Posts by Chris Morgan67

For me, the turning point was at a salad bar in downtown Chicago.
To be clear, about 90% of my body was covered. My legs were a mess of yellow, weeping sores with crusts nearly half an inch thick.

It took a month of intensive therapy using Belosalic and phototherapy.

At that specific moment, corticosteroids were quite literally my lifeline.

Grace Green6 said:Reading that description... I know exactly what they mean. I used a similar petroleum-based herbal ointment from a local herbalist back home...

The truth is, it works, but only while you're actually using it. It cleared everything up for me, but once I stopped applying it, everything came rushing back within a week...

The issue with these ointments is that they leave black stains on everything and smell absolutely terrible. It’s just not practical for me; I can't exactly walk around with black elbows... plus, that stuff from Michael Ramos3 is way too expensive. This herbal version is about a third of the price...

Maybe it will work for all of you, though. I truly hope so...

For those living in the States, I can pass along a number if you want to pick some up locally...

Looking at the description of that balm, it sounds like something I've tried before...
A family friend has been making her own version of this for years, keeping the recipe close...

It's dark brown, quite thick, and has that heavy scent of petroleum, herbs, and grease. It stained my clothes and the smell is quite intense...

Robert Clark2 said:I was diagnosed with generalized psoriasis at 21. I’m 58 now, which means I've been living with this for exactly 37 years.
If there were actually a cure, I surely would have found it by now, but unfortunately, neither I nor anyone else suffering from it has been cured...
Over all this time, I've tried everything under the sun—from pharmaceutical creams and ointments to every kind of alternative herbal remedy and healer you can imagine. Nothing worked. On my doctor's advice, I now just use neutral moisturizers to make life a little easier for myself and those around me.
In these 37 years of pure misery, I've spent a small fortune—not that I regret it—if only I had seen some actual progress.
My skin has become so thin, it's practically the thickness of cigarette paper.
I've handled my illness quite well, to say the least.
On top of the standard psoriasis, I developed erythrodermic psoriasis and psoriatic arthritis (who knows what else is coming), but if God is watching, even this feels like too much...
As someone dealing with this, I am a regular attendee at the Adriatic dermatology meeting, where the most famous names in dermatology gather from Athens, Istanbul, New York City, Montevideo, Vienna, Prague, and Munich. If they can't help me, I don't know who can...
To put it simply, psoriasis is a chronic, incurable disease.
In an effort to make life manageable, I haven't given up; I don't let it define me, because as I always say, hope for yourself as much as you hope for others.
I ask the sincere members of this Reddit community not to hold my occasional posts or my reactions regarding cures against me.
For now, I won't presume to write anything further on the topic of psoriasis unless someone specifically asks—which I doubt will happen, though one never knows. I'll be content just following this forum.
If anyone is absolutely certain they can cure me, please announce it publicly. In return, I'll sign over my house on the coast of the Mediterranean Sea, but first, show me proof that you've actually cured someone...
Kind regards.

Robert Clark2, please don't leave the forum!😕
I truly enjoy reading your posts; it's clear you have a very healthy perspective on your condition.

Because accepting this reality isn't the same as giving up. It's only through acceptance that the real fight begins...👍

Gregory Mendoza3 said:It really doesn't matter what was said or who said it...

I have no intention of pointing fingers or passing judgment...

My only goal was to highlight certain directions our discussions tend to take. I just don't want people wasting their energy, nerves, or time on endless explanations and clarifications...

I know that helps very little myself... but as for making peace with it, not a chance 😠 I am simply not the type of person to ever surrender on certain matters in life...

Ultimately, the only true healer is God... though if it is His will for you to be cured, you would be healed in an instant. You go to bed at night and wake up completely healthy in the morning...

Or, if it is His will, you are treated with medicine, ointments, or whatever else you discover—all according to His will, found and created by His will. In any case, if healing occurs, it is His will...

The hardest part is simply deserving His mercy. Once you earn it and He allows you to draw near, the illness no longer feels like anything at all...

I realize this forum isn't meant for these kinds of topics, but that is simply the reality...

Oh, please, it's not like that. Look, I get that you're a believer and that's your perspective, but try to show a little respect for atheists and agnostics...🙄

Linda Chase81 said:It’s been wonderful hearing so many success stories here from people who have truly learned their skin and managed to keep their psoriasis under control using simple oils and ointments—everything from olive oil to basic Vaseline. Personally, I think that's a much smarter approach than messing around with those pharmacological sludges that don't even work anyway...☕

I agree, and I have to add that I really enjoy reading your posts; they feel very grounded and optimistic...👍

Greetings to you too, Elizabeth Lee49!

Wishing everyone a weekend free from flares and redness...😍

It strikes me as suspicious that they don't list the ingredients on the box.

I'm certainly not inclined to use anything without knowing exactly what's in it...

Just me here😬

I gave myself a good scrub today, and honestly, I feel much better after a shower and some oil application😍.

And Gabi, don't get so worked up about your husband. Truly quality people aren't shallow... you're a wonderful person whether those red spots are there or not... and I'm sure your man knows that too🙂.

I just wanted to reiterate how absolutely critical skin hydration is for those of us dealing with psoriasis...

It might sound incredibly basic, but applying oil immediately after showering while my skin is still damp was a complete game-changer for me.🙏
Such a small adjustment, yet it truly improved my quality of life.

Someone previously asked about carrot seed oil—it’s an excellent choice. I highly recommend it for skin care, though I wouldn't suggest heading out into the sun with it on, as it can make your skin photosensitive and lead to spots...

Maria Doyle27 said:That highlighted word is the key here; you can't draw conclusions about an entire population based on the experience of just one person—at least not according to any statistical rulebook. I personally don't know anyone who reacted that way to Naftalan Spa treatments, yet hundreds of people visit Naftalan Spa every year and keep coming back...

I was simply pointing out that things can take a turn for the worse. Sure, one in a thousand or even one in ten thousand might seem like negligible odds, but those numbers feel much different when you're the one experiencing the setback...

Maria Doyle27 said:If he was expecting a Hilton, thank God he got out of there. My own experiences, along with those of several people I know, have been nothing but positive, which is exactly why I decided to go...

He was expecting the Hilton...😬

Maria Doyle27 said:I have my doubts that the alternative is any better—corticosteroids seem to carry more side effects than they actually resolve for psoriasis symptoms... It honestly makes me feel ill reading about everything Diprosalic, Elocom, and Psorcutan can trigger... I haven't used them in a year. If it comes down to it, then it's a last resort—only the most severe cases go for Naftalan Spa therapy, but I’m starting my three-week course soon. I'll be sure to report back on the results and any side effects...🙂

You don't need to lecture me on corticosteroid side effects; I've already dealt with those...
The ones being mentioned aren't even dangerous... Belosalic and Beloderm are just junk...
Eloc is actually much gentler, and if you ask me, please don't trash talk Psorcutan... for me, it’s still the best treatment for psoriasis out there...🙏 🙏

Maria Doyle27 said:Petroleum is actually well-known for its beneficial effects on skin issues like psoriasis, neurodermatitis, and other conditions. In fact, an entire spa facility, the Naftalan Spa, bases its whole therapy regimen on petroleum, oils, and creams. My father sought treatment there once, and he mentioned that people even travel all the way from Russia to visit the Naftalan Spa. Naturally, you see results fairly quickly after starting, though remission really depends on how your body reacts...

Just a small correction: petroleum doesn't work for every single person dealing with psoriasis.👎 I know someone who had a terrible reaction to the Naftalan Spa and ended up with their psoriasis spreading even worse than before...

An older family friend also fled the Naftalan Spa after just a few days; he said the facilities and cleanliness were a total disaster...

Petroleum can be quite aggressive on the skin and tends to dry it out. It’s certainly not a miracle cure, and my doctor wouldn't even dream of recommending it to me right now...

I'm glad if the Naftalan Spa helped some people, but it's important to realize this is a heavy-duty therapy that can have side effects and unpredictable results...😉

As for my social life, all my close friends are aware of my psoriasis. I don't wear skirts because they aren't my style, but I head to the beach without any issues... I suspect the support from my partner helped quite a bit... 🙂

Gregory Mendoza3 said:The most frustrating part is that I just can't wrap my head around why everything I've tried—from various therapies to macrobiotic dieting based on blood type and lifestyle changes—isn't yielding any results. Instead, things seem to be getting worse by the day... nothing makes sense...😠

Hey... I'm truly sorry to see this condition hitting you so hard. It might sound a bit cliché, but you really have to find a way to stay calm through it all. How should I put this? You need to learn to accept the situation internally and just make peace with it...

I found myself in a similar situation once, with most of my body covered... Now, you'll likely need to look into phototherapy and specific creams to calm the skin down before you can move forward peacefully...

Don't bother complaining to us; we're all stuck in the same mess...😁

Linda Chase81 said:The sooner we accept that there is no cure, the faster we can reach remission...☕

Exactly. I felt a hundred times better once I finally accepted the reality and actually started looking into the condition properly.👍

nimbledriver81 said:🙏 🙏 🙏 My goodness! If that were true, why do some people get cancer, others get psoriasis, and some get something else entirely? And how would you even explain your theory to non-believers? I know, I know, God is on our side... 🙄

Oh, darling😘
Does someone close to you have psoriasis? How are they managing?...

.

@ Kimberly Kim67—that isn't just my opinion; it’s simply the reality of the situation. We still don't actually know what triggers psoriasis, plain and simple.
but perhaps one day we will find out...🙂

@Michael Ramos3—exactly. We were just discussing Vipsogal a few pages back; it's a subpar medication loaded with corticosteroids that requires extreme caution.
In short, that Dr. Višnjić is a complete fraud, telling people this cream is mild enough for daily use...😠 😠
honestly, it's disgraceful.

darkbison18 said:I only stepped in to tell that certain individual that every psoriasis patient inevitably returns for medication, whether it’s the same kind or something new. Actually, a "lady" attacked me about five years ago over this. I bought books by dermatologist Bogdan Zrnic and some psychiatry texts, so things became much clearer to me two years ago. I even visited Dr. Zrnic in person, and besides the standard treatment, he recommended the therapeutic baths at KULASI near Prnjavor. It's one of only two such spas in all of Europe for people like us. Since I'm from B. Luka, it was quite convenient. It works wonders. By a stroke of luck, while working in Afghanistan for NATO last winter, a Dutch doctor prescribed me Triamcinolone acetonide. My skin was a patchwork, but it was cut in half within seven days. After two months of therapy, almost everything cleared up. I went on vacation and felt fine. Now, having separated from my family again (in Germany), Mother Nature has gifted me with leopard spots once more, just to ruin my summer fun at the beach and pool...

Thanks for the info! That medicine is a corticosteroid... so it doesn't appeal to me much.🙂

Every so often, different people show up here peddling their own special ointments and creams.

Let's be clear: for years now, I haven't treated my skin with prescription creams, but rather with natural, neutral products like calendula salve, honey, oils, and so on.

My condition has improved significantly, but anyone claiming to have cured psoriasis is lying. As it stands, this is an INCURABLE CHRONIC DISEASE.
And there are so many scammers out there selling pure snake oil to unfortunate patients, profiting off of other people's misery.😠

A question...
Where can I find some wild ivy?

Michael Ramos3 said:I'm not quite sure if I should post my email address here, or if that goes against the rules of our little community...

Just send it via private message to the gentleman in question...🙂

Don't post it publicly unless you want your inbox flooded with spam

Where has the internet even gone? Now you have kids looking for advice on how to try drugs for the first time

Oh, how times have changed...

@Grace Green6/">@@Grace Green6 🙂

Regarding my diet, I maintain regular eating and drinking habits; I find it quite jarring for the system when you suddenly reintroduce a food after months of avoidance.
I consume alcohol in moderation, smoke, and drink plenty of coffee 😬

I try to live a balanced life without any unnecessary restrictions 🙂