-risk lifestyle choices. Of course, the baseline genetic predisposition still plays a heavy role in how easily that fuse is lit.
The whole genetic landscape is incredibly complex. For a bad gene to actually manifest as something like cancer, the odds skyrocket if you inherit that specific defect from both sides of the family tree. We're talking about a cumulative effect—if you have close relatives on both your mother's and father's side who suffered from the same issue, the statistical probability climbs significantly (and I suppose that pattern can stretch out to distant cousins too).
It's a grim reality that we are living witnesses—and often victims—of various harmful manipulations of the human body, including our reproductive cells. Radiation, for example, can wreck the very genetic structure held within an egg or sperm cell. When fertilization occurs involving one or both of these compromised cells, children can be born with degenerative issues. These might not always be glaringly obvious at birth, but these kids become carriers of a degraded genetic code that is inherently prone to further mutations in future generations.
Genetic disorders can also stem from much less "radical" causes. Quite often, even a relatively minor benign illness can damage reproductive cells enough to result in offspring with genetic defects.

On the flip side, exposure to negative radiation or the ingestion of free radicals—essentially toxins—can damage a cell so severely that it goes haywire and begins dividing uncontrollably in a malignant fashion, even if the gene itself wasn't initially broken.

Chemotherapy and radiation work by nuking malignant cells, essentially stopping them from dividing and spreading their mutations throughout the body. Regarding your question about relapses and the likelihood of them returning, we've touched on this here recently, and regardless of what the genetic profile looks like, my stance remains unchanged.

To put it bluntly and simply, that's the extent of what I know.🙂

Rachel Brooks63 said:Man, if people actually believed everything they saw on the news...😉

From what I can gather online, there’s zero mention of what this stuff actually costs. It’s highly likely they haven't even nailed down the final pricing for the US market or anywhere else yet.

Actually, look what I found:
http://www.cbsnews.com/stories/2007/...n2564600.shtml
It shows up on a few other sites too, all citing the same price point—about $2,900 for a monthly dose, which comes out to roughly $5333

Rachel Brooks63 said:Regarding the cost: it shouldn't be astronomical. 🙂 Tykerb is just a small molecule, which is a world away from something like Herceptin, a monoclonal antibody. Of course, that doesn't mean it'll be dirt cheap—at least not while the patent is still active—but it’s going to be way more accessible...

Now, CNN is reporting that the price per dose in the USA is around $16 $0.00.
Tonight, they're going to be discussing this on the "topic of the day" segment on CNN.

driftingcyclist303 said:🙂I don't need to "Google" anything to learn more about bulimia-anorexia; I think I have way more actual EXPERIENCE with this than all of you combined (it's been 15 years)!!!!!!

😲 Honestly, I’m just speechless. Reading statements like that is genuinely uncomfortable. 🙈

driftingcyclist303 said:🙏 Look, people, someone incredibly close to me is suffering from anorexia! What are the symptoms? It’s like this: she’s skinny, weighing only about 95 pounds at 5'7"! She vomits—she intentionally makes herself throw up twice a day; she eats a ton, then purges it all. Either she’s terrified of what she’s going to eat, or she overeats and then throws up everything just so she doesn't gain weight. On the flip side, people with bulimia find refuge in food and are usually overweight rather than thin! The diagnosis of anorexia was made by a psychiatrist, not by me!

Look, you clearly didn't read carefully, but I explained the parallel between bulimia-anorexia several times above.
To actually participate in a forum debate, you sometimes (mostly) need to read responses with a bit of comprehension, you know?🙄
The doctor gave your friend an accurate diagnosis. She has anorexia, which is driven, among other things, by bulimia. People with bulimia don't "find refuge" in food like you claimed; they binge, and then out of pure guilt and the fear of gaining weight, they stick their fingers down their throats to induce vomiting. This prevents the food from being digested—essentially stopping the body from absorbing that energy. Furthermore, vomiting triggers a hormone release in the brain that creates a sense of calm afterward, and it's scientifically proven that you can develop an addiction to that hormonal sensation. You see, the bulimia-anorexia issue is incredibly complex.
Do a little Googling; you'll find mountains of data. Educate yourself a bit.👍
Here are two links from Wikipedia:
http://en.wikipedia.org/wiki/Bulimia
http://en.wikipedia.org/wiki/Anorexia
Hopefully, these texts will clarify the terms for you. Just please, read them with some actual understanding.🙂

James Thompson22 said:Good morning, everyone!

I’m asking anyone who knows of an example or has heard anything regarding alternative cancer treatments to please reach out.

A friend was just diagnosed, and things aren't looking great. The family is ready to try absolutely everything. So, if you have any insight at all, please post it.

Your information might be the deciding factor here.

Thanks for the help!

There's already been plenty of discussion on this board about just about everything, including alternative options. Take a look, and definitely pay attention to what lepine went through.

driftingcyclist303 said:People who skip meals, force themselves to vomit, and starve themselves thin are suffering from anorexia, not bulimia!

That’s just wrong. They're dealing with bulimia, which then spirals into that dangerously emaciated state we call anorexia. You don't necessarily have to be a bulimic to develop anorexia, though in most cases, it's a "perfect storm" of both disorders hitting at once.

slyseal28 said:I just caught your post.
Well, duh. 👍 I actually run my own business where we build and maintain websites.
Just tell me what you need.

It seems to me that everyone battling cancer faces the exact same hurdles: a total lack of clear info regarding the disease itself, how to navigate treatment options, getting financial aid, legal help, the doctor-patient dynamic, and God knows what else—but honestly, my mind is blanking on the rest because I'm too busy celebrating, since I truly believe moves like this can actually spark real change.👍

Things are already starting to move thanks to Charles Edwards8, but I can’t help but wonder why people aren't doing their actual jobs when they’re being paid a fortune to do so! Why is it that you, me, and all these sick people have to step up and scramble for cash, while they sit on mountains of money hosting endless symposiums, posing like big-shot celebrities fighting cancer with funds that should be used to print basic brochures—stuff that should be handed to patients the second they get a diagnosis?!!
I am absolutely livid!
I can't believe it took me this long to realize how much they're out there (it just shows how much they try to control the narrative)! It reminds me of those times after school when I'd go door-to-door doing community service, and how many times people would just slam the door in my face or treat me like some kind of beggar... ugh!😠

I'm dying to see what they come back with; I'll paste their response here as soon as it hits my inbox.

Get this—I just had mail sent right back to me from their address for the second time now. That's just how they operate.👍 👍 👍 👍 .
The address is: morana.simat@hlpr.hr

I sent them an email today looking something like this:

To whom it may concern,
Back in July 2005, my mother was diagnosed with glioblastoma. Since that day, not once has anyone pointed us toward psychological support or any other form of assistance beyond basic medical treatment.
Earlier this year, I took it upon myself to launch the "Support for Families Dealing with Malignant and Other Serious Illnesses" forum where I found an incredible response from families and individuals trapped in the exact same nightmare.
Please explain to me why you—an organization that should be highly relevant here—are nowhere to be found in any of these stories. Why are people left stumbling in the dark, forced to hunt for the very help that you are supposed to provide? Why is there still no centralized database dedicated to patients? We need a single hub where a patient and their family can access everything they need in one place: expert advice and recommendations ranging from surgeons, oncologists, and internists to radiologists, psychologists, psychiatrists, physiatrists, physiotherapists, nutritionists, and even holistic specialists. We need answers to critical questions like: What should we eat during treatment? How do we talk to our children about this? What exactly is chemotherapy, what are the different types, and how does it work? How should we manage during radiation therapy? What are the guidelines for physical activity and physiatry? And what are the stages of grief and behavioral patterns we should expect?
Where is the money going—the money I spent knocking on doors in apartment buildings to raise funds for your organization when I was just a schoolgirl?! Why hasn't any of that benefited my mother today?
Why must critically ill people at the end of their rope have to start their own movements and form their own nonprofits just to help one another through things that fall squarely within your area of expertise, yet there isn't a single sign of you?
I demand an answer.
Sincerely,

Here is their website:

I am dying to see how they respond 🙄, and I'll paste it here as soon as I get it. 😎

Kimberly Scott95 said:I noticed a white patch on my right tonsil. It's slightly red. I was out on sick leave two weeks ago because of a sore throat. Could this just be some leftover residue from that infection? It doesn't actually hurt right now.😕

Ugh, sounds like the infection is still lingering.😕
Go back to the doctor. Did they put you on antibiotics the first time?

mellowgull46 said:I felt the same way, but it makes me wonder why the press was so hesitant to just state plainly that the girl died from bulimia-anorexia.
To me, you wouldn't even need to mention eating disorders to get a headline; "GIRL DIES AFTER DRINKING RED BULL VODKA" provides more than enough sensationalism on its own.

Why do you think young people are collapsing and dying like this?

I would absolutely lose my mind if someone just dropped dead right in front of me.

In the last year alone, I’ve personally known of two cases. There was this 27-year-old guy—he sat down for a perfectly normal lunch and just collapsed right over his empty plate. His family actually started laughing at first, thinking he was just being dramatic. By the time they realized he was actually in trouble and tried to resuscitate him, it was already too late. The autopsy revealed a congenital heart defect he'd had since childhood, but nobody ever caught it. He was in the military, stayed active, seemed totally fine... then just suddenly gone.
Then there was another guy, but he actually knew about his condition and was managing it. Doctors told him he could live a full life as long as he ate healthy and didn't stress too much... yet the result was identical. He finished lunch, slumped over, and never got back up.
Life is unpredictable, plain and simple. People die, whether they're old or young, one way or another. It's just a harsh reality. All we can really do is try to live as healthily as possible and stay on top of our medical checkups so we can hopefully make it to old age before death catches up with us.

mellowgull46 said:What’s everyone’s take on this article?

http://www.nytimes.com/news/health/bulimia-anorexia_article_link

Do you guys actually think a girl could die from bulimia? It seems impossible that it would kill someone directly, right?

It isn't necessarily bulimia itself that kills you, but rather the physical damage caused by things like the constant strain of purging. You can absolutely wreck your heart muscle that way.
But honestly, who knows what really happened here? I suspect this is more about media sensationalism—since she struggled with bulimia, the news outlets find it much easier and more "clickable" to pin the death on the eating disorder. Plenty of young people today drop dead out of nowhere, only for an autopsy to reveal some underlying congenital heart defect or other hidden condition they never knew they had.

Daniel Bennett76 said:Great post and thanks for such a detailed breakdown. 🙏
My mom used to say something similar... she mentioned that the water color isn't always the same once you're finished.
If you don't mind me asking, how much did that device set you back?

It was about $450 through eBay. There's this specific coil you drop right into the center of the tub during the electrolysis process, and you're supposed to swap it out roughly every thirty sessions. A fresh one runs about $25.